- I was recently diagnosed with diabetes and was told Solu-Medrol would affect my blood sugar. I must test my blood once a day 2 hours after a meal. What a shock! My blood sugar counts which are in the 130-150 range were in the mid 200 range for 2 days, then they returned to my usual counts. Something else no one mentions you should be aware of.
Started infusions today for TM
- I started a 3 day infusion today for Transverse Myelitis....OMG - The taste is VILE. They told me ginger-ale and ginger snaps to help with the taste. Neither has worked. I tried lollipops, popsicles, gum - nothing. At least a gingersnap tastes like a gingersnap....nothing else I have tried tastes like it is supposed to. I have a pounding headache also and just feel generally lousy. Not sure what day 2 will bring. Day 1 wasn't horrible, but I am not looking forward to Day 2.
- —Guest bostongirl
- I want to respond to Esme. I just got out of the hospital last night. I was there for five days. I came in with migraines and vertigo. I had no earthly idea my whole life would change. I had an abnormal brain mri which led to more and more tests. Diagnosis: MS. I was out on solumedrol IV for three days, every 6 hours. I had the nasty taste in my mouth and the heart pounding. I couldn't sleep at night! With the side affects and the hospital staff constantly doing things to me at night, it was hell. I came here looking for people's experiences coming off the meds. I've been home for less than 24 hours...i didn't have to taper off the drug or anything but I feel like I'm going crazy! I've had the worst headaches and I'm burning up! My main issue for looking up this info was because I feel like someone beat the shit out of me! I'm so sore. From the waist up... My entire back, shoulders, arms, neck, chest, abdomen, scalp, even my face! This is the craziest thing that had ever happened to me
- —Guest Brittany
- I'm so glad I found this list of tips! I am awake at 1am because I'm so acidy feeling, I feel like I drank hot sauce. The nasty taste during infusions... I eat a mint during it and that seems to help. Comfort food is a big deal, and I've been off sugary drinks because of the blood sugar spikes. Been dx since November, 2006. This latest round of SM is for optic neuritis again, but it always puts me back on track.
- —Guest kellywentcrazy
My new way of fight solu medrol symptoms
- I am on day two of third round of 5 day treatment 1000 mg/250 NS over 90 minutes. I have found that the occasional use of a trusted chiropractor helps to easy a lot of my MS symptoms since I am allergic to any form of pain medicine stronger than Tylenol. Also allergic to copaxone and rebif injections. When I see my chiropractor the first couple of day of the relapse along with the solu medrol infusion, I feel less side effects of MS and infusions. Also take a low dose prescribed Ativan an hour before the infusion and my blood pressure was reduced from 167/89 to 139/77. Coincidence? Gonna try it again tomorrow to see what happens. Good luck every one and God bless you.
- —Guest Guest Mary
- I was diagnosed with MS about 6 yrs ago. I was 21 yrs old. I was also diagnosed with Optic Neuritis 7 years ago. I lost vision in my left eye. I have recently been having more flare ups and I have to do a IV of solumedrol for 3days. But two years ago I had went to see my doctor, and she done a test on me called NMO "neuromyelitis Optica" it came back positive. I had to go to the mayo clinic in Florida. It's so similar to MS none of the neuros know about this disease. So I always feel if your diagnosed with MS or have optic neuritis please speak with your neuro and get tested for NMO. It's a simple blood test that has to be sent to the mayo clinic. I was on shots for MS for years and now I am on my right meds. NMO is so much like MS it's actually more severe than MS. Thanks for listening to my story!
- —Guest Tara
- hi Denise, regarding the double vision, my mom had the same problem. She has since passed, but i wanted to tell you that sometimes she would wear glasses and other times she would not. I would recommend seeing a good eye doc during a flare. You can take the glasses on and off as needed. Mom did that for years. Also any exercise of any kind helps MS. So those pinhole glasses are worth a try! to everyonr else, Mom would have said "never give up. You can never stop trying!" she had MS for 27 years and she did not stop exercising until she got pneumonia and landed in a wheelchair in 2002. So she did it for 20 yrs. She worked all her weak areas everyday and did the iv cortisones as well. They worked for a while. She also used baclofen primarily. hope this helps. Kirsten
- —Guest kirsten
- I have always had difficulties with headaches during & following the SoluMedrol IV treatments. I try to take something beforehand & alert the nurses (they will slow the administration of the iv for this also). Just another frustrating side effect.
- —Guest Lisa
- I have used oxygen to treat headaches due to solumedrol, I think the majority of people on this rx experience body aches and joint pains i know i do i am on
- —Guest Nick7059
- I was dx with MS in 1999 . Have done the drip many times just had a three day treatment over the labor day weekend i have found that chewing sugar free gum helps the best. I hate the drip stuck seven times this last visitcostings
- —Guest Steve
- 9yrs 7months since dx. and still scared of steroids,,,, but they are the reason why I've recovered my vision, recovered my legs from numbness, and currently recovering my body from extreme fatigue, I hate the side effects but I'm still walking and taking care of my 4 kids and hubby.....keep strong, it's mind over matter, don't give into this MonSter, it can always be worse....
- —Guest motherof4
Remedy for metallic taste
- I find Worther's Original are great to remove the metallic taste during and after treatment.
- —Guest Meg
It wasn't so bad
- Just discharged from a three day admin for IV solumedrol infusion. (1000mg in 500 ml dextrose) And there were three terrible things. Terrible metallic taste while recieveng the meds. Lemon drops helped a lot. Hot flashes in the afternoons after treatment. (could also be the UTI they are attacking with bactrim) losing the hair on my arm by the roots. It really wasnt bad. Boring three days but I can see out of my left eye now and I can walk unassisted. Couldnt do that friday. Im not too puffy either but if you really push the lemon water it'll cut that bloating a bit. All in all the discomfort was worth the benefits of returned health. Not scary. just needed.
- —Guest Alexis
- Hi Kristin,I smoked from about 12 until 26, I gave up just befroe my first child was born. I am now 45 and was diagnosed with MS 5 years ago. I have recently tried a bit of smoking, mainly for nostalgic reasons. My walking has deteriorated though and I am thinking maybe it is the handful of fags I have smoked. I am though interested in trying nicotine gum or patches.Malcolm
- —Guest OGWSEPteEIrWfI
- Psychologically, I feel better after readnig your latest People; family members, close friends & complete strangers will give me the oh, she's really gone & lost it now' look. It seems like that there are hours/days/weeks/months when I am in constant negotiations with MS Susan . At the beginning of this ms adventure', I thought I would always win at these mediation sessions. How quickly I learned that MS Susan can be relentlessly opinionated and unwilling to consider other possible opportunities or solutions.I suspect that non-MSers or people without a chronic disease can't imagine that the disease seems to take on a personality of its own. From my perspective, its like having a perpetually bratty, spoiled, 2 year old whiner always lurking behind you. Much to my own dismay, I can't abandon MS Susan the whiner , because I need her' as much as she' needs me.
- —Guest oJBAnbOpgoKuBMt