I have some questions that I am dying to know the answers to and am hoping that some of you will share your story with us:
- For those of you who have gotten treated for chronic cerebrospinal venous insufficiency (CCSVI), what was your doctor's reaction when you said you wanted to get the treatment?
- Did your doctor participate in helping you find a place to get treated?
- Did he or she communicate with the doctor who performed the test and/or procedure?
- How did your relationship change after getting the treatment?
- Has your doctor been interested in your progress after the treatment?
And, for those of you who are just considering treatment for CCSVI:
- What did your doctor say when you brought it up?
- Do you expect any support from your doctor if you move forward with the treatment?
I am just very curious to know if docs are actively participating in their patients' medical care, even if they may not agree with the choices that their patients make, or if they tend to "wash their hands of the matter" (and of their patients) if the patient pursues CCSVI treatment. In my opinion, even if docs do not agree with their patients' choices, they still need to pay attention to what their patients are doing and what the results are.
Please share your story with us in the comments section below.