help
- I have been having severe feet pain,fatigue,numbness and tingling to the face and legs and hands I had a MRI yesterday and the DRS think it is all in my head
- —Guest guest wendy
Re: Need Answers
- If all of the testing for fibro is leading to nothing, I would insist that your daughter have a brain scan done to see if there are lesions present. I just got diagnosed with MS after about 8 months - my doctor went right for the brain scan (and spinal tap) and bingo! Lesions may not even be present, but if she is still having symptoms keep getting the scans! don't think because you don't see anything the first time that you can exclude it as a possiblity. Good luck to her and you all!
- —Guest Corey
Need Answers
- I am looking for answers - my daughter is 17 and has been sick for over a year and we can not get a diagnosis. At the present time she is having a hard time sleeping, hand tremors, blurred vision and heaviness of the legs. She can only walk for 30 min. at a time and then needs to sit. She has had paralysis of the lower legs that last from minutes to one hour. We have had her tested for Lupus, RA, Lukemia, Lyme Disease. They also looked at Chronic Fatigue, Fibromyalgia and many others but have come up with nothing. Her symptoms have changed over the past year. Some come and go and others stay all the time for the most part. I just don't know what to do for her and where to turn. If anybody can help me I would appreciate it. Oh she also had a nerve conduction test and that came up fine. Go figure! I hope to hear from somebody soon as she will be 18 in October and we will be losing her insurance and God knows we will not be able to get new insurance with all of this pre-existing.
- —Guest Tiffany
i need to know
- i have been feeling shocks in my body in my back and my arms have been numb and stinging my legs goes to sleep all the time sholders hurt and dizzy i want to know what it could be its very scary
- —Guest barbie
do i have ms?
- i have been having the most unusual symptoms for the last three months. I have chronic stabbing chest pain that radiates through my shoulders and arms. Sometimes it feels like a hot fire poker is stabbing me in al differnt parts of my body. The strangest symptom is the burning sensations that i get all over my body, particularly scary is the brain burning sensation. I have seen many doctors. Including neurologist. He doesn't think it is MS. I had MRI of brain, cervical and thoracic spine. and EP testing. No lesions however, i have bulging discs in my cervical and herniated disc pressing on my spinal cord in thoracic spine. Doctor thinks this could be responsible for the pain but not the burning. He has not recommended lumbar puncture...I don't know what to do
- —Guest kimberly
I lost vision in my left eye
- I went to the eye doctor three times between Thursday and Tuesday because I knew there was something really wrong with my eye. My vision loss in my left eye told me that eye drops weren't going to do anything. The eye Dr. sent me to a neurologist and that same day had MRI scans, blood work and started me on an IV steroid treatment. The doctor told me I had MS on Thursday. After he told me I had MS, I got a lumbar puncture (spinal tap) for more evidence. In all, it took about 2 weeks to be diagnosed. I will be starting MS treatments in a couple of weeks. My neurologist was quick to respond.
- —Guest Sabrina
Symptoms
- around 3 yrs ago i was diagnosed with optic nerve neuritis. i went totally blind in my right eye. i got a brain scan done directly after i was diagnosed and they didnt see anything. however i went online and saw that it could develop a year or so after the initial symptom. i have MANY of the symptoms. optic neuritis, depression, anxiety, fatigue, attention problems, tingling sensations in my fingertips, muscle spasms, constipation, diarrhea, dizziness, difficulty making decisions, and i have some memory problems. should i go back to the doctor and get another scan done? or is there no way that i have it?
- —Guest Brittney
Getting MRI in the morning
- I am getting nervous. I have been having bowel incontenience issues for a few months and pain/ tingling along the right side of my body. I was once able to remember the most useless facts now I carry a note pad with me to even remember when I put my 10 month old down for a nap. My symptoms seem to stick around for a while then anywhere from a month to a year they come back worse than before. When my vision suddenly got blurry I went to push for a MRI. My husband is a physician and is having a hard time accepting that I may have MS based on my symptoms but 5 other doctors including a neurologist friend all suggested that I get checked. I am so nervous.
- —Guest MamaStar
Nan
- My episode went on for about 4 months,it started with dizziness and blurred vision, two weeks later my face paralysed down one side, two weeks after that my I began with double vision. After various trips to hospital and my own doctor eventually an MRI scan was carried out, this resulted in the diagnosis of MS. I have now made a full recovery apart from ringing in my ears and dizziness.
- —Guest Nan
Possible MS
- I have had weird symptoms all my life including unexplained cramps, fainting spells, blurred vision, one sided headaches, the list is endless. After going to my doctors and demanding something ber done about my headaches I got an MRI. Only one lesion found and diagnosed with possible MS. Its the most frustrating thing and recently I have had some further attacks of fainting, so back to the doctors and so on and so fourth. It would be nice if poss ms victims had some support as I feel its going to be a long waiting game. Good luck to all
- —Bexster11
Blindness
- 10 years ago I woke up and could not really see. The o/n has left me with limited vision in my left eye. I could not walk but still didn't present myself at the hospital. I had been having symptoms on and off since I was in my late teens. I am now 36. The pain I have had constantly for 8 years is controlled by morphine patches etc. Tried DMD's but nothing helped. I was re-classified as SPMS. Thinking back on it at the age of 14 I was put in hospital for 1 month bed rest as I wasn't able to walk properly that was apparently due to the fact I didn't like Mathematics at school. Makes me wonder. Doctors know very little.
- —Guest Jo
Numbness in Legs and Feet
- When I was moving during one of the most stressful periods of my life, I noticed I kept losing feeling in my feet, especially my toes. I went to several doctors thinking I had pinched a nerve in back or tweaked it somehow during the move. Three months later after moving 1,500 miles away from home, I was finally diagnosed after a series of MRIs and a spinal tap. Over the last three years, I've learned to deal with the physical symptoms of numbness and random odd pain. Truly the symptom that bothers me the most is the loss of words. I was diagnosed a month after starting graduate school for professional writing and I started struggling to find words.
- —Guest Binks
:( help me
- I have been having crashing fatigue that literally takes over me, joint pain, eye pain, numbness and tingling, poor cognition, loss of balance,ect.ect, for over a year...my ana's came back crazy and they said I had lupus and sent me to a rheumatologist-who then said it wasn't..I've been told it was fms and RA, but bloodwork rules out lupus and RA so far...one dr had a suspicion of MS and ordered an mri and it came back normal-so I am tested for RA and Lupus and Thyroid disease every 3months and have an MRI yearly to monitor for MS... It makes me very frutrated bc I don't even feel human and I am 28 and can't do the things I want and should be able to do bc my body simply just can't do it..and then people. I'm sure think I'm lazy and reclusive because they just don't understand and I can't tell them what it is, because the dr's can't even tell ME what it is!:( I do know its autoimmune related and I do know it sucks. Next mri is in june...
- —Guest mandi
negative results
- in march of 2007, i felt a numbness in my right foot, then it spread to my legs and arms. i have had the ms hug about 4 times since then. my local dr told me that it could be ms and sent me for numerous tests. i have had the spinal tap and an mri scan, yet these tests revealed nothing. is it possible to have ms even though all the tests are negative? thank you for all the information. anthea
- —Guest anthea
Optic Neuritis
- I was diagnosed with MS the end of July 2007. I developed pain in my left eye. My vision seemed fine to me but after testing I was diagnosed with Optic Neuritis in April 2007. Sent from Doctor to Doctor, I was told to see a Neurologist. My first MRI was in July 2007, I was diagnosed days later with MS. I am struggling with the decision to start treatment. I have had no other "episodes" and have been told that I have CIS (Clinically Isolated Syndrome). I am confused and don't know if I should start treatment or wait and see. I have been to my local MS Society and have attended the MS Clinic at St. Mike's Hospital. I know that MS is different in each person who has it. Is anyone in my situation? Should I start Avonex? Some say yes, others say "live your life". Any feedback would truly be appreciated!! NOTE from Julie, the Guide to MS: Please visit the forum to offer and receive feedback and support, where good discussions are much easier than in this format. Thank you!
- —Guest Rocky72
