While I continue to work on my CCSVI articles, I wanted to direct your attention to some real-life examples of what is going on in the field.
The forum on ThisIsMS.com is an amazing virtual meeting place for people with MS who want to discuss what is happening in the treatment and research world in a sophisticated, educated way. Any question that you might have about any MS treatment, approved or experimental, can be answered here.
One very timely and incredibly interesting forum thread is the CCSVI Tracking Project. This is a place where people who have actually received treatment for CCSVI have come to report their results. It is fascinating and allows us to hear from actual patients, rather than try to interpret statistics and separate conjecture from fact.
I will ask that if you go there to read these patient stories that you be respectful of what these people are trying to do, which is collect results in one place. If you have questions or don't understand a term, keep looking at other places in the forum, rather than posting your questions in this thread. Please be respectful of these brave people who are sharing their experiences with us.
That said, here is the link: CCSVI Tracking Project.
I want to say a special thank you to all of the people who have shared their stories on that thread. Anyone else who wants to leave a word for these folks can do so in the comment section of this blog (or in another part of the forum).