From the article: Multiple Sclerosis Symptoms Overview
We all have a story about the multiple sclerosis (MS) symptoms that resulted in our diagnosis. Share yours here and learn about the experiences of others. Share with Others
Quick Diagnosis
- Im 15 and two weeks ago I lost sight in my right eye.I went to the doctor which sent me to the hospital to see the eye doctor who thought it was optic neuritis then when they did a MRI scan they found white lesions or whatever theyre called and diagnosed me with MS they put me on steriods for three days and my eyesight went back to normal but now I still get really dizzy and my arm has been stiff and weird it goes away for a short while but keeps coming back.My face and neck went all numb the other day for a night but that was it.Its weird how I got diagnosed so quickly when I read that it has to happen two times and one month apart to get diagnosed so im a bit confused there.Its been a big shock I've never experienced anything like this so its really crazy.
- —Guest Liana
Is this symptom normal?
- I am 22 years old and was diagnosed with MS about 9 months ago. The reason i was diagnosed was i was experiencing wierd symptoms. My legs were numb, my balance was ZERO, and i was extremely fatigued/weak all the time. Since that episode, the numbness and similar symptoms have subsided, but now there is something new that greatly concerns me... i cannot find a body-equilibrium temperature. I am either sweating from the heat, or am shivering from the cold. no matter what clothes i put on I am never completely comfortable. I dont have a fever, so that is not it... Has this happened to anyone else?
- —Guest Nick
Claudia
- Do any of you drink diet soda or eat things with aspartame? A lot of my symptoms went away after I quit drinking & eating anything with this in it...you would be amazed at what you find out if you research aspartame symptoms.
- —Guest Claudia
numbness
- I dont have MS, but my twin sister does. She was diagnosed 2 years ago. For a couple months she was complaining about her legs going numb, as well as her arms, hands, and feet. My mom didnt think anything of it, and kept pushing off a doctors appointment. Finially, my sis told her she NEEDED to go and see a neuro. The neuro sent her to get an MRI, and a few weeks later we got a phone call saying there were numerous spots found on her brain and spine. She was also getting a feeling like her feet and hands were asleep, tingling and feeling like pins and needles. If you have anything "weird" going on with your body, get it checked out ASAP!!!
- —jes1990
note to Susan
- Susan, dont know where you are geographically...Shepard Spinal in Atlanta specializes in MS. All of your symtoms shout MS. Just be sure your neuro Dr. specializes in MS. Some do not. TAKE CONTROL Keep us posted.
- —Guest Terri
I diagnosed myself!
- Sitting at work the right side of my face and tongue went numb. Having seizures since age 18 I have a neuro Dr. I called him immediately. He sent me to ER to rule out a stroke. For 10 yrs I was told I had 11 lesions on my brain. Neuro called it "benign MS?" I'm all over the internet..saw my neuro next day. He said "I don't know what this is!!" I said it is MS!! He SENT me home and said LET'S keep an eye on it. The biggest regret of my life is that I did not insist on a MRI! This was on Tuesday. The following Saturday I collasped called 911 and was admitted to hospital. Test began. Three days later I was diagnosed with MS. I live with the fact that if an MRI had been done the inflamation would have shown and steroids could have been administered. Steriods may have prevented the following 90 days of hell. If you even suspect MS take control of your medical please!!
- —Guest Guest Terri
susan
- I can identify with the frustration. My symptoms have been going on for a year now. Have had MRI's brainx2, evoked potential( abnormal), nerve conduction study( abnormal), spinal tap was fine. Symptoms: facial numbness 4 separate episodes within a year, shock sensations down spine, vibrating cell phone under foot, numbness in lower extremity, gait problems, pelvic numbness several episodes over last 2 years, neurogenic bladder, arrythmia problem end of last year, blurred vision spells, cramping/spasms lower extremities,very bad heat intolerance. I do know I have a cyst on my spine too. Doctors still with no answers for me. Please help. Any advice/suggestions from anyone?
- —Guest Guest susan
Always knew
- My dad and his first cousin had ms. when I had my first baby at 19 and six months later my hands wouldn't work to fasten her in the stroller..Yup I knew..from there to my legs started going numb with prickly feeling. 3 yrs later when my second baby was 5 months my doctor wanted me to have the tests because my legs would go out from under me..nope not gonna do it..M.S. was considered terminal back then...finally 13 yrs after the first noticable symptom, my arm went out and I couldn't walk...now I guess I'll go take those tests...that was in 1991...
- —Amerel
Vertigo and numbness
- It started for me with a numbness of my left ear and a pain right behind it. Then my whole left arm started going numb and I would vomit after eating. I would just sleep and sleep and about 3 weeks in, I woke up with double vision. The Dr. said it was vertigo and gave me meds and sent me home. a week later it was still bad so i went to a different dr. who after sending me for an MRI and seeing the lesions on my brain, sent me to a hospital an hour away that had a neurological department. It took 2 weeks in the hospital during which i was completely out of it, couldn't talk, my kidney's almost failed, received a test for almost every disease in the world, and 3 spinal taps for them to finally diagnose me with MS. Now i have to go back next week for my final MRI to confirm diagnosis before I begin full treatment.
- —Guest Kerrie
Paraesthias First MS symptom
- In 1996, I had feelings of electric shock going up and down my arm. Then in 2002, the numbness started in my hands. I was diagnosed of MS in 2009.
- —Guest khills
Walking problems
- I wish the neurologist I had seen back in 1999 recognized that my "tightness around the rib cage" was actually a symptom of MS. Instead, I went 5 more years before my walking problem started with a "pause" in my left leg. Then I started falling going up/down steps, then knee pain started, then I couldn't walk up slight inclines. It was 2 years later when I got the diagnosis, and that was when I realized I could no longer lift my left leg off the floor. If that first neurologist had recognized the symptom, I'm sure I'd still be walking normally today.
- —Guest shaydee
which syptom led to your ms diagnosis
- i was driving home from my mothers oct 31st i had a good 25 mi to get home when i was hit by double vision..that alone freaked me out! Iwent to the eye dr and they didn't know what caused it other than they said it was 7 muscular palsy. They said it would go away which it did about 2 months later! Meanwhile i was getting nauseous and dizzy routinely;my husband took me to our family dr.and proceeded to tell him about the double vision and other symptoms.IMMEDIATE RED FLAG! He sent me to a neurologist; unfortunately i went thru mri's and spinal tap...nothing. Around 4 years later and more and more things were going haywire;I eventually started having numbness in my right hand and tremors by now I had moved ,lost my job and needed help. Finally Igot another dr and told him everything...again he was going to send me to the same neurologist..nope...so he found me another one..again with all the tests plus more...this time it was positive...unfortunately over 5 yrs later the damage is done!
- —karen_gilley
ms or not??
- i am waiting for LP test to come back hopefully next week i really want to know if i have ms?i have episodes of my life were i thought i was going mad from vertigo,falling over numbness in my face arms and legs ,my hearing going buzzing in my head,leg pain ,itching all over my body!!the list is endless the stress of not knowing what it is stressing me out i can get on and get the right meds when i know what ive got i had an mri which shows lesions on my brain ,im convinced that i have ms ,just have to b strong and try and cope with life!!
- —Guest guestLee
dhreeves
- My first symptoms were probably my clumsiness. I had a habit of falling down stairs even at 18. In my 20s I started having paresthesia of both thighs, where they felt a bit numb. The optic neuritis and Lhermittes syndrome, when I bent my head forward I got a feeling of vibration and electric shock in my feet and hands, showed up at 31.
- —Guest dhreeves
Which Symptom Led Your MS Diagnosis
- It was a hot summer day and I had been shopping at a supermarket. All of a sudden I couldn't stand up straight and my hands started shaking. Also, my left leg was very weak. I was terrified as to what was happening to me.
- —Guest Bonnie
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