I lost vision in my left eye
- I went to the eye doctor three times between Thursday and Tuesday because I knew there was something really wrong with my eye. My vision loss in my left eye told me that eye drops weren't going to do anything. The eye Dr. sent me to a neurologist and that same day had MRI scans, blood work and started me on an IV steroid treatment. The doctor told me I had MS on Thursday. After he told me I had MS, I got a lumbar puncture (spinal tap) for more evidence. In all, it took about 2 weeks to be diagnosed. I will be starting MS treatments in a couple of weeks. My neurologist was quick to respond.
- —Guest Sabrina
Symptoms
- around 3 yrs ago i was diagnosed with optic nerve neuritis. i went totally blind in my right eye. i got a brain scan done directly after i was diagnosed and they didnt see anything. however i went online and saw that it could develop a year or so after the initial symptom. i have MANY of the symptoms. optic neuritis, depression, anxiety, fatigue, attention problems, tingling sensations in my fingertips, muscle spasms, constipation, diarrhea, dizziness, difficulty making decisions, and i have some memory problems. should i go back to the doctor and get another scan done? or is there no way that i have it?
- —Guest Brittney
Getting MRI in the morning
- I am getting nervous. I have been having bowel incontenience issues for a few months and pain/ tingling along the right side of my body. I was once able to remember the most useless facts now I carry a note pad with me to even remember when I put my 10 month old down for a nap. My symptoms seem to stick around for a while then anywhere from a month to a year they come back worse than before. When my vision suddenly got blurry I went to push for a MRI. My husband is a physician and is having a hard time accepting that I may have MS based on my symptoms but 5 other doctors including a neurologist friend all suggested that I get checked. I am so nervous.
- —Guest MamaStar
Nan
- My episode went on for about 4 months,it started with dizziness and blurred vision, two weeks later my face paralysed down one side, two weeks after that my I began with double vision. After various trips to hospital and my own doctor eventually an MRI scan was carried out, this resulted in the diagnosis of MS. I have now made a full recovery apart from ringing in my ears and dizziness.
- —Guest Nan
Possible MS
- I have had weird symptoms all my life including unexplained cramps, fainting spells, blurred vision, one sided headaches, the list is endless. After going to my doctors and demanding something ber done about my headaches I got an MRI. Only one lesion found and diagnosed with possible MS. Its the most frustrating thing and recently I have had some further attacks of fainting, so back to the doctors and so on and so fourth. It would be nice if poss ms victims had some support as I feel its going to be a long waiting game. Good luck to all
- —Bexster11
Blindness
- 10 years ago I woke up and could not really see. The o/n has left me with limited vision in my left eye. I could not walk but still didn't present myself at the hospital. I had been having symptoms on and off since I was in my late teens. I am now 36. The pain I have had constantly for 8 years is controlled by morphine patches etc. Tried DMD's but nothing helped. I was re-classified as SPMS. Thinking back on it at the age of 14 I was put in hospital for 1 month bed rest as I wasn't able to walk properly that was apparently due to the fact I didn't like Mathematics at school. Makes me wonder. Doctors know very little.
- —Guest Jo
Numbness in Legs and Feet
- When I was moving during one of the most stressful periods of my life, I noticed I kept losing feeling in my feet, especially my toes. I went to several doctors thinking I had pinched a nerve in back or tweaked it somehow during the move. Three months later after moving 1,500 miles away from home, I was finally diagnosed after a series of MRIs and a spinal tap. Over the last three years, I've learned to deal with the physical symptoms of numbness and random odd pain. Truly the symptom that bothers me the most is the loss of words. I was diagnosed a month after starting graduate school for professional writing and I started struggling to find words.
- —Guest Binks
:( help me
- I have been having crashing fatigue that literally takes over me, joint pain, eye pain, numbness and tingling, poor cognition, loss of balance,ect.ect, for over a year...my ana's came back crazy and they said I had lupus and sent me to a rheumatologist-who then said it wasn't..I've been told it was fms and RA, but bloodwork rules out lupus and RA so far...one dr had a suspicion of MS and ordered an mri and it came back normal-so I am tested for RA and Lupus and Thyroid disease every 3months and have an MRI yearly to monitor for MS... It makes me very frutrated bc I don't even feel human and I am 28 and can't do the things I want and should be able to do bc my body simply just can't do it..and then people. I'm sure think I'm lazy and reclusive because they just don't understand and I can't tell them what it is, because the dr's can't even tell ME what it is!:( I do know its autoimmune related and I do know it sucks. Next mri is in june...
- —Guest mandi
negative results
- in march of 2007, i felt a numbness in my right foot, then it spread to my legs and arms. i have had the ms hug about 4 times since then. my local dr told me that it could be ms and sent me for numerous tests. i have had the spinal tap and an mri scan, yet these tests revealed nothing. is it possible to have ms even though all the tests are negative? thank you for all the information. anthea
- —Guest anthea
Optic Neuritis
- I was diagnosed with MS the end of July 2007. I developed pain in my left eye. My vision seemed fine to me but after testing I was diagnosed with Optic Neuritis in April 2007. Sent from Doctor to Doctor, I was told to see a Neurologist. My first MRI was in July 2007, I was diagnosed days later with MS. I am struggling with the decision to start treatment. I have had no other "episodes" and have been told that I have CIS (Clinically Isolated Syndrome). I am confused and don't know if I should start treatment or wait and see. I have been to my local MS Society and have attended the MS Clinic at St. Mike's Hospital. I know that MS is different in each person who has it. Is anyone in my situation? Should I start Avonex? Some say yes, others say "live your life". Any feedback would truly be appreciated!! NOTE from Julie, the Guide to MS: Please visit the forum to offer and receive feedback and support, where good discussions are much easier than in this format. Thank you!
- —Guest Rocky72
pelvic pain, pins and needles
- I have had chronic pelvic pain in my right side for a few years. Now I have woken with chronic numbness and some pins and needles in my entire left side of body. My left pelvic bone the worst, also have pins and needles off and on. When it is bad I can barely stand up.
- —Guest Allen
Newly Diagnosised
- I started out with shooting pain in my lower jaw that went to the tip of my teeth and behind my ear. I was told I had a tumor in my lower jaw but the Dr. said it should not cause the pain I was having. Next I started vomiting, losing weight, had heat sensitivity. So I went to another Dr. thought it maybe my thyroid since some of those test results were off. I also had a week where my finger tips on my right hand felt like pins and needles but I did not think it was important. Next I started having slight tremors and my right eye was blurry and sometimes double vision. I saw a Dr. for that and he said he could not make that eye 20/20 even with glasses. I had a MRI of the brain which showed lesions. I saw a neurologist who did a spinal tap and confirmed that I have MS. No Dr. put 2 and 2 together until the spinal tap. The neurologist did not even think I had MS at first. I think I have been having symptoms for over a year timespan.
- —Guest AJ
pain
- 15 years ago I was in the hospital with unexplained pain radiating from around my side; debiltating. Many tests and doctors later and they diagnosed pleuritis. It wasn't. Symptoms came and went. My older sister has MS, another sister has parkinson's. Still, no doctor tested me for ms even though the odd symptoms kept returning. Finally, after numbness in my side and hip pain and a new pcp, I was sent for xrays, then mri's then spinal (Oct blood draw)...showing without a doubt many lesions in both brain and cervical spine. Old and new. All it took was an astute dr; one who didn't 'write it off'. Taking REbif now and symptoms are very manageable.
- —Guest KRLN
Frustration
- I may find out in several weeks if I have MS. I'm 15 and the few friends that I've told don't have any idea what MS is... In September I got double vision which when I had an MRI was shown to be caused by lesions in my brain, which through a further MRI were shown to be in my spine as well. Also, many months before I had developed numbness in my left leg which lasted about a month, although at that time it was dismissed as "one of those growing things". My emotions are going up and down about it all the time, but I think my main fear is people treating me differently because of it, like thinking I cant do things. After what I've read about MS I feel almost certain that I have it, but I know there's a possibility that it isn't that. I like to think I'm taking it on quite well, but I almost feel that it hasn't registered.
- —Guest Elsa
still wondering
- It started with pain in lower back and hips, then loss of power and feeling in legs, have a constant shake in both arms and hands, and when holding a phone to my ear I have to get someone to hold my arm still. I sometimes suffer from slurred speech and have periods of using a wheelchair and periods when I am fine. Have had MRI's lumber puncture, sensory tests. Specialist said he thought it might be MS, my own doctor says they think it may be MS, but nearly 11 years on I am still waiting to get a definite diagnosis.
- —Guest wheelie
