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Readers Respond: Which Symptom Led to Your MS Diagnosis?

Responses: 382

By

Updated December 04, 2008

Mrs

I started to feel itch my fingers some tingling and I thought it would go away but the itch never stops and my fingers are getting swollen, I am beginning to feel it moving up to my arm not the itch but some numbness, any help?
—Guest Manoo

swelling

am having swell in my neck, foot and hand, plz i need solution to b out of this mess
—Guest bright

MS Symptoms

I am getting tested for MS next month. I have blured vision, lose muscle control of legs w/spasms. I started having these loss of leg function episodes which last from 15 to 30 minutes, then go away...while I was in the 7th grade...I am now 59. I am worried, I was checked for lupis, and Cones disease. My mom had MS ahd she had loss of bladder control. I just startef with this. I often feel like I need to go to the bathroom when I don't. Headaches have srarted too, along with double vision....all these symptoms are making me sleep most of day. I take lortab because I am having shooting pains in my lower back. I wanted to die yesterday because the pain was so great. I ice my back off and most of the day. When I move my right leg, it feels like I'm being stabbed with a knife in my lower back. Lortabs are not working anymore. Do these sound familiar? PS...lossed motor functios happens when I get excited, or rushing about, ceaning quickly, or get scared. Please give advise. Thank you
—Guest JoAnna

MS?

My mother had MS 15 years before i was born. She was told she couldn't have another child, she tried and lost it. She then gave birth to me after trying for many years. The doctors told her to keep close eye on herself and me as i aged. Now i am 18, and have been having symptoms that all fit identical to MS for about 4 years now. Some days i can't walk my legs are so weak they feel like telephone poles. I get shocks up and down my legs daily, and im always in pain. My energy is barely ever here, and i need to force myself to get anything done. My moods have progressed very fast to a depressed state, forgetting everything. My back is always hurting like someones stomping on it. Also i have double vision and it affects me daily. If anyone has any advice or help it would be much appreciated.
—Guest Kate

ms symptoms

Tingling in feet, lack of libido, constipation, heat sensitivity and confusion in speech.
—Guest Damo

brown

Hi all a lot of you sound like you have fibromyalgia i have it and was diagnosed 25 years ago and i suffer all the same symptoms. Everytime something new happens i go to the dr's have tests and nothing shows and it ends up being part of the fibro. the chronic fatigue and the pain are the worst of all, if you are sore to touch then i would say get tested for fibro. good luck
—Guest kim

GBS

A neurologist should be able to help. Good luck. Look up gbs syndrome
—Guest Concerned partner

Gobs

One of my friends had similar symptoms and they finally figured it out look up gbs syndrome
—Guest Concerned partner

So many symptoms!!

Wow. I just found this article, and I'm so glad I did. I signed up for the newsletter. Actually, my boyfriend/carepartner was the one who found this site, and I'm so glad he did. I was diagnosed four years ago with RRMS, after so many doctors, and so many misdiagnoses! For four years, I've been dealing with this with the help of only my boyfriend. My mom and dad have passed away, and I have no family left. So we are trying to do the best we can. I actually stopped going to the doctors, all of them, for the last year after I was in the hospital with my worst relapse, and getting IV catabolic steroids. I was actually worse when I got out of the hospital. It's taken me a year to start feeling like myself again, but I'm left with no strength in my legs at all! I've never even met another person who has MS! I have all the symptoms you could think of at one point or another. Fatigue, weakness, and cognitive problems. So glad I found this place. It gives me hope!
—Guest LadyR

scared

I have numbness in my right hand for two days and at night this wakes me up. also my chest hurts a bit and my right shoulder to but what scareds me is heart palpitations out of nowhere and my heart racing even when I'm not in motion ... Plzzzzzzz help me what could be happening to me. Sorry for my English
—Guest bf

Mercury?

Back when I was a kid, I was told that vaccinations 'could have contained' mercury. When I was seven or eight, i could no longer operate my hands like normal. I couldn't hold utensils or tools without trembling/cramping/spasm. I shake when hold a pen, a cup, a tool. Just to keep the item in my hand, I utilize my back muscles since my hands are practically useless. About 3 years ago, I was diagnosed with fibromyalgia by a Turkish neurosurgeon who had a plate/brace in my neck to support 3 deteriorate neck vertebrae. I looked up FMS on the net and sure enough I have al the symptoms but FMS doesn't include the tingling/numb hands. Can anyone relate? Thanks.
—Guest sanpedro72

guest

Many symtoms over the years all vague. 3 weeks ago eyes crossed at work doble vision, confusion and a strange metalic taste in my mouth. I had a similar experience 7 years ago bit actually passed out. My muscles especially in my hamstrings and calf muscles are always tight and painful. My upper back and neck are always stiff. I have had ungoing dizziness. Vague arm and leg weakness for so long now.I get numness in my lips, eye twitches, blurry vision. Many times lately it feel like my eyes are working opposite each other. I cant find the right words. I forget things I have known for years. I meen to say one thing but some other thing comes out insyead. I cant concentrate. I also get this sudden stabing pain in various parts of my body. I get an electrical sensation that starts at the top of my head and travels to my feet like a lightning bolt. It looks like an all over chill and then goes away. I have spells of tinninitis and then los of hearing or deadened hearing. I trip a lot. pl
—Guest merrideth

fed up

I feel for you all we're all stuck in the same boat and annoyed that the docs won't take us seriously of course we must have munchhousans :-/ but seriously they became GPS why so much for caring I've three kids and am a single mum but have a wonderful familynnetwork I don't know what I'd do without my sister who treats me normally and like nothing is wrong and I'm human I've been exhausted for over two years my eyelid droops constantly muscle weekness especially my left leg have lost reflexes in most of my limbs bar my left arm that diagnosed aura migraines every week for over a year lymph nodes swollen for the same time have had a bad episode of stoke symptoms thankfully all went back to normal after four hours short term memory problems and the rest still not letting it win walk with problems over two miles a day everyday play with my kids attempt to stay positive but above all remain as stubborn as he'll can beat this after a two year wait I get to see a neurologist in November xx
—Guest col

fed up

I feel for you all we're all stuck in the same boat and annoyed that the docs won't take us seriously of course we must have munchhousans :-/ but seriously they became GPS why so much for caring I've three kids and am a single mum but have a wonderful familynnetwork I don't know what I'd do without my sister who treats me normally and like nothing is wrong and I'm human I've been exhausted for over two years my eyelid droops constantly muscle weekness especially my left leg have lost reflexes in most of my limbs bar my left arm that diagnosed aura migraines every week for over a year lymph nodes swollen for the same time have had a bad episode of stoke symptoms thankfully all went back to normal after four hours short term memory problems and the rest still not letting it win walk with problems over two miles a day everyday play with my kids attempt to stay positive but above all remain as stubborn as he'll can beat this after a two year wait I get to see a neurologist in November xx
—Guest col

Symptoms

I am 53 and only dx'd with MS this past year. I am the one who asked for the MRI although see an neuro monthly for pain mgmt. I have mercury poisoning for sure as someone above mentioned. Hands and feet are asleep nearly constantly when exacerbated. Overheated a couple nights ago cleaning and have been in more pain than I can remember ever. Going back to detoxing. Thanks. I needed to read some of your responses. Its kind of scary but I believe we DO have control over this! At least to a point depending on severity, etc. Don't give up!!
—Guest JJ

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