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Readers Respond: What has been the most painful part of MS for you?

Responses: 439

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Updated March 19, 2009

Something amazing

I have seen amazing things happen with EFT. In fact if you youtube EFT Introduction there is an approx 7 minute clip showing how it works and one of the chaps had MS. I read other experiences of it curing MS. I don't have MS but I get Migraines and I always get rid of it with EFT. It is fast and easy. A tapping version of acupressure that has astounding results for even incurable things! Just thought people here would love to know about this. x
—Guest Sympathiser

Change dr?

I was just diagnosed in jan. My doc just told me ms is painless???
—Guest Pam Hoige

MS Pain for over 30 years

I am now 51 years old, and was diagnosed with MS when I was only 23. For years I went from Doctor to Doctor who thought my symptoms were all in my head. I went through tons of invasive tests, and polluted my body with all kinds of "helpful" prescription drugs. I stopped the shots ten years ago, and for me it was the right course of action. I do find relief from the pain by using a Fentanyl patch, I have been on the same dose for several years. My body is now chemically dependent on this medicine, and if I don't Change it at the right time I experience horrible withdrawal symptoms. I know it helps the horrible pain, but I feel like a junkie because I am so addicted to the pain meds. It helps me function on a daily basis, but I must say I am ashamed that I can't stop it. I guess I have never really accepted the MS diagnosis because I feel like I should be able to just stop the medicine, and then I feel so conflicted because I need it to get through the day. Any advice?
—MS30

need help/advice

I am 30 yrs old i have had completely numb toes for almost 3 years, abnormal gait, abnormal mri that my neuro said showed ms but the spinal puncture didnt. So I have no diagnosis. This has been dragging out 3 yrs about. I was wondering if I should find another neurologist? If anyone has any suggestions. My neuro gives me baclofen, n all other meds that are typically given to those w ms. My leftbarm will go numb n stay numb or tingle for days my legs hurtbso bad I dontbwant to move them ive been hospitalized 4 times for these symptoms and my neurologists never has a plan of care for me n wontbor dont know a diagnosis. N jus 3 days ago my right ankle on the back side(I think its called achilles tendon) is tender to the touch and swollen I cant completely stand on my foot at all it hurts so bad im going to the er again.... tomorrow. Which I hate bt this is unbearable. Im desperate for help I am a working single mother w 3 children and this is consuming my life.any advice?
—Guest no complete diagnosis

no guarantee

I have done alot of research as I could not afford the shots...I found NO real evidence that the medication does anything if you were diagnosed later in your life..after thirty like I was. I go all n aural and I suggest researching anti-inflammatory foods and cannabis for pain and spasming..works for me. I was much sicker on all the meds they were giving me and this is better.
—Guest nancy riley

no guarantee

I have done alot of research as I could not afford the shots...I found NO real evidence that the medication does anything if you were diagnosed later in your life..after thirty like I was. I go all n aural and I suggest researching anti-inflammatory foods and cannabis for pain and spasming..works for me. I was much sicker on all the meds they were giving me and this is better.
—Guest nancy riley

MS hell

The pain in my legs has gotten so bad, im so tired but i cant sleep because of the pain, its truly unreal. I hate this more than anything I have been threw , having gone threw alot 3 strokes, 7 mini strokes, ovarian cancer. the list keeps going on 2 major back surgery's oh yea im only 42. WTH!!!
—Guest shelia hines

Penis

I get involuntary erections which can last 2-3 hours. I get up to 4 per day and it is really pain full. I have spoken to my Neurologist and he says it happens but is not a common issue. I cant seem to do anything about it just wait for it to happen and grit my teeth and bare the pain
—cessna182d

Been There, Done That

Try this, works for me. I take Baclofen 4 times a day and with it take 600 mg of Gabapenton. There is a side affect I don't like, "feet swell up", it's bearable. No more pins and needles, no more pain, no more involuntary leg jerks at night. Hope it works for you.
—Guest Charles Abel

Mr. C. Abel

Relief for pins and needles foot pain. I take Baclofen 4 times a day 5 hours apart. With each dose I add (600 mg) of Gabapentin, the maximum, and the foot pain with pins and needles is gone. When I went to bed there were no signs of it, no leg jerks, no pins and needles, no feeling like my feet were on fire. What a relief.
—Guest Charles Abel

Pain ?yep

I was diagnosed with MS 7 years ago. Other than spasms, that have been gone for 5 years, I'm suddenly aching, everywhere all day and night ! I am trying not to take too much Advil, but holy cow, the pain never ends !
—Guest Kerri

back pain

Every morning on the weekends my back hurts so bad i just want to cry and everyone feels sorry for me and i hate it , i hate having MS
—Guest Jo

klynn

omg! I am not even believing what I am reading, it all sounds like me! yes I want to cut my legs off and my arms too. I uued to work in the physical therapy field, I was an avid runner and worked out 4-5 times per week, now I hate it. it seems as though every time I do any type of exercise that I am doing it for the first time ever . my body stays in the constant state of "I need to stretch" but when I do, bam! pain all over. I am so weak a glass of water is to heavy at times. once I sit down, getting up is hard and I look like I have never walked before , I'm sure. I don't think my partner understands, and she is a nurse of 30 years...
—klynnn

Pregabalin

I have found this drug effective, also known as Lyrica, does anyone agree? I came across it by accident. Doesn't erase pain but eases it for me
—Guest katybo

painful Ms

Its so painful just wanna die sometimes because the pain is so bad.have no insurance.pain is so so bad
—Guest Liz
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