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Readers Respond: How much does numbness and tingling bother you?

Responses: 165

By

Updated March 19, 2009

Like I have said before, I understand intellectually what physicians mean when they refer to MS-related numbness and tingling as “only an annoyance,” “not disabling,” or a “benign” symptom. However, as a person living with this symptom of multiple sclerosis, the constant feeling of “pins and needles” is a minor form of physical and emotional torture, always reminding me of my MS. What about you? How does numbness and tingling (paresthesia) affect your life and your mood? Does it barely register or is it a constant demon? Do you have any tips for the rest of us on dealing with this symptom?

sam

first time on here but a bit worried to go to the the Doctors. Had a numb bit toe on left foot and now had numb fingers on right hand for 3 weeks and when in bed seem to be getting more dead arms.
—Guest sam

Tysarbri ms

Hi I've now been on tysarbrii for 3 us and after all the shit I've been through its now the temp change that's doin my head in ! I laugh but I wanna cry and shout, but where would that get me !
—Guest Holly white

Pins-and-needles - upper body

I have not been officially diagnosed, but I had an MRI that showed lesions. I had the MRI because I had a two-day episode of double vision. What I am experiencing is a pins-and-needles sensation all over my head, from my left cheek down to my shoulder, and my hands and halfway up my arms. I often have, in my right hand, the feeling of electricity shooting through my right hand when I use it. One symptom I have had for many months is a burning sensation on my entire tongue. It doesn't go away and sometimes it is nearly unbearable. Like I said, I haven't been diagnosed with MS, we are just in the initial phases of testing, but the more I read about symptoms, the more I wonder. My symptoms came before I read about them, so I don't think I have produced them psychosomatically. I really would like to know for sure.
—Guest Sherry

numbness and tingling

10 mths ago i started having tingling in 1 foot it b only at nite and would come and go. Since then abouta month ago it is now in my other foot. But the worse thing is both legs from my feet t my knees go numb. Its starts about 5 pm everyday. Im afraid it will travel up higher. I have a very mild case of MS since2001. just 2 lessions but know i'm getting many side affects including vertigo. My doctor is no help. i need t get a new dr. but in the mean time . WHAT IS HAPPENING AND WILL IT STOP
—Guest penny jones

numbness and tingling

10 mths ago i started having tingling in 1 foot it b only at nite and would come and go. Since then abouta month ago it is now in my other foot. But the worse thing is both legs from my feet t my knees go numb. Its starts about 5 pm everyday. Im afraid it will travel up higher. I have a very mild case of MS since2001. just 2 lessions but know i'm getting many side affects including vertigo. My doctor is no help. i need t get a new dr. but in the mean time . WHAT IS HAPPENING AND WILL IT STOP
—Guest penny jones

numbness and tingling

10 mths ago i started having tingling in 1 foot it b only at nite and would come and go. Since then abouta month ago it is now in my other foot. But the worse thing is both legs from my feet t my knees go numb. Its starts about 5 pm everyday. Im afraid it will travel up higher. I have a very mild case of MS since2001. just 2 lessions but know i'm getting many side affects including vertigo. My doctor is no help. i need t get a new dr. but in the mean time . WHAT IS HAPPENING AND WILL IT STOP
—Guest penny jones

scared to

I'm 21 years old about 7 days ago I just all of a sudden went numb from head to toe my face everything I have absolutly no felling and really I'm looking around the internet and I'm pretty scared because couple stories had to deal with trama and stress, well I just recently a year ago got out of my marriage after he beat me and my kids. But its been a year since then. All of them have to do with stress hey mommy here of 2...... And anxiety was another topic yes I've got bad anxiety. But what I'm really afraid of is I've attempted suiside 3 times since I was 8 and really afraid this is going to drive me insane. I really hope we as a numb body communitty get our answers this shit really sucks and I don't want to choose a wrong path :(
—Guest caitlin

Not a sympton now...

N & T was my first MS symptom back in 1986...I was benign for 20 years and am now in an assisted-living home!
—Guest Michael Shotliff

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—Guest xxbTsdCvhpkeHl

unsure...

i experienced some tingling in face six months ago...now its my right thigh , right forearm , right hip and right face /lips /jaw...numb and tingling...a doctor has said i dont need scans...i did bang my lower back/anus area in work and felt like i had hit a neraNY IDEA?ve...two weeks later i started getting these symptoms....sick of painkillers and tablets...
—Guest nodge

tingling, numbness and pain

I've been experiencing the numbness and tingling in my toes, through my foot. I feel it traveling up my leg. My lower rear, left side of my back is a constant pain. My thoughts of my back is because I'm a left leg, b/k amputee. So I constantly have the phantom pains. To think it would subside after 26 years of the amputation..... I looking at my toes and the thumb toe appears to be darker than the other toes. I'm calling my doctor's office in the morning and maybe to be referred to a neurologist. Sometimes when I take steps, my right foot feels as if it's going to twist and break. As far as I know, I don't have diabetes, but on the borderline. I need to lose some weight, at 192 lbs., at 5'7", age 60. There;s also MS in the family. This numbness and tingling bothers me constantly, and I'm feeling a bit concerned.
—Guest Faye

Helping someone get diagnosed

I was researching my sister in-law's symptoms thinking that she had parkinson's but the more research I did, the more I worry she may have MS. Her doctor wanted her to see a neurologist a few years ago but she said no. She has the following: an intentional tremor and shaky penmanship, can't paint a straight line, stiff painful back muscles diagnosed as fibromyalgia, several bouts of uveitis in one eye, morton's neuroma and foot pain, and I noticed that when she went up stairs she was not bending her one left and would lift her hip and swing it up, now that leg is stiff and she can't bend it at all, she is 64 and the tremor has been present as long as I have known her 14yrs, also when she drives she will hesitate at a light when it is clear and then suddenly accelerate in front of on coming car, she also has sleep apnea. How can I convince her of the benefits of see the neurologists or should I wait until other doctors tell her to see one again? She is seeing an orthopedist for her leg
—Guest little sister

Numb tongue

I have a buzzing feeling, tingling feeling in my extremities and my tongue is numb. Does anyone else have tongue numbness?
—LBRNJD57

want out

I've had MS 26 yrs, you wouldn't know though. I have 3 children and homeschooled them all- 1 off to college this Falll. Anyway, I've not let it hold me back, but now I want out of a miserable marriage,but stay out if fear. Fear I can't support myself or kids?? I love men and would want another, but who would sign up for someone with MS? Advice is extremely needed thank you so much. Yes I walk without assistance, etc need to rest but can walk a mile still hang in everyone, marraige worst, but MS is doable ;)
—Guest ms 26 yrs and still going

numbness tingling & sensational burning

I have noticed for about 6 months now a total numbing of my right arm when I walk to school (30 minute walk). I woke up the other night in extreme pain, and frantic because I had a terrible burning sensation down my right arm along with tingling. It felt as if someone put a cigarette out on my arm along the ulna. Very scary. I'm always fatigued. Don't know what is the cause.
—Guest karrat
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