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Readers Respond: Which Symptom Led to Your MS Diagnosis?

Responses: 290

By

Updated December 04, 2008

PPMS?

PPMS Symptoms: 10/29/10 In February of 1970 I separated from Army in Korea, had symptoms of “arthritis” and what I called “sugar shakes” and Army MD’s told me to go to the VA. The bottoms of my feet were numb and I assumed it was the cold weather in Korea. VA exam was thorough but told me I didn’t have arthritis or any form of diabetes but was awarded a disability rating of 10% Service Connected Disability for an injury in Basic Training. I had no reflexes in my legs or arms. I appealed the VA denial but didn’t hear from them on that appeal. I started having numbness in my feet and hands, episodes of vertigo flying and driving, failed my FAA flight physical in 1974, appealed, got it reinstated but was limited to daylight hours. An MD friend Rx Nicobid and Antivert that helped me drive without having to stop on the roadside and get over panic attacks before driving to or from work. I had bizarre visual Sx of bright and dark scotomas, flashing lights of yellow or orange that temp
—Guest billw_willy

leighanna98@yahoo.com

i woke upalmost nine month on 2;14 ;2010 with my left leg sleeping is what i thought,after not having feeling or controll over my leg and the nubniss from my butt down, scared the hell out me , i could feel that i had to pee so i wet my self alot, it felt like something was stuffed in my ears and i could not hear everything that everybody was ssaying, so my boyfriend takes me to the er and the dr there claims it was the seadict nerver with no pain or anything but thats whay he came up with, monday morg i called my doctors and my friend takes me to see her and she is standing there crying when watching me walk i left my doctors office with going to have an mri and a walker ,and all i wanted was my leg back my foot to stop tangling like it was sleeping still to this day i wish for that,so i went for the mri, they called wenting me to come in for one with dye so that after noon i went for another one.well the call come in when i as downstairs alone with my three year old ,
—Guest lisa

Numb toes

About a year ago I developed weird sensation in my big toes, almost numb but not quite, and they hurt when I walked. Then a few months later I had a "turn" where one whole side of my body had reduced sensation, tingling etc from my toes to the top of my head, including half my tongue. I saw spots at the time, ED said it was a panic attack and all in my head. Then a few months ago my big toes both got completely numb on one side so the GP suspected peripheral neuropathy and sent me to a neurologist. By the time the appointment was due the toe numbness had spread to the sides of my feet and patches of skin elsewhere on my legs, hands, chest and face felt weird. I could feel touch, but as if the outer layer of skin was covered in latex. I have also in the past month started forgetting words and have a total inability to concentrate on anything unless I have perfect silence and only one thing requiring my attention. I was sent for an MRI which showed over a dozen lesions. I am 37.
—Guest Rebecca

what is wrong with me?

I, am SSOOO frustrated. Today I got a call saying my 2 MRI came make saying no MS (first one also neg- except when neuro looked at it with me, he said he thought he saw some,aandI am not a neuro, but I also saw what he pointed out. It sounds crazy, but I was upset that they told me no MS. I have had many symptoms for years. And I know im not crazy...healthy people don't feel this way. Numbness, tingling, in right side,my shoulder went numb for 6 weeks, migranes, my head is foggy, and I can't remember thing, I am always bumping into things, and I am hot all the time. I don't know what to do. My neuros nurse just called with the mri results, and now im not scheduled to see him for 4 months....and the nurse told me my neuro is leaving the practice before then...so I wont even see that particular dr. Again. Do I see another neuro? Go back to my gen doc, or are people just going to think im a hypocondriac? I know im not.and I've been seeing dr. For all these sypmtoms for about 5/6 years
—Guest barbclay

what is wrong with me?

I, am SSOOO frustrated. Today I got a call saying my 2 MRI came make saying no MS (first one also neg- except when neuro looked at it with me, he said he thought he saw some,aandI am not a neuro, but I also saw what he pointed out. It sounds crazy, but I was upset that they told me no MS. I have had many symptoms for years. And I know im not crazy...healthy people don't feel this way. Numbness, tingling, in right side,my shoulder went numb for 6 weeks, migranes, my head is foggy, and I can't remember thing, I am always bumping into things, and I am hot all the time. I don't know what to do. My neuros nurse just called with the mri results, and now im not scheduled to see him for 4 months....and the nurse told me my neuro is leaving the practice before then...so I wont even see that particular dr. Again. Do I see another neuro? Go back to my gen doc, or are people just going to think im a hypocondriac? I know im not.and I've been seeing dr. For all these sypmtoms for about 5/6 years
—Guest barbclay

cant find out ms or not

59 year old male 18 years ago both hands hurt at my finger tips really bad,check for ms neg. mri neg ,no spinal tap. went on for 18 years! ,Then a month ago left arm pain shoulder to finger tips, lasted 10 mins.maybe 15. then gone, went for all the test heart,mri,carpultunnel,neg., but when think of it I have had arm numness and mild pain in left arm 5 or6 times over 9 year time, never lasted ,went to er.3 times every thing ok. Just learn to live with it. Then the arm thing started every day or 2,for about 5 to 10 mins. but the strange thing is ,my hands are almost normal still feel funny but dont hurt?, the only outher thing I have to add that Ishould sooner,is I have neck problems, disk,bulging both sides, but told by nero.cant be in neck ,now this is one of the top nero. on east coast? ms or not ? Ater all the things I hear from all of you, I know Iam lucky but sometimes not knowing may be worse. Going for another mri and tap again this weeks,all we can do is keep on going!
—Guest long island pete

cant find out ms or not

59 year old male 18 years ago both hands hurt at my finger tips really bad,check for ms neg. mri neg ,no spinal tap. went on for 18 years! ,Then a month ago left arm pain shoulder to finger tips, lasted 10 mins.maybe 15. then gone, went for all the test heart,mri,carpultunnel,neg., but when think of it I have had arm numness and mild pain in left arm 5 or6 times over 9 year time, never lasted ,went to er.3 times every thing ok. Just learn to live with it. Then the arm thing started every day or 2,for about 5 to 10 mins. but the strange thing is ,my hands are almost normal still feel funny but dont hurt?, the only outher thing I have to add that Ishould sooner,is I have neck problems, disk,bulging both sides, but told by nero.cant be in neck ,now this is one of the top nero. on east coast? ms or not ? Ater all the things I hear from all of you, I know Iam lucky but sometimes not knowing may be worse. Going for another mri and tap again this weeks,all we can do is keep on going!
—Guest long island pete

What's wrong with mee?!

So for the past week i've been experiencing no feeling what so ever in my right foot, i've been getting really dizzy and have a blurred vision. i get really hot and read in the face. my back is killing me.. im being sent to a neurologist and i have no idea what to expect. please help???
—Guest Haley

no diagnosis as yet

for several years I have had increasing difficulty walking with unstady gait, poor balance, fatigue, falls, and was diagnosed with spinal stenosis, I was developing numbness in both legs which was worse after surgery. prior to surgery my nuerologist sait my gait was unsteady because I was fat and refused to examine me. Since surgery I have been unable to walk without a walker, have had intermittent burning, stinging, itching pain in both legs, spasms in my rt arm and leg, tics, problems with word retreival, spelling fine tremors on my hands and rt arm, emotionally labile, and now double vision and blurred vision, vertigo, and increased loss of balance and my MRI shows MS placks. I don't have a diagnosis yet and the waiting is very hard
—Guest LYNN WILLIAMS

daughter has ms

not really a response rather a question. She is 21 and newly diagnosed, she also found out her body does'nt produce vitamin B 12 and Iron. is this symtymatic of ms with seizures ?? Please help all advice welcome this is all new and scary.
—Guest michelle

Why me?

I went to the hospital because I was completely numb on my left side. I couldn't walk or write(left-handed). I had every kind of test I'd ever heard of and then some. They had no idea what it was, but it wasn't good. The doctor came in the next night and tells me I have MS. I only heard of MS as a death sentence and I cried. I was so angry and resentful. I would have been walking if I'd gone to the hospital when it was just the left side of my stomach being numb. My mother had held my hand, even though she was the one person who didn't believe me and tried to convince the doctors and nurses I was looking for attention. I'm not so bitter now, but sometimes it's like a knife in my heart like "Why me? Why did this happen? Wasn't there enough wrong with me?" So May 7, at 18, I was told I had a chronic disabling illness that I'd never escape from. MS gave me 1 good thing and, ironicly, it was love. He gave me a reason to care, but does it stop completely hurting? or doesn't it?
—Guest Jessica

Does anyone know?

My symtoms are on and off. One day paon in the ty side of my face and next day O have a problem walking and then the next day I am OK and it starts all over again Does it ever stop? Ley me know
—Guest Ron Griffiths

help with diagnosing ms

I have been having symptoms since feb 2008. the mri then was normal. eeg was abnormal. symptoms getting worse. I am very off balance, blurred vision, trouple with bladder, very fatigued. the dr. done romberg test for balance and i failed. the mri now shows several lesions in white matter and left frontal lobe of brain, but dr. says he doesn't think it is ms. don't know what to do. It is very hard some days to work because of burning pain in legs and feet and the off balance. at times i look like someone that has been drinking. don't know where to go from here.
—Guest donna

Is it or isn't it?

So, I had "atypical facial pain" about 5 yrs ago. To which they gave me Neurontin, I took a few doses and it went away but there was never any real reason for the pain. I chalked it up to being a dental issue or something. Recently, over the last year, I have felt a feeling that I couldn't describe to anyone who would understand... It felt like my lip was "wet"? Like it was sweating... And yet it wasn't. My Doctor said it was a spasm of the muscles around my mouth and to just "watch it"... However, now it's getting worse and spreading to my chin. She wants me to have an MRI to R/o MS. I personally think she is ruling it in... I have two children, I want to see them grow old and have babies. The irony here is that I am an RN and I have worked with MS patients in the past. I have taught them how to self inject with Copaxone, and whatnot. We had guest speakers come in to class and show us how bee sting therapy works... They swear by it, and I think that will be my first choice of meds...
—Guest Michelle

Guest Sue

I also had several episodes of things "going down the wrong pipe". I had a modified barium swallow in which they give you various thicknesses of fluid to swallow. Mine showed fairly normal (of course I was swallowing well THAT day), but it did show a bit of the esophageal muscle that wasn't relaxing completely - therefore, giving me that "full feeling" in the throat.
—AmyLuB

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