From the article: Ask Your Friends About Your Multiple Sclerosis Symptoms
There are times when I appreciate people noticing and responding to my multiple sclerosis symptoms. I am happy when my husband, aware of my cognitive problems rescues me from a confusing situation. However, then there are the remarks from people who (usually) are unaware that I have MS. I know when I stumble and when my hands tremble – it is not helpful to me when people jokingly ask if I have had too much to drink or mention that I am not exactly graceful. What about you? Have people noticed symptoms and helped you, or do you mostly find yourself in situations where you are shocked at the lack of sensitivity?
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What is Foot Drop?
- Foot drop, or drop foot as it may also be called, refers to a weakening of the muscles that allow one to flex the ankle and toes, causing the individual to drag the front of the foot while walking and to compensate for this scuffle by bending the knee to lift the foot higher than usual. A quick way to test for foot drop is to try to walk on the heels. If this proves difficult, drop foot may be present. While foot drop is a neuromuscular disorder that affects the nerves and muscles, it is not actually a disease in itself but rather a symptom of some other medical problem, possibly by a condition in the low back. The possibility that foot drop may be caused by a condition in the low back may be overlooked, but it is important to evaluate in order to pursue appropriate foot drop treatment. Foot drop system XFT-2001 for the treatment.
- —Guest A
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- edit: I saw some with MS show the lessening of the outer third of eowbryes or even worse, meaning low FT3 and/or low IGF-1 which seem the sole reasons for it according to my hormonal wizz doctor. Is it both in MS or just low FT3?
- —Guest qsUvsOWt
Lazy, Crazy and on drugs
- Well my family with a mother who is a nurse, have decided I am lazy, don't want to work (I ran and owned a daycare), am on drugs, and have a mental disorder. Even though I was diagnosed with MS 10 years ago. My symptoms have gotten a lot worse the past 3 years. I can't go out in the heat for long without getting dizzy. Light hurts my eyes. Stuttering when I speak. Searching for words and unable to respond quickly. Memory loss. I have numbness in my legs and arms and need a cane to walk more than a few steps. MRI shows huge lesions in my brain. But somehow my mother the nurse has convinced people I am lying and lazy. It is heartbreaking to have to prove myself to strangers daily but unbearable to have to deal with this blood sucking disease without family support. I hate what MS has taken from me and that it continues to take more every year. I will be 40 this year and I shudder to think what the next 10 years will bring.
- —Guest Deranged
JUST SMILE
- People noticed my limp(right foot drag).That's about it. I have primary progresive MS, dignosed in 2007, synmptons since 2003. I have numbness tingling w/left hand, footdrag, numbness w/right side, forgetful, floaters in right eye. But all in all I'm blessed, could be worse. people can be so rude,insensitive, and sometimes mean. Just stay strong, confident,hold your headup, and smile:)
- —dawniebaby1
very sad lately
- When i was finally diagnosed of aug this year I was in shock,angery,mad,After my period of mourning.I snapped out of it somewhat.Now some poeople know i had it and i feel like they look at me totally different now. And for my so called friends they do to.Sometimes I feel very alone it knd of sucks.
- —Guest sue
my symptoms
- hi... first not sure if i have ms or not but gf point out that some of my symptoms were similar to hers since she does have ms ... so maybe someone can give me an idea ... here are some of mine: episodes of imaired bilateral body movement meaning a type of body trenmor where i can't stand opr wanlk w/o assistance ... never know when it's coming on... if sitting i can get up and fall directly to the ground and unable to get up because of tremors ... but if sitting or lying in bed no tremors ... probs/w/bal/ running into things i.e. doors, open cupboards doors, fallen down stairs, probs holding on to items, sudden dev of migraines, severe legs & feet pain that wake me up at night , muscular-skelartal pain, urinary probs, sudden decrease in eye-sight ... pain around upper body under breast bone...sever dizziness ... severe fatigue where legs feel so heavy that slmost can' pick up ... and sleep for hrs on end on those days when hit suddenly ... any ideas??? thank you for suggestions... s
- —StevesScarlett
Symptoms Without Official Diagnosis
- My family has watched me deteriorate slowly but been reluctant to voice concerns over my behavior because I live far away from them, however due to being new in my home state people here don't have the frame of reference here to realize that I have in fact changed significantly... so I have been in a double bind until recently when I pushed my GP for an MRI. "significant demyelination throughout the white matter". -Combined with terrible, constant headaches, dizziness, weakness, lethargy and tingling and numbness in my lower legs. All of which came on terrifically after my daughter's birth two years ago. The Dr has yet to provide an "official" diagnosis of MS, but at least there's some actual evidence. My husband used to tell me I had psychological issues ranging from anxiety to schizophrenia(!). Talk about unsupportive. Jerk.
- —Guest hnel2
about living with ms
- my partner of 5 years as ms it is very difficult to fully understand how she feels as the symptoms range from dizziness,headaces numbness,running to the toilet thinking she needs a wee an not bein able to go she also sways alot as she looses balance i now its not a joke but we make it our little joke by me saying [ do u whan a dance a me] i no it must be hard for people with ms as i see the diffrent effects it has on my partner but we must keep strong an supporting the people that matter to us most as i love my partner the same way today like i did when we first met with or without ms please feel free to email if there is people in my situation who would like to talk my email is oscarheidi@gmail.com thanks for reading this keep strong keep fighting keep smiling dan
- —Guest daniel griffiths
How long?
- I have not yet been for my MRI and VEP, but 2 Doctors, 2 Physio's and my Neuro have indicated MS... Tingling, numbness, vertigo, optical rings, dizziness and those annoying sensations of needing to pee and yes, constipation and numbness in my legs, oh and the never ending headaches and fatigue... Funny though I remember a lot of these symptoms, albeit much less, but my ex said I was lazy, and a hypochondriac! I believed him! I just didn't know I had MS... MRI 20/04/11... I have cried as he stole my 20's and 30's, I left him to have children and meet a much nicer man! I now feel I have so little to offer a man... I will update with the results... wish me luck everyone!
- —Guest Fiona-Julia
air travel and ms relapes
- i had extreme pain and deafness this lsated for mounths leading to my diagnosis of tegnatol Nuralgia then mmri scan showing legons this started my symtoms off.
- —Guest colette
I was in denial at first but now strong
- hello this is the diary of my life i just was recently diagnosed with MS and i was first in denial like no i don't have this but i finally came to realization and some what accepted what i do have i am experience bad headaches and sometimes a burning sensation burning in my head and its scary it feels like your heads burning off and shooting pains throughout my body or i also get soreness through my body does anyone ever get that if you do please reply to the message i am at the early stages of MS..... i just need support really and no one around me i feel they don't understand me or they also think its all in my head or i am just over reacting sometimes and i am scared to start treatment i will be in two weeks i am just scared it will me deathly sick and i will die but i think i am not the only that experiences these things..... if you need someone to talk to you can always feel free to talk to me my email is glendagrl2@aol.com thanks for reading my article
- —glendagrl2
It's not all in my head
- FINALLY, my husband believes me when I tell him how I'm feeling. I made him go to the neurologist with me after he kept calling me a hypochondriac. Yes, i" made" myself lose 50 pounds with no explanation. I "pretended" to fall down several times without any memory of some of them. "I could go on forever with these so called pretend symptoms- especially the "Doctored" CT's and MRI's I've had. Several people have pointed out my symptoms and said it is probably due to a mental illness. The neuro said I now have optical neuritis. I'm getting tired of "making up" all of these symptoms. At least my husband believes me now.
- —sunflowergmahoney
living with MS
- you name it I have had it. first diagnosed 6yrs ago. No feeling in my right hand and arm, constant tingling in my left arm and hand, both legs. Going to the bathroom (sometimes not making it), constipation, confusion, memory loss, forgeting what I was talking about. My husband not understanding my train of thought, fatigue, sexual problems and problems walking. I had to give up driving a few years ago, and just recently had to step down from a supervisory position ( by my choice). I have many issues to deal will but I am a fighter, still maintain a full-time position, try and do as many activities as I can. Still have an active sex life. I take one day at a time, never giving up. That is not an option for me. I do sometimes push myself and pay in the end but my life is so worth living and I have a wonderful soul mate (husband) that is so supportive and loving. Live with MS, do not let MS run your life.
- —Guest needles
fatigue and tremors
- I have a hard time staying up all day without a nap...I mean a 3 or 4 hr nap. I feel as if I can just sleep and sleep. People just do not understand that I do not have the energy they have....they say I am lazy, well I am not. I just can't keep up the way I use to. Tremors bother me alot so I have to take xanax daily for that. I know wat Michael Fox feels like when he is trembling all over. It is not fun and having to take a pill for everything is not fun either. I have been living with M.S. 10 years and it just seems there is no end to the fatigue and tremors. and oh yeah the bladder spasms...I could really go without that. I have been in a study for the past 2 and half years taking the new drug Gilenya. It has finally been approved! I have had no relapses since.
- —sonyajeantomlin
longtime symptoms becoming clear
- I've had tremors since my teens that can suddenly develop into violent shaking when 'concentrating' on simple things like painting or rolling a cigarette. At least one person a month for the last 18 years has asked me what was wrong. I used to say 'nothing' but now say 'I'll probably end up with some horrible sickness' to brush it off as a joke. It has become less of a joke over the last few months. The tremors now continue even while at 'rest' and the only way to stop them is to stay busy doing something automatic like typing or playing video games. MS has been on my mind for a while, but I just now looked it up. I have tremors, am becoming increasingly sensitive to heat, have abdominal pain seemingly not caused by anything, constant headaches, stabbing pains behind the eyes and in the head during times of high emotion, restless legs, random vertigo, I stutter at times, lose my place while speaking, and have trouble remembering things without a picture. All without insurance. Great.
- —Guest j
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