Opps did you just say that?
- I was in the middle of trying to explain to my family what MS was and that I had been diagnosed with it, when my borthers girlfriend interrupted me with delighted squeals of''i know what that is'' and proceeded to tell them that her cousin has it and she is now in a wheel chair and cant walk!! well as you can imagine there was stunned silence in the room. I chipped in with, ''there are lots of different types of MS and not all mean you end up in a wheel chair'' whilst trying to pin a smile on my face!
- —Poro9969
Dealing
- I ama 38 year old girl wiagnosed with Primary Progressive MS. I have gone through a lot of the things everyone else has dealt with, with one exception. I happen to have a very smart mouth. The first time I parked in the handicap spot some man actually said "you dont look handicaped to me" Quickly I responded "Yea but you dont look like an a**, guess looks can deceive." Each one of us deals with things differently. I haven't given up yet and its going to be 19yrs.
- —Perkybuttons
trying to be "nice"
- My family keeps telling me "You'll be ok" "Sometimes I think you're over reacting, you were walking fine yesterday" but the worst I've ever gotten is "It's not like you have cancer." bottom line: If don't have MS you won't understand.
- —Guest Liz
Dumb Love
- I know a lady at church who is diabetic. She has to take injections 4 times a day. You are lucky you only take your injections 3 times a week. I have no idea how that is similar!
- —Guest Crystal
"We should get you a wheelchair."
- Spoken by my sister when we were touring a small college in the heat and I wanted to sit down and rest or go back to the hotel. The college had been founded by a great grandfather and we had all seen it before. She said it jokingly without thinking. I just said "Don't you know that's what I'm scared of?" and burst into tears. I loved all the comments on here. I have certainly heard a lot of them myself. Great reading! Thanks to all the contributors.
- —Guest CathyC
Things People Say
- "You have to understand you're not the same person anymore" This was said to me by the closest person in the word to me. My reaction was to try & make him understand I was the same person but just thrown into a nightmare of having life as I had known it pulled out from under me. My body was betraying me! People who I thought were my friends were proving to be the opposite. Doctor's weren't giving me answers. Medications were making me feel sick! Even with all this & more to deal with I AM the same person with a different perspective.
- —Guest Patricia
What on earth was this neuro thinking?
- The neurologist who diagnosed me told me at the diagnosis consult rgis fall that he thought as much that it was MS when he first examined me two years ago. And then he told me that he should have ordered a brain scan then but he didn't and only sent me for a thoracic MRI. And then he tells me that in the images of the thoracic MRI he thought perhaps maybe he saw a lesion but wasn't sure. So I guess I can assume he gign't have any of my best interests in mind!
- —ladybinford
Doctor's View
- I spoke to my Doctor because my 21 year old daughter has just been diagnosed with MS. She said...well if you want to go bungee jumping with her...do it now!!
- —loopylou1961
stupid remark
- The first time I say my new neurologist, he said , you aren't as bad with your ms as others I usually see. I was suffering like hell with my disease at the time.
- —Guest cat67
All of you prove I'm lucky.
- I really can't add to this subject. It blows my mind how others can respond when told of your MS diagnosis. Most of my friends are medical, and who I had to explain MS to, have understood or been appropriate. My reactions to your stories vary in all directions, but mostly just plain shock. I recently saw someone with MS, wearing a tee shirt I just fell in love with. After reading these sagas, what that shirt said is the perfect response many of you could have used. Maybe it could still be of help for your future foopahs to come. It read: "I have MS. What's your excuse." Surely, I'm not the only MS pt who sees the perverse totality it can offer? It may help when help seems impossible, for the MS patient, anyway. And to all, have a good anything!
- —Guest Faith
Dumbest Comments
- Every time I tell ANYONE I am EXHAUSTED, that I can barely function. They always answer - "I know, I had the worst sleep last night too, must be the weather" (or something of the sort) here have a cup of coffee. Ya, like that's going to help, can you feed it to me? I can't lift my arm high enough. To the poor woman going through breast cancer as well as having this fun disease, I went through that too. After my chemo, it was the best MS year I've ever had! No symptoms at all! I hope it's the same for you. :)
- —anitaw36
How rude?
- When I first was diagnosed two years ago, I ended up in a rehab hospital because of my symptoms. While I was there, a co-worker called me and I was so out-of-it and upset about my diagnosis, I blurted out to her that I was diagnosed with M.S. Her reply was "Is that when you piss yourself all the time?" I was so insulted, not to mention I didn't even know that was a possible symptom of the disease. To this day, that is the most careless and insensitive response I have every received about my illness.
- —Guest Steph48
here's a good one
- u have been given "ms" because u r gay. in other words that's my punishment. flew home and left her during vacatiion. wish there was a sight 4 gays with "ms"
- —Guest heidi
Dumb remarks
- I've heard most of these examples, but one I haven't seen is this: "Oh, the Jerry Lewis disease!". Well, no, but they do all start with M.
- —Guest Jeri611@aol.com
Dummest Comments
- I've been a care giver for my wife as she has suffered with MS for ten years. The dummest comment came from her first nerologist who said, during a full blown episode of central tremors, "If you would just stop shaking like that you would feel better." Needless to say I had all I could do to keep from putting him through the wall of his office. Some docs are just so arrogant and plain stupid.
- —FrankFitzsimmons
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