Changing Subject to Own Health Issues
- After much angst, I decided to tell my co-workers about my dx. To me it was a special thing that I was sharing this with them. After telling one of them, she paused, didn't acknowledge what I'd just said and instead said, "You know I had a mole removed yesterday and it really hurts." Wow. I'm still dumbfounded about that one!
- —Guest ColleenTx
Fatigue...
- I sometimes say, "Oh, I'm feeling so tired today," and I'll usually hear, "Yah, that's how I feel too." The only difference is that I've had MS for nearly 24 years, and they have no idea of what MS fatigue feels like! Frustrating!!!
- —Guest khehran
Sick Note?
- My GP was away. Locum, "I can't see anything wrong with you. I can't give you a sick note" (!)
- —Janus15
TV shows
- I told my friend at school that I had ms and she immediately and excitedly exclaimed : "THATS ON HOUSE!" and left it at that. I just walked away.
- —Guest Molly
MS Specialist my foot
- I was sent to see an MS Specialist due to my numerous symptoms. After listening to me for a couple minutes, he interrupted and said "You can't have MS as it doesn't cause pain and only effects females not men."
- —Guest Marcel
Medical Retirement - Why I tell no one.
- I'm not ready to retire. I worked with a girl for 15 years. 11 years we both worked in the same Dept. When she got sick and said she would be out for a while. They just mailed her the retirement paperwork and said fill it out and return it. One year later I was dx.
- —Guest Tom1965
Oh the judge
- At my disability hearing, in the court room the Judge asked me how I got MS, and if there was a cure??!! Umm.. would I be there if there was a cure?!
- —Guest mochi
Might As Well Laugh!
- I was matron of honor for my sister's wedding in July, on Cape Cod and had to travel without my husband but with my 3 kids all under 5 yrs old. After a week of wedding prep, humidity, minimal sleep and single parenting I boarded the flight to return home and was slurring my words as I told my children to sit down. I heard a passenger a few rows back say "That mother is drunk and with those poor, sweet babies!" Her male companion said "If I had to fly alone with 3 kids, I'd tie one on too!"
- —charisma3
Cure?
- I was dxd in jan09. On gaining the disability pension the worker told me 'of course we'll review you in 2 years, just to see if your still eligable'. WOW if i knew there was a cure out there don't you think I would of got it by now?
- —kab1975
???
- When I was diagnosed in 2000, I was telling my mother-in-law. Her response was "How did your mother take the news"... So far that has been the stupidest thing said to me. Everyone has been more than supportive and will ask a question instead of saying something stupid.
- —Guest Dee
because i am young...
- "What?! That's an old person's disease!" No, it's an "every age" disease.
- —Guest Dagnab
is that like spinabifida?
- my dad was diagnosed with MS years ago and to this day people still ask him if it is a form of spinabifida. its appauling how little people know about the disease.
- —Guest mwills
The Dumbest Thing...
- I suffer from terrible fatigue, yet people are constantly telling me that if I exercised MORE, I'd feel better...they have no clue that the more I over-do it, the worse I feel!
- —Guest tmurph820@gmail.com
Stupid is...as stupid does
- I recently changed jobs about 4 months ago. When I was unable to do the job I was hired for,they gave me an easy job. Now some of my co-workers look at me like I am retarded. I told them that I have MS and a good many of them say "What's that"? The problem is that I think they have the attention span of a blink of an eye,so I don't bother to tell them. I just say "Look it up on-line". Bonbon
- —Guest Bonbon
Oh, you'll be fine.
- Everyone else seems to "have a friend with MS." I don't. So now that I'm newly dxd, I get a lot of "Oh, you'll be fine; my friend has it and she just has (fill in the blank)." I like how everyone else "knows" I'll be fine. I don't know that! The Dr. doesn't know that!
- —Guest ColleenTx
