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Readers Respond: What has been the most painful part of MS for you?

Responses: 439

By

Updated March 19, 2009

I understand

Being 29 years old with RRMS I completely understand your pain. It's extremely hard to explain to somebody who doesn't understand or have it.i had been an athlete my whole life and as an adult kept myself very active and in shape. I recently had a child and while experiencing post Pardon I lost my youngest sister tragically. So you could understand the stress I have endured and as much as I'd like to keep just moving toward healing my MS constantly reminds me it's here. From the pain and blurriness in my right eye to the pain all up my back and the stiffness in my legs and the amount of shakiness from time to time it's hard to keep a positive attitude. I've always been completely drug free and take pride in it, but the only thing that I have discovered truly relaxes my body is when I smoke marajuana.it completely temporarily relaxes my body from the stiffness and the pain and helps to relax my mind so I'm able to get some rest at night.There for it is something I leave for the evening
—Guest Ms.V

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Perpetual Nightmare

My story begins with a TM diagnoses as a healthy 31. By 32 I had no insurance, money or home. Wow!!! Too bad rapid weight loss looks good one me, or so I've been told.
—Guest Calle

Being Diagnosed

For over a year I was having pain on the right side of my head. It was the most excruciating. First, I thought sinus, went to ENT, then I thought an abscessed tooth, went to dentist. I have went to the ER I couldn't tell you how many times, I was finally referred to a neurologist. They tested me for trigimenial nerve and it wasn't that. When I received my second and third MRI they found lesions, but still could not say for sure that I had MS. At that point I was desperate to be rid of this pain and returned to the dentist and had all of my teeth pulled on the right side of my mouth. At the same time I was set up for lumbar puncture by the neurologist. With the MRI showing lesions and the lumbar showing bands around my spine. It was confirmed that I have MS. Florida, is the pill mill of the country. So when anyone claims pain they think that is all they are seeking is pain pills. So the second most painful for me was the humiliation from medical staff that assumed I was a drug seeker.
—Melanie2013

Susan E

i have MS for 30t years. never felt any pain. until now! Pain is strong in my right arm, shoulder, fore arm, elbow, wrist. I fell a lot over the past 5 years. Fell a bunch this past week in my house. THought that brought on he pain. x rays,MRIs, reveal no fracture, nothings broke. So now I know what MS pain feels like. It hurts. Have strong pain meds but that doesn't help.
—Guest susan

MS pain real or fake?

My dr acts like I couldn't possibly have the pain I'm having and says it's not MS related. I feel like I might be going crazy I'm confused a lot. I panic and become very anxious. I was diagnosed in 2000 at fifty years old I believe I have had MS since I was very young. I've had a cage put in my neck and told it was due to scoliosis and degenerative disc disease. I have had a neuro surgeon tell me after putting a cage in my neck that I was no longer his problem. My family is sick of hearing me complain and my neurologist thinks I don't need to be on the pain mess I'm on they are strong and I've been on them over five years so I guess that makes me a legal drug addict, I tried to decrease my dose and even ask my primary for help who laughed at me telling me I was a manipulating drug addicts and I just wanted more drugs or increased doses. I'm scared to death of withdrawals I understand it's very uncomfortable and I can't just go cold turkey. I wish I knew a dr with MS who could help.hope
—Guest Pj

Try

Try Low Dose Naltrexone , plenty of sleep, detox regularly, go paleodiet, drink la lot of water daily cca 3.5 litres, get on hi dose of Vit D3 and Vit k
—Guest Dee

Try

Try Low Dose Naltrexone , plenty of sleep, detox regularly, go paleodiet, drink la lot of water daily cca 3.5 litres, get on hi dose of Vit D3 and Vit k
—Guest Dee

Try

Try Low Dose Naltrexone , plenty of sleep, detox regularly, go paleodiet, drink la lot of water daily cca 3.5 litres, get on hi dose of Vit D3 and Vit k
—Guest Dee

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—Guest maarcie

neck,hand n leg pain

I can't feel my left leg n hand even pain in neck what must I use
—Guest shania

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