solumedrol 18 times
- I've had IV/Solumedrol 18 TIMES in 14 months. Now I am feeling really bad and doctors suspect I have something on my supra-renal due to its excessive use. I can say I am scared :-(
- —Guest Bia
How often can Solu-Medrol be taken
- Does anyone know if its possible to have a single Solu-Medrol infusion once a month rather than over a 3-5 day period each month? Also, is anyone having to take an anti-psychotic medication before and after an infusion?
- —Guest Curious
hiccups
- each time I have had to get a steroid pulse when I have started my infusions they have been accompanied by hiccup bouts. I have found that sucking on Ginger candies has been able to relieve them however not much else
- —Guest chuck
hairy people should shave their arm
- great article, great tips, i am lucky i handle solu medrol well, have had MS for 23 years and IV solu medrol (luckily) 7 times but the most pain was removal of the tape!! shave your arms!
- —essfox
2nd tx
- I just wanted to thank everyone that has posted their experiences with solu-med tx, I was dx with ms in july 09 and had my first relapse in late aug having to use solu..i literally felt like i was going to pop from water retention, was very emotional and couldnt sleep, as for the taste i chewed speriment orbit, worked like a charm. I felt so horrible for the first week after my tx then gradually started feeling awsome. I am 24 with a four year old son and in my final semester of nursing trying to obtain my BSN so stress is unavoidable for me right now..i just finished my 2nd solu tx but this time I have been very angry almost bipolar feeling and am freaked out by it i have no patience for anything and all of my joints feel like they are going to explode also my heart wont stop pounding and my bp is really high for me and im all shakey and nauseas. I am so glad i found this site it really helps me feel not so crazy when i see others experiencing a lot of the same stuff..hang in there!!
- —Guest ashleigh
thank you!
- I just had my first solu-medrol tx and did well during the 3 days of infusion, got home that night and bottomed out. Extreme nausea, insomnia, and bone chrunching fatigue. I didn't realize the side effects would be so severe and was totally unprepared. Day 4 after infusion I finally feel a smidge better. I am so thankful to have found the hints/tips here so I can be better prepared next time! Thank you all so much. God bless!
- —Guest yellowstonerivergirl
Fat
- I am currently 22 years old I have been taking solu-medrol since I was 8 and I found that the best way to take water weight off and keep it off is by drinking more water. People sometimes don't realize how much water medication can drain out of your body. Since your body is loosing a vast amount of water it "fixes" this problem by collecting water and keeping it in by storing it in your ankles, feet, face, and if you are on a high enough dose or on the medication long enough, your whole body. Another thing that is important is to work out and eat right. Salty foods are a big no, no...they are just helpingyour body store the excess water. Hope this helps some of you.
- —Guest Dani Awad
Hospitalized after 3 day solu-medrol
- I had a 3 day treatment. 1000 mg per day of solu-medrol. I was feeling good at first, then my endocrine system failed, and my germs in my own intestines attacked me. I went to the hospital emergency room because of intestinal bleeding. They said I had the flu and sent me home. I went back after I started with the severe intestinal bleeding. They saved me with IV fluids. They told me my immune system could not fail after one treatment, so kept trying to diagnose me with other things until I just got stronger and went home. The GI doc finally said the severe colitis was from the weakened immune system response. I took it because of speech problems and sudden weakness in one leg. I would only take it again if I go blind or deaf.
- —1ruffles
Keep the Faith
- I try to keep the faith whenever my symptoms flair up. I have had MS for 15 years now and am a firm believer in the Soli Medrol. If you can get past the bad taste - rootbeer barrels work for me - then the rest is tolerable. Sometimes it doesn't have the results that I'd hope for. I guess as long as I can still work full-time and be a single mom then I do not have too much to complain about. Toughest part is feeling like no-one understands.
- —Guest Coleen Eddings
Side effects made me worse??
- This is my 4th time having IV Solumedrol 5-day treatment - and this is the first time that I "flushed" so much I think it made me feel worse and made my symptoms worse. Although I didn't have a fever, my internal temperature was so hot I could feel the heat radiating off of my back - I got weaker and weaker as the week went by and now 3 weeks later, I'm still with the symptoms I started with. I want to blame this on the quickness of my IV drip - the past 3 treatments I had dripped over an hour, whereas this time it dripped over a 1/2 hour - any thoughts on whether my theory is true?
- —Guest Niki
For Adam Vamvakas
- Hi Adam, in answer to your question: Yes, I had the rash all over my head also. It hurt, and itched, and also got blisters. It lasted a month. I was miserable. Just got dignosed in Aug. this year. So it's all new to me. Lots of problems like I see in others, but the only way to get through it is to let the Lord help you. Talk to HIM and tell HIM all your cares and problems. HE will alway's be there with you. May GOD bless us all.....
- —Guest Randa
question
- I came off SoluMedrol 1000mg IV daily for 5 days with no taper. It was like being pushed over a cliff! I hadn't had the SoluMedrol for 13 years. I feel this was from stress related brought on by a puppy I purchased from a pet store in May and told he was not from a puppy mill, anyway he had been very ill, I almost lost him a couple of times. I had the usual side effects, I was up every AM at 3:30, I did that for 4 days then called my N.P. she gave me Ambien CR the low dose and it worked like a champ! My question is does the SoluMedrol cause blurry vision even after a week, has any-one expierenced this, does it go away? I have old optic neuritis in my left eye, basically blind in that eye.
- —mybostonterriers
FAT!
- yes its true you gain pound after pound until i found that having your doctor giving u a fluid pill kept my weight the same i start the pill three days before and stop about two weeks after treatment with the sol-medrol i didn't gain one more pound after starting that treatment but the flip side of the coin the weight i did gain before getting that boost of the fuild pill took a long time and diet changes and a reg exrcise to take off the pounds i was able to keep my self from gaining souly with the fluid pill but needed that diet change to take anything off so far i have drop 25 pounds
- —Guest Bill
solumedrol two times
- First time with sol, had a bad reaction.5 day infusion,I was told I would feel great and would probably need something for sleep,I was told I would have so much energy,I was already the energizer bunnie,didn't need help with tha.,So the outcome was .I slept for five weeks.I wasn't working ,i seemed a little depressed and i think that was the problem. I have just finished3 days of sol. thay dropped the last two days because of the effects the last time,i work about 9 hr days and feel great this time, i really believe its the state if mind you in,so far so good,we will see what tomorrow brings. Goos luck to all of us whom have to take this drug .MASY GOD BLESS US.I have a request for all of us, my sister in - law was diagnosed withe acute myloid lukemiia 8 yrs ago at the age or 28 if it wasn't for her being so positive she would not be here at all, just remember there is always someone worse off than you ,she has been put thru royal hell and never complains about a thing.
- —Guest candi
When should symptoms go away
- I first had this treatment several years ago and remember the symptomology disipating rather quickly. However, I have completed 5 days of solumedrol and am in more pain that when the burning in my leg started. Any advice on when this should ease up? I get discouraged and scared very easily and discuss this part of my life with nobody. On some level it truly embarasses me why? Please help.
- —Guest Lola
