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Readers Respond: What helps you deal with the "MS hug?"

Responses: 222

By , About.com Guide

Updated October 12, 2008

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I feel TAZED

I too cried the first time I read this string of posts. After all cardio and Ortho and GI testing was normal, and no professional gave me a helpful response or lead during the past 9 months that I have been TAZED. People on this sight are describing my symptoms. I see Neuro on Thurs.
—Guest Renee

Thought It Was Just Me!

It is soooooo good to hear this symptom described by so many people. I have had MS for over 20 years. I have been very blessed and only had a few attacks. But, last summer I had this new thing happen. I knew I was having a MS attack, because the numbness started in my toes and gradually worked it's way up. When it got to my ribs it wrapped around me and pulled tight. I was soooo frightened. I was afraid it would keep going up and maybe even choke me. I love my Doctor. When I tried to describe the new symptom to her, she said, "when it's hard to explain, you know it's MS". Anyway. she put me on a heavy dose of steroids. It really backed off the attack (but the steroids made me sick). Now I feel like I still have a shadow of the hug right under my breasts, but not as wide and not as tight. I really appreciate all the advice I read, and don't have much to offer, except keeping busy helps me the most. When I'm caught up in life I can ignore the numb feet and remaining "hug"!
—wrecka

BIG CRUSH

So, Im waiting on the MRI to confirm MS. Thing is, this is the first time Ive been aware of symptoms. My hands are numb and i have sqeeze around my lower ribcage that turns into a serious crushing feeling quite often. This has been constant for the last 3+ weeks. Im miserable, any thoughts?
—Guest Michelle

Thanks for naming the MS hug

I have experienced this far longer than receiving the diagnosis of MS in 2007. Fortunately for me the pain described by many is not related to the blood pressure cufflike compression around my chest and abdomen. It comes and goes at will but I do believe stressors do no help and may often trigger it.
—Guest Katherine

Suzie

I just got out of the ER with something very close to what you all are speaking of. I had morphine and it only took the edge off. I have been diagnosed with fibromyalgia and have yet been able to take anything for it. I have had bad reactions to Savalla and Lyrica. The only thing that helped was the pain meds. This instance lasted for about 5 hours, my longest so far. All tests (ekg, ct, chest x-ray, blood test) came back negative as usual. I know I am not crazy thanks for making feel normal.
—Guest spowell@comsouth.net

i think i have ms

i experienced the hug pain after my daughter was born it feels like a charlie horse in my stomach, i had optic neuritius but the opthalmologist said i was fine, but i now have pain in ear face neck and electrical impulses
—Guest penelope ryan

Thanks for the help I have been in tears

Thanks to you all. I am trying all of the tips. I have not hummed so much since giving birth naturally to two kids. The air pressure has dropped very quickly as has the temperature to really cold. I appreciate all the tips more than you can know.
—Guest me

Erin, Go Bra-less

I was diagnosed with MS 3 yrs ago but know I've had it many more! Two years My PCP ordered an EKG, which was normal. So he decided it must be an inflammation in the tissues between my ribs. He gave me Prednisone. Didn't work. A cardiologist examined me completely. All normal. It was really bad one summer day just before I had to fly cross-country.... I went to Urgent Care. They gave me another EKG. Normal. It was TORTURE to wear a bra. My husband can tell you I got pretty good at ripping it off while I was in the car! Such relief. I usually layered my clothes hoping no one would discover my secret. Finally, I'm in to see my Neurologist and she said, "It could be the MS hug." Fine, that makes sense. But nothing except helped me except going BRA- LESS. Can't do that when I go out, so I bought a wider bra, then added an extender. That's how I deal with this stupid thing. I really did feel like it was my heart. Now I'm used to it.
—Guest LinDiego

ms HUG????

I was dx'd with fibro about 2 weeks ago. No dx of ms but I have suffered with what I believe is ms nightmare. Went to ER one nite and they did cardiac workup, EKG and all was normal. Said it was a panic attack so I guess I stay in a state of panic. Always a tight feeling under my breasts and hard to breathe but has spasms and is severe pain. Also had pulmo function test and that was normal. Helps to get up and walk around and apply pressure in that area.
—sr.dav61

MS Hug

Having my first experience with this! I have had excruciating pain in my back and abdomen. I went hunting for answers because this was different from the pain I am used to dealing with. I have fibromyalgia and chronic myofascial pain. This has been going on for 3 weeks. Muscle relaxers, Norco and Tramadol ( originally typed tarragon-which I knew was not correct. LOL) have taken the edge off. But this is a very different experience fm anything i have ever been thru. Concerned that is is establishing a new baseline. THAT is scarey!
—Guest mary92357

hum hug

I to have been plaged with this "Hug", and am happy to see I'm not crazy. Just went through a bunch of cardiac test for chest pain and shortness of breath. all cardiac test negative, (Thank God) awaiting pulmonary function test results. However, I found that sitting in a comfy chair in a quite room and humming has helped me. weird I know but it seems to calm it. Again, happy to know This is a real issue with others and not just one of my weird symptoms.
—raynay101

new to hug, not new to MS

I have had MS since 1977 and have had no new symptoms, only slowly worsening ones for decades. Two weeks ago I felt as if my bra suddenly shrunk 3 sizes. I want to thank all of the posters here who have posted tips for dealing with this "new to me" symptom. We are our own best sources of information!
—Guest Arleen

Ms Hug

It helps if you drink lots of water. Also breathing in as much as you can (taking you time to breath) and hold it for as long as you can. This restricts the pain for the time you can hold your breath.
—Guest Jay

Baby elephant on my chest

2 years after I was diagnosed I had a Spinal relapse affecting my whole body (utterly revolting) with the most remarkable symptom being the "hug" and this darn baby elephant sitting on my chest. The "hug" stayed continuously for the full 8 weeks of the relapse with the elephant coming and going - rest and cooling definitely chased him away. The "hug felt like a girdle strapped on about 4 sizes too small. At least it wasn't permanent but it has reappeared with each severe relapse. I've had MS for 19 years.
—Guest MIchella

ms hug

tears are flowing right now, I am not crazy!! Thank each of everyone of you for sharing your ms hug horror stories. Thank the lord mine come and go but now I have a name for the horrific pain and no I am not having a heart attack. Thank you and God bless
—Guest bizzybeingdizzy

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  4. Reader MS Stories and Tips
  5. Tips for Managing MS Hug from People with MS - Multiple Sclerosis MS Hug Tips

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