From the article: Multiple Sclerosis Relapses
For the most part, I am a fan of focusing on the positive, reminding myself of all the things I can still do and putting unpleasant experiences behind me. However, I do believe that it is cathartic and healthy to tell our stories occasionally, especially sharing descriptions of our most frightening MS moments with others that have been there. I really do think that putting these things into words “helps the healing,” especially when the audience is all nodding (albeit virtually) with empathy. Here is your place to let it out. Tell us about your most horrific relapse moment. We are listening.
Share Your Story
Figure Me Out Please
- I keep having ms symptoms but nothing shows up in my testing. My neck seizes up, my left leg is numb, my eye has a blind spot from the last headache, and each time I am so tired afterwards but "No ms". What up with that? I have all they symptoms but can prove it and so no help.
- —Guest Figure Me Out
WTF
- Sorry about the title but I hope it got your attention. Today I called my MS doc. She's a loser which means I have to find another. I called a month ago sAying I was having an attack. The best answer I got is "we'll call you with a cancellation". Now it's a month later and the secretartary tells me she has an opening in another 2 weeks. What? This doc is screwed up! I thought me and my MS were losers. Wow! I should name drop the way doctors patient drop! Sorry but I'm pissed off! Or couldn't you tell? I'm in so much pain that suicide seems like the only viable option. Im not going to at this point. Gheesh can't I catch a break? I'm a 62 year old man and I know I'm probably notching to live that much longer. I just thought I'd like to live without so much discomfort. Pain has always been my number one symptom. Can you imagine pain as your only company all day every day? For 51 years? My first MS attack I was 11 and it was pain which kept me off of my feet for month.
- —Guest Joseph
ms relapse
- I have had mild ms symptoms for years but within the last year or so it has been getting worse and worse, now not only am i tired all the time, have eye pain sometimes, can I not pee and and have leg pain, with messed up balance, I also can't go number 2, my leg pain never stops now, legs feel like they can't relax, jerky movements and tremors and weakness, i have horrible cognitive proplems balance and coordination, tripping and knocking things over when I reach for them, oh yeah while feeling completely exhausted from feeling like im walking through mud. too scared to go to Dr. and say everything out loud just to be dismissed again.
- —Guest jen
I am going through alot
- I have had these strange attacks that look as if I am having a stroke ,but its not .My left jaw drops and my face on right is numb along with my left leg ,which I cannot left.It is very painful and also I cannot open my mouth. Also I have a large pituitary cyst,which I have been told cannot be removed. My doctor has me on Myostheenia gravis meds but does not think thats what it is,he thinks its anxiety but I know its not because I live with a Marine who has true anxiety.I need to know if this is MS ,I think it might be ,but its like pulling teeth to get a diagnosis,can anyone help me ?
- —Guest Bekki Sprouse
Right here, right now
- Visiting Grandma, it's her 90th birthday. Utterly exhausted, left side (arm, hand, leg) numb and not working. I can still stagger. Can't feel my feet, at all. Can't walk in bare feet. Really, really should have taken preemptive steroids. Headache, neck ache, back ache. And here I was trying to pretend I was going well. Hadn't seen this side of the family for more than a year. Also, while I'm letting it all out, noise is just excruciating. Everyone is hard of hearing and they all shout. I need steroids, and I need them now, but I'm an eight hour drive from home. Normally post at MSWorld, but it's too relentlessly positive for me to share this there.
- —Guest KnowI'mJob
Ups and Downs
- I have just been diagnosed. I have been feeling tired with bouts of bad vision and bad back ache for some time. The doctor always told me it was due to bad co-ordination. A week ago I lost complete feeling in my legs from my lower back to my feet. I was taken to hospital and they have diagnosed relapsing/remitting MS. I still can't feel my legs properly and I've had episodes where my whole body feels like it belongs to someone else. While I am glad to have a diagnosis and to know that I'm not just going nuts - I am also terrified. Is this what the rest of my life is going to be about - two simple letters that mean I can't feel normal ever again. That my legs don't work anymore on my command and that my brain is slowly shredding itself. I know I am deputy downer at the moment at the moment but I have a life and a husband and a child and the thought that I won't know when the next attack will come terrifies me. I'm so worried that my son will ever only know a crippled mother.
- —Guest Catherine
ARDÊNCIA E FORMIGAMENTO EXCESSIVO
- MEU PRIMEIRO SURTO FOI EM 1995, PERDENDO SENSIBILIDADE DAS DUAS PERNAS, E A SUA FORÇA, FIQUEI QUASE 4 MESES SEM ANDAR, E O PIOR SEM SABER O QUE TINHA, AOS POUCOS FUI VOLTANDO ANDAR, E AS MINHAS ATIVIDADES. PASSEI MAIS 15 ANOS SEM NENHUM PROBLEMA, EM 2010 APÓS TOMAR VACINA CONTRA A GRIPE SUÍNA, OCORREU APÓS 7 DIAS A VACINA UM NOVO SURTO, COM MTO FORMIGAMENTO NO BRAÇO, MÃO, PERNA E PÉ DIREITO MTO INTENSO, FIQUEI HOSPITALIZADA... APÓS 2 ANOS 2012 TERCEIRO SURTO E A CONFIRMAÇÃO DA ESCLEROSE MÚLTIPLA ATRAVÉS DE RESSONÂNCIA, MTA EXACERBAÇÃO NOS SINTOMAS DO MESMO LADO, ENTÃO DEU-SE INÍCIO A MEDICAÇÃO DE GLATIRÂMER 20 MG/ DIA INJETÁVEL SUB-CUTÂNEO. HJ AINDA COM MTA QUEIMAÇÃO E ENFORMIGAMENTO NOS PÉS E PERNAS E DIMINUIÇÃO DA FORÇA MOTORA.
- —Guest MÁRCIA CLAUDETE SCUDELER
ARDÊNCIA E FORMIGAMENTO EXCESSIVO
- MEU PRIMEIRO SURTO FOI EM 1995, PERDENDO SENSIBILIDADE DAS DUAS PERNAS, E A SUA FORÇA, FIQUEI QUASE 4 MESES SEM ANDAR, E O PIOR SEM SABER O QUE TINHA, AOS POUCOS FUI VOLTANDO ANDAR, E AS MINHAS ATIVIDADES. PASSEI MAIS 15 ANOS SEM NENHUM PROBLEMA, EM 2010 APÓS TOMAR VACINA CONTRA A GRIPE SUÍNA, OCORREU APÓS 7 DIAS A VACINA UM NOVO SURTO, COM MTO FORMIGAMENTO NO BRAÇO, MÃO, PERNA E PÉ DIREITO MTO INTENSO, FIQUEI HOSPITALIZADA... APÓS 2 ANOS 2012 TERCEIRO SURTO E A CONFIRMAÇÃO DA ESCLEROSE MÚLTIPLA ATRAVÉS DE RESSONÂNCIA, MTA EXACERBAÇÃO NOS SINTOMAS DO MESMO LADO, ENTÃO DEU-SE INÍCIO A MEDICAÇÃO DE GLATIRÂMER 20 MG/ DIA INJETÁVEL SUB-CUTÂNEO. HJ AINDA COM MTA QUEIMAÇÃO E ENFORMIGAMENTO NOS PÉS E PERNAS E DIMINUIÇÃO DA FORÇA MOTORA.
- —Guest MÁRCIA CLAUDETE SCUDELER
Worst relapse
- Could not see out of my left eye. Vision returned 2 months later .
- —Guest Annne
Confused
- Hi, I will use this means to have a little say.! I am 66 male nurse retired looking after for 9years my friend and now partner "Y" She found me in a nursing home I thought she to young to be incarcerated in a nursing home at 42, so I offered to take care of her in my home. Love at first sight. (MS what an eye opener) Nursing on a permanent daily home basis is far removed from actual nursing processes on the ward.!! No offence is intended. The one thing I noticed with these weekly chats, this includes you "Doc" is no-one ever appears or seems to acknowledge those people who have had the misfortune to loose all their physical and sensory faculties through MS, sadly dealt the untimate card of total imobility, totally relying on one's carer for "ALL" their nursing needs. I have taken care of "Y" 24hr/7/52 for 9yrs apart from three short stays in hospital EP seizures we have been together without a day off or holiday and friends disappear. Less we forget. Peter.(UK)
- —Guest Argospete
My worst relapse
- On New Year's Day 2013, I was relaxing for most of the day. I got up to start dinner and within minutes, I grew so weak. I collapsed onto the floor and could not get up, my husband had to pick me up and bring me to the couch. For well over an hour, I had the worst tremors I've had since my diagnosis 3 years ago. It's been over a week, and I still feel very weak, the walk from my parking to my job (just 3 blocks) is just exhausting. I have to take several breaks in my day.
- —Guest Tamara Guest
MS
- I can NOT take any longer this MS. I'm frustrated I can NOT walk and alone. I'm very sad. Need help!
- —Guest naveira
Could be worse!
- I was hit with MS in 2007 the same year my husband had a cancerous palatal tumor removed. I can cope with the limp in my right leg but its the muscle spasms and weakness that bothers me along with the periodical fatigue. I think I am having a flare up at the moment with my right foot as I can't put weight on it without severe sharp pain. When I start to feel sorry for myself though I always remember one thing and that is the little kids you see in hospital that are very sick with cancer or leukemia they are so tough that I just think to myself such it up princess! I am hopeful that they will find a cure for this cruel and unforgiving disease one day so chins up everyone do the best you can and rest when you feel you need to - one thing I am learning is not to push the boundaries. When you are down try and think of one positive out of the day that could pep yourself up!
- —Guest Cath Purcell
30 years of MS
- I read a lot of the stories and identified with most, my first attack was my worst. During the first years, I had a relapse about every 6 months. I finally got so I figured most of the time, the symptoms would go away. I got my first attack the day after my ex-husband told me the divorce had come through and he was getting married again. Woke up the next day with no feeling on the right side of my body. Took warm bath with no change. That one lasted about a month and I went to several doctors. One of them said I had MS but I didn't believe it. A month or two later I had a severer relapse with partial paralysis along with the numbness. No use of my hands. Couldnt walk without support. Hospitalized. Massive doses of decadron. I guess I am writing all of this to say that my first years were my worst. Things did get somewhat better for me. Now I have scoliosis and pinched nerves. So I walk with a cane. Part of it due to MS because of years of compensation weak side.
- —Guest Cathy
what is wrong with me
- Been off balance and dizzy for past six months. fatigued and barely making through work could this be Ms or am I just crazy
- —Guest ginny
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