lamanhere
- I have had MS for over 22 years, and I have had the same nurologist ....I had to go far and show him, through testomonies and and studies....that over 65%of MS patients exp. Opain. I will write more shortly...all I can advise is, take control of your health care.
- —Guest lamanhere
the pains real
- i went to my doctor told him about my feet and legs i didnt likr taking the pills he give me but he said he woukdnt give me any pain pills so i guess i have to give into this pain
- —Guest betty
MS Pain
- I have been living with MS for many years and so far the pain hasn't gone away. Some days are better than others but I'm never out of pain. My right shoulder and arm are the worst. I have been from bedridden and couldn't move or feel from my neck down to back up and walking and resuming and fairly normal life with limits. You can live with it if you want to stay with your family. It's merely a choice you have to make. There isn't a medicine to take all of the pain away. Today I'm hurting so bad I barely can make it through the day. I have a daughter-in-law who totally doesn't understand and thinks I should do everything normal and thinks I'm lazy because I can't.
- —Guest Kathleen
is it really ms?
- Had a 3rd MRI 2 days ago... I'm having sever back pain that comes from between my shoulder blades and shoots pain all the way through to my chest. Also, right arm is constantly burning and painful. MRI Report- mild discogenic sclerosis Is that the same as MS? Any help or info would be greatly appreciated.
- —Guest Liana
my niece
- My niece was recently diagnosed with ms she is in the hospital now and has been in constant pain for 2 weeks she is 16 her doctors have her on pain mecidine every 4 hours so that she can transfer to a rehab center to learn to walk again her nurses want give her medicine when she's sleeping so when she wakes up she is in so much pain she screams most of the day by evening she can focus and by night she can sleep some then the cycle repeats itself this has been going on for 3 days it breaks my heart to hear her scream I don't think that the nurses appreciate her pain they are worried that she will become addicted. It is really an eye opener just reading all the stories and learning so much about this ms. Thanks for sharing
- —Guest virginia
Pain Management
- I was diagnosed with MS in 2005 and have had a few relapses since. The pain started 2 yrs ago with unbearable headaches. Then neck pain, tingling and numbness on the hands, legs and feet. When I am sitting down, I feel like I am walking on rocks and just a few weeks ago, I felt like needles were stabbing me on my arm. I am not a huge fan of pain releivers and I have explored several options (massage therapy, chiro, pain clinics, physical therapy, etc). The two things that I feel are the most effective for me is exercise and physical therapy. When I think of when I feel less pain is through exercise (yoga, cycle, running, etc). I continue to go to physical therapy where they show me exercises to strengthen my muscles and help with joint stiffness. I've come to the conclusion that this pain may not go away and possibly get worse. Therefore, the best way to deal with it is to manage the pain.
- —Guest LM
lower back pain
- ive had m.s since i was 17, i am now 24 and recently i have been getting lower back pains, like near the tailbone, i have no idea if this is m.s or bad posture or something like that but its really starting to bug me, excersize helps a little, i also get pain in my fingers and everywhere really. if anyone ever needs to talk i would gladley give out my email or facebook address, hope everyone is doing well
- —Guest ashley
another option for a diagnosis
- I was looking for info on pain in the feet for MS and reading quite a few of these posts made me want to tell you to look at a website - rsdhope.org - for those of you who have not had any relief from some of the meds you are taking you may be experiencing Chronic Regional Pain Syndrome. It's a terrible diagnosis but the website will give you TONS of information. I emplore you to look at it, it may help some of you immensley. I personally know the people who run the non-profit organization, they are extremely knowledgable and please, please, please read the site before you try any surgical treatments - they will make it worse. Thank you for the information you gave me, now I understand that the foot pain I am having could be related to my MS. Best of luck to you all.
- —Guest nettescats
taylor
- i was diagnosed with ms in feb/2011. i thought i was having a stroke. the pain in my feet, fingertips and legs was unbearable. i was diagnosed in 1994 as having a stroke, with no highblood pressure, no smoking, nor drinking. but a stroke go figurei even had a cat scan and an mri. on MD even said that i was too young to have a stroke. this time a young very intelligent group of neurologists look at my case 3 more mri's, a lumbar and a cat scan diagnosed MS and further investigation showed that in 1994 was the first episode, i have been on balcofen and zandaflex for the spasm but the PAIN is almost unbearable. sometimes i wished it was a stroke.i wake up in the middle of the night from thrashing around, beating myself up from the spasm in pain because my body is drawn tight as a bow.i have grasp a hot pan and could not let go because my hand went into a spasm and i could not let go. pain causes more pain. does it ever end or get better i don't see it.
- —taylorcarter
Wow
- Although i have donealot of online research on MS and the pain associated with it, this is the first time i came accross this website. Reading over the comments has helped me feel less alone in my pain. I agree with those who say their neuro either don't believe MS has pain because i have found that most neuros don't even believe in MS! and are very unsympathic to those who have it. I am in the middle of the worse pain episode i hve had since being DX with MS in 1997. For the first 8 years after the dx i rarely experienced pain, but as the years went by i startd to have more and more spisodes of it. Fortunayely by then i was seeing a neuro who specialed in MS who put me on neurotin for the flares. In addition to the neurontin, i found a diabetic lotion for the pain and tingling they experience, and found it works for MS too (at least for me.
- —Guest Anne
MS PAIN
- I was diagnosed in 1998...4 yrs after my son and daughter were born..I didn't have any symptoms except migraines..then I had an attack where I couldn't feel my legs or get out of bed for 4days. I was put on Avonex which made me deathly ill then on copaxone which helped with the flare ups...but its started to atrophy my muscles in my legs where I did the injections so I stopped. I have had pain here and there and learned to deal with it.....its been 13years and this is my 5th flare up...pretty good but this time around it was so painful that im on flexeril..tramadol...generic morphine...cymbalta....welbutrin...ativan...due to now being severly depressed. They say its cuz of the MS.....but im a fighter and I fight.. I don't give into this disease and I rink that is what has got me this far.....there is a new oral medication for MS out there so u don't have to poke urself with needles anymore.
- —Guest Drea
MS PAIN
- I was diagnosed in 1998...4 yrs after my son and daughter were born..I didn't have any symptoms except migraines..then I had an attack where I couldn't feel my legs or get out of bed for 4days. I was put on Avonex which made me deathly ill then on copaxone which helped with the flare ups...but its started to atrophy my muscles in my legs where I did the injections so I stopped. I have had pain here and there and learned to deal with it.....its been 13years and this is my 5th flare up...pretty good but this time around it was so painful that im on flexeril..tramadol...generic morphine...cymbalta....welbutrin...ativan...due to now being severly depressed. They say its cuz of the MS.....but im a fighter and I fight.. I don't give into this disease and I rink that is what has got me this far.....there is a new oral medication for MS out there so u don't have to poke urself with needles anymore.
- —Guest Drea
m.s. leg spasms too much
- Can anyone help me with the leg and foot spasms I have not worn shoes for 10 years have to wear socks all the time and slipper boots my nails are infected from heat but I can't go barefoot for very long or walk much or stand for long now I am screaming with th spasms I only have my husband as my children don't want to know me since I got sick and they even stop my grand kids coming to see us or letting us see them it is very unfair if anyone sit next to me on the couch or bed and they move the slightest it is like an electric shock to my spine I get numbness lower arnms and legs feet burn but are freezing yet sweat as my socks wet have to keep changing bad joint pain bad balance eye sight fading in and out had so many cruel test and adding to my depression dealing with this disease is one thing but the guilt you feel every day and depression of what it does to your family and my dear husband is another I can'y cope with anymore if anyone knows what to do with the spasms please tell em?
- —Guest indy 21
PAIN
- I have had severe pain in my feet no dr or specialist could treat tho they tried, I have had it for 15 yrs only to get worse. I think it's neuropathy and it will be my entrance to a nut ward!
- —JANECE54
m.s.pain
- I was diag in june 05. Was also told as i laid on my first neuros table my arms were paralized and i was in pain all over, that people w/ m.s. dont have pain. He then sent me to the er. That was my last visit to him. I have been thru 6 neuro and now w/ a specialist who believe it r not says the same thing. Ive take things in my own hands. I found my own pain mainagement. But no matter how much i take it doesnt go away. .
- —Guest andree f
