cathy solu=medrol attack
- I have had ms for 13 years and have solumedrol probably around ten times. usually by the second day I am beat red and stay that way for about a week after treatments. I do not taper off because I cannot stand that many more days of steroids this does however make me feel like someone beat me with a bat. I always ask for pain medicine for the headache it gives me and sleeping pills for the insomnia.i like to eat salty pretzels during treatments for the bad taste ( i know the salt is not good for me but oh-well it works) last is that I usually dongt know if the medicine has worked for a few a weeks. I never have instant results. the last two times I have gotten thrash of the mouth which is very annoying, hope this helps
- —Guest cathy
GOOD RESPONSE
- MITHYLE PREDNISOLONE SOLU MEDRIL AFTER INFUSION HEADACHE , CONFUSION FOR 3 WEAKS THEN RELIFE. WEAIGHT GAIN.
- —Guest DILIP KUMAR MODI
salty taste
- I have been receiving IV Solumedrol once a month for about 3 years for my MS. About 5 months ago, I developed a lingering salty taste on my tongue that has not diminished or gone away. Nothing works, and I am wondering if it is the Solumedrol. I am on several other medications also, but the nurse who administers the IV seems to feel it could be the Solumedrol. Any clue would be much appreciated. Thank you
- —Guest Bonnie
Gratefully Easy Solumedrol
- 5 X 1g. Solumedrol infus. No side effects to speak of. Easy each day. Read, talked. Asked for 1.5 hours each time after first day [nurse recommended] 2 hour session went easily. Hydrated well so veins easy 2 find. Only kept IV in once – tender for next day’s tx. so replaced next times. Dentyne fixed weird taste during infusion. Taste barely lingered. Appetite fine; sleep fine other than first night headache. Little achy legs first eve. Ate almost no salt/sugar first days. No bloating/weight/emotional issues. No taper. Doc said should’nt B a prob. Less p.m. urinating for next 4 nights; no night/day “jerking” spasticity, as always the case otherwise; BUT looser bladder next 4 days. I should see some results by now if there are to be any, no? Maybe slight improve of spasticity “relapse.” MayB back to pre-relapse walking, mayB not. 1 time a day I think yes, then later, no. BIG out of pocket expense, sadly maybe very minimal impact. Thanks so much for TIPS!
- —Guest Peradam
Solu-Medrol just like MS Unpredictable
- I have had this four times (3 days each) over the last 3 years. And, it has had different effects each time. The first 2 times did nothing for my symptoms and made me feel worse long-term. The next time was a dream, cleared symptoms for months. So, hoping the one I'm doing now will be the same. The side-effects changed each time too, but the metal taste & heartburn was always there. Taking Zantac an hour before wards off the heartburn for me. Saltines helpt the taste. But, for anyone new to it, hang in there. It may be a godsend or a dud, but you never know. I am glad I gave it another chance. And it effects everyone differently. For me it made my periods better, probably reducing inflammation from fibroids I have. Doesn't it figure that the cure is a bad as the curse!
- —Guest Guest Jan
What is this crying all about?
- I thought I would feel like Mark McGuire & be able to hit a homerun out of Bush Stadium.My husband asked me how I was planning to run the bases since I can barely walk."That's why I have to hit it out of the park,no inside homeruns. However, the truth is I just keep crying. I thought it was because I was dealing with the emotions of losing my eyesight.Because of other's comments,I realize it is the medicine.The third day of treatment, my vision worsened, my body ached all over, I dropped everything I picked up.The scariest thing was when I needed to cough, but the muscles were not working & my lungs could not take in any air. My husband was beating on my back to try to open up my lungs. A friend brought me some warm water knowing that it would expand my muscles.It worked.Now that I know the weepiness is medicine-induced,I can be positive knowing it will pass.But most of all, the Holy Spirit has been with me every step of the journey. I keep thinking "Nothing is too hard for God."
- —Guest Deborah
Solu-Medrol Tips
- I have had MS for 21+ years. I have had 4 major exacerbations and about 100+ minor ones. I was told that I would never walk again. Now, with the exception of when I am having flare-ups, it is indiscernible to others that I have MS. Right now, I am on my 3rd day of Solu-Medrol. Being a nurse, it is easy for me to administer my own. It is difficult for me to take it easy, but I am forcing myself to do that for a few days. I also live in denial and should have gone on Solu-Medrol several days ago! Within 24 hours, my vision has greatly improved and the almost intolerable pain has greatly abated. What a relief! I also use mints, etc. during the infusions and take Ranitidine about an hour previous to them. I find even so, my stomach gets quite upset. I go on the taper-down-dose and that prolongs the side effects, but it is a necessary inconvenience for me. If I don't, I go a little wacko!
- —DeeAnnaK
IV Solumedrol side effects
- Wear a t-shirt that says "I'm STEROIDAL...What's YOUR excuse?". Seriously - EXERCISING helps me...ALOT. I have to expend the bonus energy somehow, and exercising helps by taking my MIND off the creepy crawly feeling. It also gives me an outlet that is better than SCREAMING at everyone and crying uncontrollably! If running or walking isn't an option - try using an exercise band or light weights (cans of soup even work!) and do upper body workouts. And my best TIP: Patience - the side effects WILL subside in a few days, I'm left feeling GREAT! Then three months later I get to do it all over again!
- —Guest AmyDinOhio
1ST MEDROL
- I was diagnosed 7yrs ago.I walked away from any medication.Now my condition had got so down that i was just barely functioning.Here in Thailand the specialist got me onto Solu-medrol.,unbeleivable,a new life.Now i have ambition,a future,energy,i hope it lasts,its great.No real side effects
- —Guest WALTER MERRITT
Yuck!
- I have found that jolly ranchers help with the taste a lot. I try to stay away from other sweets since I probably eat 3 - 4 a session - but it helps.
- —ReaofSunshine
Solumedrol side effect
- A week after done the 3000 mg cure, I developed RASH all over my head. I wonder if this is a known side effect
- —Guest Adam Vamvakas
Solumedrol
- I had my infusions 2 weeks ago. My doc put me on a prednisone taper, for the first time, and I have been sick ever since. I had extreme heartburn, a headache that lasted for 2 weeks, which I had to go to the hospital for and my good right leg went numb and felt like a huge brick, now I am having problems walking. I have had solumedrol many times before, but this one was bad. Can anyone help? I am afraid of them now!
- —Guest Leah Dawn
Solu Medrol tips
- I am very grateful for this website and all the great advice I read before my treatment. I am getting a thre days a month, three months of 1000 mg of SoluMedrol IV combined with oral Plaquenil for a Localized, Linera Scleroderma- en coupe for sabre. Thanks to the advice here, I was ready for the metallic taste with my mints. A huge advice: Solu Medrol elevates your sugar level insanely!!! Avoid any sugar, carbs, and caffeine for the week of infusions!!! I know it is a very strict diet, but it can save you serious problems in the future! Also, I had bad cramping in my hands during the infusions and the doctors advised that it is due to the imbalance in electrolytes, so I got extra calcium and potassium. So, stick to a strict diet, be ready to be completely weak and useless for three days- I am jealous of those people who are hyper and over energetic and stay positive! Good luck to all!!!
- —Guest Alex H.
LOOOOK OUT It's SOLUMEDROL TIME AGAIN!
- Just like the seasons...solumedrol aways comes rolling around again. the taste, sucks! bout i have found that rinsing my mouth with scope mint mouthwast several times a day makes it much better. i get the headache also, and i put the heating pad on my head! sure i look weird but doesn't everyone when they use solumedrol? as for as the emotional roller coaster i am on, i "THINK PAST the situation (this works on many problems in life too).. look PAST IT, what will the future be soon, not now, but SOON...it is going to get better! I use this quiet time for resting to talk with god. tell him my cares, and burdens, and then i thank HIM for seeing be through! HE will do the same for you!
- —Guest rxgal
Great article! My own notes:
- Because I experience night-sweat and general difficulty sleeping when I am on Solu-Medrol (anti-inflammatory steroids, not the kind atheletes use) I ask my doctor for a low-dose of something that helps me sleep. Getting enough sleep really helps and the Solu-Medrol is great for sort of snapping my body out of a MS attack/flare (whatever you wish to call this entertaining thing we live with and manage. If I drink lots of liquid (water spiked with Crystal Light anyone?) my face puffiness goes away quickly, my face doesn't break out and my back doesn't hurt. Solu-Medrol make me have to urinate a lot, so I think the kidneys want lots of water to work with. I think it is important to give them what they need by staying hydrated.
- —Guest nataliemsadvocate
