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Readers Respond: Which Symptom Led to Your MS Diagnosis?

Responses: 389

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Updated December 04, 2008

I have MS symptoms to

I did a MRI and a nerve conduction study , the MRI don't show MS but the nerve study show nerves damage, my neurologist said I don' have neurologic problem . I have problems to walk no balance, can't used my right hand , no control of my blader and my blowel can't walk more then 5 minutes . my doctor believe I have MS I have to go back for the same tests again . I'm like that for the pass 3 years.I hope they find something soon.
—Guest marie g

I have MS symptoms to

I did a MRI and a nerve conduction study , the MRI don't show MS but the nerve study show nerves damage, my neurologist said I don' have neurologic problem . I have problems to walk no balance, can't used my right hand , no control of my blader and my blowel can't walk more then 5 minutes . my doctor believe I have MS I have to go back for the same tests again . I'm like that for the pass 3 years.I hope they find something soon.
—Guest marie g

I have MS symptoms to

I did a MRI and a nerve conduction study , the MRI don't show MS but the nerve study show nerves damage, my neurologist said I don' have neurologic problem . I have problems to walk no balance, can't used my right hand , no control of my blader and my blowel can't walk more then 5 minutes . my doctor believe I have MS I have to go back for the same tests again . I'm like that for the pass 3 years.I hope they find something soon.
—Guest marie g

Frustatrated and NEED answers urgently.

Okay I am in my late twenties. during my arly twenties i started experiencing painin my left ankle and my instep. At mornings wneh i get out of bed i would not be abale to stand on my foot. the pain grew and went into my leg. it felt like pins and needles were sticking me ther. i had an ultrasound to rule out bloodclot. but they found nothing. as time passed the pain travelled up to my lower back. and the right side of my pelvic. now it has gone into my entire right side, namely fingers wrist(entire hand) breast head and eye. Sometimes there is this numbness through out and swelling in my right arm. I was diagnosed with enometriosis and the result showed that the growths were on the right side of the womb. but doctors are saying that it does not tie in. Also i was diagnosed with a herniated disc in my lower right back. please help because the pain is terrible. Thanks.
—Guest Guest Princess

Multiple Sclerosis and toxicity

After doing much research about cases similar to mine I have seen that all of us had something in common. Our sickness developped after surgery with anesthesia with amides, in other cases it was caused with medicines with amides and in other cases it was caused by other kind of toxines such as chemicals. All of us started having similiar symptoms, numbness, tingling, vision problems, tinnitus, headaches, low back pain, vomiting and diarrhea in some cases, weakness, pins and needles, insomnia, spasms, tachycardia, anxiety... All these are symptoms from anesthesia toxicity and in some cases related to other kind of toxicity, as my neurologist told me. It is surprising that many women develop MS after delivery with epidural. and there is also a big coincidence with fso many ootbalplayers who develop MS after surgery with epidural too. I do agree with someone who wrote in this blog that some MS patients reversed it with detoxification, that brings hope of recovery.
—Guest Beth

Yet to be diagnosed

My symptoms started with numbness stumbling in my left foot and chronic fatigue. Within a month the tingling hD moved all the way up my leg and into my arm with severe rib pain, spinal nerve pain and limb weakness. Within a year it had all moved the right side of the body aswell with severe headaches. It is now 7 years later and the fatigue is debilatating and for the last year I have had severe dizziness to the point I can no longer drive. The spinal nerve and muscle pain is unbearable along with the muscle spasms and calf muscle pain. After having every test possible I am yet to be diagnosed but am positive I have MS as I have no idea what else it could be. My neurologist suggested Fabry Disease.
—Guest Sam

Haughton

I have been diagnosed with osteoarthritis in my left hip and just recently have been loosing strength in my hands I have had blood tests and they came back clear my wrists go weak too what the hell is going on am I going mad here..........
—Guest Claire

Confused

I was, I think diagnosed in 2009. I was 50 when that happened. I only have one lession. How can I have MS? I had a lot of the symptoms that a lot of you had. My leg and fingers tinglrd and then just hurt. Vision is good and the only symptoms I have now are very bad headaches and leg still hurts. Stumble sometimes. And I really can't remember a lot. Not sure and neither is my doc. Wish all of you well. God bless you all.
—Guest Debbie

symtoms

im 29 and i have bouts of pins and needles down my left side head and body i also have a feeling of cold patches on the left side of my head i have severe headaches which unables me to open my eyes or lift my head up these symtoms come and go and just recently i have had a fit like convulsion 3 times one after the other where my head was twitching really fast and i had no controll over it im also constantly very tired and im hard to wake up my bladder has a mind of its own and cannot remember small things im seeing neurologist on the 29th november i just wish i knew what was wrong with me.
—Guest julie

MS Symptoms

All of what i read on here are alittle parts of my symptoms I too have going on or have experienced..... CFS, weight loss, burning numbing sensation like i have chronic sunburn all over..Right side of body has cognitive issues, double vision in right eye, earaches right ear, numbing charlie horses in hands and feet most of them right side.. Balance issues, loss of memory, flu like symptoms keep relapsing, unable to fight off infections.. Bowel and bladder problems, poor kidney function.. Mid and upper back pain.. Feet, leg and abdominal swelling from standing long periods..Major bladder/kidney infections..(Hemorrhagic IC bladder disease) 3RD Stage! Nightmares, feel like in a dream state of mind.. Fevers, low blood pressure, low oxygen levels...Have undergone many tests in which lead me to MS diagnosis with Many many other strange occurring symptoms that come and go.. I want my normal life back!
—Guest Guest ~Rhonda

another idea

I know of a diagnosis on leg problems that is very real and much like m.s. though it effects the legs only and finally making them unusable. The diagnosis I am talking about is called H.S.P. Hereditary Spastic Paraplegia. It is an expensive series of tests to find out if you have it but it is so uncommon at this point most doctors don't look for this particular thing.
—Guest steshie12

First symptoms of MS

one ear sudden high-pitched ringing, then no sound from that ear. Dizziness, then nytagmus in both eyes, eventually double vision, couldnt keep balance to walk without help, loopy in head and started going past my corner on street, doing a few goofy things, speech affected, eventually could not drive, patched one eye so I could focus vision, woke with severe lightning bolt pain shooting from shoulder to hand then loss of strength in that arm, headache, face pain, then bradycardia of heart landed me in the hospital finally. Dx then with IV steriods most severe symptoms subsided. Still headaches and other issues but better. One year prior to this had awoke with lump in throat that mad me feel like I couldnt breath then numbness spread into my face. They initially thought was allergy but now think was MS. Bowel issues also persist along with a variety of wierd things & pains that come and go. Sleep alot but also some insomnia at times, cannot walk far,etc. prob had MS many years.
—Guest Mary

Thought I had MS but didn't...

I experienced many of the symptoms listed here but found m problem was from long term use of proton pump inhibitors like Nexium. They block B-12 and calcium and magnesium absorbtion. The symptoms slowly went away after I stopped PPI's. This is in the medical literature but a lot of MDs do not know this.
—Guest Duane

Isn't it rotten!

The beginning of my probs were optic neuritis, numbness in thighs, etc etc. 6 yrs on i was diagnosed with ms (this was in 2005). Im now 40 and going thru the worst relapses ever. Im wondering if anyone can tell me how they cope with the sensations from my thighs down to my toes? Some days i can count around 12 difrnt sensations from my thigh down to my feet (my feet being the worst, feel like i have golfballs in the soles of my shoes and bananas weaved in and out of my toes). I know its sounds funny really but its ever so tiring and upsetting. Also my knees have the persisant pain of when you would fall as a kid and graze your knees!! Thid has been going on since the 12th june and my neurologist said theres abso nothing out there to help stop these 24/7 sore, tiring, rotten sensations! What do u guys think? Thanks.
—Guest Lisa :/)

would love to help nonny419

Hi nanny419, I sympathize with you and your symptoms. I too am experiencing facial pain and numbness, extreme fatigue, tingling scalp, arms and legs, forgetfuluness, blurry vision, and have erratic high blood pressure...as low as 85/58 in the a.m. to 177/85 in the p.m. and two ER visits for BP that would not go below 220/118 without several meds. What have doctors said about your condition? Any tests they helped determined the issue? If you live in the Twin Cities area of MN I can help you! Just let me know...
—Guest Christine

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