Jessie
- I don't remember my worst ones. I do remember "waking up" so to speak, and my sweet husband telling me that I missed that past six to 18 months because I was either asleep, or too weak to get up, other than him helping me to the bathroom and to wash up. I missed some pretty summers and falls. And I thank God for my dear patient husband and his loving care all these years.
- —Guest SpasticJessie
not sure yet
- i am not sure yet what is wrong i can't lift my right leg.lots of pain the nuero doc said something to the effect it could be ms this has been going on for years with different systems and i just can't see sometimes and when i can not well have eye pain and numbness in face and all over my leg gets cramps and fall asleep even when walking my jointsand bones hurt my blood presser is 180/99 no noe has done anything yet. my job is very hard i lift all the time and i have fallen at times can't keep my balance and casn't look up or feel as i will pass out. what does it sound like ms yes or no. i am 60 years old and the stress of my job is killing me as it is too young to retire and too old to lift as i do just at my wits end as i have atrophy in right leg and can't lift it at all very scary. waiting to have my mri.
- —Guest dianna
exacerbation
- I beleive that I am having my first MS exacerbation. I contacted my neurologist re: a updated MRI. but i can't see her till december and no answer yet about MRI. I think what is freaking me out is whether I develop a new baseline fm this event. I do not have a dx of the relapsing/remission type. Mine is primary progressive & I can't seem to find info on how exacerbations work with this type. I have been a chronic pain patient since 1982-but this is totally unlike anything I have through before.
- —mary92354
confused
- I was reading the other stories and I'm scared knowing that some of those thing's could happen to the I found out in 03 tried to get out of bed and fell to the floor right side was num when to the hospital had a cat scan she I has m.s. blew the off next time was 04 had a m.r.i. same results took it serious this time it sacrey knowing you can go blind be paralized or die with out any reason :(
- —Guest lisa moore
Having a relapse now
- Hello - it is 08/31/2010 .. I have been experiencing a full-blown relapse now for 5 days .. my last full-blown relapse was 06/2005 .. it lasted 3 months .. had a full MRI w/o contrast from head to hips .. The after math I was left with was severe muscle burning in my hips .. which came and went .. now it seems it is staying .. mostly to my left side .. The MRI showed my inflammation of all areas icluding the disc issues in my neck, thoracic and lumber spine .. No doubt , i can tell the difference when a full blown relapse hits .. and while lesions were larger and/or "deeper" , the neuro's all felt , I am not "that bad" ... lol .. It is scary , but now I tell certain people what is happening .. an MRI of course is needed .. I will get this one with contract as I should have .. I am not taking any shots .. I am waiting for the oral meds , as I had heard years ago from a friend in the field that soon there would be some .. well, that is happening soon .... AGSerra
- —Cyprian1
Relapse
- Since young adulthood I have had sudden episodic severe leg pain with a definite pattern of light tingling at first, incapacitation, then relief. I was diagnosed with MS at the age of 53 after an episode of Bell's Palsy which lasted only 5 days. My MRI showed 2 lesions. I chose treatment with Copaxone (I am an RN and had access to info regarding all of the DMT's and want to continue with same.) My last relapse (3rd moderate relapse since 2003) began after I broke my toe. I had headaches, then neck pain, progressed to shoulder pain, then my legs burning, incapacitation but slow remission. All in all I think it lasted about 2months. My neurologist agreed that this was a relapse. Now I am walking completely normal, no leg pain but the headaches are coming back. So go figure. I am very blessed to have had MS like symptoms for years without being diagnosed. I am almost 62yo now and will continue to control my disease instead of it controling me and my life.....Namaste
- —Guest Earlene
first relapse
- I have just had a relapse, and am currently on copaxone. All the symptoms that I have came back with a vengeance. Drop foot, poor balance, and walking difficulties. My foot splint was working so well and now it doesn't seem to be. I am very frustrated as I feel like I have to be too dependant on people for the things I have always done myself.
- —Guest janice
relapses
- I have to disagree that relapses are caused by lesions. I recently had a major relapse very similar to my first. The left side of my body went numb, had severe weakness in my arm and leg. Had a full MRI (brain, c-spine, t-spine and l-spine) no new or enhancing lesions were found. Report said demylenating disease could not be ruled out. I have had many small flares over the years (didn't know that's what they were because I was undiagnosed). My worst relapse was in 2008 when I started having horrible pain in the right side of my face. It was so bad that even 15 mgs of morpine didn't help. I begged my husband to shoot me. I finally was hospitalized, a name was given to my pain, Trigeminal Neuralgia. worst thing I ever experience. Labor pains were a picnic compared to that. I have severe spasms, fatigue and weakness left from my last exacerbation (May 2010). May or may not get better. MS SUCKS!!
- —Guest Mrs.WC
MS
- Fist diagnosised in July 09 when my left eye turned outward and would not come back. I had had noxious spells and intentional tremors for some time. I would run into walls occasionally and all of a sudden I became afraid of stairs. I lost interest in alot of things that were important to me. I feel low voltage shock in my arms and hands. Many of these sysmptoms I had for awhile but blew them off. I'm an RN for 35 years and know how to make excuses for everything. Walking became more difficult and I found I had to rest sometimes just walking to the parking lot. Pain is pretty much constant but I'm still able to work. I work at an computer most of the time. Eyesight is not as good as it use to be but I am thankful I can see. My eye has turned back in so I do not look like Marty Feldman any more. My co workers and family understand my conitive difficults and will fill in the blanks. I am still able to do my job, it takes me alittle longer but I do a good job. Brenda
- —BrendaFulleton
Relapse
- Has anyone experienced noxious smells during relapse? They can be anything from a smoke smell to sewer gas?
- —Guest Brenda Fulleton
My relapses
- I was first diagnosed 11 yrs ago.i am now 37. it started with the fact i could not walk properly . My leg would flick out in front of me, that is where it all started..My worst was when i woke up and the whole left side of my body was numb, from my face to the bottom of my feet and yes even half of my privates was numb. I have had steroids several times as well as you can have steroid pills as well if you cannot get into the hospital for IV.
- —Guest sweetgrl
amc
- During my last relapse was the most frightening time of my life. I had so many different side effects happening all at one time. I never thought i would ever walk again, but my most frightening experience with my relapse was that at the time my 9 yo son knew that there was something wrong with me so he rang an ambulance. I am a single mum by the way of 2 young children my daughter only deing 3yo. When getting to the Maitland hospital in the hunter valley NSW they put me straight into a bed. Trying to arrange IV steroid treatment for me the Dr that was on duty came in & started questioning my son about my health & weather he had any time off school because of my health. As honest as he is he only said 1 day because i wouldn't have been back from neuroligist in time to get him. Dr left after i got right up him for questioning my son came back & said i believe your son is taking care of you i have reported you to the DEPARTMENT OF COMMUNITY SERVICES.(DOC'S) now i will never go to hospital
- —Annmaree
MS and Menopause
- I'm just wondering what affect Menopause has on MS?
- —Guest Kathy Rodgers
Numbness and loss of function
- Thinking back, I can recall (could have been others) two smaller episodes when I first graduated college and began working for a Company. During my first, I was in a conversation where the CEO was yalling at a group of us and my vision completely disappeared and I started sweating bullets. I felt my way to the bathroom and when I got in the cool lavratory, the symptoms dissapeared. A few months later I lost function of my left arm and the muscles around my left shoulder blade were in excruciating pain. Did I mention EXCRUCIATING pain. I was 28 and loved life, but during the 72 hour peak of the pain, tingling and loss of function, I literally wished to die. In April of 2009 I had a pretty bad one where my midscection from nipples to waist went numb to varying degrees over time and my hands started to lose function primarily in the pinky and ring fingers. I am a manager now and usually can type 60 WPM and use my blackberry well. During that episode, I struggled to stay employed.
- —Guest Shizzle
My Worst Replapse
- Is very scary I have been having so many symptoms at once and that has never happened to me before. I have pain, numbness and loss of vision in my right eye. The dysphagia is becoming unbearable and I am not able to bear weight. I have had to give up my forearm crutches and resort to my chair, I am on medicaid and the doctor that I am forced to see will not prescribe my medications and it is like pulling teeth to get him to help with the durable medical equipment that I need. I have had MS since 1983 and have always tried to stay active as I am not one to sit around it drives me crazy. This is by far the worst one I have had yet I can't say what I want it comes out all jumbled and the signals from my brain to my hands to try and type is very taxing. I am lucky so far as I have only had 2 dizzy spells, in addition to my MS I have a seizure disorder and Spina Bifida OC type 2 so it is very hard to differentiate where one starts and the other ones end... I hope this helps some of yo
- —Bayouangel49
