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Readers Respond: Which Symptom Led to Your MS Diagnosis?

Responses: 389

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Updated December 04, 2008

Searching for an answer

A yr ago I go sick couldn walk , pain, stabbing, burnin, tingling, numbness u name it. Would b in the middle of a combo n like black out n begin mumbling. Was admitted to the hospital bc I lost ability to walk talk or move my face. All drs said lymes disease n infectious disease said no. I was fine n 4 months ago it started again but now I have vision problems, I walk into things more, drop things more , feel like someone rubs up against me when no ones around, confusion when speaking , n now I pretty depressed. I'm in numerous antibiotics n a blood thinner bc my left arm always swell n turns ppl. I still have doctors sayin lymes n drs sayin no maybe ms or cancer. I'm 26 yrs old n no one is freakin helpin me. Alot of my symptoms r for ms but lymes also...ded more ms. But what do I do go to the dr n say hey some ppl swear I have lymes n others don...check me for ms! I want to no what is.
—Guest Jessg

joint pain and tingling

Please make sure you are informed on lyme signs and sympyoms, as well as high rate of false negative blood tests. I would also suggest that those who are symptomatic consider seeing an endochronologist. I have history of 2 episodes hyeperthyroid, 1 with the bilateral joint psin, especially my hands, esp at night. Well it,s happening again. This time worse. TSH w/in norm ref. range, but has dropped from 1.13 in june to a .50 begining of june. Also had diarrhes appx 1-2 months ago, neg stool samples. No idea what is going on now. Numbness amd decreased temp in right hand. Am i going crazy?
—Guest B

Waitin

I am waiting on my MRI to look for lesions. My issues started 3 years ago when I was pregnant and my face went numb. They did CT scans and found nothing. I have delt with off and on numbness since them. Toes, heal, face, finger tips, hands, just random. Them this week it felt like there was resistance when I tried to move it. I finally gave in and made an appointment. Dr has moved quick and all blood work was normal as he suspected. My newest weirdness is it felt like my brain stem ratteld an hour or so ago. Only lasted a few seconds and them went away.
—Guest Paige

Optic neuritis

Just got that diagnosis. I'm 42 no other symptoms except frequent urination at night & problems swallowing n I feel like I process info slower. Received I.v. Steroids n am waiting for the results. Has anyone had similar symptoms?
—Guest Guest athena

teresa

I CANNOT THINK 0R CONCENTRATE ANYMORE. THE QUALITY OF MY LIFE HAS DECLINED SINCE MS AND THE DOCTERS ALWAYS SAID IT WAS JUST DEPRESSION WHEN I HAVE SO MANY LESIONS ON MY BRAIN THAT I COULD BE A PIN CUSHION.
—Guest teresa

wrong diagnosis

Hi everyone,6 years i went to 5 different gp,s with these symptoms.very tired,numb fingers,sweats,bad joint pain,headaches.i was told i had migrane,athritis.was giveing many different pills,rubs,but some made me sick,the others wer unhelpful.i went back to my 5th gp,who said i was depressed,come back in 3 weeks,i never took what he prescribed,cos i wasnt depressed,after a week,i went to another doc,who listened,by this time i felt depressed,i only wanted 1 doctor to listen,this one did,and,within,a week,i got my answers. I had a bonemarro,very painful,but it confirmned,what id been told,yes i had leaukimea.was i bothered no,but i was so angry cos the doctors didnt listen.now 6 years later,i have severe numbness in my hands,wrist pain,terrible fatigue,wait gain,my whole body jerks realy bad,sometimes numbnedd on side of face,and pain in my spine,i went to my gp,and once again,he told me it was stress,i know my body,im not stressed,but i am in so much pain,i have neouroligy,on monday,th
—Guest sandra

wrong diagnosis

Hi everyone,6 years i went to 5 different gp,s with these symptoms.very tired,numb fingers,sweats,bad joint pain,headaches.i was told i had migrane,athritis.was giveing many different pills,rubs,but some made me sick,the others wer unhelpful.i went back to my 5th gp,who said i was depressed,come back in 3 weeks,i never took what he prescribed,cos i wasnt depressed,after a week,i went to another doc,who listened,by this time i felt depressed,i only wanted 1 doctor to listen,this one did,and,within,a week,i got my answers. I had a bonemarro,very painful,but it confirmned,what id been told,yes i had leaukimea.was i bothered no,but i was so angry cos the doctors didnt listen.now 6 years later,i have severe numbness in my hands,wrist pain,terrible fatigue,wait gain,my whole body jerks realy bad,sometimes numbnedd on side of face,and pain in my spine,i went to my gp,and once again,he told me it was stress,i know my body,im not stressed,but i am in so much pain,i have neouroligy,on monday,th
—Guest sandra

Stay Positive

I am currently waiting to be diagnosed with something ... possibly MS. I'm truly praying for a miracle and hoping that all of this will be something minor and that it will just go away. However, it doesn't appear that I will be that lucky. My first symptoms were tingling and numbness in my hands and legs in early 2011. Since February, I have had the same symptoms along with heat sensitivity, headaches around the eyes, tightness in my neck, frequent urination (not fun!) and much more. I am so worried and and I cry a lot. My MRI is Thursday and I am hoping for answers. Whatever my diagnoses, I'm going to stay positive and make the most out of my life. This is scary, but it isn't the worst thing that can happen. Hang in there everyone! We will get through this.
—Guest Jessica

Facial numbness

Was dx after strange pain in my neck and a severe headache led to facial numbness and weakness in my arm on same side. Was firstly dx with migraine, then Bells palsy. 6 months later after an episode of optic neuritis dx by my optician, a ct scan and mri finally got ms dx.
—Guest Nigldr

HELP

Im 22 yr old female. Ive played sports my whole life but when I was younger I used to hit my head alot. Now I get pain in my legs, feet arms neck hands and cold tingly feet and hands like they are asleep. I can barely grasp objects wout them just dropping. I trip alot. I get migranes and I get horrible charlie horses. my lumbar spine area hurts terribly along with my legs shoulders and arms. It feels as though Ive showered in icy/hot. No pain meds has worked. The drs only tell me that its normal bc I played sports. BUT It gets worse every couple months. my eyes get foggy and now I have a stutter sometimes. Im at a dead end because NO dr believes me when I tell them my symptoms. I know its not my muscles..I know how it feels. If ANYONE could help give me some advice or ANY ideas PLEASE. My mom is a trauma nurse says it sounds like a nerve disorder in my brain. I too work in the medical field and know the differences in pains. I feel like my arms and legs are being twisted & pulled. HELP
—Guest Shannen

ms diagnosis

i was 23 years old and working on my computer at work and all of a sudden i had tunnel vision. i could only see a small pin size view of everything. i freaked out and my co workers call 911. they rushed me to the hospital and tried to put an iv in my arm and all my veins had collapsed. i was shaking all over like a seizure. i could hear all of them talk but i could not speak. they had no idea what was wrong with me. i stayed in er for about 12 hours and i was getting my eye sight back and i could speak again. they all looked at me like i was insane. they sent me home and the nightmare really began. i knew something was seriously wrong. went to several drs. with so many different diagnosis. they even sent to a counselor they were thinking stress was causing all of this. yes the more this went on stress did become an issue with panic attacks, fatigue, and depression. i had to leave my job due to the vertigo and vision problems. i was diagnosed at 40. bitter sweet.
—Guest cindy

Restless leg Syndrome , NO - MS!

My first symptom was supposedly RLS. BUt it stopped at night. This was 3 years ago. Then one day I woke up & my whole left side was numb, stumbling like a drunk, optic neuritis, strange sensations on my left forearm, cant tell if its burning or freezing. Spinal lesions, brain lesions, bands in spinal fluid. I should have gotten a second opinion for the doctor who wanted to treat my RLS which was really the start of MS. I have not seen alot of info on this but it got to the point where the crawling sensation was so bad I had to leave work some days, and could not sit still.
—Guest Lisa

Optic Neuritis

Started with a headache behind my left eye that over approx. a week left me with no vision in that eye. Classic indicator from what I'm told.
—Guest scott

sick of being sick part 2

i really don't think i have fibromyalgia though and if i do i think there are other issues as well cause when i was reading about fibromyalgia on the internet they mention they with fibromyalgia there are usually other auto immunes diseases too suck as lupus and MS....i had a blood test done for lupus recently and am awaiting the results but i REALLY wants to get a MRI done and i ask my doc could he order one but he said he don't think i really needs one...like what the heck someone with severe headaches,blurred vision and dizziness ......does not need a MRI!!!!!!I truly believe that i have MS and i would like to get a diaganosis soon so i can get treated and get some relief over 35 yrs of being sick....sick of being sick is truly an understantment 4 me!!!!
—jackey35

sick of being sick!!!!!

i am a 35 yr old female and i have been sick everysince i can remember...it started when i was about 5 with reoccuring urine infections which i am still havin to this day....then i had real sensitive skin when i was about 8 and use to break out in rashes..doc said i was allergic to denim...then when i was about 12 i devolped asthma and excema...then at 13 i started having menstrual cycle issues and was disagnosis with endometriosis...then at about 15 i had a big spot come out on my forehead doc said i was allergic to the sun...around the same age i was havin real bad rib pains then lower back pains....then when i was 21 and pregnant for my first child i had severe dizzines and fainting which i still have to this day...doc said it was low blood....no i have ALOT of pain in my joints especially my hips and knees and i have shock sensensations going through my body worse at night..and really bad pains in my legs and chest and head....docs diagnosis me with fibromyalgia ....
—jackey35

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