Ms hug
- I have been going thru a weight lost due to not being able to eat. I have asked the question if this ms hug has anything to do with reflux. Symptoms are very similar. My eating habits have changed trying to avoid the discomfort? My medical doctor asked me if I was sure it wasn't MS. How do you tell? Last test showed I was full of reflux, and I needed surgery. That was before Christmas. I have lost almost 35 lbs since Christmas. I having been eating completely different and problems are not severe but I can't eat very much without having those symptoms of bear hug or reflux. How do you know the difference? Also, I can't sleep. Some nights I only have 2 or 3 hours of sleep, with sleeping pills. I have secondary progressive MS,
- —Guest Juju
heat & sit back
- I've never suuffered from "the hug"severely , until last week ! It was terrible , I went into total spasms (luckily it was just around my back & not in front).This went on for two agonizing days & then subsided.I found sitting back with a heated beanbag on the area helps.My neurologist also suggested Degranol or Baclofen !
- —Guest Thielke
Deb
- I have dealt with MS for over 40 years and have just found, in the last ten years or so, that baclofen, gabapentin and cymbalta have helped me a lot against the MS Hug. No narcotics have ever helped, only caused other problems.
- —PatchiePooPoo
m.s. hug
- I was shocked when I was dig. with m.s. almost 2 yrs. ago. Resently I 've been getting these hugs. they are so painful.I can't hardly stand to wear a bra. I didn't know what was happening to me. My dr. doesn't explain things very good. I'm on a high dose of Neurontin , and this starts. I take valium for spasms already. I've had 2 surgerys on my neck and found out Ihave a leasion behind c3. I haven't had any test to see about the rest of my back. The side effects from the Avonex are so bad that I want to stop them, the pain from the m.s. , the change in my body, not being able to be a wife to my husband is almost to much for me to bear anymore. My husband has heart problems so I try not to complain to him much, plus he's not very understanding , and we have alot of stress on us all the time. If anyone has any help for the pain I'd love to hear from you. Guess I needed vent, Thanks So Much For Listening Annetta
- —Guest annetta
m.s. hug
- I was shocked when I was dig. with m.s. almost 2 yrs. ago. Resently I 've been getting these hugs. they are so painful.I can't hardly stand to wear a bra. I didn't know what was happening to me. My dr. doesn't explain things very good. I'm on a high dose of Neurontin , and this starts. I take valium for spasms already. I've had 2 surgerys on my neck and found out Ihave a leasion behind c3. I haven't had any test to see about the rest of my back. The side effects from the Avonex are so bad that I want to stop them, the pain from the m.s. , the change in my body, not being able to be a wife to my husband is almost to much for me to bear anymore. My husband has heart problems so I try not to complain to him much, plus he's not very understanding , and we have alot of stress on us all the time. If anyone has any help for the pain I'd love to hear from you. Guess I needed vent, Thanks So Much For Listening Annetta
- —Guest annetta
ms hug:(
- I find that my ms hug usually comes on acouple days before my menstral period, it can be overwhelming at times but only lasts for a few days. I read that the hormonal changes and the tempeture change can cause symptoms to flare up.
- —Guest becca
MS hug
- I have a lot of spacticity with MS. One of my first symtoms was pain around my abdomen, which at times was so bad that I couldn't move. Eventually I was put on 4 mg. tizanadine pills (which works directly on the muscle) ..2 pills 3x a day. It's worked wonders! I was very lucky to have a doctor who knew about tizanadine. Before I was on it, I often was unable to move because of the pain of the muscle spasm. I'm about 95% better on the tizanadine.
- —Guest heyyyjude
MS Hug
- To BxMS: I too have found that I experience the hug more often when hungry. I wondered if there was a connection too. Mine last a couple of minutes. The intensity is brutal.
- —Guest Guest
MS "Hug"
- OMG-I can't believe I just found all of your stories. I took my daughter to the ER multiple times for what she called a "pain attack". She was 14 and the pain was intense,searing,crushing pain and she could not breathe. We had the usual rounds of tests done, dealt with doctors who had the God-complex and told us it was everything from panic attacks to being overweight to being all in her head. We even had her gallbladder out, which made things worse for a while. In desperation, I went to a doctor who treats muscular dystrophy, and they of course blew her off. Today, my daughter is 19 yo and I am waiting to get results from her brain and neck scans. I started doing research and I am convinced they will be positive for MS. Every strange symptom from over the years are explained now. Things have recently gotten worse with numbness, weakness, etc, especially on the right side of her body. I can't believe we will finally get a diagnosis. At least we can finally name it and deal with it!
- —Guest Tmredmann
Ugh if anything else could go wrong?
- I have had MS for about a year now. I thought it was the flu I got to where I could not even walk! I was taken to the ER and they did test and found this in a MRI the ER doctor said it was MS. I went to my new doctor for this they did a spinal tap to make sure of the outcome sure enough I have it. He put me on Rebif which I have been on for the same about of time now! So now I am getting this pain in my chest and ribs I was thinking it was just bronchitits coming I get this easy but after looking at what others have wrote "MS" hug is what I am having. Don't get me wrong I love hugs but Geesh this is lil much! I need to call my doctor for my MS now and see what to do for the pain at night Advil works but when it wears off I am down again
- —Guest Jennie
Ms hugs
- On Tuesday, I cut my finger on a metal drawer at work. That night my feet we numb, only on the bottom. Wednesday, the tips of my fingers were numb. I saw my neuro on Friday and he thought I was having a relapse and told me to continue with Lyrical. Saturday I wake up to extreme tingling in my hands an feet. Sunday, I have a tingling band around my middle and sharp pains to my right breast. The breast pain started Friday. I mentioned this to Dr but he said it didn't have anything to so with it. The breast pain is my only pain. The tingling and the numbness makes me crazy. Love my Dr, but my research is better than his and that worries me. Since reading this site, I feel better knowing there are others and that I'm not losing my mind. I don't think the doctors are insensitive, they just don't know. He said if I'm not better in two weeks we will do iv steroids. I don't think I can live like this for the next two weeks. I hate this disease!
- —Guest Nessa
My hug goes into FULL BODY SPASMS
- I have Stiff Person Syndrome-SPS/MS has been ruled out twice yet I have a hemangioma lesion on T-10/11/12 IN middle of spinal cord. Genetic. SPS makes your muscles go rigid/stiff then results in complete body spasms. I have this so-called hug 24/7. MOST PAINFUL thing in the world. CAN'T wear a bra. Also affects esophagus. W/O Baclofen & Valium + pain meds I cannot STAY OUT OF BED! I am on extremely HIGH doses & it still does NOT help. Stretching does NOT help-makes it WORSE. It curls me up into a ball-barely able to breathe-I moan thru them, NOT of my own free-will. They turn into full body spasms which work their way down into the low back/butt/legs/into my toes. NO AMOUNT OF VALIUM STOPS THEM unless I'm been hospitalized with a Valium drip and nurses call me a DRUG ADDICT. I/V drip ONLY thing that helps/need . Dr tries to keep me with enough meds to keep me OUT of hospital. Helps but not always. I can tell it's coming bad when I get nauseaus. NOTHING helps except NOT to do a thing.
- —IWILLmakeitthru
New to Hug
- Wow, I was diagnosed in March 2011, I just now experienced the hug a few days ago, didn't know what was going on, all I knew was that it felt strange; it has always been said that there's nothing new under the sun, thank you all for posting your comments; for me it's not painful just annoying and different, now at least I know what it is.
- —Guest Dee
newly diagnosed
- ive been having this squeezing under my breasts,didnt know what it was.but can it also cause nausea and vomiting
- —Guest trouble3906
Does this happen with any other illness?
- Hello, I don't know if I have MS but my Dr has diagnosed an autoimmune condition based on the pain and fatigue I have been experiencing. Is the "MS Hug" only found with MS or other illnesses such as RA and Lupus? I have been experiencing what other posters have described for the past 6 months; worst of all in the mornings and easing up as I move and work during the day - provided I am not sitting or in one position for a significant amount of time. For me it is like wearing a corset 3 sizes too small; outwardly it doesn't look taut or firm and it feels as if my internal organs - liver in particular are pushing outwards. I have raised ESR and they are sending me to a rheumatologist.
- —Guest Ka'El
