Is it safe to have infusions many times?
- I have had three solumedrol infusions (1 per month for past 3 months). After each one I am able to walk without triping and have much more stamina, vision much better, etc. However, my neurologist feels that the risks from having any more than 3 sucessive infusions is too great (liver, bone damage, etc.). I am off of the infusions right now for several months. I am amazed at the people who have taken it for years have not seen any damage to liver, bones??
- —gilless10
side effects?
- Would like to know if anyone gets major tingling in their legs a few days after treatment. Being treated for TM at T-4. Didn't have that before treatment Thanks
- —Guest Paula
insomnia hiccups
- taking monthly solu-medrol infusion for 8 years.............sleep great with Tylenol PM. Hiccups intermittently for 24 hours. Face flushing (sunburn) for several days
- —jbgraybill
never again
- dx 3 wks ago. 1st solumedrol treatment 1gm over 2 hrs. x 5 days. feeling bad on 4th day and continued to get worse. tried to taper on 6th day but unable to keep food down . really bad headaches unable to sleep then terrible stomache pains and feeling like i couldnt breathe. went to urgent care was told predisone would make my stomache hurt more.given mylanta and rx for antacid. then the diarrhea started and the weakness became even worse. have not been able to return to work and dont know when i will. it has been 4 days since my last treatment and am barlely functioning. I WISH THE DR WOULD HAVE WARNED ME. i probably will not take any more treatment till i start to get worse. my symptoms were not that bad . treatment really is worse than the problem.
- —Guest sherry
cathy solu=medrol attack
- I have had ms for 13 years and have solumedrol probably around ten times. usually by the second day I am beat red and stay that way for about a week after treatments. I do not taper off because I cannot stand that many more days of steroids this does however make me feel like someone beat me with a bat. I always ask for pain medicine for the headache it gives me and sleeping pills for the insomnia.i like to eat salty pretzels during treatments for the bad taste ( i know the salt is not good for me but oh-well it works) last is that I usually dongt know if the medicine has worked for a few a weeks. I never have instant results. the last two times I have gotten thrash of the mouth which is very annoying, hope this helps
- —Guest cathy
GOOD RESPONSE
- MITHYLE PREDNISOLONE SOLU MEDRIL AFTER INFUSION HEADACHE , CONFUSION FOR 3 WEAKS THEN RELIFE. WEAIGHT GAIN.
- —Guest DILIP KUMAR MODI
salty taste
- I have been receiving IV Solumedrol once a month for about 3 years for my MS. About 5 months ago, I developed a lingering salty taste on my tongue that has not diminished or gone away. Nothing works, and I am wondering if it is the Solumedrol. I am on several other medications also, but the nurse who administers the IV seems to feel it could be the Solumedrol. Any clue would be much appreciated. Thank you
- —Guest Bonnie
Gratefully Easy Solumedrol
- 5 X 1g. Solumedrol infus. No side effects to speak of. Easy each day. Read, talked. Asked for 1.5 hours each time after first day [nurse recommended] 2 hour session went easily. Hydrated well so veins easy 2 find. Only kept IV in once – tender for next day’s tx. so replaced next times. Dentyne fixed weird taste during infusion. Taste barely lingered. Appetite fine; sleep fine other than first night headache. Little achy legs first eve. Ate almost no salt/sugar first days. No bloating/weight/emotional issues. No taper. Doc said should’nt B a prob. Less p.m. urinating for next 4 nights; no night/day “jerking” spasticity, as always the case otherwise; BUT looser bladder next 4 days. I should see some results by now if there are to be any, no? Maybe slight improve of spasticity “relapse.” MayB back to pre-relapse walking, mayB not. 1 time a day I think yes, then later, no. BIG out of pocket expense, sadly maybe very minimal impact. Thanks so much for TIPS!
- —Guest Peradam
Solu-Medrol just like MS Unpredictable
- I have had this four times (3 days each) over the last 3 years. And, it has had different effects each time. The first 2 times did nothing for my symptoms and made me feel worse long-term. The next time was a dream, cleared symptoms for months. So, hoping the one I'm doing now will be the same. The side-effects changed each time too, but the metal taste & heartburn was always there. Taking Zantac an hour before wards off the heartburn for me. Saltines helpt the taste. But, for anyone new to it, hang in there. It may be a godsend or a dud, but you never know. I am glad I gave it another chance. And it effects everyone differently. For me it made my periods better, probably reducing inflammation from fibroids I have. Doesn't it figure that the cure is a bad as the curse!
- —Guest Guest Jan
What is this crying all about?
- I thought I would feel like Mark McGuire & be able to hit a homerun out of Bush Stadium.My husband asked me how I was planning to run the bases since I can barely walk."That's why I have to hit it out of the park,no inside homeruns. However, the truth is I just keep crying. I thought it was because I was dealing with the emotions of losing my eyesight.Because of other's comments,I realize it is the medicine.The third day of treatment, my vision worsened, my body ached all over, I dropped everything I picked up.The scariest thing was when I needed to cough, but the muscles were not working & my lungs could not take in any air. My husband was beating on my back to try to open up my lungs. A friend brought me some warm water knowing that it would expand my muscles.It worked.Now that I know the weepiness is medicine-induced,I can be positive knowing it will pass.But most of all, the Holy Spirit has been with me every step of the journey. I keep thinking "Nothing is too hard for God."
- —Guest Deborah
Solu-Medrol Tips
- I have had MS for 21+ years. I have had 4 major exacerbations and about 100+ minor ones. I was told that I would never walk again. Now, with the exception of when I am having flare-ups, it is indiscernible to others that I have MS. Right now, I am on my 3rd day of Solu-Medrol. Being a nurse, it is easy for me to administer my own. It is difficult for me to take it easy, but I am forcing myself to do that for a few days. I also live in denial and should have gone on Solu-Medrol several days ago! Within 24 hours, my vision has greatly improved and the almost intolerable pain has greatly abated. What a relief! I also use mints, etc. during the infusions and take Ranitidine about an hour previous to them. I find even so, my stomach gets quite upset. I go on the taper-down-dose and that prolongs the side effects, but it is a necessary inconvenience for me. If I don't, I go a little wacko!
- —DeeAnnaK
IV Solumedrol side effects
- Wear a t-shirt that says "I'm STEROIDAL...What's YOUR excuse?". Seriously - EXERCISING helps me...ALOT. I have to expend the bonus energy somehow, and exercising helps by taking my MIND off the creepy crawly feeling. It also gives me an outlet that is better than SCREAMING at everyone and crying uncontrollably! If running or walking isn't an option - try using an exercise band or light weights (cans of soup even work!) and do upper body workouts. And my best TIP: Patience - the side effects WILL subside in a few days, I'm left feeling GREAT! Then three months later I get to do it all over again!
- —Guest AmyDinOhio
1ST MEDROL
- I was diagnosed 7yrs ago.I walked away from any medication.Now my condition had got so down that i was just barely functioning.Here in Thailand the specialist got me onto Solu-medrol.,unbeleivable,a new life.Now i have ambition,a future,energy,i hope it lasts,its great.No real side effects
- —Guest WALTER MERRITT
Yuck!
- I have found that jolly ranchers help with the taste a lot. I try to stay away from other sweets since I probably eat 3 - 4 a session - but it helps.
- —ReaofSunshine
Solumedrol side effect
- A week after done the 3000 mg cure, I developed RASH all over my head. I wonder if this is a known side effect
- —Guest Adam Vamvakas
