whatdoes it feel like
- Most of the time I am just plain TIRED- others, I feel bad all over. Keeping a positive attitude, Yoga, swimming and eating right is the best you can do for yourself. I have MS, it does not have ME
- —Guest Sharon L-J
Drained
- Words can not describe how a person with MS feels on a day to day basis! I was diagnosed 2 and a half years ago. All i keep thinking is im just too "Drained" i cant do this anymore, and i have my whole life to deal with this! I wake up every morning and i give myself a pep talk, Dont stress out at work, Dont stress over money, or bills or family issues! I'ts just too hard not too, therefore my symptoms act up..Let;s talk about summer, all i keep thinking is , correction "daydreaming" i am on a tropical island with a slight breeze, cause if i stick around here all summer i would rather die..the heat is just unbareable to deal with... the shooting pains that feel like electric shocks, going up my arms and legs, i cant feel my face , scalp or neck..it just is a horrible feeling! i try to havea positive attitude but it only takes one symptom to ruin my mood for the rest of the day! I'm just sooo drained, when will it ever get better??
- —Guest Islandgirl
What it feels like to have MS
- The symptoms keep changing stress is is not possible to control-wish it were. One neurologist I had felt that stress brings it on, at time pins pricking me in legs and arms unable to control bladder -( botox bladder injections eliminate urgency and gain control-lasts for 6 months) fatigue easily walking can be difficult. foot drop, vision-cannot look left with both eyes (my right eye stops mid way causing looking further left have double vision) have had times of complete blindness at times have had double vision just looking straight ahead0so I no longer drive as I do not feel safe for others Slurred speech at times poor hand writing also get spastic leg when I lay down I feel like I don't have this unless RLS kicks in and I need to walk which can be difficultI have dreams that it stops and I can run up and down steps. but reality sets in upon arising in the morning. I know I appear to gave a good attitude and there are alot of people worse off but I shall keep on fighting the MS
- —Guest Bev
How does MS feel????
- I was diagnosed in 2004 after going totally blind in my right eye in 4 days. After 16 rounds of IV steroids, months later my vision came back to 20/20. Mentally there was no change, I was still ME...stubborn, strong, positive and happy. Physically, over time, the pain, loss of balance, falls and vertigo appeared. It reared its ugly head with no notice whenever it wanted to. MS now controls my body. I had to give in and accept that I cannot do things like I use to. Its ok, MS does not control my spirit. In the last year or so things got much worse. Fatigue that you cannot describe because it makes no sense to even me hits and stays around. It just makes no sense. The pain in my left leg when walking through a store is like a rake is slowly shredding my nerves so I cant walk for 2 days afterwards. I forget things. I walk & talk like I'm drunk. My vision is blurred. My future is uncertain. It may get bad, it may not. MS controls my body...MS DOES NOT CONTROL MY SPIRIT.
- —Guest Kim
I've ben lucky.
- I was diagnosed when I was 18 years old; I am now 52 and I am still walking and talking. But, because people see that, they think I am with out symptoms. I am in constant pain; anywhere clothes touch my skin, it feels like pins and needles. I feel the hair on my arm touch my arm. The migrains are at least weekly. I am thankful for every day, just some days areeasier than others
- —mjrpackfan
I've ben lucky.
- I was diagnosed when I was 18 years old; I am now 52 and I am still walking and talking. But, because people see that, they think I am with out symptoms. I am in constant pain; anywhere clothes touch my skin, it feels like pins and needles. I feel the hair on my arm touch my arm. The migrains are at least weekly. I am thankful for every day, just some days areeasier than others
- —mjrpackfan
Very Glad I have Benign "Stable" MS
- I have had only two attacks in 13 years. I have moderate to severe pain in my legs and feet everyday (I take pain killers), but still deal with it as best as possible since I still work full-time. I try not to dwell on the fact that I have a disease that has no cure -- what's the point? There really is no way to describe to someone that does not have MS what it is like. I really do not like the "pity" and even when I feel really crappy, I try to go through the day with a smile (sometimes a wince). To everyone out there with MS, hang in there. I know I am a lot better off than others and I think/pray for all of you. TAKE GOOD CARE AND REMEMBER, ATTITUDE IS EVERYTHING!
- —Guest Mare
Bullied
- It feels like I'm a weirdo attacked by highschool bullies. My cognitive processing is much slower than it used to be & everybody feel like yelling at me. It includes my family mbr.s, neuro doc etc. Interesting that all these sreamers are very decent w. everybody else. I believe people do not realize how MS crippled me since I still appear normal & can walk & talk [numbness & tngling & weakness & electric currents are not visible to others]. Previously I just laughed, but over the years it's starting to get to me. It's depressing ...
- —Guest Crybaby
Bullied
- It feels like I'm a weirdo attacked by highschool bullies. My cognitive processing is much slower than it used to be & everybody feel like yelling at me. It includes my family mbr.s, neuro doc etc. Interesting that all these sreamers are very decent w. everybody else. I believe people do not realize how MS crippled me since I still appear normal & can walk & talk [numbness & tngling & weakness & electric currents are not visible to others]. Previously I just laughed, but over the years it's starting to get to me. It's depressing ...
- —Guest Crybaby
MS MISERY
- WHAT DOES MS FEEL LIKE? like not being able to hook your bra & turn it around. Not being able to write anymore; to type with only 1 finger, not drive, not being able to pull your pants up, tie a shoe, cut your own food, cook, clean, drink from a glass, hold your fork, get in & out of bed, take a 5 minute shower, fold clothes, feeling exhausted all the time, trying to get muscles do what they are supposed to do, so on & so on. I was diagnosed in 2001, the last 2 1/2 yrs have been the hardest with the most decline. I am SPMS now, my neuro said that by abt 65 I should no longer see any more "new" symptoms (i'm 58 now)...can hardly wait! I've been on avonex,rebif, tysarbi,novantrone, ampryll & copaxone. I just went off all meds, they don't seem to be doing anything. Most people don't have a clue as what each day brings or doesn't for that matter. Thankfully i have a husband & grown children who are very supportive& helpful. Lets find a cur for this misery!
- —Guest kim
MS MISERY
- WHAT DOES MS FEEL LIKE? like not being able to hook your bra & turn it around. Not being able to write anymore; to type with only 1 finger, not drive, not being able to pull your pants up, tie a shoe, cut your own food, cook, clean, drink from a glass, hold your fork, get in & out of bed, take a 5 minute shower, fold clothes, feeling exhausted all the time, trying to get muscles do what they are supposed to do, so on & so on. I was diagnosed in 2001, the last 2 1/2 yrs have been the hardest with the most decline. I am SPMS now, my neuro said that by abt 65 I should no longer see any more "new" symptoms (i'm 58 now)...can hardly wait! I've been on avonex,rebif, tysarbi,novantrone, ampryll & copaxone. I just went off all meds, they don't seem to be doing anything. Most people don't have a clue as what each day brings or doesn't for that matter. Thankfully i have a husband & grown children who are very supportive& helpful. Lets find a cur for this misery!
- —Guest kim
Internet helps
- I print things off the internet and show people about MS fatigue (it is worse than other kinds of fatigue) I could hardly move when I had it. I print other things off the internet like tremor and weakness, and walking problems, side effects of Copaxone, and stuff about optic nerve. I have been blessed, all of my problems have gone into remission, not totally, but enough to let me enjoy my life. I hate it when people say "well you look healthy." I just ignore their ignorance.
- —Guest Michelle
What this is like
- What this disease feels like to me is that imagine that somebody gave you very distressing information, and told you that you cant share it with anyone. You are the only person who lives with this upsetting information, and you dont dare tell a anyone...and you know that without a doubt if you did tell someone they wouldn't believe you. Thats what MS feels like to me, bleeding on the inside but looking "normal" on the outside.
- —Guest Dawn
My Son has made me Strong
- I was diagnosed 6 months after my first & only child was born. It was hard but I knew I had to suck it up and do the best I could to set a good example for him that life isn't always easy or what we expect but you just have to deal with it. What's really hard is that I missed slot when he was smaller I..e. Rolling around outside or swimming (as anyone with MS knows if its hot enough to swim it's to hot to be outside) that's harder for me than being legally blind,unable to work,& in a electric wheelchair but I am in therapy relearning how walk. And very glad to say I have never had to have anti depressants even though ever Drr. I seen tried giving a script for them. I think thatMS is a hard disease to have mainly cause it's always there and will always present challenges but having a positive outlook & not letting this disease get the best of you will help you in the long run beat. this Mother!!!!
- —Guest Candace
what M.S. feels like
- It's been 4 yrs since my Dx. All I can say is M.s. sucks. It feels like my legs and arms have been asleep and just starting to wake up. U know the numbness and tingling when u sat on ur foot too long. And am wearing some reall scrachy gloves and long leggings.Like I've had a couple drinks , strong drinks on an empty stomach. At bedtimr I feel like I've drank a lot o caffine just before bed. I tell my kids I wish they could spend a hour in my body, they always look shocked and say NO!! I miss my life, hiking, walking my dog om 2 miles walks, running on my treadmill, my job as a Pharmacy Tech, my friends, the beach. I'm 57, dxd at 55, 5 yrs after my 20 yr marriage ended, but was just starting to have fun again, kids raised, rotten husband gone, just Me and fun. Oh well life is a beotch!!! Was able to retire but who wanted too!!! But noe I just struggle to do simple things, shopping for groceries, putting gas in the car, cooking!!! Now microwave. It could be worse. Progressive!
- —Guest susan
