1. Health
Send to a Friend via Email
Julie  Stachowiak, Ph.D.

Fasciculations (Muscle Twitches) and MS?

By October 26, 2010

Follow me on:

I'm currently working on an article comparing ALS (amyotrophic lateral sclerosis or Lou Gehrig's disease) to multiple sclerosis (MS). The two diseases share many symptoms, but are vastly different diseases, with completely different mechanisms and prognosis.

In doing this research, I came across the word "fasciculations," which is a common symptom of ALS. Fasciculations is basically a fancy word for "muscle twitches" - tiny, involuntary muscle contractions right under the skin - I've experienced these in my eyelid, twitching for a couple of minutes that go away. Like my experience, most fasciculations are benign and transient, meaning that they are no big deal and come and go.

However, fasciculations can also be caused by a number of diseases, such as ALS, Lyme Disease, Myasthenia Gravis, and other diseases of the motor neurons. This symptom can also be caused by dehydration, fatigue or various other things, like benzodiazapine withdrawal and magnesium deficiency.

There is also something called "benign fasciculation syndrome" (BFS), which has symptoms of frequent muscle twitches, but also numbness and tingling and fatigue - very common symptoms of MS.

This all got me wondering if fasciculations could also be a symptom of MS, since we have all sorts of funky things going on with our nerves. I realize that this is not a common symptom, but I am curious if it is ever a symptom of MS (or, if not a direct symptom, something that people with MS experience frequently).

Doing a little research in the "official" places, like PubMed and MedlinePlus, I came up with the answer "no, fasciculations have pretty much nothing to do with MS." However, digging a little more, I found some people who said that they had fasciculations and were later diagnosed with MS.

I decided to bring the question to the people - you. Have you ever experienced these little muscle twitches to the point that it bothered you? Where were they - legs, eyelids, other places? Did they accompany any specific MS symptom? Were you on any medication that you linked it to? What did your neurologist say? Tell us your "fasciculations stories" in the comment section below.

Comments
October 26, 2010 at 5:32 pm
(1) Debbie from Naperville, IL says:

I have fasciculations constantly in my calves…I watch them; it looks like my abdomen did when my babies were inside me and moving around late-term.
I also get them in my quads, face, upper arms and feet.
Occasionally the fasciculations in my calves will build into a spasm, so I make sure I stretch occasionally to prevent this from occuring.
Not a symptom of MS? Tell my body that, please…
I did discuss this with my neuro, but my swiss cheese brain forgot what he said about it..

August 10, 2011 at 4:35 am
(2) david says:

don’t be so hard on ya self! i have ms and if my neuro told me something meaningfull i’d probably remember it,if not it goes to the recycle bin.plus i really like swiss cheese!

November 23, 2011 at 5:56 pm
(3) Susan R says:

Hi, Debbie. I’m the Susan R from Life with MS blog. I have those twitches a lot. Mostly in my calves. It’s hard to keep still during an MRI or a long flight. Today, the stewards and stewardesses don’t like people to move around the cabin. I have been told to take my seat more than once. That was 5 yrs ago. I haven’t been on a plane since then. Hope all is well. Debbie. Happy Thanksgiving!

October 26, 2010 at 8:37 pm
(4) DK says:

I too have MS and experience these. I get the occasional eyelid twitch that will last for a few minutes, and my legs twitch when I am falling asleep…but not Restless Leg type. Rarely, I will have a twitch in other parts of my body.

Interestingly, my predominant symptoms are sensory, like you mentioned, numbness and tingling and dehabilitating fatigue. Please let us know where this leads you.

October 27, 2010 at 9:25 am
(5) Colleen says:

Yes. I get eye twitches (usually left eye) and when first dxd was getting imperceptable lip/mouth twitches (left side). Coincidentally I also get TN in my left ear. Have had twitches in my (left!) thumb. Neuro made note of all, didn’t comment one way or the other, or if she did my “swiss cheese brain” (thanks Debbie!) also forgot. I always assumed it was MS. I am starting to get twitches or foot cramps too. After the discussion about twitches and TN I was put on baclofen and neurontin. I’m also on lexapro and it seems someone mentioned that could cause twitches.

October 27, 2010 at 10:56 am
(6) Paige says:

Ever since my teens, I’ve had eyelid twitching bouts. I also used to get them in my upper arm or bicep area. Diagnosed 10 years ag w/ MS, I rarely have those twitches but have adopted new twitches, which I attribute to a misplacedd or ‘lost’ electric signals pulsing through all the swiss cheese-like regions of my body. I get them while I’m awake, asleep, sitting quietly, or watching TV. Hands, upper arms, feet–it seems to be an equal opportunity twitch. And yes, I attribute it to MS. Another one of my regular symptoms is burning, itching zapping type of pain which causes my arms or legs to twitch or spaz rather boldly. Sometimes, the spaz/muscle reaction is so spastic that I wonder if it’s what it feels like to have ALS or Parkinsons–where your body and muscles are just spastically doing their own thing.

June 6, 2011 at 6:29 pm
(7) Janet Bryant says:

I have those twitches and the spasms and if they occur at a salid bar or buffet it looks like I’m aiming to start a food fight. For no reason I can figure my hand or arm or leg will fly up as if a string was tied & pulled like a puppet. It can be really embarasing oh you know what I mean. The twitchings are mainly hands and legs, and occur ay time it feeels like it wants to. My neuro guy always says that “remember that this is a disease of the nurves and they connect to muscles” so whatever I tell him I geet that reply. When I get warm my nose and cheeks turn bright red like a horrible sunburn in just these areas. Sometimes my palms get red too. I just blame it on the MS. What else?

October 27, 2010 at 11:38 am
(8) susan says:

I have eyelid twitching on the rt. side ,also affecting my cheek and under my rt. jaw. It is visible to me when I look in the make up mirror but they don’t seem to be visible to anyone else unless I have them look at me and watch for the next one!
When I have the cheek twitch it feels as though the whole side of my face is pulled tight then released. It isn’t painful but is annoying. My M.S. affects my rt. side so I assume this is an M.S. symptom. No twitches anywhere else..I take LDN and that stopped myleg spasms,

April 28, 2011 at 5:26 pm
(9) Kate says:

I am a neurologist. I see MANY patients with MS.

It sounds like you may have hemifacial spasm.
This is treatable with Botox typically.

What we know about the pathology of MS–so far–is that it is supposed to affect only the central nervous system.
Fasciculations–twitching of muscles–is a disorder of the peripheral nervous system.
Now, having said that, I certainly do see many patients with pain that would seem to be PNS in origin–burning in the feet, etc– but which is likely very much due to their MS as studies of the PNS are negative.
I can’t explain this but many other neuros I’ve talked to mention this as well.
Maybe there’s something we don’t know yet about MS….

May 30, 2011 at 6:03 pm
(10) carol says:

Hi,im being tested for mg and are awaiting results please would u email me then i can tell u my symtoms.x

June 8, 2011 at 11:04 am
(11) Iris says:

I have been having a buzzing feeling in my lower abdomen for 3 days now ( like I swallowed a cell phone and it’s buzzing)
I’m wondering if this is the same fasciculations syndrome.
Lots of women have written in with this problem.
Would appreciate any advice.

November 19, 2011 at 1:26 pm
(12) dawn98922 says:

I have been having twitching in my right bicep. I am wondering if it has any thing to do with my having carpal tunnel in that same arm. My cousin has MS and I am slightly freeked out about that.

October 27, 2010 at 11:43 am
(13) Anita - Ontario, Canada says:

I get leg twitches constantly. If I sit in a cushy chair/sofa, lay bed or am in a car for a long time it starts, then goes, then starts. Drives me crazy. My Neuro gave me some pills to help relax me (doesn’t even touch it) exercising before bed makes it worse (it’s like they can’t settle afterwards), stretching makes me get leg cramps. The only thing that works for me is getting up and walking around for a minute or so, or just standing up, then hopefully I go to sleep before it starts again. Does anyone else have this problem too?

November 23, 2011 at 3:41 pm
(14) Nora says:

Try Requip.

October 27, 2010 at 12:16 pm
(15) Marcus D. says:

I get them too. My eye lids, my right leg and my left hand. I also have been getting them really bad in my thumb and middle finger. My entire muscle just jumps. Sometimes it lasts a few seconds and other times it lasts a few minutes. It only hurts in my hand.

October 27, 2010 at 12:57 pm
(16) Lilly says:

Yes, I also have eyelid twitches. The worst one I have is in my left hand. It twitches at night when I am trying to sleep enough that it wakes me several times a night.

October 27, 2010 at 1:07 pm
(17) Ebony says:

I get them in the bottom on my right eye not the lid but the bottom right corner and my left thumb. I HATE them. No pain in my eye but thumb does hurt when they start.

October 27, 2010 at 1:10 pm
(18) kelly says:

Hi
My MS symptoms started three years ago with constant fasciulations head to toe. I think something was always twitching. My neuro didn’t think it had anything to do with MS. I think the twitching are muscle fibres contracting and this leads to spasticity.

October 27, 2010 at 1:15 pm
(19) Chris says:

I get these twitches nearly every night and worse after exercise. I spoke to my neurologist and he has identified it as Spasticity associated with the MS and prescribed Baclofen. I’m picking up the script at the pharmacy this evening so I’ll let you know how it works. Before the mess though it has been a continuous process of getting out of bed, massaging my thighs, glutes and calves, and sometimes taking a shower which seems to diffuse the sensations. It’s frustrating though as I’m desperately tired but the twitching / spasticity drives me insane. I looked on Google under ‘MS, spasticity’ and it described it well explaining why it’s worse after exercise. Crazy how what I essential for keeping the disease from getting worse fuels other symptoms

I hate this disease. Keep praying for the cure.

July 6, 2011 at 7:21 pm
(20) Susie says:

Hi,
I was doing a search on MS and fasciculation and came across t your response to this section in an article. You are the FIRST person I have come across who has the same symptoms I do with the spasticity in my gluts, quads, calves and feet. I was switched to Tysabri last fall and it made these symptoms progressively worse so I now have them in my arms, chest and hands. How did you do with the Baclofen? I am on an incredible amount of baclofen, neurontin and ultram ( my neuro says it works on the seratonin receptors in the brain which is where the spasms originate). I have recently started Elavil at night. This has been used for neuro pain in diabetics for a long time and had good results. It was originally an antidepressant but in low doses 25-50 mg helps neuro pain. This has helped significantly in evening but is very sedating so seems to make fatigue worse through the next day. However, I have not been up in the shower at night since starting it. My spasms definitely are painful and drive me truly insane. Been off tysabri since April but not seeing a huge improvement in the spasms. I have gotten incredibly frustrated and your comments help just to know that there is someone else who actually has symptoms like mine.
Have you found anything else to help? I have tried ice and sometimes it seems to help more than heat but there is truly no consistency to what helps when. Is there anything else you have found that makes your spasms worse? Just read further in this article that nuts can make them worse which is a very common afternoon or evening snack for me so going to eliminate these from diet and see what happens.
Well, I apologize for the lengthy diatribe but it was such a relief to know there is someone else who goes through what I do every night. Figured it wouldn’t hurt to touch base with you to see if we could share what helps or worsens these spasms. Please don’t feel like you have to respond if you are not interested.

October 27, 2010 at 1:16 pm
(21) alida says:

Yes, have MS and do get twitches – currently left eye, bottom outer corner has been twitching for 2 and a half months! dr says take magnesium – after 1 month – still not helping. Left hand also twitches – on and off – it is sometimes painful – and whatever I was holding in that hand at that moment – will drop! during both my pregnancies the left hand had permanent twitches – do not understand the correlation?!

October 27, 2010 at 1:23 pm
(22) Brenda says:

I have bouts of fasciculations every once in awhile. I get them in my legs, in my arms, eyelids and back. They last anywhere from 1 hour to 1 week. I don’t think they have ever lasted longer than that.

I just find them extremely annoying and not painful thank goodness.

My sister says she gets them off and on too but she doesn’t seem to have MS.

October 27, 2010 at 1:28 pm
(23) Velma says:

I have twitching of my bottom eye lid. It usually lasts several minutes. Also get them on my upper lip. Thank goodness neither lasts very long so are not, so far, a big problem. I do have lots of calf pain and stiffness. Like a horrible charley horse that lasts for days. Hard to walk or sit or lay or anything cause it hurts constantly. Oh well, the fun of having MS-huh???

October 27, 2010 at 1:30 pm
(24) ANNA says:

I have had twitches in a finger that will last for a few minutes and then go away. It goes in rythm with my heart beat. My eye will twitch sometimes as well. I never thought of it having anything to do with MS. I considered it a normal thing.

October 27, 2010 at 1:33 pm
(25) rebecca says:

I experience these twitches on a fairly regular basis. They more often occur on my right side than my left, but can happen anywhere on my person- most often my arms, love handles and legs. As far back as I can remember I’ve had small twitches here and there, but after my first attack (February of this year) they’ve increased drastically in frequency. My other symptoms include numbness in my body and arms, vibrations in my legs, tingling all over, and, as DK put it, debilitating fatigue.

Oh! I’ve been meaning to ask around about something strange that happened while I was having an MRI. During one of the series the right side of my body twitched incessantly. The moment the particular vibration stopped, the twitching subsided. It was the second series of my C Spine and I have a lesion in the C1-C2. Does anyone have any experience or information with an MRI causing a temporary increase in symptoms? I was convinced the machine was zapping the lesion and it was acting up.

September 7, 2011 at 10:21 am
(26) melanie brookes says:

I haven’t been diagnosed with MS as my MRI was clear but my symptoms are still ongoing and include twitching, cramps, pins and needles and numbness as well as extreme fatigue, aching muscles, headaches etc…. I did notice though that when I had one of my MRIs, think it was my spine although I not sure which section, it made my right leg twitch quite violently.

October 27, 2010 at 1:34 pm
(27) Jensequitur says:

I’ve experienced both fasciculations and large muscle twitches since long before I was diagnosed. I’ve had twitching in my chin, my eyelid, my cheek, my little finger and thumb of my right hand, the outside and inside of the thigh, and the calves. I also get a rhythmic twitch in my back muscles, especially when pressure is applied to a sore muscle.

I’ve never heard anybody say that fasciculations are not MS-related – it seems obvious to me that they are.

Of course, I have spinal lesions so I’m sure the nerve connection to those twitching muscles is defective.

October 27, 2010 at 1:35 pm
(28) Leslie says:

How funny I received this latest newsletter. This morning – I have had the twitches above my left eyelid (between the lid & eyebrow). This is concerning me, as a few months ago – I got a giant multi-colored ‘spot’ in my left eye – eye dr said optic nerve was fine, but gave me his personal cell phone number in case (he never did tell me what he saw to make him give me his number, and in front of my husband too ).

But back to twitching – I also have had them in my right lip, various parts of body – but my last (and 1st major) attack started with my right big toe twitching/spasm’ing.

I can remember getting these as a kid and thought it was cool to watch – figured my muscles were developing or something – but now I wonder ‘What the heck was I thinking???’

October 27, 2010 at 1:41 pm
(29) Liz says:

I was diagnosed about 3 years ago wit ms and I do have those muscle twitches. My eyelid and also around my nose. My neurologist said it was normal with MS. I don’t think related to any medication because I had them before any meds.

September 8, 2011 at 6:26 pm
(30) sally says:

I have ms as well and I have the same thing happening to me around my nose and my eyes. I just went to my ms doctor and she said it was normal…. but whats normal anymore good luck to you my friend

October 27, 2010 at 1:50 pm
(31) Traci says:

I’m so relieved to hear that others have experienced this and I’m not nuts!! Lately, I’ve had the ‘fasciculations’ in my left bicep … but I’ve had them in my legs (thighs and calves), feet and face/eyelids. As Debbie wrote earlier, the twitching / movement reminds me of how my pregnant belly looked when the baby moved. It doesn’t hurt … it’s just really freaky!
My neuro said it’s not MS related also … I tend to disagree!!

October 27, 2010 at 1:53 pm
(32) JS says:

Yes, I have MS (diagnosed 3 yrs. ago) and get these twitches, which have increased recently. I have them in my arms and legs; sometimes around my eyes. They are mostly noticeable to me in my arms and legs when I see them move and did nothing to make it happen while I am awake – usually sitting in a chair or watching TV. It looks and feels strange. Often it wakes me up while sleeping. I have woken myself up by hitting myself in the face with an involuntary twitch in which my hand hit my face and woke me up. I don’t really know how I know that happened, but I guess it is from seeing it happen while I am awake I guess. And besides, there was no one in the bed with me!

October 27, 2010 at 1:54 pm
(33) Carolyn says:

Hi all–ok, I’m ’bout the oldest “person with MS” here–dx in ’76–and have had these “twitches” for years. Like all of you, an eyelid or a muscle will will flutter for several minutes. Never thought to address it with neuro as just seemed to be a “normal” ms thing (lol!!!).

October 27, 2010 at 1:57 pm
(34) SHARON says:

I HAVE THOSE TWITCHES WHEN I AM TRYING TO GO TO SLEEP AND DURING MY SLEEP. THEY ARE ALL OVER MY BODY..VERY ANNOYING! ALSO, I HAVE A TERRIBLE BURNING IN MY LEFT KNEE AND LEFT HIP THAT LASTS FOR ONLY A FEW SECONDS BUT REALLY HURTS. DOES ANYONE ELSE HAVE THIS? MY DOC HAS PUT ME ON A PILL FOR THIS (I AM AT WORK AND DON’T HAVE THE NAME OF IT WITH ME) AND IT HAS HELPED SOME….

October 27, 2010 at 3:01 pm
(35) Barbara says:

Last year, about two years after PPMS diagnosis, I began to experience muscle clenching in my upper left leg. When it released, after about twenty seconds, I could see the muscle relax! This is not my weak leg.
I described it to my neurologist thus: it looks like a snake slithering across my thigh!
Her response was interesting; she said that often when there is weakness in one leg, the other leg may present with various changes in sensation, this being called a “harlequin” effect!

October 27, 2010 at 4:16 pm
(36) J. Gregory says:

I have twitches in my eye lid. These twitches only last a few minutes but I have them often. I’ve only had this twitching since I’ve been diagnosed with MS so I assume the twitches are MS related (related to either the disease or to the MS medications).

October 27, 2010 at 4:21 pm
(37) JANIS says:

This is about ALS and MS having similar initial symptoms, and faciculations.
I have PLS, an upper motor neuron disease grouped in with ALS. I was suspected of having MS for so long that I joined an MS support group, and get your blog every week. Now, I’m a member of an online PLS/ALS support group. Even though the neuros say that PLSers don’t have ‘fasciculations’, we all comment about something that looks and feels like them. True fasciculations are from dying lower motor neurons. BUT… ALS, PLS, and MS share spasticity, which also causes the ‘wiggly worms’ and visible movements under the skin. I used to have such strong muscle jerks in my shoulder area that my whole torso would move as if I’d been pushed. When I was finally diagnosed with PLS, and given baclofen, the ‘fasciculations’ reduced in frequency and strength.
The only other person who described the sensation ‘like worms jumping under my skin’? A friend who has significant spasticy from MS!

October 27, 2010 at 5:42 pm
(38) Rebecca says:

I came across this article that discusses twitches and MS (twitching being a secondary topic). Thought it was interesting enough to send along.

http://sify.com/news/scientists-discover-new-target-for-multiple-sclerosis-news-international-kk0rasajbed.html

October 27, 2010 at 5:58 pm
(39) Carol Mitchell says:

I was diagnosed with MS almost 20 years ago and get these wierd
twitches in lots of parts of my body. I have learned that the twitches in my eyes are usually a precursor to an attack, then
its time for Solu-Medrol and they seem to stop. Usually in a day or so

October 27, 2010 at 6:44 pm
(40) Cindy says:

Thank you for this topic and all the comments everyone has left. I began having these fasciculations about six months before my dx in 2008. I mentioned them to my first neuro – he had no comment that I can remember and did not dissuade me from them ever NOT being MS. My second neuro told me emphatically that they were stress related not MS related. I am not so sure of that. They seem to follow my MS patterns of flair and remit. As for were they occur… all over. Feel free to use your imagination. My toes are especially affected. My forearms seem to be spared, however. These twitches sometimes supersede my MS in annoyance and discomfort. They drive me nuts! As troublesome as they are I am glad to know I am not they only person who has MS and these “twitches.” Thanks again.

October 27, 2010 at 7:06 pm
(41) Cindy says:

A few years ago, my twitches started with my right thumb…no pain, just very annoying twitching and then occasionally my right cheek or eyelid. I have brought it to the attention of my neuro but no explanation can be given except possibly fatigue or stress. The twitches don’t happen now as frequently as they did before…not sure why. But that’s fine with me…I’m not complaining!

October 27, 2010 at 9:03 pm
(42) Dusty says:

I have this happen in my left forearm. I can actually see the twitches and then it causes my thumb and index finger to move up and down. It happens for 15- seconds to a minute. I have read on some sites about muscle twitches associated with MS. Some say pressure on the body part can cause it to happen. It happens more when I have pressure on my arm such as laying down. But it happens when I have no pressure on my arm. This has started in the last two months for me. I am lucky and don’t have a lot of bad syptoms, so I notice anything out of the ordinary.

October 27, 2010 at 9:45 pm
(43) karen says:

Yes, I had fasciculations in my eyelids several times in the past and only several years later was diagnosed with MS…
Interesting! Very interesting!!!…

October 27, 2010 at 10:49 pm
(44) ron griffiths says:

I have ms for over 15 years. I have the twitching of my rt eyelid. You can actually feel it vibrating to the touch. I believe it is of the eyelid and eye ball on the right side. My wife can feel the vibrating. I am on medication baclofen 10mgs tid and pain meds. Also on carbatrol er for trigeminal neralgia. I can only expect that MS affects many parts of the body as it is in the brain which is like the main frame of the electrical system in your house. No cure but just pills to maintain some normalcy

October 28, 2010 at 4:01 am
(45) Anne says:

I used to have eyelid twitches as you describe, but since my MS stated getting much worse, I don’t have them anymore. What does that mean? I haven’t the slightest idea. I do get twitches in my legs similar to restless leg syndrome but not RLS. My neurologist does’t make anything of it because he prefers not to comment. Maybe I should change my neurologist!

October 28, 2010 at 10:25 am
(46) Angela says:

Hi – Just wondering if any MSers here had their initial symptoms of MS involving muscle twitching/spasms?

I started having problems with this in June and since then, not only do I have spasms and twitching, mainly on my left arm and left leg, I also am having a burning sensation on my tongue (feels like I scalded it on a hot beverage), along with my right thigh burning in certain spots, and tingling down the legs ….. also have developed swallowing and speech problems ……

I have not had an MRI yet because I have a pacemaker – and it’ll require surgery to explant the device in order to get an MRI …..

January 21, 2011 at 8:59 pm
(47) shannon says:

I started having leg spasms and was diagnosed with osteoarthritis treated with water therapy and pills for fatigue. Years went on and the twitching started in my eye lid, lip cheek, thigh and abdomen. All on the right side. I started having balance problems with sprained ankles which I thought was just being clumsy until I started falling over furniture and everytime I became ill with stomach aches and temperature I would fall to the floor. Immediately before the stomach problems and fall I would start having all over body twitching which I kept telling the Dr.s that it seemed like a seizure because of the jerky movements. The migraines became unbearable and the episodes started coming more often. I didn’t get taken seriously until the optic neuritis became more than I could take. I was diagnosed with MS in October 2010 and my neurologist tells me alot of things that don’t make sense. When I tell my Copaxone nurses they tell me the symptoms I have are related to MS. I have been misdiagnosed with a list of diseases prior to the MS so I have been hesitant to believe it. I have now convinced myself that it is true because there are so many people that are suffering the same things that I do and have been diagnosed MS. I hope that you find that you do not have MS and I pray for you if you do. Rely on the people you meet through these sites because sometimes they seem like the only real people who understand how miserable this disease is.

October 28, 2010 at 1:08 pm
(48) Helen Solinski says:

So glad you are spending the time on this! I was dx in 2003 with all spinal lesions. The fasciculations started a few years later – all over my body! I was told fasciculations are the hallmark symptom for ALS, off I went for testing. No ALS based on negative test results, but the “global” fasciculations continue relentlessly. How long can I twitch without a physical consequence? I keep waiting for the other shoe to drop. Is it my MS or do I have something else brewing?

October 28, 2010 at 1:30 pm
(49) Michael Richards says:

Yes, I get them too. I know other people without an MS diagnosis get these from time to time as well, so the question of whether this is truly and MS symptom needs to be studied. Unfortunately, it will probably be hard to study, since I doubt that neurologists and doctors have been noting fasciculation in patient records all these years.

Personally, I can say that these have become much more common for me since my dx, and also are associated with my relapses. I keep a daily health record, which records this fact.

October 28, 2010 at 3:24 pm
(50) Louise says:

I have them in my right eye often. I had my flu shot last year and the nurse jumped back. I asked her what was wrong, and she said that my muscle just flipped, whatever that meant lol.
I had them also in my right arm, and it lasted for about 6 hours. My friend was “freaked” out just looking at the movement.
I have never mentioned this to my neuro, afraid that he will think I am totally insane.
So I live with them, not that they happen often, but it is a very weird feeling.

October 28, 2010 at 5:13 pm
(51) Mike says:

I have those annoying twitches mostly in my mid to upper torso,arm’s and both hand’s.I have really noticed some thing though,(amazed I rememberd it though C.R.S. lol) i have took muscle relaxer’s regular ‘for the severe ms hug’ and the twitch’s seem to have almost stopped. But I’v started laying off the muscle relaxer’s n the twitch’s are sure to return.I call it “The Joy’s Of MS” joy, yea rite.

October 28, 2010 at 6:56 pm
(52) Karen Beth says:

I get eyelid twitches. I especially notice it at night. After I had numbness and tingling in my left arm from my elbow down to my fingers last month, my left pinky started twitching for the whole night. The scenerio repeated itself the next week.

October 28, 2010 at 8:00 pm
(53) Robin says:

I don’t know if they qualify as “fasciculations”, but my right eyelid gets twitchy when I am more tired than usual.

October 29, 2010 at 4:51 pm
(54) Ed says:

I too have this muscle twitching on my left bottom eyelid.My left eye is the one that gives problems with vision

October 29, 2010 at 6:30 pm
(55) Angie says:

Okay, I was dxs with MS in 2009 but I must admit that it is never boring.The muscle twitching I have had now for about 3 months but all over the body. I was at my neuro today and he told me it is a symptom of MS, I also have lost filling in my left foot.

I’m on Rebif I’m sure it is not med. related.
I have been taking magnizim every day for 2 months now it seems to help a little.
Everything is better than nothing.

Take care everyone!!!

October 29, 2010 at 7:57 pm
(56) Judith says:

Yes, I had them for years, but not recently. Either my upper eyelid, or more disturbing was when my lower inner eyelid would randomly twitch for hours.

October 30, 2010 at 11:25 am
(57) mtnmama says:

It is amazing on the timing of the discussions. I have been positively dx for a little over a year. My left eye has been twitching non stop for about a month now. My right calf does the same thing. It is interesting that we are all pin- pointing in the same areas.

October 30, 2010 at 9:41 pm
(58) Mary says:

I have been seeing a Neuro for well over a month now. I’ve been going thru test after test checking me for ms :( One of the newest symptoms that I’ve been having is muscle twitching in both of my legs, from my hips down to my toes for 1 month now. I haven’t had a chance to tell the doc yet but I too was wondering could this be MS :(

October 30, 2010 at 11:19 pm
(59) Judy says:

I was diagnosed with MS almost ten years ago. I have had the eye twitches off and on for years. I just always attributed it to being tired. For the past week I have experienced a strange burning sensation in my upper thigh. It only lasts for a few seconds, but feels like an overheated piece of metal has been held against my leg. I don’t know what else to attribute it to except MS. Does anyone else experience anything similar?

November 2, 2010 at 3:26 am
(60) Remy says:

Yes, I had twitches and they were the most noticeable right when I got diagnosed with my first attack. Sometime my left bicep twitches or my upper thigh. I’ve had eyelid twitching but I do know that lots of people with no MS have eyelid twitching. I started 400 mg. of magnesium on my own. All the jumping and twitching stopped. After several months I ran out of pills. Stopped for a month or two and it all came back. So I take magnesium religiously. I have also noticed that the magnesium helps calm the tremors in my hands down. Go try magnesium!

November 2, 2010 at 9:22 am
(61) Dena says:

I have had twice severe twitching in my face. Along with that came my face to go crooked, like I was smiling on one side of my face. The twitching seemed to occure in my lower eye socket on the right side. The second time right before, double vision occured. Both time I went to the Dr. The first one, the first time told me “maybe this is the way you look now”…!!…The second time I went to another Dr whom referred me to a nuerologist whom diagnosed me with MS. I have had muscle twitching in my eye lids for years and in my shoulders which causes my head to joult slightly to that side. It freaks me and others I am with out. (not sure if that is related) They have diagnosed with with relasping MS.

November 2, 2010 at 1:11 pm
(62) Shirl says:

My mother who had symptoms of Ms but her MRI and LP were clear ..then was told it was a SUB form of MS, has had the twitching down her leg and can be in quiet a lot of a pain. We went for a 2nd opinion and now she was told that she has Motor Neurons disease.

November 4, 2010 at 4:52 pm
(63) mary says:

Hi I have had ms for two years and have just recently started to experience small mussle twitches on my lower right eye, on my tongue and in my chest, the tongue twitches are more persistant, I try and ignore it but I will try Magnesium, and Rebeccas post was also interesting.

September 16, 2011 at 3:39 pm
(64) Lorelei says:

Hi, Mary,
I have had all of these problems for years and the docs just don’t know….I have had many tests also. How did you get diagnosed?

November 5, 2010 at 10:14 am
(65) carla says:

I have just been recently diagnosed with MS (female, age 42). I was an avid exerciser before the diagnosis and about two years ago noticed that my leg muscles would twitch furiously (but painlessly) after running. Now I get them without even exercising. They do seem to be worse when I am experiencing other symptoms, like fatique, tilting to the left and bands of pressure around my thighs.

November 6, 2010 at 4:45 pm
(66) Pamela says:

I get eyelid twitches but they itch also.

November 10, 2010 at 2:38 pm
(67) Vivian says:

I get a full body twitches. One time I tossed a pencil across the room during a class. It was very embarrassing. My friends have become used to it. I am glad I don’t do it very often.

November 16, 2010 at 8:22 pm
(68) Laura says:

I too have had eyelid twitches. They come, they go. Just this afternoon I told my neurologist that I feel what I can only describe as “bubbles” in my legs. No technical, medical term, just “bubbles”. They still haven’t posivtively diagnosed me yet. Its been seven months. He tells me I have symptoms that present themselves as MS, but that my other symptoms do not. One says, no severe headaches, and the other says severe headaches. One says twitches, I say bubbles. Wondering what anyone elses “bubbles” feel like.

November 29, 2010 at 12:29 pm
(69) Thompson says:

I do NOT have an MS diagnosis, although I have a positive MRI. I have never had the hallmark clinical symptoms of MS. I have fasciculations everywhere, all the time. I think I just have an electrical wiring problem in my body – I also have benign heart palpitations, night sweats, dumping syndrome, dermatographism and chronic foot cramps at rest. My wacky cyclical symptoms are in at least the 14th year!

December 8, 2010 at 2:45 pm
(70) Louise says:

I was diagnosed in the late 70′s. Twitches everywhere. But the bubble comment really resonated with me. Not only can I watch my twitches, but often I can feel the bubbles in my head. It’s like my brain is chewing bubble gum and just has to blow a bubble. One time it was so strange, that I placed my hands on my head and could feel the bubble.
Lately though I have loud knocking in my head. My neuro says its a psych thing. Sigh…

December 8, 2010 at 4:11 pm
(71) Zoe Purdy-Kremer says:

I get twitching in my eyelid from time to time (often when stressed) and since I had this current relapse 2 weeks ago I’ve been getting a twitching muscle on my left cheekbone on and off.

December 12, 2010 at 4:03 am
(72) samantha says:

Hello, i started with a muscle twitch in my right eye lid that lasted for a couple of weeks, then bam the off balance started and you can tell the rest of the story=M.S. The reason i want to leave a note is because as many of the comments left here i can identify well with but my Neurologist has told me that the muscle spams in my hands and legs (which look similar to a person afflicted with Parkins) are nothing but anxiety. These muscle spasms/twitches can last for up to an hour, i cant find any correlation between the onset and the relief. Its not medication because i ofeten refuse to take any due to the frequence of symptoms being related to to them, which utimately i prove it is not. I was distressed by these spasms because im only 39yrs old and yet my body likes to fool me into feeling like i am in my eighties! what i mean by that is, when i am in my eighties i will except my body failings but in my late thirties, its just too hard to comprehend as i wonder hoe bad! will i be in the future. I was found to have lesions in the brain and plaques in my spine, perhaps that is why i am afflicted with cognitive and mobility problems. On the general im very positive and this site has helped me enormously to understand what on earth is happenning to me, i was fully diagnosed in oct this year, though hospital treatment started in may 2010 and i had two years of poor health before this. Yes its a long process to go through but if someone had told me in the beginning “not worry, that i have along time to learn about m.s. although it felt like my life changed over night, it hadnt and its going to be a long, slow process from now on”, then may be i could have relaxed a little and not been so (anxious) for my neurologist can now blame everything on anxiety, though it is NOT. Goodluck everyone and keep adding to this site, its been like a bible to me and has given me the strength to laugh and keep smiling :) through the face of adversity.

December 13, 2010 at 9:07 pm
(73) John says:

I specialize in something called Upper Cervical Specific Chiropractic. My area of expertise is helping people with M.S. get well, and we do this with extremely good results.

Fasciculations of course come from the muscle not getting the right or enough signal from the nerves. It can also be caused by something called facilitation of the nerve. This means that the nerve is over excited and fires very easily. A lot of times we see this with nerves that are getting choked off because of disc problems. However, this is not uncommon at all, at least in my experience with people who have M.S. In M.S., the nerve conduction has been lost because of demyelination. This means that the insulation around the nerve has been lost, and the nerve does not fire properly. I think it goes without saying that fasciculations are definitely possible with people who have M.S.
Twitching in the eye…we will give to stress in most situations.

Dr. Cheney
thespecific.com

December 17, 2010 at 12:38 pm
(74) Kelli says:

I have M.S and I have been experiencing twitching for the past two weeks. It’s the left side of my face and it happens non stop. It’s noticeable to others and quite annoying. My last relapse affected my left side and that’s the side that gives me the most problems. Is there something to take for this?

December 30, 2010 at 11:50 pm
(75) aubrey says:

I have had these twitches for about four months but they started in my abdomen ..it feels as if I’m pregnant ..but have net tests…just in the last month they have been in my legs….have not been to a Nero ..should I be worried..or be tested…I have had positive Ana ( lupus) could this be content Ted..??.. confused?.. a gone with some. Lie as to what to do please let me know

December 30, 2010 at 11:52 pm
(76) aubrey says:

Left a comment …where did it go??..!

January 21, 2011 at 9:17 pm
(77) Shannon says:

Aubrey,

I to, first started twitching in the abdomen which made me think I was pregnant. I am 40 years old and there is no possibly of me being pregnant. I really didn’t even think too much about it until I started getting all of the other symptoms. It took years to get diagnosed. I am not certain that I would advise you to run out and get MRI’s unless you start having other symptoms. Sometimes movement occurs in the abdomen because of gas and digest. If you are really worried, you should see a Dr. and discuss it. MS is not an exact science and I would hate to see you spend your children’s inheritance trying to find it. If it is MS it will show it’s ugly head soon enough.

December 30, 2010 at 11:56 pm
(78) aubrey says:

Ahhh..there it is…sorry the end of my post was scrambled..on a phone..anyway if anyone has any thoughts please let me know..

January 1, 2011 at 12:23 am
(79) Verna says:

I’m 45 and was diagnosed with RRMS almost 3 years ago. Twitchy eyelids (especially the left one) has been something that I’ve had for the better part of 15 years (any time i mentioned it to a doctor i was told it was “just nerves”), HOWEVER, in the last 2 years that twitching comes and goes just like any other symptom i have, and when it happens it’s mostly in my upper thighs, bi-ceps (these two being the worst), and calves. I have noticed them starting on top of my lower arms. When the twitching first started it was only mildly inrritating. It has gotten to the point now that when i do get them they feel like small electrical shocks, much like the shocks i felt when i had that “nerve test” as part of my diagnosis… and it can drive me nearly insane at it’s worst. Thankfully, they don’t last very long, just a few days at a time. Nothing so far seems to help except that any kind of stress makes it worse (both mental and physical), and also, if i gets overheated. My neurologist has said that although there isn’t any scientific proof, she believes that it is part of MS.

January 5, 2011 at 5:45 pm
(80) Chris M. says:

I’ve had MS for 10 years now. Just last year I’ve had eye twitches along with the area below the eye that is twitching. It has been non-stop for the past 2½ months. It seems like I have little more trouble with my balance now. It is very aggravating.

February 2, 2011 at 10:44 pm
(81) Jenn says:

Yes, I have MS. I was diagnosed in ’07, and I have these in my legs, buttocks, eye lids, and right now my triceps on the left. They are very mild, painless, extremely rare (6 times a year maybe, and transient.

I also read that they are “not” an MS symptom, but I have also heard that about headaches and most MS’ers beg to differ. I rarely had a headache until my diagnosis, but the year before and since I have had my fair share. There is a lot of unknown about the disease and to say with such definitiveness that they are not related when a whole community–the experts WITH the disease–say, “Yes, I’ve had them’” then I think my money is on the “experts” with the disease.

On a completely different note, with the emergence of the CCSVI, I wonder if you have ever spoke with people about neck pain? I get pain where my carotid and jugulars are quite often, they are so painful I just put my hand there and press to try to stop the pain, and then it is gone as soon as it came (seconds). I will bring it up with my neuro, but even though she is is very good, sometimes I feel like if your particular symptom is not on the list of symptoms, they sort of brush it aside. Thanks for all you’re doing. I just stumbled on your site because I was having the fasiculations and was surfing. :)

February 3, 2011 at 7:36 am
(82) Shianne says:

I am 33 years old. I have had three “attacks” me entire life. Early 20s then again in my late 20s and the latest one was in my 30s. I have fasiculations from head to toe. They have gotten better since my last attack, however, I feel constant joint pain. I still have daily fasiculations, and now I can see my fingers move when I get one in my hand. I can’t say that I have any muscle weekness. However, I think that with depression over this, I mentally feel week. The doctors ruled out ALS and MS (no lesions on spine or brain) I recently found out that my Aunt has been diagnosed with the same things. BFS.
However, I feel that with the sharp stabbing pains, headaches, and memory fog, I am not sure what to do. It’s hard to describe these symptoms to doctors. I have seen my family doctor about 20 times to try to figure out which doctor to try next or what medicine. Bottom line, he does not know…(lol) I see an Endocrinologist soon. We are checking the Thyroid. The only thing I am taking is Wellbutron.

May 28, 2011 at 11:44 am
(83) Claire says:

?Lyme Disease

February 11, 2011 at 12:35 am
(84) Beth says:

Wanted to share this about fasiculations because I think more doctors need to recognize it as a symptom that can be not just bothersome but embarrassing. I was always told my constant eye twitching was “stress” and brushed off. This was in my early days of MS. I have since had them all up and down that same side of my face. I remember talking to someone and my nose was twitching and standing there praying it wasn’t noticible. I’ve also been able to look in the mirror and see my nose, mouth and chin twitching. I’ve not had this symtpom in a long time but remember it well.

February 18, 2011 at 5:51 pm
(85) jules says:

for around ten years now i have been having these muscle twitches. It happens all over my body. My face, stomach, calf muscles, feet, arms etc etc I never really thought much of it until lately as they seem to be pretty much constant and thought that maybe this was normal and most people get it a bit like eye twitches. Is this something I should be worried about and should I consult my doctor? I feel a bit silly speaking to my doctor saying my muscles twitch if this is normal. Having looked at previous comments and seen it could be a symptom of MS I am slightly concerned. I am always extremely tired can sleep over twelve hours easily and constantly have this spaced out feeling almost like im drunk. Comments greatly appreciated. Thank you

September 16, 2011 at 3:42 pm
(86) Lorelei says:

Yes, go to your doctor for testing. I have had the same symptoms for many years, the doctors just don’t know!!
Have you see one yet?

February 19, 2011 at 1:57 pm
(87) BEV says:

I too have had twitching/fasiculations in both legs for many years. I now have a very strange pain in my scalp (not inner head brain) It hurts to even touch my hair, and it
runs down behind and in front of my ear one side only. This has happend two times in the past year and lasts a week to 10 days. Doctors don’t have a clue what the problem is.
I thought it was shingles after my 2nd bout a month ago and they say absolutely not (no rash) It disappears eventually but is very painful jabs of pain behind my ear.
It has now happened 2 times, once on each side. Anyone else experience such a “thing”? Thanks

March 9, 2011 at 9:59 am
(88) Norman says:

I have MS and I have had fasiculations for several years that now are getting worse. They involve my right periorbital area, bottom of the left foot, left calf, and for the last several weeks my left shoulder and upper chest area. The neurologist has mentioned a slowly progressing ALS but I teach pathophysiology and have a graduate degree in nursing…I am sure it is the MS.

September 12, 2011 at 7:12 pm
(89) Ben says:

If it was slow als you would see denervation anyay on an emg………..furthermore the twitches would accompany weakness.

March 20, 2011 at 3:47 am
(90) Kelly says:

The first year after my diagnosis, I was constantly bothered with a twitching right thumb and eyelid. My neurologist assured me it wasn’t MS-related…kept saying those were ALS symptoms. I finally pointed out that I didn’t have ALS, I had MS, but I did have fasciculations. The twitching went on for months. Over the years it has occurred off and on in the same two places along with occasional twitches in my upper lip, leg, and arm.

March 27, 2011 at 12:19 am
(91) Tami says:

I have not yet been diagnosed with MS but I’ve been having suspicions that I might have it. I see a neurologist next month and it’s funny, I just started as a research nurse in the neuro department. Anyway, I do have chronic fatigue syndrome with a mild fibromyalgia. This summer my cfs re-emerged and I noticed that I had a weird numbing sensation by left armpit among numbing in my toes (which I’ve had many years off and on). The armpit numbing lasted about a month or so. Obviously fatigue is a problem but proper nutrition, supplements and rest help. A few months later, I had another numbing patch of skin more on my left mid-back area. I also have been having twitches in my abdomen and legs when I go to sleep and then yesterday, the weirdest thing started happening. I was brushing my teeth and then when I was spitting out the toothpaste, my mouth became distorted and it felt like my nerves were twitching. Anyway, the left side of my bottom lip and chin twitched on and off all day yesterday. Today, it seems to have quieted down but I’m still having a distorted mouth when I pucker or spit out my toothpaste. I thought I was have a TIA initially but I doubt it. Also of late, my vision has gotten worse. Ugh……any thoughts?

November 9, 2011 at 10:10 pm
(92) musicgirl180 says:

Hello,

I have fasciculations and my vision has gotten worse. I have only been told likely benign Fasciculation Syndrome but I have so many other symptoms too. I am wondering if you ever found out what was going on.

April 16, 2011 at 8:29 pm
(93) CJ says:

i get these everywhere, and i’m having one in my leg beside my knee right now ! At first I thought something was wrong with me so i started like freaking out ! it’s been going on for a couple of months now, and idk how to stop it. Like is it because of something i’m eating or is it a bad thing i should worry about or what? it does not hurt but it gets annoying sometimes. Any thoughts on what to do?

May 11, 2011 at 7:12 am
(94) Erin says:

I definitely experience these. I always felt that the spasticity symptom didn’t necessarily fit exactly to my symptom. Sure my muscle would tigthen, but in a much more “twitchy” way most of the time. I can’t see why in the world doctors don’t consider this a symptom of MS.

May 11, 2011 at 2:01 pm
(95) Donna says:

Yes-a facial muscle twitch is what triggered a doctor to have me go see a neurologist. While blood work was done to rule out Lymes’s Disease–an MRI revealed I DO have MS. The twitch has been there for years, and has gotten worse over the years. So, I’d say, yes, this is an MS symptom that many doctors will not admit to. The twitch is not my only symptom, but it did finally get me an official diagnosis of MS

May 21, 2011 at 4:38 pm
(96) ms&alive says:

Fasciculations are indeed a symptom that accompanies MS. Please, if you are reading this because you are experiencing these twitches, do not assume you have ALS. I was diagnosed with rrms (relapsing remitting multiple sclerosis) after over 1 year of symptoms and tests via an mri of my brain. It verified the ms lesions. I am alive. I have a future. Whoever you are that is reading this, take a deep breath. Relax. I can look at my calves and watch the twitching beneath my skin…it looks like I have worms or maggots crawling around beneath my skin. I can feel it and yes it drives me completely nuts at times, but there is help. Skip the hysteria of self diagnosis and go to your dr. My case is only one of many, but I can assure you that I have these twitches with MS.

June 3, 2011 at 3:30 pm
(97) Wendy Dolby says:

My comment is the type of fasciculations that I have are as follows:-

I have fasciculations in the muscles of my calves and they do it constantly on standing BUT

The type that I have across my arms back and shoulder blades become so very painful as they feel as if the muscles have gone rigid and I have to put up with this terrible ain until the muscles seem to let go, please can you help I would be very grateful for some feedback

Thankyou wendy

June 20, 2011 at 7:45 pm
(98) Tami says:

I’ve had eye twitches for many years (infrequently) and the past couple of months I’ve had lots of fasiculations among other issues. I’m going for an MRI on thursday to hopefully rule out MS. Also, I’ve had chronic fatigue syndrome for 11 years and I was recently diagnosed with fibronyalgia (mild pain thankfully). I wonder if there is some kind of correlation between these diseases. Does CFS/fibro predispose someone to MS? Are they one in the same but the symptoms vary? Any thoughts?
Thanks.

July 21, 2011 at 8:09 am
(99) JW says:

1995, I had a work related injury to my left hip area (, in the fascia soft tissue – shortly after, hypersensitivity of my thighs – discomforting wearing pants. Later, I experienced fasiculations in calves and thighs – Saw a few Neurologists, none of them ever Dx MS, ALS, just “benign fasiculations”.. The twitching would come and go. just like “worms under the skin”. MRIs – gave no mention of lesions or plaques. I never lost muscle strength, or reflexes. but felt old. (45 at that time). The episode lasted just over a year – then, it went away. I felt pain free/ no discomfort. Great fo 17 years. Then, I injured the same site again (lifting /moving another patient again) The SI region hurt upon touch, and I had a general ache in my Left lhip . Then, hypersensitivity of thighs began again – the identical route of symptoms of my 1st injry – 17 yrs ago. The fasiculations began in my calves, some in my thighs, and occassionally – in other places (once in a while the eyelid) They have over worked my calve muscles to the extent, that my calves are very tender upon pressure. Again, my reflexes and muscle strength are intact. Running/excercise feels great. Showers reduced the sensations.. The fasiculations have continued for many months now, some breaks now and then But ..even when they see them, no one seems concerned. One of my neurologist said tshe was just puzzeled, and basically, gave up.. I have no faith in docs anymore, especially neurologists. I found more info with all of your blogs, than I’ve ever gotten from any doc. Thanks for your personnal testimonies. I feel like I belong to an exclusive club now – lots of folks with the same problems and questions. So???? after 2 years now, I still have no DX other than “benign” – lots of money, down the drain. Glad I have insurance..

July 30, 2011 at 12:00 pm
(100) SHawna says:

I have muscle fascilations all over my body. Anywhere that there ias a muscle, i get it…it is sometimes just a rumble, other times, it is sustained for close to 30 seconds. I take .25 mg of alprozolam for panic attacks…but this doean’t help make them go away. I also have involuntary limb movements. They are enough for me to spill a class of water, or bump things when preforming activities. I am afraid to see the doctor. What if it’s something? What if it’s nothing? It bothers me. I am so very tired all the time. And my fingers tingle and my muscle ache. I am only 33 and the mother of 2 small children.

September 16, 2011 at 3:30 pm
(101) Lorelei says:

Shawna,
I have had these symptoms since I was 27 and am now 43. I have two children too. Have you seen a doctor since you posted?

August 4, 2011 at 4:24 pm
(102) Susan says:

For years, I occasionally have had tiny areas of twitching in my thighs, sometimes in my eyelids, never lasting more than a few hours. It usually would happen when I got overheated. Because it quickly goes away on its own, I’ve never asked my neurologist about it, although I always assumed it had something to do with MS.

August 5, 2011 at 9:29 am
(103) PatchiePooPoo says:

I have severe twitches and spasms in my legs, hands, fingers, and face – especially my eyes. I have Botox shots (4 each) in my eye muscles every 3-6 months and I take Baclofen three times a day. Both of these have helped a lot and I plan to continue the treatments as long as my Neuros suggest them.

August 19, 2011 at 4:53 pm
(104) Laura says:

I just found out from my husband that at night when i am in bed I start to twitch. I had no idea I was doing this, but when he told me I just laid there and concentrated on what my body was doing. Sure enough I would feel like a electric current (not painful) go thought my arm, leg, stomach, head pretty much anywhere and then that “part” of my body would twitch. We made a game out of it where I would say”arm” and then my arm would twitch. (He didn’t believe me that once I concentrated I could tell what part of my body was going to twitch.)
This was a new symptom that I am having now along with Servere Fatique and leg weakness. So I do not know if it is connected. I have also had my eye twitch, I had it about 6 months ago for a whole week, it was soooo annoying!!!

I got diagnosed Sept 2009 and have had constant Fatigue and Contigive systems with a major(at least what I consider) episode about every three to six months. Tried Rebif and now Tysabri, both did not work. Just got taken off Tysabri and we are”experimenting” to see if I have a major episode within three months (time it takes to get the medicine out of my system). He thinks I might have Progressive Relasping MS!!! I DO NOT want that so I am praying for an Major Episode, if I get one it means I DO NOT have Progressive Relasping MS! Pray for a Major episode for me please!!

September 7, 2011 at 2:50 pm
(105) Larry says:

I have been reading up on everything posted, and I have alot of the symptoms of MS while i have nto been diagnosed as of yet the tests they are scheduling me for and tests i have taken seem to point to me having MS, I am currently seeing a neuroligist but he is stating I might be having contunious migraines, which I dont believe. he has put me on a steroid which has helped with the headaches somewhat. but I continue to have numb feet, burning sensation running down my neck at times tremors so far in my right hand.dizzy spells, loss of balance without notice. I am having trouble focusing at times and memory lapses. I am now getting this twitching in my left eye and the same eye blurrs on occasion.Oh and I have a continous ringing in my head that makes it impossible to focus on doing more than one thing at a time, I am 55 and scared

October 19, 2011 at 7:15 pm
(106) Tanya G says:

I get them under my left eye & it’s extremely annoying; especially when people stare at it. It can last all day or just a few seconds.

October 24, 2011 at 10:52 am
(107) deanna dettman says:

I have MS.My father,uncle,and 2 cousins also have this disease. I do have constant twitches on my eyelid or the corner of my eyelid. I also have them in random spots on my uppper arm and legs.They are very entertaining!The reason I was looking this info up is because I had a strange occurance that really bothered me a lot! I was awaken in the middle of the night with a sensation I’ve never felt before.It wasn’t a muscle twitch this time.It felt more like a CAT walking across my legs.It was soft pressure and no jerk or twitch with it. It was a new sensation and totally had me freaking out. I hate new sensations!

November 6, 2011 at 6:41 am
(108) Angela says:

I was taking cymbalta 20 mg for about 7 months. For anxiety, after stopping it in July of this year, One night my chin had a twitch and would draw up. It lasted that night, I really think this med caused this. But since then I became obsessed and have been having muscle movements, they are not full twitches, its like a “bump” or two suddenly like maybe two or three a min. for days it was a calf, then maybe around my knee now for two days its been in my thigh. I have had it in my abdomen, near my rib cage etc.. I dont know it its my anxiety because I am obsessing on it. Its like a little pulse. I talked to my Dr and she said if it continues she will send me to a Neuro. I am 42. I am terrified its something bad.

November 10, 2011 at 8:58 am
(109) Debra Mathis says:

I suffer from the extreme twitching of my muscles. This keeps me from getting good sleep. They are like critters in my leg crawling. You can even see my skin moving. I was diagnosed in 2009 after the Doctor listened to some other issues that started happening, he was treating me at the time for RLS. This is in my legs, arms, and hands. Sometimes they are so bad I shout with pain and bend. After showing the Doctor what happens when I get sudden twitches, she said I have, I can not remember the word, but when I looked it up, it was like hick cups. There are times my whole right arm I can not lift, it seems so heavy, dead weight. I am now on Baclofen, it helps but I still struggle going to sleep. I can tolerate cold, heat is not good. I also have Vertigo, fatty liver issues which limit me to meds that do not affect the liver which is only one, Copaxone. Lately I have been having something new going on, loud noises send a shriek thru my body, it is a painful for better word, rush. I am 55 years of age, and still have doubts on my diagnoses. I keep thinking that one time when I see a different Doctor they will say, I do not see MS in you. If I tilt my head back I feel like I will get sick or pass out. Close my eyes and hands out in front of me I start to fall backwards. I have 22 lesions on my brain, my spinal tape came back with a high count of protein, and I did not pass the eye test. I do not have anything wrong with my spine and nerve in my eye, which I hear a lot of people with MS do. I also have a titillation in my head. Debbie

November 11, 2011 at 10:20 am
(110) Dave says:

I am a 51 year old male living in San Diego. I am an active runner, normally running 3 to 5 times a week which is 10-20 miles a week. I also conduct stretching exercises everyday. I am on no medications. Currently and for the last year or so, all day long (and I assume when I am asleep) both of my calf muscles twitch involuntarily when at rest. I can not feel the twitching but can only see it. The twitching occurs continuously and randomly up and down the length of the calf from ankles to the back of knees. Each twitch is isolated to about a 1 to 2 square inch of the calf and lasts for just a split second. I have timed them to sometimes more than 100 twitches per minute per calf. The twitching could best be described as similar to a small electrical impulse in the muscle. The twitching does not hurt and unless I look at my legs, most of the time I am not affected by it, except all of this twitching all day long (and all night long?) often causes my lower legs to be very tired.

November 12, 2011 at 6:43 am
(111) Alicia says:

BOTOX BOTOX BOTOX!! I can’t say enough how it changed my life… I went from holding up entire portions of my face because the twitches got so painful to being able to read books again!!

If you are experiencing twitches ask your neuro about their Botox options and if they dont have any then tell your neuro they need to be trained to do so. Then go find a better Dr. =)

November 13, 2011 at 5:56 am
(112) jennifer says:

Hi,
I have had lots of twitches too. I had them as a child and ever since. I was diagnosed with m.s. about 2 1/2 years ago. I get twitches in my eyelids, stomach, legs, arms and face. Especially the past few years. Looks like there may be more to twitching than anyone tells us.
J

November 18, 2011 at 7:55 am
(113) Nick says:

I was diagnosed with MS about a year and half ago and have had eye twitching longer than that. Recently face twitching on the same side has begun. I beleived it to be caused by stress. Lack of sleep could also be a possibility, but my MS also effects the same side of my body, from my foot to my finger tips and hands. I was glad to see others do not have the same issue, but any insight would be appreciated.

November 19, 2011 at 11:06 am
(114) paloma says:

I have MS disgnosed since 2001. I have gotten these twitches in my eyelids, the bridge of my nose and my lips, on and off all my adult life. Not often enough to put together as a problem, but often enough to be able to think of it after being diagnosed.

November 20, 2011 at 7:31 am
(115) Siong says:

My mother was diagnosed with a type of motor neurone disease known as Progressive Bulbar Palsy (PBP) at age 78 three years ago. In the initial stage of her PBP, she had fasiculations of her tongue and it was quite amazing and remarkable to see that she had no control of her tongue fasiculations when she stuck out her tongue.

November 23, 2011 at 1:04 pm
(116) Heather says:

I get muscle twitches a lot, though it is happening a lot more recently. I would usually get them in my legs and especially in my calves but now they are happening deep inside my shoulder. So far they aren’t really painful but it is enough that they will wake me up and I will notice them. Not really painful but highly annoying. Why would they say it ISN’T an MS symptom? It makes sense to me. Your nerves are being attacked and so they are going to send of misfired signals.

November 23, 2011 at 1:44 pm
(117) Patricia Hodge says:

I was getting these all the time, especially in my eye lids. I found for me, they were being caused by the zanaflex I was taking for spasticity. I have since switched to baclofen and I have no more twitching.

November 29, 2011 at 9:40 pm
(118) Valerie says:

Twitches in the face and eyelids, although it is a Hemifacial Spasm, compressive lesions (Paget disease) and noncompressive lesions (MS) can present a Hemifacial Spasm. It’s neurological.

I have restless leg syndrome and it also affects my one arm. My Neuro. put me on Mirapex for RLS and I don’t have any problems unless I forget to take it, sit too long, or sit too long without compression stocking on.
Although I really hate the compression stockings; they do work wonders with the strange feelings, twitching, jumping, and throbbing in the legs.
The funny feeling in my arm feels more like tennis elbow but its’ not. It’s from the MS. I wear an arm band right above my elbow pulled snug and that helps also.
I hope some of this helps any of you.

December 3, 2011 at 6:20 pm
(119) tompkins says:

hi, i was searching to see what is going on with these muscle twitches. i think that they are different than a non-MS or whatever it is kind of twitch, b/c when i was a kid, i would typically get the kind of regular muscle twitch on my eyelid. But the ones i have got in the past few years are short, like somebody is actually yanking on my muscle for one contraction; however, recently, the contractions have increased in frequency and duration. THey honestly just feel like little yanks of the muscle and they last for between one and 4 or 5 contractions, typically. NOw i take magenesium and i think that helps a lot. also, heat and stress seems to increase their frequency and intensity.

December 11, 2011 at 8:34 pm
(120) sheryl says:

About 3 months ago i was admitted into the hospital for elivated lipase and amylase counts (pancreatitis)…however it wasnt typical pain. Lipase was about 5000. Since then i have had joint pain and muscle twitches everywhere….legs, eyes, back, abdomen, arms, fingers, face, everywhere. It is constant. I feel like there may be something wrong…but every test i have turns up with no results that are helpful…..not sure but am nervous that the longerm elivated lipase may have damaged internal organs. After 4 days of no food water or even ice chips lipase finally went down to 1500….havent been the same since. Have hiatial hernia and acid reflux. Feel like doctors dont care and im just a number at this point where and they think its “all in my head”….frustrated…but about to give up.

December 11, 2011 at 11:07 pm
(121) BREANNA says:

My left lower eyelid has been twitching for about a week&its constant in a matter of 30min it twitches about 6 times lasting atleast 10min. Now my leg has been twitching as well, left leg& i hav been fatigue for about 4months now,I thought it was stress from me losing my job but things are getting wierder after my eye twitvhes a severe migrane follows it Ive been to 3ddifferent doctors&they all say stress i need answers

December 18, 2011 at 4:44 pm
(122) carol says:

Hi I was diagnosed with MND recently, but never talk with doctors, I just read in my record, (I am in the military) when I read that I was so confused, because I actually have a lot of fasciculations in my right eye and leg, I am clumsy, but never thought that were symptoms of MND, mi first diagnose was meningeal cysts, so I asociate my nerves problems with that. I would like to know if is a wrong dianose o i am wrong, nobody told me anything about ms, and I have more MS symptoms than MND. thank you

December 21, 2011 at 12:47 pm
(123) Vickie says:

Julie my doctor at the MS Center of Atlanta actually diagnosed me with fasciculations and myokymia. I too can sit and watch my limbs, face or digits, etc. move without my consent. I pushed myself yesterday to finish my Christmas shopping and am now and was yesterday so completely wiped out with pain and fatigue that I am of no use to anyone. Now add fasciculation to the mix. It started in my left thigh in the wee hours of the morning and has not stopped since. It is now 12:40pm. It has now invited my left knee and calf muscle to the party. I am fighting now with extreme muscle fatigue in those muscles and trying real hard to keep spasms from starting. I don’t know who said that fasciculations were not a part of Multiple Sclerosis but I would like to object to that and my muscles are strongly objecting at this moment. Hope all this helps you in your endeavor. You have a Blessed Christmas.

December 29, 2011 at 8:13 am
(124) Pepper says:

Just had visit with Neurologist, specifically asked about twitching as this is constant in all my muscles dailly. Was told nothing to do with MS- this didn’t convince my husband who has to put up with sleeping with my twitches he says I twitch constantly in my upper and lower body. I didnt have twitches until a replapse 2 years ago. I daily have buzzing mainly in my lower body but if I exercise it is my whole body. I think of this as a reawakening of my nervous system, once its been asked to wake up it doesnt know how to switch off. No complaints from me here at least I know its still there.

December 31, 2011 at 11:55 am
(125) Melissa says:

I have been undergoing treatment for a low back injury since March. I was doing very well, but had a massive low back muscle spasm last month. I could barely move due to the pain. That same day, I began having random twitches in my extremities, trunk, and neck. I attributed them to the Lortab I was taking, but the twitches continued after I stopped taking Lortab. Now I have developed bilateral hand tremors, so obvious that even my coworkers have noticed them. The twitches occur singularly or in clusters. Some are barely noticeable; some are stronger. I have even spilled my coffee when my hand was at rest on my chair arm. Very disturbing.

January 10, 2012 at 5:40 am
(126) Ally says:

I’ve had leg problems ever since i was 6. And im 20 now. I always have leg twiches and cramping in my legs i always though it was normal and my doctor always said it was growin pains. Now its getting worse and its hard to sleep twitching all night long. What should i ask my doctor now? Is it possible to have MS? At my age?

January 10, 2012 at 11:16 am
(127) Debbie says:

I have been suffering from benign facisculations for approx. 30 years, I sought neuro help many times just to be told I was stressed and un rested. I noticed when I m dehydrated they are more prevelant, I am going to try the magnisium as suggested in the previous blog. Will report back with results next month. currently watching my muscle in my left hand pull to the center of my palm. Ughhhh 1

January 18, 2012 at 11:45 pm
(128) Dan from Belleville,NJ says:

I’ve had muscle twitches for many years all over my body. These annoying twitches would torment me psychologically, especially when experiencing emotionally traumatic episodes during my life. When my marriage started deteriorating due to infidelity, I would associate a twitch occurence simultanously with a passing word from a radio, TV, or a casual conversation. At the moment a certain word was spoken, and a twitch occurred, I would associate the word to something my wife was either saying or doing behind my back. I had allowed these twitches to grip me with terrible fear. During these traumatically stressful times, I felt that I was a prisoner of my own mind and body. I still have this problem of psychologically-effecting muscle twitching. Please, God/someone help me.

January 23, 2012 at 11:59 am
(129) melissa says:

I am still in the never ending diagnoses stage… I have have had fasciculations , it feels like popcorn under your skin I have symptoms such as searing burning in hands that have now traveled to my arms and torso and now one leg. I have muscle spasticity and a tremor in my tongue buzzing in my ear itching and the creepy crawlies I have a severe shoulder tic that goes on 24/7 . My doctor has assured me I do not have Als or ms how can he be so positive? I was looking up fasciculations to find one symptoms that I have that one of the diseases will rule out!!!! Thankyou for what you do I promise it is helpful and is very important!

January 23, 2012 at 12:09 pm
(130) Sarah says:

I was diagnosed with MS 2 1/2 years ago. I have very few symptoms but my first symptom was my left eyelid twitching relentlessly. Then the left side of my nose started twitching, then my left ear started ringing. That’s when my doctor sent me to a neurologis, underwent testing and I received my diagnosis. The symptoms finally stopped for awhile but now my left eyelid has started twitching again — a lot. It’s not painful, just is a nuisance. But if that — along with a little fatigue — are my only symptoms, I feel very blessed and have no complaints.

January 24, 2012 at 3:16 pm
(131) Lisa says:

I have been experiencing twitches for a number of years now. I do not have MS however. My twitches and muscle spasms last for weeks and are usually confiined to one specific area of my body. During one particular episode, my upper eyelid had spasms constantly throughout the day for weeks. Then it abruptly stopped. Then the area between my top lip and the bottom of my nose started having spasms. Lasted for weeks then abruptly stopped. This has happened with my chest, my stomach, eyelids, lips, face, finger, thigh muscle. Currently I am going through an episode with my bottom lip spasing. This has been going on now for 2 weeks. I expect it to abruptly stop any day now. The absolute worst was my eyelids twitching and fluttering. I got really alarmed one day because I physically couldnt open my eyelid all the way because it was spasing so badly. It lasted a few seconds but it frightened me and I began to think that maybe something really is wrong with me as opposed to just having a few quirky twitches & spasms from time to time.

January 26, 2012 at 8:44 pm
(132) Kelly says:

I have the same symptoms as Lisa 131. I have had twitches all my life and just thought it was normal. It can be very annoying, but I never thought there was really anything serious going on. I get twitches in my fingers (like my thumb or finger twitches back and forth). I get them in my thighs, calves, arms, lips…pretty much anywhere. And, like Lisa, it will twitch in the same spot off and on for days or weeks and then it seems to disappear. Since I’ve dealt with this all my life, I have never been overly concerned. I am, however, very interesting in understanding the cause.

January 31, 2012 at 2:44 pm
(133) Megan says:

Well im 20 weeks pregnant and iv notice that the muscles in my right upper arm twitch uncontrollably so I flinched a muscle in my arm and then it will stop and also my eyes twitch sometimes just a minute at a time I really don’t know it problemas can anybody help me I give me some ideas of what it could be.
Thanks Megan

February 5, 2012 at 2:18 pm
(134) Lisa E says:

Thank you all for sharing your symptoms. I am on year 2 of bizarre physical symptoms. My doc has sent me for many tests because my brother died of ALS last August. I still don’t know what I have — just got an MRI done on Friday and should get the results soon. An EMG ruled out ALS weakness and I was told I probably have BFS. This may sound bizarre to all of you, but if the MRI shows lesions, I will almost be relieved. ALS is a horrible disease, and it’s haunted my heart and soul ever since my brother was diagnosed. Every time I get a non-ALS symptom (sharp muscle pain, eye irregularities, joint pain), I can say to myself, “At least this isn’t ALS.” I am not saying that I want MS — not at all! But it’s better than ALS. For certain, I have something wrong with me. I’ll take anything before ALS. I will post again when I have a diagnosis… in the meantime, I share so many of your symptoms: twitches, crawly feelings, vibrations, tingling, general fatigue, etc… Hang in there! Prayers for all of us!

February 5, 2012 at 2:25 pm
(135) Lisa E says:

By the way, I have also made huge changes in my life to reduce stress (got a different job, got rid of a toxic friend, minimized my activities, even saw a shrink for a while), and I’ve tried many things (xanax, no caffeine, no alcohol, vitamins and supplements, more water, yoga, change in medicines, etc.) — all to no avail. I agree with those of you who say that stress makes your symptoms flare up, as well as fatigue and illness. Yes to all. But still, in times of relative calm and peace, the symptoms are still there. I hope you understand my heartfelt sympathy/empathy for all of you. Weird symptoms like these are maddening, and sometimes people will dismiss them as “stress.” Even if they originated as stress, they mutate into something distinctly physical, organic, REAL. Or they were physical in the first place and CAUSED the anxiety/stress.

February 12, 2012 at 1:39 pm
(136) sindi says:

Yes I aslo exprienced this twitching and its realy annoying cause nw my whole body is twitching when can it stop and wat cn u do to prevent it

February 12, 2012 at 1:45 pm
(137) Anthony Stevenson, Jr says:

I get the twitching in my eyelids, all fingers and arm(biceps mostly). I have never been diagnosed with MS, and it doesn’t bother me because it rarely happens. I think now I am more inclined to get a neurologists opinion.

February 18, 2012 at 12:30 am
(138) Rose says:

I’ve had twitching toes mostly all my life, then noticed it in thighs, knees, abdomen, now arms, eyelids, lip, etc. at differing times. Never knew why….however, I just had achilles tendon surgery and repair to my heel in October and subsequently developed lots of blood clots. After furter testing I was found to have antiphospholipid antibody syndrome, an autoimmune disorder that causes heavy clotting, the surgery kicked it off in me. I’ve had four miscarriages and this is why we had them. It’s also called sticky blood syndrome. Random body twitches can be one of the things involved in the syndrome. It is a very undiagnosed problem. Can be diagnosed with blood tests. Anyone under the age of 50 who has blood clots for no reason, stroke, or heart attack should be tested for this syndrome. No cure, we just twitch on.

February 28, 2012 at 4:32 pm
(139) MercuryMommy says:

Twitching, and nerve disease, are both common symptoms of mercury poisoning. I had all of my amalgam fillings (7 of them) removed in March of alst year and within a few weeks I had twitching in my left eye, peripheral neuropathy, numbness in feet, and twitching in my right hand.

The reason some MD’s suggest magnesium or B vitamins is because mercury toxicity severely disrupts mineral transport and supplementing with these minerals/vitamins can help alleviate symptoms, but that will not address the cause.

Did your MS symptoms start soon after some dental work? If so, you may have classic mercury poisoning. I suggest Dr. Andrew Cutler for a very safe, gentle oral chelation protocol that can eliminate the cause of dis-ease.

March 7, 2012 at 11:31 pm
(140) wendy says:

Hi I’m new here.About 3yrs ago I got a cramp in my toe so bad I had to pull over.After that my feet hurt so bad with twitces and spasm’s for about a yr.Then in 2010 the crap started spreading up to my calve’s and thighs real bad.Constant non stop Iv’e been diagnosed with Fibro but I have a constant buzz/motor in legs that wont go away My EMG WAS NED SO WAS MY ANA,Im confused because fibro people do not have my symptoms like you do.It drives me crazy.Also I get bouts of stabbing pains to my wrist by the bone where the thunb is.Now my ears are affected I can hear the buzzing in my body The chills thru my body is unbearable Like tremors Please let me no what u think
wendy

March 12, 2012 at 8:29 am
(141) Glen says:

Hi, new here too
Just been diagnosed with MS :(
Yes, I get twitches frequently, most commonly in my eyelid (Right one specifically), but also in my shoulder blade, just above the right hand side of my mouth, my neck, forearms and thighs. rarely do i get them in my calves or feet. The twitching can last for a few hours at a time

March 13, 2012 at 6:02 am
(142) Bernie says:

as yet i have not seen a neurologist, i was diagnosed in january with temporal arteritis, right side, then in feb diag with trigeminal neuralgia on left side, rheumo said im an unusal case, here i am in march with pins and needles in my arms hands legs and feet, some days i cant walk properly cos of calf muscle weakness, i cant even hold my hair dryer or fone for long now, the strange twitching iv watched in my inner right thigh, both eyes my mouth and in my back, right side, it feels like someone is tapping you, im on tegretol and gabapentin tho i dont tolerate them very well to be able to take the dose needed to probably control this, so its put up and shut up till i get a true diagnosis, one thing i definitely know i have though is swiss cheese brain syndrome, hello fellow cheese heads

March 13, 2012 at 6:03 am
(143) Bernie says:

as yet i have not seen a neurologist, i was diagnosed in january with temporal arteritis, right side, then in feb diag with trigeminal neuralgia on left side, rheumo said im an unusal case, here i am in march with pins and needles in my arms hands legs and feet, some days i cant walk properly cos of calf muscle weakness, i cant even hold my hair dryer or fone for long now, the strange twitching iv watched in my inner right thigh, both eyes my mouth and in my back, right side, it feels like someone is tapping you, im on tegretol and gabapentin tho i dont tolerate them very well to be able to take the dose needed to probably control this, so its put up and shut up till i get a true diagnosis, one thing i definitely know i have though is swiss cheese brain syndrome, hello fellow cheese heads.

March 17, 2012 at 12:59 pm
(144) katy says:

im 5 months pregnant and over the last 3 weeks a twich in my right top eye lid and in my left thumb iv never had this before i dnt drink alcohol and dont drink coffee this is worring me?

April 9, 2012 at 12:41 pm
(145) Vickie says:

Please someone help me. I am a 26 year old mother of four, about 3 months ago the muscles in my upper left arm started twitching (you can sometimes see it move, or place your hand on it and feel it) and after the twitch would stop my arm would be numb and hard to lift. I went to the doctors and they ran basic blood test cbc with diff and re-checked my thyroid (I have hypothyroidism) those came back fine. Finally after over a month of dealing with it we did a emg which was fine too. My dr wanted to do a MRI of my brain and spinal cord but my insurance would only let me have my neck done, which was fine. I have been doing physical therapy twice a week and I have gotten a little stronger, although I am still on the 1 lb weights. I am having a lot of trouble with adls such as washing dishes, taking care of my kids, my arm will totally freak out then I can’t use it. Since all this started 3 months ago, I have been having twitching in other places but nothing like my arm, until this passed weekend. I was out of town visiting my brother and the family and I went on a walk at a park near my brothers and we hiked up a mound and I was fine until we came down. On the way down I was pushing the stroller and I stopped to read something and my legs started twitching really bad, I put my foot flat on the ground and put weight on it and that seemed to help but for a few hours after that any time I didn’t have weight on it, it would twitch. I have no idea whats wrong with me, but it is getting hard to function and I need help, my doctor has no idea what to think and she said I need to finish therapy (about a month left) then she will see about referring me to a specialist. I don’t know if I can wait that long. I want to be able to play with my kids again and live life. Any ideas or thoughts would be really helpful. Thanks

April 9, 2012 at 5:12 pm
(146) Deedra says:

I too have muscle twitches. my arm has twitched for 15 days s my leg for 8 days and my eyelid for weeks. It seems that every part of my body twitches. My doctor told me to take calcium pills for my eye and it did help as long as I was taking them. I don’t have any pain or tingling it is more just annoying. I am under a lot of stress lately and I take medication for my anxiety. I am obsessed because I has gotten worse. I have to touch it I cant ignore it. I just want to know what’s wrong with me?

April 10, 2012 at 10:41 pm
(147) Amber says:

I am a healthy 30year old on not taking any meds. I just recently started having left side unilateral tongue numbness and twitching at the tip that almost effects my speech. Started happening randomly and will last multiple days on and off. Then…. The front of my scalp, where I thought I had hair out of place and constantly trying to find the rebellious strand before realizing it was a twitch. Now…. A bit embarrassing to say, all day long an inner vaginal twitch. Soooo frustrating. I’m worried but not sure I should be. ???

April 18, 2012 at 2:12 am
(148) AKRambo says:

Ad me to the twitching list. I have had twitching that has been isolated to my right arm the past few months. Depending on the day (or the moment) it could be in my right bicep or my right shoulder. About 4 or 5 days ago my right eye started twitching (bottom of right eyelid). It happens probobly five times an hour, somtimes a little less, sometimes a little more. I cannot get it to quit. I didnt put two and two together (the arm muscle twitching then the eye) until I did a search and found this article. I read your stuff religiously Julie, I just missed this one. Thankfully google found it. I am concerned however, as my last Tysabri infusion appt I mentioned to my neuro that my eyes were getting blurring later in the day. Now my eye twitches. Ugh all this is just never ending. Yay us.

April 18, 2012 at 11:50 pm
(149) Stephanie says:

Not sure if anyone is watching this anymore, but I happened upon it because my left eyelid has started twitching – often enough to be irritating, and never happened before – and I was diagnosed with MS 4 years ago. Interesting to me is the number of comments that link exercise with funny symptoms. With the introduction of CCSVI research, and the suggestion that there is a vascular connection…it makes me wonder if there is more to it. Prior to my diagnosis I experienced symptoms noticeably after cardio exercise…

April 30, 2012 at 7:39 pm
(150) jesica says:

I started having twitches throughout my whole body a few years back. About a year ago I started having them even in my head along with lots of tingling and super sharp pains in my head. I had a MRI done and they didn’t see any tumors. I was just have some more twitches in my leg around my knee. Just happened to Google twitches and found this. Should I ask my Doctor to see a neurologist?

May 2, 2012 at 2:44 am
(151) TLDCA says:

Have had these muscle twitches for years. HAving them right now in low left back and left thigh. No DX–Dr. won’t make a DX since I have been unable to get insurance thanks to a pulmonary embolism 6 years ago tarnishing my medical record. Also have constant itching, burning and foot numbness–no diabetes. Had two distinc bouts with dizziness and eye trouble two years ago–what I saw seemed to be very slow in being processed. Nystagmus too. Now am having strange hearing issues–Meniere’s has been the easy DX. However it is really strange since I hear things slightly later in the right affected ear than I do with the normal left ear. Comes and goes. Muscle twitching has been a constant for years. Dr. wants me to get an MRI which I will do. Leg and foot cramps have been on the increase in the last year. Otherwise, I get along OK if moving a bit slow and stiff.

May 2, 2012 at 2:41 pm
(152) Paul says:

I get them too from my MS, albeit nothing major, just tiny little spots that twitch.

May 7, 2012 at 6:33 pm
(153) Carol says:

I am 46 years old I have been diagnosed with a disease call “Sweet’s Syndrome” about 8 years ago, and now I am having trouble with my muscles numbness in one leg I’ve had cortisone shot after cortisone shot, I was just wondering if anyone else nows anything about sweets syndrome and MS have any connections?

May 9, 2012 at 3:18 pm
(154) Barb J says:

I have been diagnosed with MYOPATHY research pointed me to firstwas MS, then within the MS article (MS website, not a junk one) it forwarded me to one of many types of adult Muscular Dystrophy.I then spent the next couple weeks in the MDA website reading the information they had. Everything is right on target with my symptoms and the diagnosis. I first started with cramps and charilie horses in my toes, arches, calves, thighs, (start at toes and within 30 seconds, all up to your hips OR your neck, not a pattern) and over 3 years time it has crept up my back and into my shoulders arms and neck.Never a steady thing, random parts do it, never consistantly one area or the other, one day is bad the next is ok, then back and forth for days or weeks at a time. Just about 5 weeks ago them twitches started up, not just my eye lids like we all experience, but now my chin, cheeka, forehead, nose, scalp, and inner calves. I called the doctor and he said that is normal progression and signs that doctors look for when diagnosing but it is just another ”symptom” that does not go away but can be medicated away if you like being doped up on pharmacuticals.

May 13, 2012 at 5:26 am
(155) Sue says:

I have MS and have these muscle twitching episodes all the time. Head to toe. Even in my . latest was my left palm. Annoying.

May 30, 2012 at 8:58 am
(156) Sufurum says:

Poster 11 Iris said “I have been having a buzzing feeling in my lower abdomen for 3 days now ( like I swallowed a cell phone and it’s buzzing)”. I had exactly that same sensation.
What I turned out to have was rare, but its one reason this can happen:
I’d had a diverticulitis caused colectomy before, so I thought there was no chance diverticulitis was the issue. It was, again, right where they sewed things together the 1st time. Ignored, finally the infected diverticuli burst, leaked and ultimately healed with adjacent ones having an unhealthy tiny connection. This can be lethal. My second surgeon found it all when I finally went in for help after feeling deathly ill for a year. The huge irritation of stuff leaking into an already inflamed infected area made the nerves twitch like crazy, causing the cell phone like twitching vibration.

May 30, 2012 at 11:06 am
(157) Wannasew says:

I have constant fascilations in my face. Has caused eye. mouth, and cheeks spasms. They got worse over the last 4 years and I now get botox to freeze the muscles. I am unable to smile like before and look like I have a palsy. I miss the way I used to look, but the spasms can be so difficult to deal with that it is hard to drive, sleep, read. They have been painful which the botox helps. But bottom line, they have not improved all these years and are hard to deal with.

May 30, 2012 at 1:25 pm
(158) Tony Hodges says:

I have this in my arms, will wake me from sound sleep.
Two or three times a week., have no reason for this, that I know of.

May 30, 2012 at 1:37 pm
(159) tony says:

I have called my MS Dr. , with various problems, leg cramps(bad cramps), walking, falling, ect. These were not MS problems.
I think she is nuts.

June 1, 2012 at 10:13 pm
(160) Richard says:

Some of the descriptions of fascinations and twitches sound like myokymia–wormlike undulations of the muscle beneath the skin. Facial Myokymia was one of my first symptoms many years ago that was recognized by wise neuro John Wolf as indicative of MS.

From Wikipedia:

“In contrast, Facial myokymia is a fine rippling of muscles on one side of the face and may reflect an underlying tumor in the brainstem (typically a brainstem glioma), loss of myelin in the brainstem (associated with multiple sclerosis) or in the recovery stage of Guillain–Barré syndrome, an inflammatory polyneuropathy that may affect the facial nerve.[citation needed]“

June 4, 2012 at 7:53 pm
(161) jackie says:

I have this in my left leg constantly when im at rest..its annoying as hell n can ache pretty bad..it doesnt let me sleep one bit..

June 13, 2012 at 11:15 pm
(162) Debbie says:

I have had twitches a few times in my left thumb. It will go on for a couple minutes and then stop, maybe restart and then finally stop totally. Have only had this happen maybe four times in the almost three years after the MS had been diagnosed.

June 19, 2012 at 6:58 pm
(163) Isabel says:

I have muscle spasms very specifically. Every so often, without any apparent trigger, I begin to experience a twitching sensation in my left shoulder. I can actually see the muscle moving, and it is extremely annoying. I have no idea what brings it on, and it does not go away for at least 20 minutes. Does anyone else have this, and if so, what is it?

June 20, 2012 at 10:02 pm
(164) Jivon says:

Facial twitching was the symptom that paved the way to MS diagnosis. I went to the ER thinking the spasms were stroke-related, only later to find out the cause was due to brain lesions……MS.

July 3, 2012 at 10:58 am
(165) Kerry says:

Iris (11), I too have that buzzing sensation in my abdomen (near the pubic bone) I have often thought it felt like a pager going off, only a finer buzzing. I also have the twitching in my calves, right lower eyelid, and a warm sensation that runs down the back of my right leg (feels like I peed my pants, real lovely!) I also notice that my calf muscles feel bruised real often even though I haven’t done anything strenuous. I also suffer from frequent severe leg cramps at night, I have increased my potassium intake that I thought would fix the problem, but it hasn’t. I do have medical insurance and could certainly go to a doc, but I refuse to be treated like a lab rat, charged a fortune and told “Sorry ma’am, we just can’t figure out what is wrong with you” and that comes from experience with my brother and his health issues of a different color! Anyway, this site has sparked my interest in figuring out what is wrong, but not sure I will subject myself to a doctor!

July 3, 2012 at 7:05 pm
(166) lynda says:

I was diagnosed with MS 4 years ago. I’ve had Optic Neuritis 4 x times, twice in each eye. I also get numb hands & feet when unwell. In the past week I have been experiencing twitches in my body, hands, feet, back, legs, all over really. It’s when I’m lying in bed of a night but not asleep. A couple of nights ago my whole body shook like when someone frightens you, but I was just laying in bed listening to the TV! It’s hard to say if this is due to stress and anxiety which I suffer from or MS. I’m hoping this will go away as it’s a little disturbing!

July 10, 2012 at 7:54 pm
(167) Matt says:

I am 44 years old diagnosed with ms in March 2011. My initial symptoms, other than optic neuritis in 2009, have been leg numbness and stiffness with constant fasiculations in both calves and often in the back of my legs. The only time I don’t feel them is when I am moving about. Before diagnosed I was concerned about ALS , however, the fasiculations started at the same time as the numbness and stiffness which led to my ms diagnosis. The neurologists always say that it is not related to the ms but my gp differs…..ms is not an exact science and we all vary with our symptoms . I would have had the fasiculations constantly for 2 years in November.

July 12, 2012 at 9:36 pm
(168) Kathy says:

I’ve been recently diagnosed with MS, I have twitching going on all day, sometimes goes from place to place, like my leg to shoulders arm, hand. Then sometimes it will linger in the same spot for hours to all day. I don’t believe this to be a medication side effect. This has been going on for 5 to 6 months now. Will update with more info as I journey through this.

July 13, 2012 at 6:59 pm
(169) Melly says:

Lisa E (134) I know how you feel! (How are you doing now, by the way?)

I lost my mother to ALS last March. Her foot-drag began in 2008, but she’d been tripping on nothing for a year before that, and having visible fasciculations for at least that long, if not longer.

Over the past few months, I’ve been paranoid every time I fumble, trip going round corners at home, slur on a word, or my drink goes down the wrong way. To make this worse, over the past few weeks I’ve noticed fasciculations of my own.

But, they’re more like little twitches, or even a wink. It started with my right eyelid, then my left, the way they do when you need to eat a banana or sleep longer. Those have subsided, but now there’s my thumb, upper abdomen, lower abdomen, groin, back, thigh, calf, bicep, tricep….and now I realize that many months ago my little finger and thumb were really twitching, though it occurred only a few times.

The current run of twitches are invisible, an internal tic lasting a split second. My mother’s fasciculations were huge, very visible on the surface, and she’d actually had night cramps in her calves for years, if not a decade. I’ve thankfully had no cramps. (continued…)

July 13, 2012 at 7:01 pm
(170) Melly77 says:

(continued…) Other than the twitches, I can think of a valid reason for everything else, although when my mother would trip we’d blame age (she was a very youthful 60-something), her sneakers, or the carpet.

In March, I fell off a stair in a parking garage. OK, unlike the one we usually park at, there was a step in the middle of the landing and I wasn’t looking down at all, assuming it was the same as the other place. Woomp, I went down on my knees.

A couple of winters ago, in the middle of my stress over my mother’s condition, I fell off a curb into the street, getting bloody knees and holes in my gloves. I blamed my winter boots which, although really grippy, had soles that were a bit too high. But I did notice at the time that whenever I was thinking about my mother, I would make mistakes.

I guess I need to take more magnesium? Bananas didn’t seem to make a difference with the eyelids. I already take Cal-Mag supplements. Maybe I need more. Or higher doses of B or D. Or maybe I need to hydrate more. There has to be something. I cannot, cannot succumb to fear! I have a hubby to take care of! He has Cystic Fibrosis. He is my treasure. We are about to start IVF. My mother wanted me to LIVE!

But, they’re more like little twitches, or even a wink. It started with my right eyelid, then my left, the way they do when you need to eat a banana or sleep longer. Those have subsided, but now there’s my thumb, upper abdomen, lower abdomen, groin, back, thigh, calf, bicep, tricep….and now I realize that many months ago my little finger and thumb were really twitching, though it occurred only a few times.

The current run of twitches are invisible, an internal tic lasting a split second. My mother’s fasciculations were huge, very visible on the surface, and she’d actually had night cramps in her calves for years, if not a decade. I’ve thankfully had no cramps. (continued…)

July 13, 2012 at 7:04 pm
(171) Melly says:

Disregard the last two duplicate paragraphs. I had to cut and paste to two comments to say it all, and I guess I missed a bit.

July 25, 2012 at 8:52 pm
(172) cat says:

I am 49 and have Primary Sjogren’s. I have some strange tiny twitches in the last several weeks…my tongue, and my eyelash feels like I gave a bug touching it…so weird. I do have some mouth dryness…cavities proofs that…but not horrible. Do people twitch before atrophy sets on with ALS?……Or can you have fasciculations before atrophy? The tongue twitches were maybe a couple of times a day yo now several times a day. Not huge twitches…just little “jolts” here and there.

July 28, 2012 at 7:59 am
(173) Dana Vigilante says:

I honestly believe that twitching is definitely a part of MS. As I write this, I have a twitching ring finger and middle finger. I’ve had this for about ten years, different fingers twitch at different times. It lasts a few hours and the. Goes away. I also up my intake of magnesium supplements during this period and that nips it right in the bud! They used to freak me out, as whe. It first happened, I woke up one morning with a twitching pinky. Now I’m so used to it, that while it is annoying, it doesn’t even bother me anymore. I definitely attribute this to just one more lovely symptom of MS. I suggest upping your magnesium intake for a few days.

Dana Vigilante
Nutley, NJ

July 28, 2012 at 9:30 am
(174) holly parten says:

I am currently on LYRICA a nerve blocker and Talwin a pain kiler have bin for over a year they being Doctors in my home town of Niagara falls found nothing wrong with me although I often have so much pain I lay in tears for days my face dropped ,sagged you eye cheek mouth all on left side left arm and leg became useless for over a year . I am 48 female worked in pharmaceuticals for 17 years no longer can work cant lift think barely walk they took my drivers because of meds . JUST FRUSTRATED PLZ HELP ????? … H

August 1, 2012 at 11:18 am
(175) Lynne says:

I’ve had M.S. diagnosed for 30 years and my walking is a bit stiff and slow whenever it’s clammy and hot. I’d never had any twitching before last week, though I do get jumpy legs when I don’t wear travel socks when flying or when sitting too long in a hot car. It used to be worse until I started LDN. Baclophen does not seem to make any difference to my twitches or to jumpy -legs for me. I have poor leg vein-blood circulation and using “Low-salt”,drinking more fluids,eating potassium-rich bananas and taking 1/4 teaspoon of Epsom salts,(magnesium sulphate,) in a glass of juice helps me. My doc says it happens when dopamine in the body runs out at the end of a long day,or after exercise when the muscles are over-excited or over-tired.

August 5, 2012 at 12:44 pm
(176) amber says:

I have muscle spasms that feel like a snake moving around in my leg accompanied by swelling from hip to toes, pain severe at times which makes me immobile and my leg shakes…The doctors have done blood test, nerve tests, checked my heart, no blood clot or vascular problems. Had a blood clot in my leg 7 years ago when I was pregnant but the vascular surgeon said it done minimal damage and wouldn’t be causing my problems… Could it be MS or something else? Please help!

August 7, 2012 at 10:37 am
(177) mo says:

Hi i have had muscle spasms in my calf for as long as i can remember.
At the age of eleven i got kicked in the left calf which swelled within seconds to twice the size of the right leg and was badly bruised for a fortnight from behind the knee to the heel. I always related the spasms to this injury but the right leg twitches as well but not quite so violently,so not sure if this has any barring. The spasms are very noticable to the eye people cant believe how much they move.
they also feel strange to touch when the palm of the hand is laid on the calf. I get quite a lot of cramping of the calfs, sometimes while at rest and sometimes during sport. plus i suffer with DOMS (delayed onset of muscle soreness) which may last several days and quite painfull. other muscle groups that experience fatigue from sport never last as long, recovery is always far better. Would like to have proper diagnosis but in the past doctors have not known what it is or the cause.

August 15, 2012 at 5:12 am
(178) Gayle says:

I’m getting twitches in the arch of my foot, it looks crazy, doesn’t hurt just annoying.It happens all day 24/7 and has been going on for a month now.I don’t have MS as I am 57. Before I got the twitches in the arch I was getting terrible cramps in the calves and the toes, not a lot though, but very painful.So I took magnesium tabs,bad cramps have gone now. I’am thinking now it could be vitamin D defficiantcy, as I have learned it effects bones and muscles.I have recently be diagnosed with osteoperosis, I am now realizing I dont get much sun, so it all could be linked. Iam going to try and get some sun each day, hopefully that will do it. If not I will see a vascular doctor.

August 19, 2012 at 7:26 pm
(179) Jb says:

OMG!!! The right side of my face has been twitching for 3 days! It’s driving me crazy!!!! I’ve had MS for 7 years. I have never had this before. I never know when something is going on with me is MS related or not. I can’t handle this!!!

August 21, 2012 at 12:28 am
(180) aubrey says:

I get muscle twitches all of the time I don’t know why, and they happen all over my body including my thumbs, legs, forearms and chest they are just really weird and they happen at random times for like 2-5 min.

August 22, 2012 at 9:46 am
(181) John Thrippleton says:

Wow, this is a lot of anecdotal evidence. I’ll add mine.

I had twiching in my left eye before my first flare up in 2001. I had them more and more often after that. I was dx’ed in 2010 with my second flare up, and the twitching has stopped in that eye since then, but now I have numbness to that side of the face, and some of my left hand. First flare up took some mobility response and feeling from my left leg.

Since the flare up I have noticed twitching in other areas, right eye, right arm, right leg, left arm, stomach. I also have the happy feet bouncing often, but I attribute that more to anxiety than anything else. Especially since it is controllable.

I wonder if this is an early warning of MS?

August 23, 2012 at 5:55 pm
(182) angel says:

I always have muscle twitching seems all day everyday. My limbs get numb very quickly. I have joint pains. I’m thinking maybe MS. I haven’t been diagnosed with arthritis but I’m certain of that I do symptoms of that in my wrist all the time. Sometimes I feel as if a baby is in my stomach from the twitching. Its really weird and im only 20 years old!

September 7, 2012 at 2:10 pm
(183) Darla says:

I have the muscle twitching, that will last for hours or days. I am 45 and I’ve had him since I was in high school. I never can get a diagnosis from my doctor.

September 15, 2012 at 3:25 am
(184) Mary Snead says:

I have had severe fasciculations since 2008. I also have many of the other symptoms others have reported. I have the buzzing in my abdomen and also at the top of my spine. I have the stabbing pains, twitching below my eye, burning sensations,cramping and the severe reaction to sudden noises. I also have hypersensitive reflexes. When my dr. tests my reflexes, they are strong and violent. All my testing has come back negative. No MS, no ALS, no heavy metal poisoning, no good reason. I’ve had these tests repeated through two different neurologists and the neurology dept at Johns Hopkins. My family doctor thinks it is MS, although the others disagree with him. I’m so glad I found this site I. was specifically looking for Dr. Terri Heiman-Patterson who is a neuromuscular neurologist at the top of her field. She was recommended to me by my GI, who did his neurology residence with her. Thank you all for sharing your stories and good luck and prayers to all!

September 20, 2012 at 5:54 am
(185) Dylan E says:

I have been having muscle spasms that are highly uncomfortable and will not go away for more that a few minutes. They areby my bottom three ribs on my right side. I dont know what is causing this but ive never experienced anything like it. I have had spasm in eylids jaw and mouth but never this strong and persistant. Very strange and in all honesty im quite worried.

September 22, 2012 at 11:02 am
(186) Kendra says:

I Julie,
I find it very interesting and extreamlly helpful to the medical community.if there is anyway I can help you in your research . I’ve experienced much of what our studying.

September 30, 2012 at 2:53 am
(187) Shelley-Ann says:

Hi there, I have had muscle twitching in my inner ear for the last two weeks on and off. It feels like someone is strumming their fingers on my skull inside my left ear; where as it happens I have an acoustic neuroma. When it started, it came with vertigo, which I managed to control with motion sickness tablets from the doctor. Only briefly mention the inner ear twitching because I know what she’d say, ‘that’s not a symptom of MS’. So I’m waiting to see the neurologist and I’ll discuss it with him. Prior to my diagnosis, I have suffered constantly with muscle twitching, mostly on my face, particularly my eyes and my thighs. Now I regularly get twitching in my calf muscles and what feels like cramps or muscle fatigue all through my legs and arms, sometimes keeping me awake at night. Really annoying.

October 3, 2012 at 2:20 am
(188) tattoo apprenticeship says:

Fantastic goods from you, man. I’ve understand your stuff previous to and you are just extremely magnificent. I really like what you’ve acquired here, certainly like
what you’re saying and the way in which you say it. You make it entertaining and you still care for to keep it wise. I can not wait to read far more from you. This is actually a great web site.

October 11, 2012 at 12:22 am
(189) Tracey_Lee says:

Where do I begin… I have been having muscle twitches for some years now. I have had speech problems that when bad I can’t control my emotional state and I usually end up crying…but I’m not, go figure, eye problems, sensitivity to sun and heat, cognitive problems, walking problems, balance problems, weakness problems, swallowing problems, and breathing problems to the point where I was hospitalized for 5 days. Burning feet, restless legs at night… I have had an MRI and apparently I DON’T have MS… but they still don’t know what my diagnosis is… oh and have had intermitant left died face drop. I have also been doing some research of my own and have found that some MS can have invisible lesions… maybe this is what I have, I just don’t know. I would like whatever it is to either go away or be diagnosed do I can at least have some treatment…
Sorry for going on… the answer to your Q… left eye switches, right forearm and thumb, left shoulder blade and calf areas, pointer finger on Right hand and some back switches… when I was very sick theses would come from my brain like an electric shock and go through my body like a wave…but very quickly. They never go away completely, but the intensity and frequency vary

October 11, 2012 at 12:43 am
(190) Tracey_Lee says:

184…Mary, we seem to be in the same boat with the exact s/s. Hyper-reflexes to sound and noises… ssuper sensitive hearing etc light, sun, noise and I too have had all the tests with 0 results x

October 24, 2012 at 7:39 am
(191) Erin says:

YES!!! I am so glad I found these articles. My neuro said they weren’t related to MS either – but I definitely didn’t have them prior to my beginning Copaxone as often and in as many places. My thighs, my chin, my eyelid, my cheek – I’ve sat and watched my skin twitch. As many have said it comes and then it goes but I have had my body all my life and I have never had any ailments beyond the common cold and flu. Why don’t our doctors give us more benefit of the doubt when we tell them things???

October 24, 2012 at 7:45 am
(192) Erin says:

I really appreciate how a neurologist comments on this condition and her (Kate) suggestion is botox – are you freaking kidding me????

As many meds as we already have to take (those of us who have chosen to take RX) and you want us suggest another synthetic, man-made chemical to put into our bodies??? I’ll take the twitches thank you very much!!

November 2, 2012 at 5:22 pm
(193) James says:

I was diagnosed with MS,in July 2012. Muscle spasms are one of the main symptoms. Blurry vision,double vision,urinary incontinence(in my case,overflow incontince,I think I’m done urinating,but never am),hand tremor for year. Then head(head shakes from side to side).tinnitus(ringing in ears),pins and needles feeling,loss of feeling of limbs. But,to your point. Muscle spasms continually,still. Usually legs. Sometimes eyelids,side of face,arms,hands,feet,back,butt and something inside my chest,guessing spleen. Also crushing pain. Depression. Feeling like I’ve water was running through veins. Loss of balance. Dragging feet. BUT SPASMS POSITIVELY

November 4, 2012 at 6:45 pm
(194) Sue says:

Yes, I have those twitches pretty much all over with varying degrees of annoyance and how long they last.
On another note, my paternal grandmother had ALS, my father had MS, my brother and myself MS (both father and brother passed away from MS at ages 41 and 40).

November 7, 2012 at 12:54 am
(195) Len Druer says:

I have experianced nerve pain in my legs as a child along with a sudden buzzing in my ears followed imediatly by a bright flash in my eyes as i was falling asleep. <<life long… I have also had twitches all my life includeing in my eye lids, mostly at night all my life. I got my first floppy foot at age 17 and have had a dull burning in my lower right leg since then on the muscle that lifts the foot. Four years ago I was rushed to the hospital in an ambulance with a suspected stroke and i was treated for that. please see http://www.ferne.org/Lectures/strokemimics0302.htm.

after 3 years and a dozzen or more mri's they officaly diagnosed me with ms.

I currently suffer from severe nerve pain in my right arm, it feels like its on fire and it keeps me up all night. my boss doesn't get it and frequently wants to fire me.

I am a 39 year old male from Toronto Ontario

Cheers Len D.

November 23, 2012 at 12:29 pm
(196) Clint Coldwell says:

My symptoms started with heart palpitations, after about 2 months of getting instant heart racing and sweating with light headefness, my calves started twitching and after going to the hospital and getting every blood test imaginable, Lyme, liver panels, heavy metals, adrenal and dozens other. All came back normal. I just recently had an MRI on brain and came back normal. I had two EMG tests both having normal nerve response but muscle readings were positive for the fasciculations in my calves, forearms and along my spine. I get them everywhere though, mainly random and short periods in areas like my stomach, face, hands and shoulders, also in my triceps. But it’s constant in my calves. I’m still in search for a diagnosis, they have ruled out anything serious. Still waiting on results for an imbalance in adrenal gland on my kidneys, after two tests I had a level of 37 and 39, don’t know what that means except doc said it was high. I keep looking at all these sites trying to figure something out. I have constant leg weakness and sore joints. If bones could hurt, that’s what it feels like. I have been on Valium, codeine and lyrica for 6 months now and that alone is taking its toll on a normal life. I went from being an active duty Marine, healthy and active, to an avid golfer walking 36 holes 2-3 times a week, and now exhausted after 9 holes. Seemed to all started overnight and progressively getting worse. Curious if anybody had the something happen in such an instant and if they figured out what’s wrong.

November 27, 2012 at 7:57 am
(197) A1 says:

I know lot of people here says they have MS and their muscle twitch but my qusetion for all of you do you have muscle twitch all ov your body like put you on electrical wire, I see some doctor comment who says , some time we see MS have twitching in very begning , I have qusetion for him as well do see twitching all over body ??? , I have muscle twitching a lot , my MS specialist , don’t what it’s ? He dose not agree to have twitching all over body is symtoms of MS .

December 4, 2012 at 11:44 pm
(198) Brett Conner says:

I have been dx w/ RRMS for 11 years now and am on my second drug therapy now. In the past year I have experienced a great deal of twitching in my r eyelid and L ear. It comes and goes but when it’s on it is ON.

December 24, 2012 at 12:08 am
(199) rebecca morris says:

I have this….Muscle twitching or something, it is in my back. It is not painful but it happens every few minutes. It is starting to worry me. It is so strong and quick. It kind of feels like when a baby kicks ! But it is in my back and only on the right side ! My Father had MS, I am starting to worry !

January 1, 2013 at 8:43 pm
(200) Bron says:

All the cents on this post are very interesting. I was diagnosed with RRMS in 1997 following MRI scan. I took rebif 22 and then 44 until last year when I stopped treatment – for the past 18 mths I have been taking high doses of vitamin D and no other meds.

I have been relapse free for the past 2 years and before that was gradually recovering from period fatigue since giving birth 5 years ago. Anyway, the twitching is what I want to get around to talking about ….. For 3 weeks my RH top eyelid has twitched on and off every day. My MS usually affected my RH side so I have automatically attributed it to my MS. as yet I haven’t consulted neuro or nurse because it is holiday period.

Today my lower lip has started twitching too (in addition to my eyelid). I found the whole thing a distraction – whether I am trying to listen or to talk with someone. I worry that the symptoms may progress, I have previously lost facial control / ability to talk and swallow properly and lack of coordination and balance on my RH side.

Hoping my symptoms don’t worsen, whilst acknowledging that they may well do so …… Time to kick back and enjoy the kids / stop working so hard!!

I hope my post is interesting to some of you ….. I certainly think the twitching is MS related even though the evidence may be lacking. Nobody knows conclusively about all things MS!

January 8, 2013 at 4:40 pm
(201) Jerry says:

I was diagnosed with MS in 1969, and for as long as I can remember have had twitches in my legs and feet, always accompanied by “pins and needles” of fluctuating severity. The twitches occur primarily in my left leg and foot, and the leg also is affected by spasms that cause it to bend at times without notice.

My neuro noticed the twitches, and wants me to begin testing for motor-neuron diseases (ALS and the like). I at first agreed to do so, but after reading about the tests (electromyography, etc.) I decided I rather not know since, if I have ALS nothing can be done.

My wife’s cousin died from ALS, and it is a God-awful way to go

January 30, 2013 at 1:41 am
(202) Brenda says:

I do get twitches in different places throughout my body, they come and go. I currently am having a lot of twitches in my abdomen and the lower part of my left eye for the last 12hours. I have been diagnosed with ms, I am thinking these muscle twitches are a symptom of ms. Here’s to hoping the twitches go away soon.

February 2, 2013 at 1:16 am
(203) sscomment58 says:

Hi found this page through googling “constant muscle twitching.” I do not have MS.. well I haven’t been to the doctor’s for my symptoms, but I have been having twitches all over my body every few seconds every night for a few years now.
After reading about how the CNS is linked to the twiching, I realized that it started around the same time I was on Topamax (for migraines) for about 4 months then went off… its the only med I’ve been on besides birthcontrol. Have been off all medications for 3 years and otherwise healthy.
Hope this helps!

February 12, 2013 at 5:59 am
(204) Loui says:

Hi, I have fybromyelgia and under active thyroid and have for the past 3 years experienced muscle twitching mainly in arms, legs, calfs, lip and feels as though it is twitching deep inside my stomach muscles I have even felt it in my private area.
They are not painful just annoying and can sometimes keep me awake. They usually happen on resting.
Also suffer with extreme tiredness and brain fog along with stiffness and aching muscles especially around the scapula and pelvis.
I also miss my footing occasionally always my left foot.

My mother has Parkinson’s which I think is closely related to M.S. They say is not hereditary but her mother also had Parkinsons and her mother before. So I am wondering if I will end up with it.

All these diseases are linked I think to the Autonomic nervous system and would be interested in any info you find.

Sorry if I have gone off the subject of MS but I really think there is a connection going on with these diseases.

February 20, 2013 at 6:05 pm
(205) Bertha says:

I had a major car accident almost six years ago and now I have all these symptoms from head to toe. At time it makes me feel nautious. I can’t lay flat on my back..thats when I feel most of twitching. I spent two years with a physotheripist..that made things worse. Then a year with a kinesiologist…that man was so smart!! My massage theripist worked alot on the facsia on my back. I hadunderstood that the twitching was a sign of weakness in the muscles. I had alot of stretching done to entire rear of my body…which took forever to get back in it place. Six years later I feel like Ive aged 15 years. The symptoms I feel now sound like the symptoms of ms.

February 20, 2013 at 6:18 pm
(206) Bertha says:

I totally agree!!

March 2, 2013 at 2:55 am
(207) Tori says:

Hi! I was diagnosed with MS in April of 2010 with a positive MRI and spinal tap. About 6 months ago I noticed that my muscle would start twitching as I was falling asleep. It’s very annoying. Muscles all over my body including my neck, back, arms, fingers, butt, and legs. I also have clonus in my feet, so my neuro thought it could possibly be clonus throughout my body. Lately, I’ve had an increase in the numbness and tingling in my fingers which now includes severe sensitivity in my fingers and skin. I also have a neck injury with a bulging disc into the thecal sac of my spinal cord at C5-C6, so I don’t know if that’s what’s making things worse or the MS. Just thought I’d share.

March 5, 2013 at 5:35 am
(208) Symon says:

I have noticed when i go to the gym, work out and build up muscle, then when i don’t maintain it for a few months by living a sedentary lifestyle, i have quite bad fasciculations. They don’t hurt — if anything i enjoy the sensation a little.
Just my 2 cents.

March 7, 2013 at 12:12 pm
(209) William Ross says:

I was looking up muscle spasms because I have them all over my body. I have had problems with my muscles stiffening up spasms just a lot of pain every since I was a little boy. Twitching is something also that I have had all my life all over, I do it in my sleep the whole time I am asleep. I just started going to neurologist and had a brain MRI haven’t heard results yet. I have always thought that I would die young because I have always had muscle pain somewhere all of my life so I thought I had some kind of disease that just hasn’t been found yet. I have terrible fatigue, muscle pain,twitching , just very odd pain. Here is the kicker my dad had MS for 27 years. The things that I seen him go through wasn’t like mine so I didn’t think mine was MS, but when I read some of these stories I don’t know. It is scary because my dad at times went through hell . I don’t know what to do or think. Thanks for letting me vent.

March 9, 2013 at 11:08 pm
(210) Jabari says:

I have been suffering from these muscle twitches all over my body for years, but not until last year had it been so bad. Right at it’s worst point, one of he muscle twiches was so intense in my thigh that it was sore a few days aftewards. Then, a few weeks later I had a seizure for the first time. Many test were ran but nothing was immediately found. The next test is a neurological test to see what is going on.

March 13, 2013 at 1:39 pm
(211) Paul says:

I have ms and have noticed these twitchesmostly in my rt arm.

March 15, 2013 at 11:01 pm
(212) Henry says:

43 yr old male, diagnosed with RRMS in 2008 based on optic (double vision). Started with Avonex but had exacerbation so switched to Rebif 44, 3 hrs ago. Free of major symptoms but went from very active (tri, backpack, etc) to not as muscularly active – I can hike or bike, just without a pack or hills, noticeably weaker in major muscle groups.

I’ve recently noticed the tiny but frequent spasms ( might be facsiculations) in my calves the last few weeks. They look like the worms (see posts 100 and 167) or little, tiny jolts. There’s no pain associated with the individual twitches, and the frequency once every 1 to 5 seconds. This seems to be more noticeable after hike/bike, and coincides with stiffness, and cramping if I flex either way (so difficult to stretch).

Not sure where my journey goes, or any of yours, but it seems like many of us can see the same moon.

March 30, 2013 at 1:18 am
(213) Shirley says:

I was diagnosed with MS three years ago and in the last ,onth or so have startedwith permanent twitching and spasms in my calves, no meds seem to help stop them and as it goes on I find it more and more difficult to walk as my muscles are so sore and font want to work so well anymore. They have come to the point where my legs are sore permanently.

April 11, 2013 at 10:55 pm
(214) Lovie says:

could be tourettes. my son has that

April 18, 2013 at 5:17 am
(215) James says:

I never had fasciculations until I had a major MS attack in 1989. I was not diagnosed at the time. I was riding the BART in Oakland and went to get up and could not. I finally managed to get to my feet. I had 3 different types of pain all going on at the same time. Fascicualtions started at that between my diaphram and ankles on both legs. They slowly spread over the next year to every where on my body. My scalp even had them. Tests for ALS/MND came out negative. MS was confirmed shortly after. The fasciclations have not gone away either. 24 years latter there still with me, all though there not as many as in the first year. In my case it was clear it was MS related becasue they started at the same time the other major MS sysmptoms started. .
How strange the other sysmptoms got better but the fasiciculations did not.

April 22, 2013 at 3:29 am
(216) saeed says:

Hi,

About 6 month I had a sort of different dizziness. I felt when I move my body specially my head I move from the inside. I was so scary I felt I’m about to pass out, but I never did. One week later I had loads of moving eye floater on both eyes. And then those annoying fasciculations just starter all over my body specifically when I was resting. My eyes became sensitive to light and when I looked at the sky I could clearly see lots of floaters and scheerer’s phenomenon; lot’s of tiny moving objects. I wen to visit several different doctors and specialists. and went under lots of tests and examinations including full blood test, MRI (2 of brains and neck), VEP, SEP, EEG, Electromyography and every possible test you may imagine to find something wrong in my body, but they all came back negative and doctors just told It’s just anxiety or possibly Labyrinthine or an inner ear infection! Right now, My dizziness has change a bit and appeased but still there, but for one week, I feel a sort of looseness in my left hand. It is like when I move it, it moves by itself and I have less control on it, but I have the grip to move heavy objects. I also feel fatigue when I wake up in the morning. Honestly, I feel there’s something real bad developing in my body, I’m afraid it might be MS or ALS. I don know what to do and my every day life is just terrible and disappointing.

Any tip appreciated

April 30, 2013 at 12:08 pm
(217) Quranheals says:

@Saeed

In terms of priority, you possibly have:
1. Inner ear infection
2. Migraine
3. Anxiety
4. Allergy
5.Lyme disease

And most definitely not : MS or ALS
Live your life and enjoy every moment, for life is a rare chance of creation and imagination. Then use it well!

May 3, 2013 at 10:55 am
(218) Lerato says:

My muscles starter twitching when I was 12 years old,I tried to tell my family about it but they made fun of me so I felt embarrased so I ever talked about it. it happened every day and it got worse over the years, 3 years ago my right leg started to jerk a lot and I was taken to the hospital, the doctors did the test and everything was normal, they told me. I’m 25 years now, my body is still twitching and it is worse now,sometimes looking at my skin jumping like that makes me cry, it started a long time ago but I just can’t get used to it. I twitch everywhere. On my arms, hands,thighs,calf,lips,toes,chin,tongue,and now on my butt, ill run to the mirror sometimes to look at it. This is so uncomfortable, I need serious help

May 9, 2013 at 3:42 pm
(219) Joseph says:

I experience these twitches in my eyelid.
At first, They would last weeks.
Constant twitching.
when they stopped, a couple months later, i began to feel tingling in my extremities.
followed by all out numbness in both hands.
This started the diagnosis process.
A year, and more episodes of twitching, later, I woke up blind in one eye one day.
As a person with 20/20 vision the previous 27 years of my life, this was again concerning. Back to the DR. At this point, 2 Doctors, my general DR and the Eye specialist I saw for what was described as “optic neuritis” strongly urged an MRI.
Followed by results and ultimately a diagnosis of MS.
There is no history of MS in my family.
I am a male.

I hope that helps.

May 26, 2013 at 6:58 pm
(220) Mike Byrne says:

I have noy been diagnosed with anything but had numerous viruses when born and as s child including recurring tonsilitis and chicken box and fevrile seisures. I have slways hsd poor balance coordination etc. But in my 20s onwards, im now 33. I have a bony lump and joint stifness and pain flexing. I have spasms in my thighs, stomach neck cheek area, eyelid top and bottom and lip it goes dumb or spasm and goes in a few minutes. I have had a tight chest and the odd torso pains even in the back rib area and a pain that goes around the torso but my mom says it just wind. I have what can be described as orbital and eye nerve throbbing psin. It might be of eye strsin of coarse but i dont know cheers

May 27, 2013 at 2:07 am
(221) Bryan Berggren says:

I have no idea whats going on a few years agao I broke both lower legs both compound fractures I also had mersa during all of this in my right leg after 18 months and 13 surgres im as normal as its going to get but since all that I have a very very hard time trying to sleep its a battle every night that im really tired of I started thing in was restless leg and part of it is I think so I take two requip every night I also take 4 tramadol every night and I might add at night only because of my ongoing leg issues but the relles leg thing also now my arms and legs jerk uncontrollably so after a few emergency trips at 3 in the morning they put me on a musel relaxant kloxipim I have to now take two of them and wait about 45min for everything to kick in befor I even try to lay down or game over no sleep some times now I will wake up after ive been a sleep just jerking all over like a seasure and have to get up and take 1 more kloxipim and wait for it to take effect its getting really old I was wondering after13 surgres if that anistesa messed with my nervious system of some sort im a little afrade that nothing is going to help after a while and ill have a complete melt down don’t what to do or what direction to head next can any body tell me whats going on and this only happens when I try to sleep I don’t take anything during thr day

June 3, 2013 at 4:34 pm
(222) generic viagra says:

you’re actually a good webmaster. The web site loading pace is incredible. It sort of feels that you are doing any unique trick. Furthermore, The contents are masterpiece. you have done a great activity on this matter!

Review my blog generic viagra

June 16, 2013 at 6:19 am
(223) Amanda Nicole says:

I was diagnosed with MS four years ago. . I’m 27 I went completely blind in my right eye when I was pregnant with my youngest son, my vision was brought back with steroids. For the past week my eye has been twitching right under my eye… Now today my face id twitching above my lip… Please help answer my question is this normal???

June 28, 2013 at 11:27 am
(224) Yolonda Cramer says:

Im finally going to have Insurance so I Can be under a Specialist care.I’ve had twitches of on and on most my life.But as of almost 3yrs ago its Became My whole right side of my face.It scared me alot. Then it was just small time it would do that.It Stopped for almost a yr But its Back again and More often and Right before I Go to Sleep.I Feel like a Freak when it takes over and Im afraid one day it maynot stop.My Mom use to work at a hospital as a Nurse and Remembered a patient of hers With Ms and her Face Twitched alot.Of course Were Alot More Advanced Now than 34yrs ago.I’ve Researched All My Health issues and pains.All Signs Leads me to MS. Which I know in My Gutter I Do Have.I Now Know what kinds of Test I Need to Find out for sure.But Im 99.9% sure I do.It Exsplans Alot.I Dont feel like im Crazy nor alone anymore. I Do Believe These Twitches Are apart of Ms.Doesn’t mean Everybody will Just a good chance you will. Ms is Nerve Damage after all.Anyways good luck and God Bless us all and Help us Thru this.

June 29, 2013 at 10:38 am
(225) Kim Gaston says:

I have had MS for 10 years. It is currently RR. I had this twithching with my first spinal lesion. It always seems to tell me something spinal is happening when I get this symptom. Currently my calves are twitching and , like your first commenter, it loks like when I was in my 3rd trimester and the baby was kicking. It is especially difficult trying to sleep feeling like I am being poked the whole time. Each nuerologist I tell this to, seems to either think I am making it up, or brush it off. I applaud you looking into this, as it is really annoying! I suppose this is super minor to other symptoms people have, but I really would like to know how to stop it. :)

July 2, 2013 at 2:47 pm
(226) Gail says:

I was diagnosed with ms about three years ago. I was a hard diagnosis. And I see an expert in ms in nj. I have these twitches every day and they are anywhere from head to toe. I also describe them as when being pregnant watching my baby kick in the same spot rhythmic. When I told my neurologist about it he told me he never heard of it. I give up. But I know I’m not crazy.

July 2, 2013 at 5:23 pm
(227) Lis says:

YES!! I have not been diagnosed with MS officially but I have so many of the symptoms in common with the disorder, that I’m at least 90% sure that I do have MS. I have had the eye twitch for years, it started up in junior high. I am now in college. Sometimes after exercising my legs get twitchy, but lately I’ve had this terrible muscle twitch in my back that extends to part of my shoulder. It has been twitching for two ENTIRE DAYS. Really very annoying. I have it in the past in parts of my face, like lower lip and cheek. I think its safe to say that muscle twitching IS indeed a symptom of MS. It would only make sense, the nerves are damaged. It would seam like a no brainer that the nerves responsible for controlling those muscles would occasionally malfunction.

July 7, 2013 at 9:53 am
(228) Tam says:

I’ve been dealing with all sorts of pain and stiffness on my right side and Dr’s immediately thought “rhumetology” (SP) but all those blood tests came back negative. With a few minor injuries that lead me to believe there is no way a herniated disc can cause all this discomfort an ORTHOPEDIC sent me for a brain MRI thinking possible MS. I have experienced these little twitches in my eyelid, lip, knee, calf, and this morning my thumb did a little dance. I started logging when and where these twitches happen in hopes of finding an answer. My MRI report came back and I’m just waiting for the ORTHOPEDIC to tell me where to go as his last words to me were “when I get the results I’ll call you and tell you where to go from there.” I am praying that this Dr is wrong!

July 7, 2013 at 11:07 am
(229) MSJJ says:

I get these twitches along my brow line, in my forearms, and in my toes. Not the same as a muscle spasm, that is for sure. They are beyond annoying.

July 10, 2013 at 9:07 pm
(230) Mark W Budwig says:

In about 2000 one of my neurologists, Saul Sadiq in NYC, pointed to the presence of fasciculations on my back as confirming neurosarcoid rather than MS, which had been my first diagnosis back in 1989. He even called into his office some doctors studying as fellows in his clinic to witness this oddity. I had noticed them on my left shoulder: very tiny, hard to see. I seem no to get them any more. Neurosarcoid is about 1/25 as prevalent as MS, which is why, the doctor said, he specialized in MS rather than neurosarcoid. “I’d go broke.”

July 17, 2013 at 6:59 am
(231) Robin says:

Hi! About three and a half years ago I started having spasms/tremors around my throat. It is almost always constant. Somedays are worse than others. When I started having tremors I was sent to a neuro, who did an MRI, where he found several lesions. He told me at that time I had MS, but my spinal tap came back ok and he diagnosed me with a Clinically Isolated Syndrome. Since then I have strange sensations that do not last very long and sensations that only occur once and never again. I have constipation constantly, foot cramps, irregular menstrual cycle. The tremor/spasm is with me still today, somedays almost unbearable. If you could please e-mail me i would really appreciate your take on this. I am currently at the Mayo Clinic and they are of no help whatsoever. When they have no idea or it is not cut and dry they don’t seem to dig to find an answer. I am convinced that I have very slow progressing MS.

July 29, 2013 at 9:03 pm
(232) Bridget says:

I am a 45 year old 11 yr post op Anterior / posterior spinal fusion @ L5 S1 with lamenectomy. I have recently accuired faciculations in my legs, just found out what its called this past week as I showed a video to my DR that I recorded of my legs. I have many other symptoms and seeing a neuroligist on 8/16 . I now know the strange feelings I had in other parts of body last year were faciculations, UI have many signs og MS now that i look at the symptoms, but will see what the Neuro says:)

August 5, 2013 at 11:37 am
(233) Rik Kramer says:

I also have these twitches since 1998 …..
Oct 2011 severe twitching of the eyes (not the eye lid) ..
When to see my GP, did some tests, all in the green.
Jan / march 2012 severe muscle twitching all over my body, legs arms face the whole lot….
Some tests done by a neurologist, again all in the green.
The muscle twitches appear when i go to sleep or rest except for the calves, upper legs and eyes..

Also massive tingling sensations in upper legs and calves. At one moment (when i was resting) A tingling started at the tip of my toes and moved up to my neck, once it reached my head (brain) i became completely relaxed. A sensation i cannot describe…..

What causes all this ?
Electro smog… Mobile phones…..

Greetings,
Rik

August 5, 2013 at 9:00 pm
(234) dementia stages says:

What’s up everyone, it’s my first visit at this site, and paragraph is actually fruitful for
me, keep up posting these types of articles.

August 5, 2013 at 10:40 pm
(235) Amy says:

Hello! I’m a 37 year old female experiencing what I think are early MS symptoms. Pins/needles sensations, electric feelings, persistent eye twitch for 2+ months, fatigue, dizziness- all somewhat vague syptoms but annoying still! I was referred by my regular doctor to see a neurologist. The neurologist said its probably all just anxiety. I just had an MRI done and will hear the results tomorrow. I admit that I struggle with anxiety, but the symptoms I am having are different (and I can tell something is physically wrong with me). It feels like things are misfiring all around my eyes (if this makes sense??) The eye twitch and general sensations around my eyes get worse around heat or light. I just feel very “off”. I realize that eye twitches sound so common- plus lots of people have had a twitch that comes and goes quickly. This is different- this twitch is steady and persistent and the medicine (perscribed my the neuro) isn’t touching it! I seriously feel like the MRI is gonna reveal something. I was so surprised to see so many people pinpoint eye twitch as their initial symptom (yet most doctors won’t admit that it has anything to do with ms). If my MRI shows lesions, then I’m convinced!!! Eye twitch just may be an MS symptom.

August 7, 2013 at 9:26 pm
(236) Anniek says:

I have experienced these twitches in my eyelid, my hand , my arm and calf at various times. It becomes quite annoying but hasn’t caused me any actual issues in life.

August 9, 2013 at 1:19 pm
(237) HellsBells says:

Wikopedia, on Benign Fasciculation Syndrom (BFS) says this under causes:
Though twitching is sometimes a symptom of serious diseases such as spinal injury, muscular dystrophy, Lyme Disease, multiple sclerosis or amyotrophic lateral sclerosis (ALS), it is much more often due to more benign causes such as BFS, over-exertion etc.
So, it is obvious that whoever authored the BFS page knows that MS DOES cause twitching, they haven’t spoken to the people that authored the MS page.
To the neurologist that wrote that twitching is a condition of the Peripheral Nervous System, and not the CNS – therefore not an MS symptom – you should know that even with Peripheral Neuropathy causing sensory symptoms, that there are two types – Central Peripheral Neuropathy and Peripheral neuropathy. Basically, it is known that a disease in the CNS can cause generalized symptoms of the PNS due to demyelination or other damage to the PNS control centre.

August 10, 2013 at 4:32 am
(238) Tom says:

I too have been experiencing some strange sensations over the past three months that have me anxious about MS. The sensations i am experiencing are;

Tingling and on ocassions a light feeling of pins and needles. The tingling used to come and but seems to be more permanent at the moment. The feeling varies from day-to-day, some days being more noticable than others.

Fatigue or feeling of tiredness. No matter how long i lie in bed i never seem to feel refreshed. My legs generally feel weak.

Twitches, or repetative pulsing under my skin occurs at different places on my body and limbs. It’s not constant but at a noticable freqency that obviously is not normal.

Little spasms (no pain) occur when a finger, hand, arm, foot or leg will jerk slightly. This is most noticable when i am in a resting state.

I have been to my GP and have been referred to a neurologist. An MRI scan has been conducted and the results of the scan shown none of the typical scarring the legions caused from MS would show. The neurologist told me i do not have MS, i’m not convinced.

I’ve read articles that suggest that a negative MRI scan does not necessarily preclude MS being the condition for such symptons. I’ve read that another main test is a ‘Spinal Tap’ to test for certain fluids at the base of the spine, which if found give high probably of the MS condition.

Is or has anyone else experience such conditions and been diagnosed with something less concerning as MS.

I am awaiting tests from further blood tests that have been recently taken so possibly these may flag up a reason.

Thanks

August 11, 2013 at 8:15 am
(239) Rik Kramer says:

Tom, let’s shake hands…

What you described is 1 on 1 with me….(me since 1998)

Stretching the muscles brings some relief, so is running/ jogging/ Exersice

The fatique is on and off over the years so is the tingling sensation.

Medical Sience /GP/Neurologist: I have stopped with that, they do not provide answers.

I do not take any medicine or drugs…

I think the answers can be found in our immum system….. For some reason our immum system
goes grazy / ballistic

i.e. … I never had the flu, do not get sick, never…

Greetings,
Rik Kramer
(the Netherlands)

August 26, 2013 at 9:31 pm
(240) Rachel says:

Hi! I was diagnosed with MS in 2009. I’ve experienced optic neuritis, relapses aplenty and after numerous medications (it’s all trial and error here), I found the Tysabri infusions work the best for me. Unfortunately, it’s difficult for me to get to Pittsburgh from where I live and with my husband’s schedule. Anyway, I recently started on the Tecfidera. But since I was off the meds for so long (I stopped Tysabri in April so I could start the Tecfidera sooner and it wasn’t until July that I received it!) I had a relapse. Or what they believe to be a relapse. I am experiencing the fluttery twitchy feeling mainly in my abdomen. It gets worse when I lay on my stomach or bend over for a long period of time, say pulling up a floor in my house to put in a new one or weeding my plants. It’s annoying and frustrating, especially because if I didn’t have MS, the doctors would be more inclined to be more thorough with finding out exactly what the problem is and not just assuming it’s MS related. So, if it is a relapse, it’s the most irritating one I’ve had and it’s taking awhile to go away. I am not pregnant so I know the fluttery feeling can’t be because of that. I’ve had the Paragard IUD since May and I thought maybe that could be the root of the problems I’ve been having, but everyone, including my neuro, is saying that it isn’t. Probably because the vibrating fluttery feeling is more defined when I look down. But I still don’t know why it’s so predominent in my abdomen. Either way, the point is, I have MS and I’m having these weird spasms (fascticulations I guess) sowhether or not it’s correlated, it’s happening.

September 4, 2013 at 3:59 am
(241) Astrid says:

Hi,
I have looked up “constant muscle twitching” and found you post.
I have been experiencing a constant twitching muscle on my upper lip and this has been occuring for three days running.
It has even progressed to (only) my left cheek at times.
I am a little freaked out by it, and was hoping to find more information on this.
Please can you advise ?
Thank you.

September 5, 2013 at 9:17 pm
(242) Terri says:

I have muscle twitches in my jaw as I try to go to sleep. I have MS and it doesn’t bother me, except the other day it twitched and my tongue was in the way. OW!!! All in all I deal with any new symptom & use the MS app to make note of it, and then continue on.

September 13, 2013 at 7:57 pm
(243) Elisabeth Kenney says:

I have twitching in my eyelid on the right it always precedes one of my loopy episodes I call them. However, the neurologist and the eye specialist say it is normal human function and has nothing to do with the MS. However, it has repeatedly returned before my episodes. I then loose the feeling in both of my hands, and my vision goes to a video game like feel and I have no balance.

September 22, 2013 at 11:15 pm
(244) Barbara says:

Had 3 days of continous irregular chest muscle twitches: fasciculations. Scary because it crosses over heart and sometimes feel it all the way down to left hand or on left upper leg. I have MS for over 20 years..but this is new…it could be stress because upcoming interstate relocation, but How can I get relief? research from Medline Plus says fasciculations could be caused from not enough fluids, low electrolytes, vitamin deficiency. How do I improve those?

October 19, 2013 at 5:49 am
(245) AJ says:

I’ve had muscle twitching in both my lower legs (front and back) plus right upper thigh for nearly 6 months. I had a spinal fusion in 2008 at S1- L5 and a Dynesys® Dynamic Stabilization from L5-L4. I sometimes have extreme pain in the area of my right shin both at rest and walking. I’m awaiting a Neurologist appointment but my GP thinks its nothing to worry about, due to the time span of this aliment, I don’t think it is ALS but possibly either spine related or FBS. Anyone else get these symptoms with such pain associated with twitching?

Kind regards

AJ

October 25, 2013 at 11:42 pm
(246) robin says:

I have lupus, sjogrens, and RA. I do not have MS, my dad died of ALS. I have three sisters and a son, all with Different Autoimmune Diseases. We all know what facilications are and we all have them. Me and my younger sisters got them way before we were diagnosed. My other sisters got them years later. Only one sister has a diagnosis of MS. I think any autoimmune diseases including MS can get facilications. Like I said we all have something different. It doesn’t mean you have ALS. I’m on Neurotin because other that loosing feeling in my feet I also cramp constantly. These are also symptoms of MS and other diseases. So hang in there and please don’t worry!

November 6, 2013 at 2:22 pm
(247) Concerned Wife says:

My husband has MS and is on Copaxone injections, and they have him taking Neurontin 3 times per day and Amitriptyline and night. He also is a type 2 diabetic with daily insulin injections, He has neuropathy, and multiple bad disc and back issues. He has every symptom that has been described and then some. He is 50 years old and was diagnosed just over 3 years ago. But an answer to your question is yes his newest symptom is upper arm deep bone pain that makes him want to throw up and for the past few weeks now his face keeps getting spasms on his cheek not far away from his eye. He does say he can make it spasm just by squinting his eye for a minute and then it starts the spasm. It is embarrassing.

November 11, 2013 at 12:56 pm
(248) Zach Ayers says:

Yes I was diagnosed with ms in March of this year ive been put on Betaseron and I get those little muscle twitches quite frequently and all over my body from my eyelids to my calves

December 6, 2013 at 6:33 am
(249) kelly says:

my bf has ms sometimes when we r sleeping his arm around me will twitch bad but this will go on all night and it like once a month i wonder if this could be due to stress or worry this wakes me up right up out my sleep causes it a big twitch kinda got me worried any ideas what this is this is pretty recent doctor says he is fine barely any systoms of ms right now any help would be great

December 12, 2013 at 6:13 am
(250) Jaz says:

Hi All,
I find your comments somewhat reassuring to read. Currently I am at the Neuro and he did a bunch of tests to see what is going on with my body. Since 6 weeks I have severe lower back pains, since 4 months vertigo and imbalance and now since 2,5 weeks continous muscle fasciculations in my lower legs below the knee, and occasionally also anywhere in my body. Along with some legs spasms/cramps and involentary muscle movements, like an arm suddenly twitching upward. I am on Baclofen now and it seems to help a bit. My MRI was positive, although judged as non typical for MS… I am starting to go crazy by these muscle movements, which are actually worse than the pain. Looking back, the twitching and pain have occasionally popped up in the last few years. When I read your comments though, I am quite sure it will be MS in the end.. somehow reassuring..

December 17, 2013 at 1:09 am
(251) Kristen says:

I have ms and I have fasciculations all over my body. They’re in my arms, legs, abdomen, face, chest, everywhere!

December 18, 2013 at 11:42 am
(252) bridget says:

My fasciculation’s began in June 2013, I should say this is the day they started so intense and have never stopped but spread to my entire body.I was tested for ALS, thankfully I don’t have it!

My medical history includes Spinal surgery… anterior /posterior at l5- S1 fusion.

My current symptoms are to me a bit strange as they come and go. But they all happen at the same time so when I have them I get discouraged and go to DR and then after a few weeks there gone, when they return I go through it all over again:::(

Right now, my vision is so blurry I’m wearing contacts and glasses but it doesn’t help.

I have bladder leakage and urgency
minor loss of bowel control

my left arm goes numb and is tingling…my ring finger drives me nuts
my right leg bone is hurting..( yes I can feel the bone)
my right leg from hip to toes is numb/tingling/tight
my left leg is the same but from the knee down
my left toe is constantly moving…pulling up and down
Both legs/feet/calf are on edge meaning ready to cramp up at any second and when they do the cramps are debilitating
my legs are weak.

Im having trouble at work remembering what im doing.
CRYING a lot,

I get so tired a nod out at work, I feel so tired and haven’t done anything!

Then it goes away but returns its been 4 months since my last bout.

Fasciculation’s have never stopped,

At times I feel disabled and then I feel like me again. I’m so frustrated I need a Mental exam, maybe?

December 21, 2013 at 10:47 am
(253) disney discount coupons says:

They will provide 20% to 60% off sale bits. Signing up for Best Buy email alerts will encourage you
to receive timely information about Black Friday deals.
Black Friday is often referred as “Shopping Holiday”.

December 25, 2013 at 3:21 pm
(254) Helebon says:

I was diagnosed with RRMS last month after one severe MS attack. I have brain (not dawson fingers) and spine lesions. Ever since taking the steroids I developed twitches (not spasms). It began with extensive feet twitching at night. Its one twitch at a time and bodywide. In my bottom, arms, legs, thighs, feet , side, back, shoulder blades. I’ve not had them on my truck though, and about 10-15 a day. My body does feel ravaged by the MS attack, so it doesn’t surprise me. The twitching is one reason why I asked my GP for a second neurologist opinion, hoping to get the appt soon. I also lost strength in both my arms, so my GP said that too sounds odd for MS. I don’t think i’ve had many spasms, only had twitches.

February 6, 2014 at 9:56 pm
(255) Tricia says:

Two years ago I was diagnosed with CFS, Cramp Fiasciculation Symdrone. I’ve been on meds controlling that, but now I am having this twitching under the skin of my inner right thigh just above my knee. No pain just twitching twitching twitching!!! Its alarming cause it won’t stop, any suggestions???

February 10, 2014 at 12:30 pm
(256) how to remove ukash virus says:

Quickly, aged dude here for training equipment that isn’t pleasure and as a result named lower calf putting
jets staying to the amount of force coaching instrument this in return amongst
their lower calf, even though the out-of-date man or woman not to near known as your particular guide-thigh gear.
o The Wii remote has accelerometers and infrared detection that allows positioning in 3D space.

The negative inside Wii is short battery, no advanced HD graphics or surround
sound and wherewithal to play CDs or DVDs.

February 16, 2014 at 8:34 am
(257) Paul says:

Hi,

I am a 54 year old male, 175 lbs 6,0″ tall. I have noticed the constant muscle twitches in my leg calves for years. They looks like little explosions that occur every second or two, I don’t feel them but often wondered why I have them.
I have noticed that when I exert myself with any type of physical activity I seem to have a body shake or tremor all over. My doctor prescribed “Clonazepam) to reduce the shakes/ tremors and I only take it when needed. It seems to work but I still wonder if all of this is a precursor to something more sinister down the road.

Paul

February 16, 2014 at 8:57 am
(258) Eric says:

Paul, do you have an MS Dx?

February 17, 2014 at 6:55 pm
(259) kelly malpass says:

I have been having muscle twitches every single day for the last 11 months now.
I started getting very tired and every so often my leg muscles would feel very weak to the point where I cant walk. And now the muscle twitches. Some days very strong and can happen anywhere from bum to leg to arms
this is really distracting and still have had no answers from my nneuroloy.
With this I some times get pins and needles in my feet and feel very cold.
I dont see my neurology for another two months and not expecting any answers as ive been like this for two years now on and off.
Before this I was a healthy 30 year old that likes to exercise but now exercise is a struggle and tires me very quickly.
I just want to feel my normal self again

February 28, 2014 at 10:35 am
(260) Dana R says:

I have those twitches almost constantly in my toes whenever I put my feet up. A new symptom I have (for the past 2 months) is my head nodding back & forth. My hubby says I look too negative cause it looks like I’m constantly voicing my disapproval with everybody when I’m actually just linkof sitting there!! lol I’ve also awaken myself from my one leg and the opposite arm ‘jumping’. Very uncomfortable!! My neuro just keeps putting me on anit-seizure meds. I’m now on two different ones.

February 28, 2014 at 12:33 pm
(261) linking google plus and facebook says:

Hi there would you mind sharing which blog platform you’re working with?
I’m looking to start my own blog in the near future but I’m having a difficult time deciding between BlogEngine/Wordpress/B2evolution and Drupal.

The reason I ask is because your layout seems different then most blogs
and I’m looking for something unique.
P.S Apologies for being off-topic but I had
to ask!

March 7, 2014 at 3:57 am
(262) Mea Culpa telecharger le film says:

Excellent weblog here! Also your web site
so much up very fast! What web host are you the usage
of? Can I get your affiliate link in your host?
I desire my site loaded up as fast as yours lol

Here is my blog; <a href=”http://meaculpafilm.blogspot.com”>Mea Culpa telecharger le film</a>

March 10, 2014 at 11:12 pm
(263) singletonoicb.soup.io says:

According to buy to let insurance our records, there is no reason why
he should be allowed to lend the money on to property investors.

My blog post: landlord (<a href=”http://singletonoicb.soup.io/post/407045788/Landlord-Content-Insurance-Northwood”>singletonoicb.soup.io</a>)

March 25, 2014 at 10:27 pm
(264) Terri says:

I have muscle twitching constantly and I was diagnosed with MS in 2002. I usually get twitching in my legs right before full blown spams. I take Baclofen for the spams, but I find that it does nothing to help with the twitching. Within the last year or so, I’ve started getting twitches in my left upper eyelid. It’s constant and irritating. I’ve no idea what is causing it or how to treat it, but I figure is just a damaged nerve twitching. I can’t imagine it’s due to some other cause because it’s a symptom very similar to some of my other MS symptoms and it usually occurs when I’m experiencing other symptoms of a MS relapse like fatigue or blurry vision.

April 3, 2014 at 2:46 am
(265) massage therapy degree says:

It’s really very complex in this full of activity life
to listen news on TV, thus I only use internet
for that reason, and obtain the hottest news.

Also visit my weblog – <a href=”http://unablesled1430.shutterfly.com/unablesled1430″>massage therapy degree</a>

April 13, 2014 at 10:54 pm
(266) Sherrylynne35 says:

It’s such a comfort to know that I’m not the only one!! HA! Feel like Tigger!! I have not been diagnosed yet…but I’ve had the weirdest symptoms. Seems to be worse this year. Let’s see… 5 years ago had several bouts of double vision. One strange instance of babbling. Numbness in face. Clean MRI. Two years ago, double vision and other just strangeness in my vision. Then continual on and off weird vision problems. Problems with my right lower leg. Now this year, my vision has gotten worse and I’ve had random muscle twitches all over my body many times a day. Just ANNOYING!! Started Valentines Day, I had a twitch between my thumb and index finger for EIGHT hours. That was the longest. It will be in my shoulder one time, then my buttocks, then my torso, then my calf…. rarely the same place twice in one day. Got to be neurological. Not painful, but strong enough that my hubby can see them. And I’m not thinking about it. Will be sitting watching tv and all of a sudden I will get them. I am taking calcium, multivitamin, Vitamin D and lots of water to see if that helps. It’s annoying!!!!

Leave a Comment

Line and paragraph breaks are automatic. Some HTML allowed: <a href="" title="">, <b>, <i>, <strike>
  1. About.com
  2. Health
  3. Multiple Sclerosis

©2014 About.com. All rights reserved.

We comply with the HONcode standard
for trustworthy health
information: verify here.