From the article: Solu-Medrol Treatment: Side Effects and Tips
Help us all out here. What are some of the things that you do to make your Solu-Medrol "journey" a little easier? Whether it is a science-based approach for feeling better during a course of steroids or a little personal ritual that takes away the stress, it could help someone facing treatment. Share your experiences and get some new ideas to try out from people who have "been there" and "done that." Share Your Tip
Diagnosed with MS at 24
- I was just told that my MRI came back positive for MS:-( and that same day i was sent in to the hospital for solu-medrol Iv infusions for 30 min for 3 days. I just finished my 3rd day yesturday, and today im feeling so tired and i feel like someone is sitting on my chest, i cant breath! And im having a hard time focusing on my baby and even simple house chores. Does anyone know what other steps you take after seeing the neurologist after being diagnosed? Hope it gets better... God bless everyone who posted on this page.
- —Guest Isabelle
solumedrol
- I've done it...been there...and I'll do it again in order to prevent my MS symptoms from getting any worse. TELL your MD...IV solumedrol-1gm/250ml/ saline. Get thru the 5 days...possibly days 6 and 7 will have you feeling crappy but if you can regain your vision or prevent time in a wheelchair...be brave and do it. Don't give up!.. Like every other med, there are side effects...stick it out! And there's always benedryl, ambien, valium, Nexium, tylenol for side effects...get them...take them...7 years of flares and I know I'm in fairly good shape now because I DID do the steroids! And FYI- Oral steroids are a joke. You need the high dose to cross the blood/brain barrier. STICK WITH IT! And try to stay healthy and stress=free to avoid exacerbation's in the first place!
- —kimbetann
Not feeling so good!
- I am on day 5 after a 3 day solum.... Treatment. I feel awful. Wake up ok then as the day goes on I feel sooo sick, shaky, naseus, anxious, hungry/not hungry.... Prickly, pain....... Help!!!! Don't remember last treatment having such lasting side effects.
- —Guest Bev
Overcoming Solumedrol Side Effects
- I finished 5 days of IV solumedrol 5 nights ago. I didn't begin having side effects unti 2 days after treatment stopped. Insomnia, excessive hunger, pain, etc. as many people have reported. I give myself one day to overdo on the junk food to get my fill and then go back to healthier eating (more protein, salads). I had a lot of low back spasms this time so I took a warm bath with Epsom salt (magnesium) and bath oil. I stretched before bed. I woke up the next day feeling exponentially better - the muscle spasms decreased and my skin was more hydrated from the oil. Still having heartburn/indigestion and weak legs. My encouragement for everyone out there is to rest as much as possible and be kind to yourself by saying no to others' demands. Remember this is temporary and the symptoms, too, shall pass. Prayer was also a major sustainer to get through the mood swings and maintain the proper perspective through treatment that I felt the way I did because of the meds.
- —greyyhoundlvr
RE: question
- mybostonterriers: I just finished 5 days of IV Solumedrol and experienced blurry vision/changes 3-4 days after I stopped treatment. I has since returned to normal. I had the same response 2 years ago when I took oral steroids for an MS relaspse.
- —greyyhoundlvr
coping with solumedrol
- After my treatment I sleep for an hour or so. I stay quiet after the treatment. I eat lots of fruit and suck on mints because the taste in my mouth from the medication is horrible. I also started noticing that I started to itch afterwards so a benadryl works well.
- —Guest Ty
Joints...
- I started my treatment today for Optic Neuritis. I experienced the bad taste...butterscotch helps. As well as watered down crystal lite to hydrate. My problem is my knees are aching something awful. I have had this joint pain throughout my life randomly, it's in high gear today, as well as head ache. I have felt a fluctuation in blood pressure just from sitting to moving. I'm more concerned with my knees. I didn't think I was going to be able to make it across the hospital!! Is this something someone has experienced?? my lower back aches as well. That could be my IBS being medicated.. this is really how I will feel for the rest of my life?!
- —Guest Joanne
Its hell
- Second time in 3 yrs doing 2 days of 1000 mg IV. I feel ok for the first 2 days then hell begins. Last time they had to put me back the oral and it took 6 months to get off!!!! Now I decided to give it one more try and wish to hell I would not have 2 weeks later and I'm still going down hill. This stuff gives me more problems then I came in with
- —Guest Justin
Deedie
- After being on them for 3yrs for 2wks out of at least 10 months each yr and now the bone doc is sayin the docs gave me to many and it ate the cartlidge around my knee!!!
- —Guest Deonne Bethley
Bill
- I have just been diagnosed with remitting-relapsing MS. My neurologist specified 5 days of solumedrol and then copaxone. What is the purpose of the solumedrol?
- —Guest Bill
Newly diagnosed
- I have been diagnosed with MS for 7 years and I HATE taking ANY steroids. Both are horrible. I dont tolerate the oral meds very well so I have to get the IV done. I get the metallic taste real bad with the IV steroids. I found that Root Beer helps with the nasty taste. Water makes it worse. Good luck to you all and God bless.
- —Guest Greatmomie
neveragain
- I have used Solu-Medrol aprox. every nine months for the last 4 years and am experienceing major hair loss! I panic every time I step into my shower - cannot stand to see the amount of hair I am actually using every day! Was told by my doctor that this side effevt would dissipate, but am now coming up on my 5th month of continued hair loss. I am ever hopeful that my doctor is correct - that the loss of hair will lessen and eventually stop, yet I am very frightened that I will be so severley effected that I may lose all of my hair. Does anyone have any additional information about this condition? Anyone also (especially female)having the same terrifying experience as I?
- —Guest woodrow77
response to Just a Quick Question
- Check out Graves' ophthalmopathy. That's what I get infusions for. Good luck to you.
- —haydenx7
Taste buds
- I have had these infusions in the past, and am actually on my 5th day on oral steriods after a 3 day of infusion. This time I noticed that not only did I have a bad taste during the infusions but also my taste buds are totally gone. Like I said, this is my 5th day and I can not taste anything. Everything is discusting or tastes like nothing at all. But I continue to eat because I still have an appitite for some reason,, lol,, I hope I can get my taste buds back soon. this is the first time this has happened this bad. I still have 10 more days of "tapering" down off these steriods before the end, and I am hoping that my taste buds will come back before that,, cause this is gross!!
- —Guest Tasha
very afraid
- Im about to lose my job as a surgical technian because of my double vision due to ms.Dx. May 2011. Slo u medrol is my last resort. keep me in your prayers.Very scared. I've been wearing a patch to drive.
- —Guest Denise
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