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Julie  Stachowiak, Ph.D.

An Open Letter to Montel Williams from People with MS

By , About.com GuideJuly 10, 2012

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I have been so interested in the responses to An Open Letter to Jack Osbourne from People with MS and An Open Letter to Ann Romney from People with MS that I decided to send my love and admiration to one of my favorite people, Montel Williams.

Again, I urge you to share your thoughts and feelings with Montel, as a fellow person with MS, as someone who has always admired him and agreed with him - or not. Write your letter to Montel in the comments section below.

I'll go first:

Dear Montel,

I have admired you for many years. I'll admit that I never got the chance to watch The Montel Williams Show and daytime television really isn't my thing, so you were not huge on my radar screen until we had multiple sclerosis in common.

When I was first diagnosed with MS in 2003, it was hard to find things to read that "spoke" to how I felt. When I read Climbing Higher, I felt empowered, not because I agreed or identified with every emotion that you had or every approach that you tried to feel better from your MS, but because you put it all out there. You said it like it is. Multiple sclerosis is painful. Multiple sclerosis is awful. Multiple sclerosis does suck.

By saying this in your book and on television, you showed that it was okay to show emotion, and that by letting out the anger and sadness, it paved the way for being able to continue living. So many of the other things that I had read were either falsely upbeat or dry and devoid of all real feeling. I couldn't believe any of them. But, I believed you. And because I believed you, I felt that I would be okay. Different than I thought my life would be, but okay.

You also gave me the power to speak about MS in a way that helps me and I hope helps others - honestly and openly. Some things that I try work and others don't. Some days are good and some days are crappy.

Lastly, I want to say that I admire your stand for medical marijuana. It's not for me - my main issues have been fatigue and cognitive dysfunction, neither of which is an indication for marijuana (clearly). But, I like to know that it is there for people who need it. You have done much to remove the stigma of marijuana and even people who view it as "evil" have had a hard time arguing with your firm conviction (and demonstration) that it is a medicine that works.

In closing, I want to thank you for adding to my confidence around living with MS and setting the example that it is okay to tell the truth, even if it isn't always rosy.

Take care of yourself, my friend.

Julie

PS I waited outside of a poker tournament where you were playing in Las Vegas one time so that I could shake your hand, but eventually my fatigue caught up with me and I got too tired to stay until the end, so went to bed without seeing you... Sorry I missed it.

Comments
July 10, 2012 at 3:45 pm
(1) Alexandra says:

Beautifully written! And all true for me also. I was diagnosed in 2006, and for awhile my world fell apart as I struggled to think of myself as a “sick” person. A lot has changed since then, and Montel Williams has helped with that. So has Low-Dose Naltrexone, and so have you, Julie. I also do not have chronic pain and so have no need at this time for medical marijuana. But I do have issues with my feet, and I realize someday I might need it for that or other of MS’s myriad of symptoms. I pray that if I do need it, I’ll be able to use it legally and without stigma. Thank you, Julie, for all you do!

July 11, 2012 at 11:27 am
(2) Elaine says:

i have had me for 14 years now—and i HATE it
i tkae betaseon shots i have recently have surgery for bladder control(due to the MS whre they inplant and device and a couple ot wires to help the the message get to the brain that the bladder needs to empty. it really isn’t working as i thought it would and all—major walking problems—fall and lose my balance alot–
so i have a question to MONTEL—other then the pot smoking that helps him—what are his symptoms like and all
thank you
elaine

July 11, 2012 at 11:35 am
(3) Patrick says:

I first remember when Montel was diagnosed. I didn’t know much about the disease, but I was really in shock. I used to watch his shows all the time. A few years later I was diagnosed with the same thing. Now I know what exactly what he probably went through. The shock, depression and anxiety of seeing the worse case scenerios of other people. Although i have been able to adjust and make changes to my lifesyle. It does get frustrating, difficult and sometimes sends me into slight depression. Today I am eating healthier, going on long walks and givng my body a healthy dose of nutrition and capoxone. My days are good, I’m able to work, walk and laugh. That seems to keep me going….

July 11, 2012 at 11:35 am
(4) Susan Russo says:

Dear Montel: You always LOOK so healthy and well. It’s hard for me
(and I know how sneaky MS can be)- to believe you are ever stopped by this disease. I watched you on the Montel Williams show for many years. In fact, my niece, Kelly Stokes, was a guest on your show. She’s an attorney now! Back then, she was a young pretty blonde with much intelligence, but not much drive. That was then, and this is now. I was
diagnosed in July 1997, 2 days after my honeymoon. I have been through a lot. You are a role model, because of your phoneix like personality. I think you would have been that way w/o MS. I was married ten years, when my husband said he couldn’t live with MS anymore. He said he loved me, but not the disease!! As I tried to explain to him, it wasn’t like Peter Pan’s shadow that I could step out of.
I was 45 when I got married. Sixty-one now, but feeling like an old old woman. My greatest heartache is not feeling understood. People see you, vibrant and strong. They see Ann Romney, walking, campaigning and riding horses. Friends comment ALL the time. It’s like I chose to shut down. In the beginning I had collegues, friends, family and a husband who was very (seemingly) supportive. Now there’s just me and my faith, which sustains me. Walking with a limp has not helped my self-esteem. I’ve had to come off all disease modifying drugs. I am on LDN. So that’s my story. Even the MS Society doesn’t address the needs of those of us who are on own own. I admire and champion all you do. Thank you.

July 11, 2012 at 12:35 pm
(5) Patti says:

Montel, I Love you so much!! Thank you for talking about your M.S the way you do. You have helped me thru so much on how to deal with M.S. I wish you well & happiness & I Am so grateful for you!! God Bless :)

July 11, 2012 at 1:25 pm
(6) Brenda says:

Hi Montel, I would like to know how your MS has progressed or not since your book. You are an inspirational speaker. You are making living with MS look easy.

July 11, 2012 at 1:54 pm
(7) Kim says:

Montel; you’ve been a great source of inspiration during those darkest hours as well as the more positive times. Your living well books provided a great deal of insight and let me know I wasn’t alone. Thank you.

July 11, 2012 at 2:14 pm
(8) charlie says:

i was diagnosised in 2004,what a way to start my retirement.us navy for 23 years,now i have so much pain i can bearly walk to the mail box.i use a cane/crutches,looking at a schooter chair.unable to work,but i still try to do every thing i want to.some time it takes longer but don’t give up,i find support groups help.i now ask for help when i need it.wish every one well.

July 11, 2012 at 3:37 pm
(9) tracy says:

Hi, I know it might sound a little creepy, being that u have no idea who I am, but I was always interested in seeing how you were coping with ur M.S.
I was diagnosed in 1997, and luckily I haven’t had too many ‘bad’ relapses..(the worse one was losing my sight for about 7wks), I consider myself extremely lucky, because upto now I can still walk around and even went as far as having a new baby in my early 40′s.
We’re lucky to have such a wonderful ‘spokesperson’ for M.S, too many people out there no nothing about it unless someone famous has to deal with it. So Thank you!! It would be amazing to get the oppotunity to meet you one day.

July 11, 2012 at 3:54 pm
(10) Amanda says:

dear diary,

Today was the worst of all today early in 2005 i heard you have m.s. What? M.s. What is that? A disease in which like a horror movie will takeover your body you are a host to this life altering disease. I thought wow omg i am the only one seeing as i have never heard of this smashing anyones life like a wrecking ball until one day in which i never have done research about m.s. I gave up until that day, m.s. And montel williams ….. No he looks so good
theres no way he has it, i have watchef his shows and never knew that during breaks he would cry due to pain then wipe his eyes and continue the show after those commercials that try to sell u anything that would make the next one rich then more research montel has made me fight i mean take care of myself to live a normal life i got my behind off the couch started doing research moreon montel how when where why he has not been the main reason i give that to my kids however he has been the biggest eye opener the smack in the face i needed to fight m.s. Fight the leech tjat is sucking my days away, cause if montel can i can we can so thankyou mr montel williams for everything books, donations, testing, but most of all your VOICE

July 11, 2012 at 4:26 pm
(11) Lorraine says:

I guess I have a different take on things. MW is a spokeperson – yes. AND I agree that it is valuable to have information about this very unpredictable disease out there most definitely. However, when I was diagnosed in 2008, I read his book and instead of finding it uplifting I found it sad. I suppose the parts – and truthful they are for him no doubt – of his crying and upset on a very frequent basis, are true and real for him. However – and I put a caveat here as I am very lucky in really having pain as being my most frequent (daily) problem – and heat issues – my take is a bit different. I absolutely value every day and if it comes with some pain – sometimes pretty bad pain – then so be it. I have never let this disease take me to a dark place. We are thrown so many things in our lives and no matter the struggle we have to rise above and truly value each day, when you do this I believe you are truly beating the disease. Are all days roses and rainbows – heck no. Do I enjoy injections that make me feel like a truck hit me – not so much. Do I find more strength in knowing that I am being me and regardless of the discomfort move on with shoulders square and head held high – you bet. This is the strength that helps ease the pain. We don’t know what life will bring – so really MS is no different than life in general. We do what we can with the time we are given. Shed a tear if you must, but do not let the tears take over your life. My husband and I went away for our 20th anniversary just recently and where we went ended up to be VERY hot. Kind of sucked to have my leg feel like a lead appendage, but my hubbie slowed down, we rested and sat and admired the views – and it was great.

Best to all with MS and their families. There will be a cure sooner than later – just remember to live your days as best as you can at all times.

July 11, 2012 at 4:59 pm
(12) Kimberly McGee says:

Montel- you are so awesome and such an inspiration to those of us with MS. When I was first diagnosed 7 years ago, I thought my life was over. Then after watching you talk show and reading your books, I knew that this was not the end. Things were definitely different no doubt. But it wasnt the end. When you had you show, i had written a letter to you about my MS. I was so excited the day i received a call from a producer at your show asking about my MS, because you were going to be having a show on about MS. I was so hoping they would choose me to come and meet you. Unfortunately that was not the case. I feel the same way Julie does- I would love to meet you. You are so amazing. Maybe one day I will get that lucky chance. Take care of you :)

July 11, 2012 at 5:11 pm
(13) Rebecca Weeks says:

Dear Montel:

I too am one of those people that doesn’t watch much daytime television, though I have always admired you for what you do for people. I was diagnosed with MS 3 years ago. After my initial symptoms were diagnosed and I was placed on steroids, I was relatively problem free. Then about two years ago, everything spiraled out of control.. I now take a daily injection, opposed to the medicine that was just 3x/week. I’ve read most of the comments, and can relate to many, as this has been unlike any other roller coaster that I’ve been. I’ve had too many flare-ups too quickly. I am still walking (barely sometimes), have a 3yr. old, as well as 4 older ones, and a husband that’s active duty military. For anyone that’s reading this, any suggestions? I have so many questions about a disease that has so many unknowns. Also, I have been offered overseas stem cell treatments. What is your opinion of this? I am not a gambler, so opportunity, or not, I am not going to do something blindly. Thanks for your time!

Regards,

Rebecca Weeks

July 11, 2012 at 5:25 pm
(14) GF says:

Montel, thank you so much for being open with your MS. Few ever want to step up for fear of getting “the look,” sadness, or advice that is largely inapplicable to one suffering with MS (ex. thinking it is Lupus, etc.)–particularly if one is as high profile as yourself. Many can draw inspiration from you.

I am a 43 year old African American and was diagnosed in 1999; as of late, my symptoms seem to be getting worse. I try to be brave, and although i’ve tried to eat clean (gave up red meat and pork in the early 90s, typical junk foord in 2000) and in recent months, increased my supplements (D3 and Omega 3 at the top of the list), and have moved toward a raw food diet, but things are not good.

As a guy suffering with the disease, how do you deal with new symptoms? Do you feel “smothered” by fear and anxiety? Certain tests? I know I do, and there’s not much I can do about it.

One very important question I have for you–and yes, no one can act as online doctor, but as a fellow MS-er, what advice would you give to me if it has become nearly impossible to obtain new MRI scans? Between a series of painful spine issues peventing laying down for more than 5 minutes (honestly), and 2 cardiovascular issues preventing oral or IV sedation (for pain & claustrophobia), what options do I have–or ore importantly, what can I tell a neurologist who asks for a MRI?

Forgive my post–it was more personal issues than anything else, but this is an ncreasingly critical time, and any help would be much appreciated.

Again, thanks for adding a public face to a disease still brushed off as faceless, or that thing some people get.”

Sincerely,

GF

July 11, 2012 at 5:27 pm
(15) jack says:

inspirational Julie!! Thanks for the story

July 11, 2012 at 6:21 pm
(16) Lee says:

All the comments to Montel Williams regarding his MS, Makes me feel that I’m not alone. On those days when I feel I have only more pain and unhappiness to look forward to my husband says you have me to look forward to, we are in this together. To all MS’rs surround yourself with loving and positive family and friends. Know you are not alone.

July 11, 2012 at 7:26 pm
(17) Tiffany PRUITT Suffern says:

Reading these comments inspires me. I AM NOT ALONE.
I MAY HAVE MS, BUT MS DOES NOT HAVE ME!!!!!!!

July 11, 2012 at 8:24 pm
(18) michelle says:

Dear Montel,
When I was first diagnosed with MS I was scared and felt defeated. I read your book, Climbing Higher, after learning that you too had this life altering disease. I want to tell you thank you for putting your story out there, being an inspiration and giving hope to all who are facing large obstacles in life.
God bless today and everyday.
Michele E.

July 11, 2012 at 10:43 pm
(19) Amanda says:

Love you Montel! You are truly my super hero & I think of you everytime I have an MS issue, You inspire me daily. Keep up the good work!
I was diagnosed in 2005, on my 38th Birthday……………………. Worst day of my life…..

July 11, 2012 at 11:17 pm
(20) Mary Ann says:

I’m so greatfull to all that have come forward that have influence for being famous. To help us find the courage thru them to withstand living with this disease. Montel is on the very top of this list. To hear you speak of pain, makes me understand there truly is and I’m not losing my mind. Most Drs. act like there isn’t or it’s not that severe. Only those who have it understand. Thanks Montel for making me feel someone out there does understand.

July 12, 2012 at 3:02 am
(21) Amy says:

You”ve said beautifully what I’ve always wanted to say to Montel in your open letter. Now 34, I’ve lived with MS half my life. Noone knew what caused my symptoms, I was not diagnosed in 1996, my high school senior year, when they first began, but 5 years later on my birthday I was admitted for optic neuritis & got that blow for a bday present. Now, 17 years after my first major episode I’ve received another devastating bday blow. I was forced to resign a position as social worker due to my illness. Except they chose to look at it as something used as a crutch. They believed me to be under the influence of drugs. Despite multiple medication checks, passed drug screens, willing for a lab to do an in depth look at my medical history & med management. Instead of accommodations I was confined to my office to be watched. I’ve suffered from office gossip & ridicule, & outright insults from superiors, the ones that hired me knowingly. A recent addition is a diagnosis of fibromyalgia. The symptoms are similar, & along with my doctor careful examination showed I had both. I am now looking for a job that can offer insurance so I can get treatment. I can’t tolerate the shots well & have required several rounds of solumedrol in the past. I’ve embraced MS as a part of who I am & something that’s not slowed me down until recently. Now I suffer from cognitive dysfunction, chronic pain, anxiety, & a cornicopia of other symptoms that were worsened by a year of being in an environment where I was under a microscope, followed around while I was out on the job when they allowed me out. I felt like a child they hid in the attic. I’m at an all time low for the first time in 17 years my illness has defeated me. Was told to get on disability. I have not let it break me, was only defeated in this battle. I’ve more to offer, I work in human services, thats what I do best. I hope I’ve the strength to keep trying & ability to get insurance to cover treatment.

July 12, 2012 at 9:26 am
(22) Lori Batchelor says:

I was really hopeful about Montel being a spokesperson for chronic cerebrospinal venous insufficiency (CCSVI) as I know he had the venoplasty procedure about a year ago. I saw him speak about the improvement in some of his MS symptoms on Canadian television but he seems to have been persuaded not to be very vocal about it . This disappoints me greatly because I know how much it helped me as well.

July 12, 2012 at 1:30 pm
(23) Robin says:

Julie, thanks for posting this. You are a blessing to me.
MS does suck and I am strengthened by articles like this. Montel, I am sorry for your diagnosis and I am thankful for your honesty. Blessings to you!

July 12, 2012 at 7:56 pm
(24) N.K. says:

Thanks, Julie. Your blog is always a lifesaver! Thanks, Montel, for all you have done for people with MS. I was diagnosed in 1996 and was blinded for one month. It was as if I had had a stroke and was very weak on one side of my body. My parents let me come and recuperate at their home. They took very good care of me, and at the end of one month, I was much better. I have had several MS exacerbations but nothing as bad as the first one. I try to live every day to the fullest. Thank you again, Julie, and Montel. You have made the way a little easier for me!

July 12, 2012 at 7:56 pm
(25) N.K. says:

Thanks, Julie. Your blog is always a lifesaver! Thanks, Montel, for all you have done for people with MS. I was diagnosed in 1996 and was blinded for one month. It was as if I had had a stroke and was very weak on one side of my body. My parents let me come and recuperate at their home. They took very good care of me, and at the end of one month, I was much better. I have had several MS exacerbations but nothing as bad as the first one. I try to live every day to the fullest. Thank you again, Julie, and Montel. You have made the way a little easier for me!

July 12, 2012 at 11:30 pm
(26) Denise says:

Dear Montel,

I have watched your TV show when you told everyone that you have Multiple Sclerosis. I was saddened by that news. I have also watched you on Dr. Oz. The most recent show you had talked about ways of suicide because of the pain that is so excruitating. Please don’t go that route. I understand the pain you are in. I too have pain with my MS. From the moment I wake up to when I go to bed, I’m in pain. Sometimes the pain is so severe that I can’t even lie down, sit down or walk without being in pain. But I won’t let the pain win. I also have extreme fatigue and cognitive probl ems. My family doctor told me I should file for disability because I have such difficulty concentrating. I need to nap in the afternoon every day for 1-3 hours. And I can only sit for 20 minutes, stand for 20 minutes along with limited what I can carry.

So after everything I’ve written, I want you to know you are not alone. I truly feel your pain. I DO understand how you feel. Please take care of yourself, Montel, know that there are people out there that do care about you and understand you and most of all love you!!!

Denise

July 14, 2012 at 10:27 am
(27) Josh says:

To Montel
When I was diagnosed, I was still teaching. A student, whose mother has
been living with MS, gave me her copy of your book, Montel. I devoured that book, first it was out of fear, then as I read, it became out of a search for inspiration. Thank you, Montel.

July 15, 2012 at 2:42 pm
(28) Donna Holt says:

Hi I would like to say im glad ypu spoke out on MS I havent been treated for it yet but told I have thriteen lession on left side of brain.My whole right side goes numb starting from face down. I take hydrocodone the highest dose it helps some. I will have a little of marijuana it helps so i can clean house & get chores done. I thank you for that. I had a anut she had cancer the only way she could eat was smoke so marijuana so i no how it can help. Thank you

July 15, 2012 at 9:25 pm
(29) lisa watford says:

Montel Williams has been my inspiration. When I read “Climbing Higher”, I was so engrossed in the book that I could not put it down. I usually don’t like to read unless it’s something that really interests me. I was diagnosed with M.S. in 2008. My first flare up was actually in 1992 when I had double vision. The neurologist said I must have had a virus which caused nerve damage in my eyes. No MRI was performed. I had foot drop three times since then,which were blamed on stenosis of the spine. I had a great General Physician that kept up with my medical hx. When I presented with Numbness and tingling in my right arm and both legs. He phoned a neuroligist which agreed to see me that afternoon and he ordered an MRI that same day,which confirmed the dx. of M>S> I am so thankful for that Doctor and Neurologist that didn’t just pass it off as something less serious.

July 24, 2012 at 10:25 am
(30) JENNIFER CHAMBERS says:

This is so touching. I can’t begin to express words on how this moves me. I was diagnosed with MS September 16, 2007. I remember this day because I felt as if everything was taken away from me. Learning to walk and talk was just only some of the things I had to overcome. Before being diagnosed with MS I was a full time student at a community college and had to withdraw because of my symtoms. I already couldn’t walk, or barely talk, but I couldn’t remember anything so I had totally given up on school. It took tough love from my mom and support team which included my family and medical staff to get me back on my feet. After two years had passed I STOPPED feelin sorry for myself and tried on the thing I once called life. After taking the initiative to go back to school I was scared and nervous because I had been away and wa smakcked in the face with an F in prep chemistry because I didn’t give it my all. Needless to say, I am a junior who will be graduating from the University of Memphis with honores with a Bachelor’s of Professional Studies with a concentration in Health Service Administration .They say god will never put more on you than you can bare and I believe just that, I HAVE MS BUT IT ISN’T LIVING MY LIFE FOR ME, I AM. I am currently taking solumedrol as we speak, some say it brings them down, but after reading this post I am in such a better mood.

July 28, 2012 at 3:54 am
(31) Robert says:

I think most of all, that your appearance on Doctor Oz was too supportive of ccsvi, and could have sent people to become test subjects on a questionable treatment not recommended by most good doctors familiar with MS and science.

Other than that, good luck.

August 8, 2012 at 11:03 pm
(32) barbara st.cin says:

THANK YOU..THANK YOU for speaking my sentdiments on Piers Morgan…My husbnd of 50+ yrs was dxd’d with SPMS in 2006..after years of all the MS symptoms..(Dr said he’d had it 12-15 yrs prior to dx..He is a now retired minister…hasn’t walked since 06….I went from pastors wife to caregiver overnight….No complaints….we are very blest..however,the politics going on is very disturbing to us….YOU HAVE SPOKEN THE TRUTH SO PERFECTLY….it renews our belie f that there are still leaders out there who are listening…..Please…..repeaat your convictions as loudly and emphatically—with the same attitude—as much as possible…..America needs a leader who will speak as you spoke…..At this time…we have found no candidte we feel we should vote for….Your MS has certainly made you aware of the needs around us….BLESS YOU and THANK YOU

August 9, 2012 at 1:13 am
(33) GAYLE KOBLISH says:

dear montel, you were my hero before you told the world you

had ms, but i found out 1 yr later i have ms. i radiate positive

energy and always try to help any one who needs help. i

totally agree with you without marjarjania my pain is much

worse and sneaking aound sucks. hope i survive. hey ,

montel i think i talked to you when i used to work for navy

ships parts control center mechanicsburg pa, i had a

ciruit card air shipped to your silent ship which i think was

a dd or ddg, big boys, i worked in allowance and remember
telling you i never heard the name montel. i have never
heard it again. i would love to talk to you about the
navy, i loved my job, i loved the navy, i had to retire cause
i was losing my mom , only family, losing my husband
a vietnam vet from stragic air command. death sucks
montel when your 53 yrs young and have no way to meet
any body with out danger. contact 717-652-7153) be up montel
p.s. please come back on television i miss your show everyday……
montel am i strange is family guy the real cartoon is my
favorite show? no, i didn t think so
t

August 14, 2012 at 8:01 am
(34) Maritza says:

I was diagnoised with MS on July of 1999 (the same as Montel). I was one of those people that if you seen me you who never known of my illness. Because of that I was in denial about the whole thing of having MS but it was until recently that it totally took over my life. In between the stress at my job and the stress of being recently divorced I had to make a change of my lifestyle to better myself. I went out on disability from work which was the best thing I ever did because it gave me the chance to focus on myself, Right now I’m a little slow in walking and using a cane but let me tell you something I REFUSE TO LET MS TAKE CONTROL OF ME!!! My goal right now is to walk faster then eventually jog. I’m currently doing aquatic therapy at the local YMCA and that beginning to help. I’ll urge everyone to never give up. My challenges in life has made my more spirtual and whatever I can’t handle I will leave it up to God. With my faith and belief I know He will take care of the rest.

September 4, 2012 at 12:35 pm
(35) amanda barnes says:

I feel so bad for all the people that have ms. I also have ms, lupus, rumahtoid arthritis, osteo arthritis, degenerative joint desease,. Im only 32 and have 2 beautiful girls that i try my best 2 take care of my oldest is 12. She unfortunately takes care of me more than i do her. My 9 year old worries about me so bad that she has 2 sleep with me at night 2 feel better. I try my best 2 hide my illnesses but thats hard 2 do when u wake up and dont have the stength 2 get up out of bed and when you go to the bathroom u cant even get off the toilet without help. I think that they would be better off without me. I got my disabiltity but its still not enough 2 take care of them. 496. Dollors aint enough 2 take of nobody. The more i fight it the worse i get. What 2 do? woul love 2 go back 2 work and take my girls 2 the ocean in malibu. I know thats not going 2 happen. Just want 2 be able to hold there hand and walk beside them & enjoy there smiles and laughter seeing the ocean for the first time. Was going 2 take them when i got my back pay but i wont get that till this time next year. Time is one thing i dont have. I have to have a total hip replacement. Please keep me & my girls in your prayers. Thanks.

September 26, 2012 at 2:39 pm
(36) lem says:

i have been mentally ill for 25 years. tried to commit suicide all the time . i have been i many hospitals and finally put in a mental health facility….Have had severe side effects from my meds. the only thing that worked was pot. without going through the horror story I need pot now but live in Fla and can not easily obtain it. I am tired of wanting to die and this is a matter of life and death..i have to go out on a limb. if anyone can help me abustorm@yahoo.com please help me live with the help of pot. Thank you.

October 7, 2012 at 7:15 pm
(37) Corpexcel says:

Thank you for sending this letter. I’m also dealing with a pending ms. I have so many bad days but his story gave me hope. Im on the best bet diet, I take all nerve related vits ( b12, vit d 1,000, fish oil,ldn, garlic, ginger tea, nervefix, whey protein, krill oil); I do acupuncture once a week and workout when I can. I only say this because it’s important when your sick to try everything you can to feel better. I could not walk or see for a month. My doctor put me on all of these supplements not drugs and now I run 3miles. It took 6months and I’m not sure if it helped but I know I did not hurt. May god bless you. You are not alone.

November 4, 2012 at 5:37 pm
(38) Sandra Farley says:

Hi Mongrel. I don’t have MS I have RAy which is also an auto immune disorder. My problem is I can’t get any treatment or meds since Ford motor company fired me after nineteen yrs of service. I had a flareup in April of 2011 and weren’t out on medical leave. They said I didn’t turn my medical papers in on time so they fired me. They were turned in on May 5th and I was fired on May 6th 2011. I’m collecting my medical leave pay but have lost all my healthcare. The union is fighting for my job but now the company is saying I was on too much medication to work. I make to much money to get help
but not enough to get any meds. My Orencia infusions alone cost $3000. All the damage being done to me is irreversible and I can’t stand the pain, fatigue and weakness. Do you have any suggestions for me? I would really appreciate anything to help. Thank you so much. I know you feel my pain.

December 19, 2012 at 4:09 pm
(39) girlpower says:

Montel, i remember your story about walking from a hot casino parking lot into the very air conditioned entrance door, and falling on your knees, yes i feel the heat in the same way it consumes me, i have to limit my time outside when its over 80, i also have a cooling vest that i fill with ice packs which helps me, although the rest of my body feels the heat. Once after a 3 hr in the shade, at 93 degrees, wedding, i had 19 days of severe vertigo which only stopped when i had three days of steroid infusions. So i well know to take care of myself. I got to retire and just recently published 3 books from my journals in the 80′s, without getting MS i wouldn’t have been able to have the time to write. I worked 35 yrs in service to people with disabilities and would have worked till i was 80 if i could. Getting to retire early is really a blessing. Also i want to thank you for being a role model for me. I always loved your show when you had the woman and man who could see spirits, their names escape me now but you know them. I truly believe all they are saying, they have such a gift.

December 30, 2012 at 3:07 am
(40) Matthew says:

Dear Mr. Williams,
I was teaching for 22 years. I greatly miss it as I was diagnosed with ms on September 11, 2012. The ms has given me a daily battle with chronic fatigue and cognitive problems with multi-tasking, short-term memory, and mental acuity down to 90%. The biggest disappointment is my 20-year-old daughter. She has chosen to ignore my disease and not support me with love and care concerning it. She thinks that not discussing it makes it better. Of course, she is wrong. Also, I gave her the best childhoodhood and the best private schools available. She did not get to UCLA by accident. She is treating me like garbage and trying to tell me what to do. She is totally out od control. My wife and I need marriage counseling and my three children need family counseling. My daughter is taking but not giving. She is selfish, self-centered, and totally arrogant absorbing herself in her self and what is good for her. She couldn’t care less about me. What a spoiled, ungrateful, disrespectful brat! My wife is still with me but she is totally burnt out after only 3 months of this! On top of this, my 86-year-old father moved in and he has really taken over a lot of my wife’s time, my son’s bedroom downstairs, the bathroom, and he has screwed up my marriage and family by taking advantage of the situation and my wife-not to mention being totally self-centered and bossy and controlling. He gives $3,000 a month but he is not worth it for what he is doing to my marriage, family, and home. Copaxone doesn’t cure. I want the stem cell treatment either in Israel or America a.s.a.p. I want my life and job back and I want to tell my daughter to respect me and chip in. My daughter is doing all she can to get my wife to turn against me. You never know the true essence of the woman you marry until you get sick with a disease like this.

March 4, 2013 at 10:06 am
(41) Bob Rodriguez says:

Mr. Williams, I keep looking and looking and looking and looking in the internet for information on the status on your physical condition since you had the MS treatment and I can’t find anything specially from you personally. Why is that? Is it possible that you have been on a road to complete recovery and are not admitting it. Why have you not come out and give MS people information on your current condition? They all love and believe in you. I hope this has nothing to do with you being a spokesman for the industry that stands to loose a whole lot if the simple procedure you had is allowed to be performed in this country. My daughter has MS and together with my wife have an incredible faith in you. So, Mr. Williams, could you be a gentleman and with no fancy talk, please come out and give us information on your current physical condition? Thank you very much.

March 15, 2013 at 5:44 pm
(42) Julie g says:

I Have wanted to tell you for the last few years what a god send you have been to so many with MS. I to was diagnosed with MS in 2005. I have not
Been on any type of therapy since 2006 due to the price of the medication. I work in a family practice office for the last 10 years and have been doing well. Over the last 2 months have been stumbling more and more as my left leg is getting worse.i am not able to afford my medication.i wonder if you would know how I could get help with that? Thank you! Julie G

April 24, 2013 at 11:43 am
(43) carol dupree says:

Dear Montel, i found out i had MS in Ha. In Oct 2000. I came back to ca. Went through severe depression till 2006. then i started to live again enjoying life untill safeway in hilo, hw had me arressted for felony thef 2. You see ,i had money wired to me from my boyfriend fwther. The safeway western union made a mistake wnd gave me someone elses money, weatern union told ke dont worry aafeway made he mistake, they hwd to cover it and not hwrrass the customer for it, well i got harrssed the day after i found out i had ms. 7 yrs later i was arressed in redwood city, ca held without bail for 2 weeks, extradited back to Ha., handcuffed and shackled on TWA wirlines, the list goes on and on. About 14 of my civil right were violated, wittnesses lying to the grand jury, withholding vital information l montemontefeom the granr jury,the prosecutiny attorney wnd my lawyer lieingng to me

May 15, 2013 at 10:54 pm
(44) Whitney says:

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