How to Live Well with Multiple Sclerosis
Talking About Multiple Sclerosis with Little Kids
Every family affected by multiple sclerosis must make the decision on when and how to share the facts of the disease with the children. I believe the best that anyone can do is talk to children about serious issues calmly and with love.
When Do You Tell Strangers That You Have MS?
Deciding when to tell people that you have MS is a personal decision and every situation is different. Go with what feels right after weighing the pros and cons of your disclosure.
Driving and Multiple Sclerosis
Many people with multiple sclerosis (MS) give up driving, due to symptoms like cognitive dysfunction, spasticity or sensory symptoms that make it difficult to drive. Some people have been able to learn to drive again safely with therapy.
Maintaining Your Identity with Multiple Sclerosis
Multiple sclerosis can take over your world, with all of the strange symptoms and fears for the future. Learn how to live with MS on your own terms.
Create (and Become)an MS Encyclopedia
Each disease has its own terminology. Learning the vocabulary and concepts around multiple sclerosis will help you to communicate with your doctor and learn about the latest research results. Make your own MS encyclopedia, containing the ideas and terms that are relevant to you.
Do Your Thoughts Make Your MS Feel Worse?
Multiple sclerosis can make us feel terrible. However, when we think negative thoughts about our MS, this may make us feel even worse. Learn how to fight self-limiting beliefs.
Parenting with Multiple Sclerosis: Infants
Taking care of babies is hard work, which is made even more difficult when one of the parents has multiple sclerosis. Learn some tips that may make it easier to take care of your baby while living with MS.
Use a Checklist for MS Cognitive Dysfunction
By using a simple checklist, you can avoid many of the frustrating moments caused by MS-related cognitive dysfunction.
How to Be Happy Living with Multiple Sclerosis
Multiple sclerosis (MS) presents many challenges, both physical and emotional. While it can be hard to find joy in your days, it can be done.
Avoiding Stress Related to Multiple Sclerosis
Everyone has their fair share of stress. People with multiple sclerosis, however, have specific stresses related to their disease. Here are some of my tips on how to lessen this stress.
Top Five Tips for Parenting with Multiple Sclerosis
Parenting is hard work. Multiple sclerosis (MS) can make challenging moments even more difficult. With a little patience and a lot of love, life as a parent with MS can be easier and more fun.
Participating in an MS support group
Contact with other people living with MS is an important part of coping with this disease for many people. Support groups can be a great forum for sharing personal information and getting tips, as well as emotional support for people living with MS.
Ideas for Finding an MS Support Group
Participating in a support group can be a healthy way to cope with some of the emotional challenges of living with MS. Most people can find a group in their area with just a little asking and searching.
Try Writing to Reduce Multiple Sclerosis Symptoms
It has been shown that writing about a stressful event can make people happier and more productive. Research even suggests that it may help reduce symptoms in people with chronic illnesses. Try this exercise to see what benefits you might get.
Monitor Side Effects of Medications for Multiple Sclerosis
Almost any medication we take has potential side effects. By monitoring the effects and side effects of your medications, you can get the most out of your treatment, while reducing their negative effects.
What is the Swank Diet for Multiple Sclerosis?
The Swank Diet is a largely plant-based, low-fat diet that thousands of people with MS follow. Its creator, Dr. Swank, conducted a study in which people with MS who followed this diet experienced much less disease progression and disability than those who ate a more typical diet.
Cooking with Multiple Sclerosis
Cooking can be difficult and time-consuming for anyone, but people with multiple sclerosis have additional challenges in the kitchen. Get some tips on how to make cooking more of a joy and less of a burden.
Oldest person with MS?
This is a report of a man who live an active life with MS until he died at age 97.
Dealing with Emotions around Cognitive Dysfunction
It is only natural to feel angry, frustrated or sad when dealing with MS symptoms such as cognitive dysfunction. Learn how to acknowledge your emotions around this symptom.
More Cognitive Dysfunction Tips
Try these tips to help cope when cognitive dysfunction is causing you stress.
MS Communication "Cheat Sheets"
Sometimes it is difficult to find the right words to express ourselves, especially when we are talking about very emotional topics. I have put together some "cheat sheets" to help people with MS talk about difficult subjects with loved ones.
Family Vacation Tips for People with Multiple Sclerosis
Family vacations can be fun, but they can also be very tiring, especially to a person with multiple sclerosis (MS). Plan carefully and you can enjoy your family vacation without fatigue or stress causing your MS symptoms to be more noticeable.
Hiking Tips for People with Multiple Sclerosis
Hiking is wonderful exercise, and being in nature is good for our souls. If you have MS, you can continue to enjoy hiking by following some simple precautions.
Going Gluten-Free with Multiple Sclerosis
Many people with multiple sclerosis (MS) give up gluten, as some people claim that a gluten-free diet can reduce MS symptoms and even slow disease progression. If you decide to give up gluten, you need a plan. Learn some tips and steps to eliminating gluten from your diet.
Eliminate the Obvious Sources of Gluten for People with Multiple Sclerosis
It is one thing to make a decision to give up gluten. It is another thing to actually get gluten out of your diet. The first step is to cut out the big gluten-containing items - pizza, bagels, bread, pasta, etc. Read on for some ideas on how to make this transition easier.
Plan for Financial Independence with Multiple Sclerosis
Having MS is stressful. We all need a good, solid financial strategy to help us cope with whatever challenges this disease might present to us. A financial planner can really help us create a good financial plan.
Create a Medical Information Binder
People can quickly become overwhelmed with medical information, especially those of us dealing with a chronic disease like MS. Learn how to get control over your medical information.
Stay Socially "Healthy" with Multiple Sclerosis
As people living with multiple sclerosis (MS), it is important that we not withdraw from our social networks. Research shows that people who are more engaged socially are less affected by symptoms or disabilities. I present some ideas here to maintain your social health.
Stay Intellectually "Healthy" with Multiple Sclerosis
As people with MS, it is easy to become very focused on our symptoms. It is important that we keep our brains engaged with activities that make us think about something besides our MS. Learn about some of the ways that we can introduce a little more intellectual health into our lives.
Julie's MS Fatigue-Fighting Tips
MS-related fatigue can be debilitating. While there isn't anything that is proven to eliminate fatigue in people with MS, there are a number of things to try to see if you can make things just a little better and get through the rough patches.
Do you have "MS guilt"?
Multiple sclerosis (MS) symptoms often limit things that we can do. This can lead to guilt as things get left incomplete or not done as well as we would like, especially those things that we do for other people. Start working on banishing MS guilt and enjoy life a little more.
Tips on Self-Injecting MS Medications for Needle Phobes
Most people do not like to give themselves injections. However, for many of us with MS, it is a part of our lives. Reduce the stress around the needle using some of these tips.
Tips for Dealing with Numbness and Tingling as a Symptom of Multiple Sclerosis
Numbness and tingling, also known as paresthesia, are a very common symptom of multiple sclerosis (MS). While there are very few things your doctor can do to help you get relief from this MS symptom, there may be some things that you can try that can make you feel better.
Feel Better, Even With Multiple Sclerosis
Your health is more than your multiple sclerosis (MS). By taking care of yourself, you can feel better and be healthier.
Surviving Holiday Gatherings with Multiple Sclerosis
Holidays can be stressful for everyone, but people with multiple sclerosis (MS) face additional challenges for staying festive during this time. Fatigue and other MS symptoms can make it harder for us to enjoy holiday gatherings unless we learn to reduce the stress and increase the joy. Learn some tips on how to make holidays a great time of year.
Disclosing Your Multiple Sclerosis in the Workplace
Each person with multiple sclerosis (MS) must decide whom they will tell about their diagnosis. This can be especially tricky in the workplace. The decision about workplace disclosure of MS status should be carefully considered as to whom to tell, reasons to tell and how to tell.
Traveling Alone with Multiple Sclerosis
For many of us with multiple sclerosis (MS), daily living can be challenging enough in familiar surroundings to make travel seem too difficult to attempt. You can travel if you have MS. You can even travel alone and have a wonderful time. Check out a couple of these tips to see how to minimize stress while traveling alone with MS.
How To Get a Second Opinion for Multiple Sclerosis
Multiple sclerosis (MS) is a complex disease to have, but also a difficult one to treat. Different doctors have different opinions on the best way to treat MS and MS symptoms. Getting a second opinion could open up a new set of possibilities and approaches that you had not considered, but may be right for you. Get some tips to make the second...
Multiple Sclerosis Drug Financial Assistance Ideas
Multiple sclerosis (MS) drugs are extremely expensive. Learn ways to help pay for your MS medications, including patient assistance programs and other programs.
Solve Your MS Problems
Every day with MS brings challenges. Standing up for yourself and strategically solving your problems can go a long way in giving you a sense of control over this disease.
MS Coping Tips - MS Coping Stories
Multiple sclerosis (MS) can overwhelm anyone at times. Many people have developed strategies to help them cope with the hardest moments that this disease can bring. Share yours here.
On “Suffering” and Multiple Sclerosis
Living with multiple sclerosis (MS) is hard - at times even the most brave and stoic among us is "suffering" from the physical and emotional discomforts caused by this disease. By learning to strategize our approaches to the worst moments, we have a chance to reduce this suffering and live with dignity.
Can I Die from Multiple Sclerosis?
Multiple sclerosis is sometimes reported as a cause of death, especially in high profile celebrity cases. The truth is that it is very rare that anyone dies directly from multiple sclerosis. Instead, a person with MS is much more likely to die from the same things as every one else: heart disease, cancer and stroke.
MS Cognitive Tip: Engage Your Senses
People with multiple sclerosis (MS) often are bothered by short-term memory loss as a manifestation of cognitive dysfunction. By engaging your senses, you can give yourself a chance to limit the confusion and avoid mix-ups.
Holiday Hazards to Avoid for People with Multiple Sclerosis
Holidays can be busy and fun. They can also be stressful and exhausting for many people, especially people with multiple sclerosis, whose symptoms can be worsened by too much stress, activity, and lack of sleep. Strategize the holidays this year, so that you can be a happy participant in the fun.
Getting the Most Out of Occupational Therapy for Multiple Sclerosis
Occupational therapy helps keep people with multiple sclerosis (MS) independent in many ways. Using adaptations, equipment and devices, occupational therapy can improve quality of life and well-being. Following some simple rules can maximize the impact of occupational therapy for people with MS.
Occupational Therapy for Multiple Sclerosis
Occupational therapy can help people with multiple sclerosis (MS) stay independent and keep doing things for themselves. Occupational therapy is not only for people with severe disability, but can also help people with MS that are just having a little more trouble taking care of daily tasks than they used to.
Q. When Should I Get a Can if I Have Multiple Sclerosis (MS)?
Canes can be very helpful for people with multiple sclerosis (MS). They can not only offer support and help with balance, but they can also provide us with a sense of security for those days when we are not quite sure how things are going to go.
Dating Experiences of People with Multiple Sclerosis - Dating and MS
Dating is stressful, but worrying about when to disclose one's multiple sclerosis (MS) status can make it even more difficult. Share your opinion and story and hear about the experience of other people with MS in the world of dating.
When should I tell someone I am dating that I have MS?
Some people are comfortable discussing their multiple sclerosis (MS) with everyone they meet, while others feel that this is private information to be disclosed at just the right time. The situation is a little more complicated when it comes to dating - we want to find a balance of honesty and reserve while we are trying to figure out how we feel about someone. So, when is the best time to disclose your MS to a date?
Try an MS "Mini-Meditation" To Fight Fatigue
Most of us with MS fight MS-related fatigue with drugs that might not work and efficiency tips that leave us frustrated. Try this simple break to gain enough energy to keep you going a little longer.
How to Talk to People Who Are Newly Diagnosed With MS
People who are newly diagnosed with multiple sclerosis (MS) will often seek out those of us that have been living with MS for years. Here are some tips on how to be helpful in this situation.
What To Say To Someone Who Is Newly Diagnosed with Multiple Sclerosis
Chances are that you will be in a situation where someone who has just been diagnosed with multiple sclerosis (MS) will look to you for insight on what it is like to live with MS. Here are some ideas of what to say and what not to say for someone newly diagnosed with MS.
Does Multiple Sclerosis Increase Pregnancy-Related Risks?
Multiple sclerosis and pregnancy risk is a bit complicated. On one hand, multiple sclerosis symptoms usually improve during pregnancy. One the other hand, there could be an increase in complications and risk during pregnancy because of multiple sclerosis. Find out if multiple sclerosis increases the risk of pregnancy complications.
Do Vaccines Cause Multiple Sclerosis?
Many have wondered if vaccines cause multiple sclerosis (MS) or lead to increased relapses in people with MS. Find out about vaccines and MS here.
Top 10 Sex Tips for Men with Multiple Sclerosis
It is estimated that 70 percent of men with multiple sclerosis (MS) experience some form of sexual difficulties, most often erectile dysfunction. As sex is an important part of health, it is important to address these challenges. There are many things that you (and your partner) can do to keep sex alive in your relationship.
Tips for Dealing with Cognitive Dysfunction
For people with cognitive dysfunction as a symptom of multiple sclerosis (MS), seemingly simple tasks can be frustrating. Try some of these tips and ideas for helping yourself avoid stress and get things done.
Vitamin B12 and Multiple Sclerosis
People with multiple sclerosis (MS) are at higher risk of vitamin B12 deficiency. Low levels of vitamin B12 can mimic and exacerbate many MS symptoms, including fatigue, depression and memory loss. Treatment for vitamin B12 deficiency is simple, involving oral supplements or intramuscular injections.
Vitamin D and Multiple Sclerosis
The majority of people with multiple sclerosis (MS) are deficient in vitamin D. This contributes to our susceptibility to osteoporosis, which people with MS are much more likely to get. In addition, vitamin D may have some positive effect on the immune system that could help reduce inflammation associated with MS.
A Program to Redefine Health for People with Multiple Sclerosis
People with multiple sclerosis (MS) or other chronic diseases often focus much of their attention on the physical aspects of their health. This week, you’ll spend time working with and expanding your definition of health, giving you a better perspective on life and your MS.
Top 10 Sex Tips for Women with Multiple Sclerosis
Although it is estimated that about 75 percent of women with multiple sclerosis (MS) have some form of sexual dysfunction, this does not have to mean the end of intimacy for these women or their partners. There are many things that couples can do to maintain a healthy sex life and keep the romance in relationships.
MSers Respond: What is the stupidest thing someone has said to you about MS?
Hearing stupid or insensitive remarks sometimes seem to be an everyday occurrence for people living with multiple sclerosis (MS). Share your experiences here to help others realize they are not alone.
Selenium and Multiple Sclerosis
Some people with multiple sclerosis (MS) may have low levels of selenium or of glutathione peroxidase, an enzyme produced from selenium in the body. However, it is not advisable to take high doses of selenium (or other antioxidants) if you have MS.
Tips for Dealing with Swallowing Problems in People with Multiple Sclerosis
Since many people with multiple sclerosis (MS) have difficulties swallowing, also called dysphagia, it is important to adopt proper habits when eating or drinking. These can help people avoid problems such as choking and aspiration pneumonia in the future.
Can I donate blood if I have multiple sclerosis?
People with multiple sclerosis (MS) are now eligible to donate blood, according to the Blood Donation Eligibility Guidelines of the Red Cross, which were revised in May 2007. However, it is still possible that some blood banks have their own rules and will not allow people with MS to donate blood.
Using Visualization To Reduce Stress When Injecting
Visualization can be used to help you give yourself stress-free injections. Visualization uses the natural learning processes of the brain to rehearse situations before they happen in order to perform them better in the future.
When to Massage Injection Sites for People with MS
Massaging the site after an injection of one of the disease-modifying drugs for multiple sclerosis (MS) can really help reduce irritation in these areas. However, it is extremely important to pay attention to the rules of WHEN is the best time to massage your injection sites, which depends on which medication you are taking.
Ease the Pain of Injections by Finding a Helper
Having a friend or loved one help you with your medication injections can make the process easier. It is important to understand how to make it easier for someone to help you with your shots.
Make Injections Easier By Breathing
Giving yourself an injection (or having someone else give one to you) can be a very stressful experience. Breathing is the best way to trigger a state of relaxation. Try the Relaxing Breath exercise to make injecting easier.
Make Injections More Pleasant With a Ritual
Reduce the stress of your injections by developing a pleasant ritual around the injecting process. Create a custom ritual which includes things that you like and that fits into your life.
Helping Those Who Help Us
People with multiple sclerosis (MS) often need extra help from their loved ones. Whether this is a situation of total dependence or just a little assistance once in awhile, it is important that those helping us are acknowledged and supported.
Principles to Promote Quality of Life of People with Multiple Sclerosis
The Principles to Promote Quality of Life of People with Multiple Sclerosis were developed by the Multiple Sclerosis International Federation so that we, people with MS, and those who work to make life better for us have a set of common goals to strive for. This document captures these ideals in one place.
Stress, Fear and Anxiety in the Face of Multiple Sclerosis
This article from Applied Neurology discusses different aspects of stress and multiple sclerosis (MS), including: anxiety following diagnosis, needle phobia resulting in difficulties self-injecting, and the physiologic impact of stress on MS relapses and symptoms.
Osteoporosis and Multiple Sclerosis
People with multiple sclerosis (MS) are at elevated risk for osteoporosis. This is because people with MS are often less active due to disability. Risk of osteoporosis is also increased in multiple sclerosis due to use of steroids to treat some of the symptoms and relapses of MS. Osteoporosis is an especially dangerous condition for people with MS because of increased risk of falling due to MS-related symptoms involving balance and coordination.
Exercise Success Secret for People with MS: Be Confident
It is very important that people with multiple sclerosis (MS) engage in some form of physical activity. While many people with MS have disability or symptoms that make exercise difficult, research has shown that self-efficacy beliefs help people get more physically active.
Top 10 Ways to Live Well and Long With MS
Live well and live long with MS. Learn ways to increase your health in spite of your MS.
Make Your Own Cooling Products for MS Heat Intolerance
Tired of being trapped inside during the hot months due to multiple sclerosis-related heat intolerance? Try some of these items that you can make at home to help you beat the heat.
Tips to Survive the Summer with Multiple Sclerosis
If you have multiple sclerosis (MS) and have a hard time with heat intolerance during summer months, try some of these tips to let you get out there and join the fun.
Keeping a Journal May Help You Cope Better with MS
Some people find that writing in a journal daily helps alleviate stress and clear out negative emotions. If you have MS, writing things down may help you cope a little better with symptoms and daily challenges. This article will give you some tips on how to get started.
Sleep and MS
Sleep is important for people with multiple sclerosis (MS). Because of fatigue, a poor night’s sleep can really impair a person with MS’s ability to perform daily activities. Learn about good sleep habits and address problems that may interfere with sleep and cause insomnia.
Yoga and MS
Yoga is becoming a common form of exercise for people living with multiple sclerosis. Yoga provides a gentle way to build strength, flexibility and balance that can be adapted for an individuals health status. Yoga can even be used to rehabilitate people who have disabilities.
Stress and Multiple Sclerosis
Having MS can cause an increase in stress in a person’s life. Some think that stress can cause a worsening of MS or even cause MS itself. Explore the relationship between stress and MS.
Create an MS Relapse Plan
Multiple sclerosis is an unpredictable disease. By creating a strong relapse plan, you can be ready for whatever may happen. Plan now for relapses and minimize unnecessary stress.
The Cohen Family on Life with MS
Richard Cohen, Meredith Viera and their three children, Gabe, Ben and Lily, talked openly about family life with MS.
Do You Love Your MS Doctor? If Not, It’s Time to Go “Doc-…
People with multiple sclerosis (MS) need medical care for their entire lives. Ideally, this care will come in the form of a partnership with a doctor who works with each patient to make sure that all concerns are being addressed and the treatment strategy is providing the best quality of life for his or her patients. Find out how to make the change if your doc is not living up to this standard.
How to Prepare for an Appointment with Your MS Neurologist
Many of us are unprepared when we go to our neurologist appointments to discuss our multiple sclerosis symptoms and treatments. Be strategic - get prepared before appointments and get the most out of your time with your doctor.
How To Communicate with Your MS Doctor
Effective communication is essential to getting good medical care, especially for people with a disease like multiple sclerosis, where docs rely us to tell us what is going on with symptoms. Optimize your communication with your doctor and receive the best medical care possible.
Talking About Complementary and Alternative Medicine With Your Neurologist
Many people with multiple sclerosis (MS) use some form of complementary and alternative medicine (CAM). However, most of the time, people do not mention the use of CAM to their neurologists. Prepare to talk to your doctor about CAM using these strategies.
Create Your Personal MS Mission Statement
A personal mission statement can help people with multiple sclerosis maintain perspective on their illness and the impact of MS on their lives.
Injecting Multiple Sclerosis Medications
Self-injecting medications for multiple sclerosis (MS) can be stressful, especially at the beginning. While it will never be pleasurable to give oneself a shot of MS medication, there are a couple of things that can make it more pleasant.
Top 10 Pregnancy Questions for Women with MS
For many women with <a href="http://ms.about.com/od/multiplesclerosis101/a/ms_intro.htm">multiple sclerosis</a>, the diagnosis comes right at the time when they are thinking of starting (or expanding) their family. Years ago, women with MS were discouraged from having children, as doctors believed that pregnancy made MS worse and that they would not be able to care for young children. The picture is much brighter today. Studies have shown that pregnancy is actually protective for women with MS. Also, the <a href="http://ms.about.com/od/treatments/a/ms_treatment.htm">current therapies</a> give women a much better chance of staying physically active and capable of caring for newborns, chasing toddlers and even coaching the soccer team someday.
Pregnancy Questions for Women with MS
A diagnosis of multiple sclerosis (MS) by itself is not a reason to avoid pregnancy, as used to be thought. There are many things to consider when planning to conceive, including treatment before and during pregnancy, and taking care of a child as well as yourself. Learn about how MS does – and does not – affect pregnancy.
Michael Graves: A Hero and Role Model for Disabled People
Michael Graves is a well-known architect and product designer. He is also a man living with a disability. Inspired by his own challenges, he has created some amazing products and living spaces for people with disabilities.
Air Travel with Multiple Sclerosis
Long flights can be brutal for anyone, but for people with MS, a miserable journey can leave us feeling terrible and unable to enjoy our destination. Some of these tips may help you do better on your next long-haul flight.
International Travel with Multiple Sclerosis: Translate Your Needs
Google Translate is a great tool that can help you explain your medical needs while overseas.
People with MS Also Need to See General Practitioners
People with MS are vulnerable to the same health problems as people without MS - infections, as well as the diseases associated with lifestyle and aging. We all need to see regular doctors in addition to our neurologists to stay as healthy as possible.
A New Approach to Exercise and Multiple Sclerosis
Instead of trying (and failing) to find time for a 30-minute exercise session during your day, try to get more movement in while doing your daily tasks or take walks. You will get many benefits and have a much better chance of success.
Your MS Doctor as a Partner in Health
"Shared decision making" describes a situation where patients and physicians work together to figure out what is the best course of treatment for the patient.
How does my MS impact my kids? (Part 2)
There are many families in which one of the parents is affected by multiple sclerosis (MS). Learn about the affects of MS on children and how to avoid some of the problems.