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Readers Respond: What helps you deal with the "MS hug?"

Responses: 174

By , About.com Guide

Updated October 12, 2008

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MS Hug or Something Else?

Though having had symptoms for 5 years, I was just diagnosed with MS about 6 months ago & am doing well with betaserone. I had a "hug" sensation a few months ago, squeezing the air out, but it was quick. For the last couple of months it feels like my ribs are badly bruised (under my breast), so I have tried new bras...basically not wearing bras at all doesn't seem to help. It does feel like a tight bandage is around me all of the time, but I have no issues breathing & do not think I am having a heart attack. Has anyone any experience with this type of rib pain and do you think it is related to MS or something else?
—faithkaiser

chest compression

I'm in the process of being tested for MS. Just the other day, in fact, I had this very unusual symptom...the feeling of an elephant stepping on my chest. It freaked me out so much I couldn't even monitor how long it lasted or what it did really. But it at least started with this chest compression feeling right above my breasts, right on my ribcage. Very frightening...and I was having what I call a 'full body hot flash'...just hot and sweating from head to toe...and then weak and wasted for about an hour afterwards.
—Guest Kitty

What helps you deal with the "MS hug?"

At first, I thought I was having a heart attack; as many people have shared as well. I also get the band around my head...at times it feels as if part of head has fallen asleep! i cope by recognizing what is happens-doing this lessens the fear and simple lay/sit, or move around in whatever way that offers relief. I have learned that patience and an optimistic attitude help :)
—Spitfire_Annie

I'm dieing!

My heart races, an elephant is sitting on my chest, I feel I have been socked in the back-I get nauseaus-vision blurs-can't breathe-vision fades-pain down right arm-electrical sensations-legs go numb. It is the most horrifying experience, and I feel so alone with it. I don't go to E.R. because to be told it's nothing would devastate me.
—Guest erika badore

hugs

Ah so the "anxiety attacks I was supposed to be having are really MS? Thanks- I'm fed up with sticking my fingers into my eyes to slow the pulse, and/or deep breathing techniques. I am sure I am a bit stressed with it all having just emigrated, but it feels like a heart attack- pain and tightness round my chest and often knifing out through my back. I did have bad dyspepsia but am on nexium which has helped a bit.
—Guest carrie

Desmodium for respiratory issues

Desmodium Ascendens tincture or tea makes it much easier to clear the chest and throat of mucous. It makes coughs work better. It is also a pain reliever, smooth muscle relaxer, and used for asthma, congestive heart failure, back pain, arthritis, and hepatitis. Its main side effect is to heal the liver and improve liver function in a spectacular way. Lab values normalize even with a Hep C infection. I keep it in the house always. I get mine at wholeworldbotanicals.com.
—triara1

Good then, I am not dying?

My first "hugs" [Richter scale, about 6-8] sent me to the ER twice. Blood pressure would drop with the tightening, and monitor alarms blared. They'd diagnosed panic attacks, so nobody cared. After that t he numbness, pins and needles set in for the long haul. I've had milder "hugs" since. My "hug" [Richter scale of a 10] last month paralyzed me for 4 hours, couldn't move a muscle in the ER. CT scan showed no stroke. Must wait until September to see a highly regarded Neurologist [I've seen lesser ones before.] I now realize I get "hug" mostly in my sleep, because often wake up gasping for air. I've had several dreadful "hugs" today. I agree all you can do is remain calm, to wait it out. Tough to do though; sometimes, you wonder if you'll make it. Now I know what it is called, plus I'm not alone and crazy, thanks! -- Warmly, Sharon Anne
—Guest Sharon Anne

MS hug = rubber band

I've had this painful symptom around my waist (and also my head - migraines?) for almost 20 years; I've found that the only thing I can do is to try & relax while I wait for it to go away -- the warmth of a heating pad (around torso) helps, too.
—Guest jb

OW!

I am currently awaiting tests for MS, and don't have a diagnosis yet (although there is a genetic factor for me believing this, and parts of my arms and some of my fingers are currently numb in this *attack* along with a host of other symptoms). I have been having the above pain on and off for about 5 years. Along with the other MS symptoms. I have been to the ER department on numerous occasions thinking I was having a heart attack as it was so painful. I have always been told the following:- I have pulled a muscle I am stressed It's a panic attack It's all in my head! (seriously, I don't think I would create this pain!!) I have tried numerous tablets and had numerous tests. Sometimes its bearable, other "attacks" I find it hard to move and can't wear a bra or clothes because my ribs are so sore and it feels like my skin is crawling. The only thing that seems to help is diazepam, for a few short hours of taking the edge off. I really want to say thank you for these articles.Love 2 all
—Guest Rhiosace

That Boa called "the hug"

Forgive me for this but there isn't anything hugging about this relentless predator ! A predatory condition which symptoms can get so bad you swear you are dying or insane. I have been told it's everything but and now that I read these wonderfully helpful entries I can smile again I Know it's name now! Thank-you to everyone who took the time here to share what this hugging was. And; as a tip i found as others have that avoiding high carbs and increasing my daily complete B's helps...alot! I'm practically addicted to my "Rockstar" in the white can, as well as my veggie foods. Yes! It (the MS symptoms) finally forced me to be totally vegetarian and I'm better for it trust me! Again thanks to all those who helped me realize I'm really NOT all alone in this after all.
—Guest Bobbee

A strange remedy but it works

I have been getting the "hugs" every month for about 6 months now. I can tell when they are coming because I will get severe knee pain (in the joints) about 12 hours before the hugs start. I have been given up to 3 shots of Dilaudid in an hour in the ER and sent home with Demerol tablets which barely touched the pain. I thought I would have to live this way after trying every suggestion my neuro could think of. One day I received a box in the mail from my mom (who is the greatest!) and it had a box of Legs Cramps (OTC) in it. I thought that would be absurd if it worked but as you all know, you will try anything. Lo and behold it took the pain away almost 90%!!! Now I always have that on hand and carry it in my purse as well. For about $8 and sold at most drugstores or discount chains, it has become more necessary to me than any of my other meds. I hope it might help someone here.
—Guest Susan

REMEDY FOR RIBS TIGHTNESS, PAIN

I believe my decision to join a choir has helped a great deal to relieve the feeling that I am wearing a tight corset. Of course it is wonderful to do something one enjoys. --ic
—Guest IRENE C

glad to find some info--finally

I was at work, when all of a sudden I had this very painful constricting feeling in my torso area--scared and confused, I went to the ER--they ran all kinds of tests--and kept me in the hospital for 3 days--then some jerk of a doctor came in, looked at me like I was full of it, and discharged me with no answers--(getting sick of dr.'s saying "I don't know") I have NOT been diagnosed with MS, (yet), but I'm going down to Mayo Clinic in a couple weeks. I've had many symptoms that are common with MS, and this Hug thing REALLY makes me think that's what it is. oh, boy. I even went and got my IUD removed cuz I thought that may have been causing the pain, constricting feeling. now no nookie for me.
—Guest TinaT

Hugs & Headlocks!

Yes, it feels like what I imagine a heart attack would feel like - can't breathe, a metal barrel stave keep tightening around my chest, intense pain. I also get this same sensation around my head in the region of my temples. Anyone else have this banding squeeze around your head? And neither my neurologist nor my internist mentioned this - I read about it online. I've found nothing that diminishes the pain or shortens the duration - it just runs it course.
—NVpioneer1950

Is it a hug

My symptoms generate from my mid back. I would swear there is an elephant standing on my back and the pressure is so intense that it causes breathing difficulty. Is this a "hug" or something different.
—Guest Teresa

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