We’ve all read things about planning our schedules around rest time and trying to stay cool and stress-free to combat the fatigue associated with multiple sclerosis (MS). Those suggestions are great, but real life has a way of interfering with our best attempts at maintaining a calm, restful, perfectly-scheduled lifestyle. Please share your ideas for anything that has worked for you to beat the crushing fatigue that goes along with MS. As one of the many “invisible” MS symptoms, fatigue can also be one of the loneliest – it doesn’t have to be that way. Let’s help each other. Share Your Tips
- My taking good quality supplements has helped since dx, with extreme fatigue & having added a special blend of D, to my daily regimen, 10 mths ago that insiduous fatigue has diminished by 90 %, along with the "fog" in my head. Having energy, stamina & endurance without "hibernating" from the heat is a blessing for me & my 9 yr. old son. I also am on an alter diet & I avoid stressful situation/people as much as possible, but my Primary aide in all thing MS related is the use of my very special supplements, which I have been taking since dx in 2005 to now. The supplement regimen I am on, helps me to live a better quality lifestyle, having that energy to do simple daily activities with my son, interact with him with a brain that is not falling "asleep" all the time anymore, has truly strengthen our relationship as Mother & son. Bless
- —Guest Advocator
Thank You For Writing My Fear
- Sometimes it gets difficult. I have a spouse who cannot seem to understand what this disease means. He will not do any research and does not care to hear anything from me about it. And most times I feel alone. And in a real sense we are alone because only we who live it daily understand what each day brings us, and that every day is different. I think the one thing that I know is that my relationship with God has turned so personal and so deep. My life is filled with moments of prayer and praise. Whatever the future holds, I know I am believed by Him. He doesn't roll his eyes and tell me to quit exaggerating. He understands. And that is enough for now. Each day I notice something new, a new symptom, something else that has been lost. In spite of the crushing fatigue, I find that I can cope in small ways, doing a little at a time and trying hard not to go past that tipping point where I go into shut down mode. My bed and me are fast friends.
- —Guest Msunderstood
B12 fatigue buster
- B12 complex has been a great addition. I put it in a 1litre water bottle and I am good to go for the day. Using the liquid form it works great.
- —Guest Samson
- To a "self paying" patient from a practicing neurophysiologist, (You have to appreciate the irony in that), the only truly effective therapeutic, and affordable medications are still the CNS stimulants administered carefully. The $800. dollar a month "patented" meds for fatigue falls hort of efficacy and long on profit.
- —Guest Robert Stalcup,PhD
How I deal with MS Fatigue
- First of all, I take Modafinil, which is a great help. But I find that I additionally need about a 1 hour nap in the afternoon and I'm good to go for the day.
Today is my first day on Provigil
- I have been sleeping 18-30 hours straight because of the MS. My Dr. gave me Provogil whick I started today. I sure hope it works!
- —Guest Lisa B.
Fatigue and heat!
- Thanks to everyone and your ideas on how to handle fatigue! I'm still working on it for me and my family! Kids start school soon, so that will give me a little bit of a break! Thanks to all with this terrible disease, i don't think any of us asked for this, i know i didn't!
Best wishes to everyone!
- Ek presies 'n jaar terug gediagnoseer met MS, die moegheid is die ergste, ek Yoga en mediteer, en doen absoluut die gesonde ding. Eet gesond en neem Vit B inspuitings van tyd tot tyd
- —Guest Marietjie Coetzee
- I'm sorry I don't have a 'cure' for our debilitating MS fatigue, but I have found relief with Nuvigil. I started taking it only on days that I had to go to work and stay alert for 11 hours. I have had no side effects--well, other than realizing how fatigued I really am when I don't take it. On days that I have not scheduled activities or meetings, I skip it. On lazy Sundays (although rare for me and my family), I skip it. The fatigue returns immediately as Nuvigil does not stay in your system long. I encourage those of you who stopped taking Provigil due to side effects to try Nuvigil. It has given me another weapon to use against our common foe.
Dealing with MS fatigue
- thanks to all of my respondents and i have learned that mornings all the best for me and my 3 kids! Everyday is different for me so i just take one day at a time!
- —Guest christine shelton
- I spose your blog about smoking, also, applies to marijauna, huh? Always look forward to your blog, often find it very informative. Thanks Julie
- —Guest Terry Fisher
- I'm on several meds, but nothing specific for fatigue. My fatigue gets worse in the evening - I start my work-day early, so that I can do more things before mid-evening.
- —Guest Linda
Heat related fatigue
- I have had MS for seven years. Fatigue is a big factor for sure. I think heat and humidity make it worse. I try to plan all of my activities for early morning or early evening. I have also been given Nuvigil, which I find very helpful. Too bad insurers wont cover it for MS patients. Provigil is supposed to be generic very soon, but, I have been told this for over a year.
- —Guest Pam
- Dehydration is a disabler, causes fatigue but with nausea and vomiting it is hard to get enough water. Try infusing half a sliced cucumber, qtr c peppermint leaves, and qtr c thinly sliced ginger to half gallon of water. Peppermint tea bags will work if you can't find fresh peppermint. It calms the stomach, reduces acid, and calms the gag reflex. The more water you put into your system, the more oxygen you have, and more energy.
- —Guest Alena Jones
- Provigil had worked. As it has become more difficult to function my doctor suggested Nuvigil, which I started today. At the moment I feel more alert and a little speedy.
- stop gluten soda fizzy drinks all processed sugars trust me fatigue goes down. try honey and green tea with cinnamon for fresh start in morning that works as well
- —Guest zaynab