From the article: Multiple Sclerosis Relapses
For the most part, I am a fan of focusing on the positive, reminding myself of all the things I can still do and putting unpleasant experiences behind me. However, I do believe that it is cathartic and healthy to tell our stories occasionally, especially sharing descriptions of our most frightening MS moments with others that have been there. I really do think that putting these things into words “helps the healing,” especially when the audience is all nodding (albeit virtually) with empathy. Here is your place to let it out. Tell us about your most horrific relapse moment. We are listening.
Share Your Story
for those who need help
- pls do yourself a favour and read "Overcoming multiple sclerosis" fm Dr. George Jelinek. also have a look at this video on youtube: http://www.youtube.com/watch?v=KLjgBLwH3Wc What do you have to loose? Everything must be given a try, especially if it is non invasive, like a dietary change.
- —Guest einstein
flare up
- complete spasticity in left hand - cant use it at all. numbness on entire left side of body- have to use a cane. its been 2 weeks now.
- —Guest esther
please find us a cure
- I Was diagnosed 8 years ago at 15 i was completely fine untilj one day i woke up and my right arm was completely numb, al first i didn't take too much notice because i thought maybe i had slept on it but after a week a saw a doctor who refered me to a specialist eventually i was diagnosed with ms. The worst i experiend was bells palsy and optic neuritos it was so scarey and when my head went numb I've had many relapses I'm currently on copaxone which i do not find effective anymore as I've had 3 relapses in 3months and currently going through one
- —Guest louana yaghmour
My son
- My son was diagnosed with ms 7 months ago. He started with slurred speech about 2 years ago. He went to the neurologist and the neurologist wanted to do a mri...symptoms went away and he never got the mri. Last october he noticed he was having tremors that got worse over time. Went back to dr. and got mri which showed multiple brain lesions...diagnosing ms. He is now on tysarbi....still has tremors. I am so proud of my son for the courage and strength he shows everyday. I just wished that he did not have this. Cant tell alot of difference since being on the tysarbi....but it has only been 5 months that he was on it.
- —proudmomofvince
Don't lose hope!
- I was diagnosed 6 month ago, still can't find anything to control my pain to live a normal life. I could be worst but all I have us lost sensation is my left leg and poor coornation. My memory is poor. My worst pain is the spine and headaches which puts me out. I feel for those who don't have someone to help us. They are peole and organizations ... Don't be too proud, and don't try to take on MS on alone if you don't have to, reading theses story has open my eyes. My pain now is reading about all of yours. Don't give up and prAyers for all of us Mss
- —Guest Magali Soto Sirvent
Helpless
- In September of 2009 (I was 19) I started experiencing feelings in my feet that just weren't normal. They felt freezing to me but warm to the touch. I would soak them in warm water but then they would just ache. Their was no relief. I went to the hospital and they said it was fashieitis ( swelling of the feet). A month later that symptom subsided and I started getting shooting pains in my legs everytime I touched a specific spot. Went to the hospital, sent me home and said I was just trying to get pain pills. Woke up on thanksgiving super excited to spend the day with my family, went to roll out of bed only to find the left side of my body wouldn't work properly. It was heavy, spastic, and I felt like gravity was pushing me over. I drove my self to the hospital thinking I would be their for a few hours. Get medicine to help me then go home. OH BOY WAS I WRONG. I had over 12 lesions spread all thru out my brain. And had to stay for 2 weeks. Worst year of my life...
- —Guest Meagan
Headaches
- I've had "attacks" since I was very young but only after the first, and worst, real attack was I diagnosed. i had a headache for 6 months straight where I was sick, couldn't eat, had tremors, and my right leg and arm worked only intermittently. They started treatment for migraines only to realize that nothing worked. It wasn't until I was honest with myself, and then my doctors that they realized I had Youthful Onset Relapsing Remitting MS. I have since come out of the attack (thank god for that) but there are residual effects. You know when your skin reacts just before a ball hits you or someone touches you? That's how I fell all the time waiting for the next attack. I have a beautiful family though that keep me busy and very happy!
- —Guest Joan
In the Hospital receiving IV Steroids
- Three weeks ago I woke up numb and tingly from my waste down to the soles of my feet. I had to go to my dance class because I was the teacher. I managed to get through my class without falling, but had to cancel and take a leave of absent until this attack goes away. I can not walk now unless I use a walker to keep my balance from throwing me onto the floor. I am now experiencing the most painful muscle spasms ever and these steroids don't seem to be helping. I get one more IV tomorrow then I go home to the Prenizone tapper nightmare. I don't know if there is anyone else out there who has ever gone through with what I am going to explain. Prednisone makes all my existing symptoms in addition to all the new ones become extremely eradic and unpredictable. Each time I go through this my family calls 911 for help to save my life. I have stopped breathing, gone paralyzed from my neck down, become incontinent having to wear diapers -- I was a vegtable!
- —lma50
pre-diagnois of ms
- for the first 3 months before i was diagnois with ms my legs and arms were numb had chronic back pains its been 2 years since i feel fine now thank God
- —Guest augustine aviles
One Bad One
- The year, 2005 - enduring nasty custody court stuff. My ex was a "good 'ol boy" - a criminal defense attorney in Texas. Yet another court order had been received - had to let my 4 year old girl go with him. Called my attorney - THIS feels wrong - don't want to let her go, etc. (EVERYONE has a story, I know.) I let her go. I called him the last day of his scheduled visitation (it was court ordered supervised at the time) and asked when he'd be bringing her home. "Check your degree - you won't get her back until the end of July." From that day - diagnostic tests/7 day hospitalization + treatment - I was diagnosed on 7/18/05. I was completely convinced that it was the stress of my baby being away from me - being taken from me - that made me sick. It took me years to believe that this is real. I know it is now. I'm on Copaxone - I'm a pin cushion. I've 2 children, an amazing husband (not the attorney) - and while I believe I have a disease, still haven't really processed it.
- —Guest Alice
Help...
- I have not technically been diagnosed with MS, but reading this sounds like me. The gal that woke up 1 mornning & fell to the floor out of bed. me. Chronic headache. Me. Left sided numbess from head to toe including foot drop. Me. All symptoms are worse when i am hot or tired. The latest thing is shaking everywhere. Also have chronic back pain & Dr. is trying to tell me the shaking is from the pain.....also have lesions on my brain. Help. I think the neurologist sent me out the door about a year ago b/c do not have insurance. I have 3 small children. This started 3 yrs ago with just numbness and pins and needles feeling in the left side. Everything has progressed and I am scared of what will happen next. Does anyone have any suggestions....please!!!
- —Guest Laura
MY first Episode
- My first ms episode was in sept 09. I had been very tired for about 4 months, was out of work - laidoff Than God! That day I went to my GP because I was so tired, I dont remember what she said or did. I went home and went to sleep. As the day went on and everytime I woke up I noticed that my eye site was getting bad. By the end of the day i was seeing double. I had Optical Neutris and got diagnosed with MS 2 days later. It took about 3 weeks to get my eyesite back to normal. I had about 20+ leasions on my Brain! 2 years later, tried Rebif and Tysabri and both did not work, had episodes with Rebif and Constent Systoms with Tysabri. On nothing now and will do an MRI in Oct to see what my Brain looks like. My last MRI I only had three small lensions, 6 months ago I was so happy thought I found a medicine, but then it all went down hill..... Now I know I will get another Major Episode just waiting for it to happen.
- —Guest Laura
My Last Relapse
- I was getting my children and groceries out of the car when my entire right side spasmed. My face was drooping and I couldn't speak. It was like one side of my body was having a seizure or paralyzed. Very scary!!!! It only lasted for 10 seconds and then everything was back to normal. Then it started to happen over and over; like every other hour. I could hear and understand what was going on around me, but couldn't say a word or do anything about it...
- —Guest April
The scariest time of my life
- In October of 2010 I got up to tend to my 1 and half year old son. My speech was slurred and my right side weak. I was having what i thought was a stroke. It got wose over the next 24 hours in hospital and i lost all mobility and speach. I was in a stroke unit for over a month with all these elderly people. I am only 25. Two days before i was went home i was diagnosed with MS. And i wish to god that i just had a stroke. Now i have a life sentence. My husband left me and i have had to stop studying. I do not know what i have done to deserve such horrible life. Take each day as it comes but have to be strong for my son.......
- —Guest Mel
My relapse included partial parlyzation
- I was in the bathroom and tried to stand up, legs didn't want to work for me! That was probably the worst part of this disease at this point! I never know what's gonna happen next so I'm careful with what I do or try to do! Best wishes to all! Thank you for your prayers that helps me get through my days! Christine Shelton
- —chrissylou39
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