Facial numbness
- Facial numbness led to my diagnosis. First my toungue became numb, then lips, then the entire lower right quadrant of my face.
- —Guest Darcy
not beleiving it
- i have had lots of tests done including mri s lp s and about anything else they can think of everything comes back with nothing except my lp says that i have ms i had a stroke a few years ago which resulted in the lost of side vision in my left eye other wise i feel fine i took avonex for a bout a year and noticed that i started losing muscle mass so i stopped taking it and waited i have been off avonex for about a year now and i feel better but they are now trying get me on copaxone and i dont want to take it im i being stupid? what should i do? i feel great no symtoms help!
- —Guest ben
numbness fatigue
- I began having numbness around 6/30/09 toes, then to waist upto chest then hands, went to chiro, thought maybe it was nutritional, so went to doctor, he said stress and anxiety because i have a history, i knew it was something more, went for an mri, abnormal possibility of ms, grandmother has it, waiting to see a neurologist, looking back i had an episode of slight dizzieness, headache, emotional problems that led to agoraphobia for about 2 months, vague various symptoms, urinary, bowel,fatigue,memory,dont know if it all points to ms or just lifes stress's very scared about what's going to happen next, would love to talk to someone that can relate belarae@hotmail.com
- —Guest Renee
Ms, Chronic Daily Headaches and Diabetes
- I am 36 Yrs old, I was dx. wit MS in 2003! Finally after yrs, of complaining of headaches that never goes away! I was recently dx. with diabetes(insulin dependent) I am scared to death! I havent been able to get my bloodsugars undercontrol since i was dx. 2wks ago! I always have had dizziness and extreme fatigue from having ms. along with the headaches. I am often treated like a drug seeker for my headaches that turn into migraines atleast 2xs a month! Even though I have a bag full of pills that are not helping me! I have a bulging disc in me neck! that may also be the cause of my headaches. I have lost my hear and my vision in one eye at one point! I have been told that there was nothing else they could do for me! Which is surprising! when You consider that there are many drugs and treatment that they havent even tried! mostly non narcotic! I am desperate and tired of being in pain! Oh! did I mention that I also have arthritis! Is there anyone out there with these problem? please help
- —Guest LaTonya
help scaried
- ive been getting ringing in my ears and sour eyes and pains in head, like someone putting a pin in the side of my head. i also get shotting pains in my legs and arms. its comes and goes. ive been told its a mixture of anixty due to my depression and not eating. tho i am dreink compand, which is a vitmin drink you have like milk, so it can be a lack of vitamins and minerals, i just dont know what to think, i have had blood test which came clear, ive had blood pressure tested which came back fine and i have a urine test which was fine, but ive had no other test. is it my heart, head or something less nerous system,blood clot, vains ect. just cant deal with this anymore, am really scaried i just dont know what to do or say to the doctors there is something more wrong than what you think, please please help.
- —Guest emi
Still waiting
- Last December I discovered I had Optic Neurosis. This has lead to various tests, Brain MRI, Evoked Potentials, Blood tests. I had a 3 day course of Solu Medrol, but it hasnt really helped my eye. Tomorrow I am to have another MRI of my brain and spine with gladolium. My Neurologist has said that if these tests prove inconclusive, I will need a lumbar puncture - but I have declined this. I was told on my first brain MRI that I have several non-specific lesions?? Has anyone else had this
- —Guest Rainbirdclan
leg weakness
- I went to dr for weak legs. Looking back I think it started with dizziness.
- —gf2128
Doctors Split on Diagnosis
- 1980 diagnosed w transverse myelitis. Cortisone resolved paralysis on 1 side, pain on the other. 4 years ago odd stretching sensation began bottom of feet. Turned into pain; now like walking on hot coals w toes spasms. Had MRIs and spinal tap. First neuro said MS. I didn't question. While searching for a neuro who was a "better fit" I was surprised to find that some neuros were sure, some tentative about the MS diagnosis, and 1 definitively said "You do NOT have MS, those lesions were from 80. Keep looking." Bisphosphonate drug (Actonel) may be culprit. Pain continues to travel upwards. Now in knees and stomach and new odd sensations in my "saddle area" (tiggling in the private places) and a feeling I'm wearing clothes when I have none on. Completely debilitating pain now. I've tried all neuropathic pain meds w intolerable side effects & no relief. Confused. Desperate for relief. Read about LDN with interest. Julie, does LDN work with pain? SOS
- —laurelnt
Waiting and Praying
- Last year during the holidays I went out with friends. I had several cocktails but knew I had to go to work in the morning so not too much. When I woke up the next morning I felt fine. I went to work and about two hours in I suddenly felt like my left side weighed a million pounds and I was off balance. I thought maybe I drank more than I thought and this was some really weird hang over. So I thought sleep would make it better. I got a good nites sleep that nite thinking all would be well by morning. But the next day still the same. Walking down the halls at work seemed like a chore. I couldnt feel the bottom of my feet and I felt really off balance not dizzy just like I couldn't tell left from right. Over the next few weeks syptoms piled on but I didn't know what it was. I finally went to my doctor and she referred me to a neurologist they did the MRI and some light test thingy.My hand went completely numb while I was at work it was scary.Still waiting for results
- —Guest Just me
Having multiple symptoms & MRI next week
- I have been having a lot of symptoms (weakness/numbness in legs, some loss of hearing and eyesight, pain etc...) for some time but it wasn't until my face/head went numb and I started having severe dizzy spells with "lose" of words when speaking that the Doctor finally "seemed" to believe something was going on. I am having an MRI next week June 2009. The fatigue is getting worse and being a single mom with kids still at home it is getting difficult to function. This might sound strange to a lot of people but please pray for me and I will for you.
- —Guest D.L.
Years of symptoms
- My symptoms began when I was 18, a weakness in my legs and a numb spot on my face. After 30 years of hearing it was all in my head, I was diagnosed when I had a bout of optic neuritus and and trouble walking. I am now over 60 and my symptoms still change with every flareup. I was tested for Lyme disease and a hundred other various ailments before finally getting a positive diagnosis.
- —Guest Lela
please help
- I started being ill ast oct with terrible vertigo then a few months ago started to have tingly, pins and needles in hands and feet. My face at times goes numb and I have the feeling that I am being squeezed in my middle. As well as this I have lots of muscle twinges
- —Guest lisa
Headaches, double vision
- I originally went to my pediatrician in Feb for migraines,but because they were in a strange area (the back of my head) she decided to do an MRI just to be safe. The next thing I know im getting a followup MRI with contrast this time, and they tell me theres definitely something wrong bc I have several lesions. almost the next day I wake up with double vision which led to hospitalization, a spinal tap, and a diagnosis in june of the same year.
- —Guest Molly
still awaiting final diagnosis
- nov 2004 had facial numbness on right side. called dentist, saw him and confirmed that my upper gum had no feeling, off to 1st neuro, found nothing, mri brain neg. 2005 experienced dizziness, world moving around me, lasted for 1-2 mos. new neuro did tests, found nothing. sept 2008 blurred vision in left eye with eye pain and headaches over same, opthamologist saw swelling of the optic nerve, off to a neuro opth and he found nothing along with another mri brain, neg. dec 12 2008 lower back went out and dx herniation with degeneration. lumbar fusion of l4-s1 on 2/23/09. urinary tract inf in hosp with two episodes of syncopy, ct done, carotids done, thinks all related to anema after sx. anemia resolved 423/09, however one week home from hosp i experienced horrible neck pain and severe headaches. called sp surg in ny and ordered mri of cspine, lesion detected 14mm long at c4 level, since, spinal tap with abnorm no oglio bands, 2nd opin ms neuro, more labs, wait is killing me, help me
- —Guest Danielle
worried
- There is a good chance I am being a hypochondriac. But, nonetheless, I've been dealing with minor to moderate breathing problems for months and am on the verge of finally seeing a lung specialist. However the other night my pinkies started feeling asleep and tingling like crazy, vibrating like a gong. Tapping under my tricep intensified this quite a bit. My tongue for a split second had a tingle to it, and my genitalia had a tingling sensation for 10 seconds a few months ago. None of it is stuff I couldn't just deal with but... I am very concerned this could be the very beginning of MS. My aunt has it, otherwise I wouldn't even consider it. Losing my parents insurance soon and not knowing if I will be able to find my own that will cover me with symptoms already detailed to a doctor has me scared out of my mind.
- —Guest chris
