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Julie  Stachowiak, Ph.D.

Complementary Medicine for MS - What Have You Tried?

By July 19, 2011

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Most people with multiple sclerosis (MS) try some form of complementary and alternative medicine (CAM). In fact, I bet pretty much all of us do something at some time that our doc has not necessarily prescribed. Check out this article and see if you don't see something you have tried in the past: Use of Complementary and Alternative Medicine by People with Multiple Sclerosis.

Now, 'fess up. What CAM approaches have you tried in the past? Did they work? Are you still doing them?  Did you tell your doctor? Share your story in the comment section below. No matter how weird it seems, I can guarantee you that someone else reading this has tried it, too.

Comments
July 19, 2011 at 4:04 pm
(1) Terry says:

I’ve used acupuncture and followed a Naturopathic vitamin /diet as well. They didn’t help, as I had hope they would. But each individual responds differently…

July 20, 2011 at 2:29 pm
(2) Silvia says:

My husband used acupuncture but after 3 visits he didn’t want to go back. He started sweating very bad, and fainted 2x and he never went back. He has PPMS. They told him his body rejected the acupuncture. Too bad, anything to ease his pain.

July 20, 2011 at 1:22 am
(3) Emily says:

I’ve never tried a ‘conventional’ CAM but I do find a daily self-prescribed dose of Galaxy chocolate helps :-D

July 21, 2011 at 11:44 pm
(4) anindita says:

Hello Emily, I am Anindita. I have Ms since 2006. I would be grateful if U tell me how exactly chocolate helps you, as my doctors have forbidden me chocolate alongwith dairy, bakery , non veg and deep-fried foods. Do your symptoms reduce? Do u have less fatigue?

Thanks.

July 22, 2011 at 12:48 am
(5) PHIL GILMORE says:

There is SOLID research on the benefits of chocolate. It is indisputable. HOWEVER — each on of us is indeed our own very-unique GENETIC PROFILE. And therein is where YOU may have some problem that your docs are alluding to. BUT you MUST
discuss it explicitly w/ them and they need to be able to point explicitly to some reason why chocolate should be off-limits for you. OTHERWISE, it may indeed be Ok for you! Address it explicitly, get THE answer, and then you can decide.

July 20, 2011 at 12:23 pm
(6) Cici says:

I lost use of my right hand which was very ‘inconvenient’ given that I am right handed, work w/computers and have a stick shift car. 6 visits to a Chinese / Chinese-trained acupuncturist solved it.

3 years later my typing speed is back up to 70 words / minute (a little less than previous but acceptable). My neurologists didn’t approve as they believe accupuncture can stimulate the nervous system which is counterintuitive for MS. At 38, I was not willing to accept loss of my right hand.

July 20, 2011 at 12:30 pm
(7) alexandra scott says:

I use my brain, heart, feelings, and take care of myself in doing exactly what feels right in everything in my life,, sometimes like a tiger or a lamb or just staying cool and spending time with myself and eating very well and drinking lots of wine at meals and if really having a big sudden relapse I take cortisone, for a short time,,but this has worked for me for 40 years and I call myself “normal” and don’t take all the “doctors ” advice,,just listen and take what feeeels right.
No meds ever, except cortisone in 40 years, watch how it works for you!
Be free it’s fun and alls okay even with a few symtoms,, LIVE Life is to short if you don’t NOW.!

October 15, 2011 at 5:57 pm
(8) Janet says:

Cortisone creme? Pills? Would like to know as my husband got off the copaxone and antidepressant and has been on vitamins and is doing SO much better…

July 20, 2011 at 12:41 pm
(9) Nikolay Dichev says:

Julie, are you aware of the complimentary part of the Rocky Mountain MS Center – http://livingwell.mscenter.org/complementary-care.html

July 20, 2011 at 12:51 pm
(10) Kathryn Bauch says:

As of recently I have been getting Acupuncture for about the last 2 months. At first weekly, now about every 2 weeks. I’ve had severe IBS for years, and finally my stomach has calmed down. It’s also been good for localized pain and general relaxation.

July 20, 2011 at 12:55 pm
(11) Ben K says:

I’ve tried acupuncture, with minimal sucess.
I’ve taken turmeric everyday since about 2004, and haven’t had a flair up since then. I don’t take anymeds at all. I think it stopped the disease. I take around 2 grams/day.
I also exercise a lot. I used to get numb from heat, but not anymore.
Except for numbness in my right hand and arm, I have no symptoms of MS anymore.

July 20, 2011 at 3:13 pm
(12) Donnamac says:

I take Turmeric as well. And I read someplace (and don’t recall where….) that it needs something to “bind to” to allow toxins to be pulled out of your body, and one of the good ones to use is Bromelain enzymes.

My last MRI (I’m new to this whole thing) showed no new lesions and less white matter.

Was it this? I have to assume so. I was on Copaxone for a short time prior to the subsequent MRI….I was on the Turmeric/Bromelain since prior to the “definite” diagnosis.

July 20, 2011 at 6:50 pm
(13) Judy says:

Do you get turmeric/bromelain at the vitamin store or where? I have not heard about this therapy. Thanks for any information.

July 22, 2011 at 1:02 am
(14) PHUIL GIMORE says:

Have had MS for 17yrs (male, a: 64).I too take TURMERIC (7gms/day). In fact I am on a what can only be called a heavy nutraceutical/alternative regimen. I am clearly a devotee of complementary methods. BUT BE AWARE: they ARE meds, so to speak. They have definitive, observable, biochemical systems-responses to their being taken. They really do work. The antip-athy that many in “conventional” medicine have for it is due to lack of training and knowledge, no ‘detail rep’ calling on them pushing them, and fear of being sued over “untried” methods
that might not work for a certain persons. After all, NOTHING works for everyone,including an alternative modality. “The dark”
has always been the cause of a great deal of pain and suffering

July 20, 2011 at 1:03 pm
(15) Dawn Gusty says:

I’ve had two adult stem cell treatments. I follow a very strict anti-inflammatory diet, I juice daily, take loads of supplements, and will do whatever comes highly recommended to me by alternative leaning doctors and/or my nutritionist. I take glutathione and B-12 injections 3x/week. I would do hyperbaric oxygen but I don’t have the resources right now (It’s very expensive!!). I’m not really seeing my nuerologist anymore. I don’t see the point. He does nothing but follow thw text book. I’m a unique case so I take charge of my own healthcare.

July 27, 2011 at 7:49 pm
(16) Connie Bendell says:

Dawn – if you don’t mind my asking, how are you a unique case? My neurologist is STILL working on my diagnosis. I have about 20 brain lesions and compression of the spinal cord in most of the vertebra in my neck. I have completley lost feeling in both my arms and my left hand. I have been suffering for at least 7 years with periodic symptoms. GERD, I have had Ulner nerve neuropathy…which should have been investigated further when it came and went…Anyway, I hope to find out soon. Had a spinal tap last week and waiting on those results. Thanks

July 20, 2011 at 1:25 pm
(17) Carol Rocha says:

I have tried acupuncture with three different doctors-felt no change in symptoms. Have had massage therapy-no change in symptoms. Hypnosis-no change in symptoms. Cranial sacral therapy-no change in symptoms. I do take a lot of vitamins and nutritional supplements along with my disease modifying medication. Has been almost three years since last relapse and my neurologist states I have less inflammation and many lesions show healing. So, I feel my nutritional supplements have been a positive thing for me.

July 20, 2011 at 9:46 pm
(18) Cindy says:

Hi Carol. I take a lot of supplements too. I am curious what you take and the dosage. I haven’t had a relapse in 2-1/2 years and will do anything I can not to have another. If you are healing your lesions, I want to know how so I can do it too. I know the lesions are what causes the numbness and if I can heal them in anyway, maybe I can improve my numbness. Thanks, and take care.

July 20, 2011 at 2:05 pm
(19) helga says:

Chocolate helps me too Emily!!

July 20, 2011 at 3:22 pm
(20) Donnamac says:

Chocolate is GOOD MEDICINE no matter what!

July 20, 2011 at 3:14 pm
(21) Mary Beth says:

I keep to a gluten-free diet even though
I have not been diagnosed with Celiac’s disease. I tried an elimination diet and noticed a big improvement in fatigue being gluten-free. (Excessive carb intake has always made me sleepy.) I am also taking Omega 3 fatty acid supplement in the form of (mercury free) fish oil for its anti-inflammatory properties. I would do massage regularly if I could afford it. I always discuss the CAM I am using with my neurologist.

July 20, 2011 at 3:21 pm
(22) Donnamac says:

As posted above…I’m relatively new to MS…was diagnosed last fall and I started Copaxone injections in February. I am a big believer in Essential Oils and I use Lavender EO after my injection site has been iced. Lavender EO is the “queen mother” of all skin issues…so it stops the pain (quicker than none at all) and makes the welt go away, etc….PLUS, I get the added benefit of the aromatheraphy. Lavender is well known for it’s de-stressing and calming effects.

Also, I used Peppermint essential oil for headaches, tummy aches, etc….headache, you rub it across the back of your neck, temples, and/or forehead if need be. Tummyache…rub a drop on your tummy. I’ve also used it on “lumps” I’ve noticed the next day after injecting…as it will draw the blood to the area where it’s put….and that helps eliminate that issue.

Wintergreen oil is fabulous for muscle issues. I’ve had muscle spasms, and Wintergreen oil is the cure all for that!

EO’s can be used straight, or with a “carrier” oil. I don’t go anyplace without my oils. I use several others as well..but this is a great start!

July 20, 2011 at 4:26 pm
(23) Eric says:

Stopping Rebif. Feel worse on it than I did off of it.
Going to try med free for a couple years and see how it goes.

I currently use Marijuana for spasticity and pain and handful of vitamins daily.
I am not a criminal.

July 20, 2011 at 9:58 pm
(24) Cindy says:

Eric, I’m not a criminal either and anything out there that can relieve symptoms of any disease shouldn’t be illegal. I personally believe it should be grown the same as any other crop and sold in the grocery stores. And just like liquor…if you are intoxicated don’t drive. I’d be happy to relieve MS symptoms. If I could get it legally I would. Even if I could get it illegally and not get caught I’d probably do it and get rid of the evidence as fast as I could. lol

July 21, 2011 at 12:16 pm
(25) Kim says:

Eric, I also smoke marijuana for all of my MS symptoms…I was on about 12 different Meds on a regular basis and I was just getting worse…so I stopped EVERYTHING even the CRAB +Tysabri, now my neuro is “concerned” but I have to go with what makes me better and stooping all the “prescriptions” was the answer for me, I am able now to have a GREAT quality of life but the only thing that interfers is the fact that “they” have made a plant illegal! What a shame!

August 7, 2011 at 2:37 pm
(26) Darla says:

I also find that medical marajuana is the best relief i can find for a myriad of my ms symptoms, I also eat healthy alot of raw foods, and i see a chiropractor often. I am considering acupunture but live in a small town in the midwest and would have to drive quite a ways to see one. I have been on avonex, tysabri, and copaxone. now i am on gylena. i feel im just about out of options.

July 20, 2011 at 4:40 pm
(27) Laura says:

I’ve had MS for over 25 years. After 14 years of trying holistic I did one year of Avonex (responsible thing to do when you have kids..right?). I’m back on board with holistic self care and NO shots. I never really beleived in the shots and it left me with a headache. Even after a scary exacerbation 3 years ago – I simply strenghtened my focus on self-care (diet, excercise). I’ve been Gluten Free for seven years and focus on healthy eating. Excercise as much as possible. My goal is one mile on the treadmill per day (kids tell me I’m slow – I laugh – at least my heart rate is up (I’m moving -they’re not!!). Jogged (“fast walked”?_ one mile today – much more energy!

I still feel the MS (occasional extreme fatique, numb legs) but I continue the journey for improved health and am optimistic!

Try it. It can’t hurt. Good luck!

July 20, 2011 at 5:49 pm
(28) Deb says:

I was diagnosed 5.5 years ago. I have chosen to do no meds. I immediately began the diet developed by Dr. Roy Swank which many people have been using with much success for as much as 50 years. I later learned of the work of Dr. George Jelinek and 1 year after diagnosis I became a vegetarian. I do yoga and/or tai chi several times /week. I get acupuncture treatments about every 6 weeks. I take vitamin D3, fish oil, flax oil a probiotic and turmeric. I have never relapsed since my initial episode over 5 years ago and my last MRI (4 yrs ago) showed all lesions had reduced in size, some were nearly gone.

July 20, 2011 at 8:53 pm
(29) bob says:

I’ve written on this subject before but will write once again. I am a seventy year old male who was diagnosed with a progressive form of MS in 1995. Even before my diagnosis, I was using acupuncture once a week along with exercise and yoga at least three times a week. I’ve taken no drugs for the MS. I had the liberation procedure performed in February of this year and the results have all been good. One benefit I think I’m seeing (forgive the pun!) but is an improvement in my eye site. About two years ago, I was diagnosed with BRVO in my left eye and CRVO in the right eye and have been getting shots of avastiin in the right eye every two months to clear the vision. I have an appointment with the eye doctor next week and am hoping they tell me the right eye does not need the avastin. This would be a huge upside of the liberation procedure for me. A positive attitude goes a long way toward dealing with this disease too.

July 20, 2011 at 10:10 pm
(30) Cindy says:

I take lots of vitamins too, especially 5000 mg Vitamin D everyday. I also take Mega Red Krill Oil. Since so many of you recommend Chocolate and Eric recommends marijuana, I’m seriously thinking Special Brownies may be the cure to MS. LOL

I would also like to know if anyone has tried Bee Venom therapy. I have tried to find a bee keeper that will administer the stings, but I am unable to find one in Southeast Texas.

July 21, 2011 at 6:34 am
(31) thielke says:

Hi Cindy

I had apitherapy done & I live in SA.It did first help a bit,then I had a terrible reaction to the stings & haven’t been back since.My bosses nieghbour has ms & stings himself daily & you’d swear he doesn’t have ms.I think everyone responds differently.

October 7, 2011 at 1:37 am
(32) debbie butler says:

Are any of you that use the bee stings, allergic to stings? would it hurt me since I am allergic to stings? I am learning so much on here.
Thanks

July 21, 2011 at 12:16 am
(33) Darlene says:

I take vitimins D3 & primrose oil fish oil & multies. But if i wa to say whats jelped me I’d say it was Kalawalla its 100 % natural. I’ve been on it for just over 2 yrs & i take copaxone too. They work well together. I’ve gone in 3 yrs from walking on a walker to using a cane to walking alone inside only. atm cause i suffer from bad ms dizzyines. But i feel great. My triedness is low. heat doesn’t bother me alot. I suggest Kalawalla to every1 i meet with ms. New drugs may help my dizzyiness when i can get them. But i feel its only a matter of time till they fix us. I’m waiting for stem cell treatment in Austrlia. Its not here yet if to expensive to it overseas or i would get it. Best of luck every1

July 21, 2011 at 4:31 am
(34) anindita says:

Hi Darlene,
I stay in Bangalore, India. Can your kalawalla provider tell you about their outlet in Bangalore? Also, what symptoms of yours were cured by kalawalla?

Thanks a lot.
Anindita

July 21, 2011 at 12:40 am
(35) Lisa Shinkawa says:

Acupuncture has helped me to alleviate my bladder control issues and improved my standard of living significantly as a result. Currently I am seeing an herbalist who treats many people with MS and he has prescribed a tincture of nine different herbs for me. Not sure yet about the results of this but, theoretically it should help.

July 21, 2011 at 1:44 am
(36) Anindita says:

I have RRMS since 4 years. I was disease-free for 4 years. Then, I had a severe relapse in Sept 2010. I took Prednisolone IV for 9 hours , then oral for a week. Was disease free for a month. After that went to an Ayurvedic doc. Meds were painfully slow but cheaper than allopathy. I changed my doc for slowness of meds last month and the new doc seems better, esp my stomach malabsorption issue seems better than a month ago. I have weakness and shakiness all over my body. I walk with a limp.
I feel very depressed as nothing really works.I am doing Yoga Mudras under an expert’s guidance. She says I will be cured in a year. I got a body that does not respond well to most meds and therapies. I tried blackseed oil from Mar 2011 to June 2011 as someone in a web health forum has got a complete cure…no change in me however. Well. From last week I am doing Brain Wave vibration. An American lady with PPMS has got amazing results.
U will find the video in Youtube in the Dahn Yoga section. I am on a no non-veg, no dairy,no bakery low fat diet as my doc says that is the only his meds can work. Every doc seems to have a different take on MS. Such a chaotic scenario!! Giving up my food is the toughest part. Iwill try the chocolate therapy. I love chocolates which I am forbidden now.

July 21, 2011 at 3:08 am
(37) Isha says:

Hi Anindita,

Can you please tell me about your Ayurvedic doctor?
Me too was diagnosed with MS in 2009. Till now I had 3 relapses. I’m looking for CAM although my neuro is suggesting Interferon. But I’m not willing to take Interferons.

Please let me know the address of the Ayurvedic doctor and how much benifits you are getting through his medicines.

I tried A U Ramakrishnan (Chennai based Homoeopathic doctor) but there was no improvements. Infect I was feeling more complications after starting his medicines.

I’m also taking turmeric & cinnamon and feeling better but numbness is still there.

Thanks & Regards,
Isha

July 21, 2011 at 3:23 am
(38) anindita says:

Hi Isha,

My doc is in Bangalore, Dr. Chandran, Kerala Ayurveda, Indiranagar.Address: no 3282, 12th main road, HAL 2nd stage, Indiranagar, Bangalore — 560038. Tel: 08025262515 Before that I was with Patanjali, Indiranagar, Bangalore….aft 8 months very nominal results.

I started Kerala Ayurveda in end of June 2011 aft 8 months of patanjali on a friend’s advice. MS is a very tricky disease. Aft my diag in 2006 i was fine after oral steroids. Then I was on homeo treatment for 4 years to stop relapse during which time i developed stomach malabsorption in 2009. After that i relapsed with leg paralysis and right eye vision prob in Sept 2010.

But a friend of mine MS patient in Bangalore is getting very good results from homeo in Bangalore itself.

My malabsorption is improving aft Dr Chandran’s meds tho i am on a horrible diet. Next will be shirodhara in mid August.

U have to try his meds and see for yourself. In MS what works for one need not work for another including allopathy.

All the best,

July 21, 2011 at 3:28 am
(39) anindita says:

By the way Isha how exactly do U take turmeric and cinnamon? Are they capsules or the ordinary stuff we can buy in supermarkets and neighbourhood grocery shops. I have bad shakiness and weakness in body esp if i move:( and dizziness, dry mouthm burning eyes, limping gait. phew!!
My life is turned upside down by MS.

July 21, 2011 at 3:10 am
(40) fghgfh says:

sdfsadsadasdsadsadsadsad

July 21, 2011 at 1:51 am
(41) anindita says:

Hi Darlene, I am Anindita (refer above post of mine).

I am in Bangalore, India. Can I get Kalawalla here? I have heard a lot about it. Want to try it to cure my MS and horrible symptoms.

Where did U buy kalawalla from? Do they send the med abroad?

Many thanks for your help in advance.

July 21, 2011 at 2:49 am
(42) cindy says:

Switched my acupuncture from a chiro who did acupuncture as a “side” to a licensed acupuncturist and the difference is amazing. go every 2 weeks..99% of symptoms are gone and I have my life back..she is big on a no meat diet with multiple supplements which i initially resisted but find i do feel better. acupuncture also reduced my 30 year smoking habit from 1/2 pack a day to 2 smokes a day…key is that the practioneer has to be licensed (usually had 2000 hrs of study)..

July 21, 2011 at 6:36 am
(43) thielke says:

Is anyone on Azathioprine/Imuran ??

July 21, 2011 at 8:07 am
(44) Cas says:

I am a Reiki Master,and use Reiki daily.. Reiki is very relaxing and I find it helps ease me into my tai chi and meditation. By relaxing,this helps with muscle spasms. It also helps the body “heal” any time you can relax to the point where you slow the breathing and the heart beat down to effect the cells. so it is a win win situation. I still take all of my meds. My neuro is aware of my Reiki & Tai Chi and meditation and says go for it,as long as I take my meds. He agrees any for of relaxation,such as Reiki,yoga, tai Chi & meditation is healthy for the body. Do not be afraid to tell your Dr. Many hospitals now have the same programs I participate in. So do not be afraid to ask if your local hospital has similar ones near you!
Cas

July 21, 2011 at 8:14 am
(45) anindita says:

Can a reiki/pranic healer cure MS? Is there any such data of expert practitioners? Thanks.

July 21, 2011 at 8:56 am
(46) Nabil Harakeh says:

I have MS since 1982, get first blurring vision, then after6 month I got double vision, became stable 3 years, after that I got weakness in my left leg, diagonised with secondary progressive ms, then weakness in my right leg, living with prednisonne 20 to 50 mg daily, my case deterriorated till Ithe year 1995, walk only with the help of a cane. Then begin to take Interferon, become stable till the year 2000, where I decide to make myself conquer the disease, using faith,& determination, Everyday when I go to sleep I repeat the words I will be better tomorrow for more than 20 times, making my own exercises in the morning, be able to walk for more than 500 meters without using the cane. Return to teach in the university do all my things alone driving my own car alone , getting better every day, I am now 63 years old, I hope & I will be back normal, with the help of God & with determination. My advice to you all : Fight the disease say that you will be better & you will (I am now taking Rebif 44 mcg once weekly instead of 3 injection without the consultation of the Doctor since 3 years )

July 21, 2011 at 1:11 pm
(47) Nimkehns says:

I would like to introduce myself, I am Nimkehns Blue and I am the founder of Therapy for Life. My MS clients have great success with my alternative treatment. I have attached part of a testimonial from one of my clients below……please search my website “therapy for life(.ca)” for mor information.

“I am now sleeping through the night, waking up rested and have a ton more energy throughout the day. The numbness and loss of feeling in my feet or hands has returned to normal. My eyesight has improved to the point that I can now read the news feeds comfortably from the couch, something that I could not do prior to the therapy. My eyesight has improved a lot, and I am no longer sensitive to the light able to enjoy the sunlight. My knees are pain free, my back pain has gone and my bladder function has returned to normal. I am now off the medication that I was taking for water retention. I have been able to walk up and down the stairs using the hand rail!! I am eating better have more energy. The varicose veins in both feet disappeared in just a few days after one of the initial sessions. I now have energy to remain active all day! My outlook on life has totally changed, I am now looking forward to my daily activities, my eating habits have improved and I exercise regularly and know in my heart that I will make a full recovery over time. I just want to say thank to you Nim. Deciding to work with him has changed my life and could not have come at a better time. I would recommend anyone looking for alternative therapy to call Nimkehns Blue at Therapy for Life!!
Sincerely,
Tracey”

July 21, 2011 at 11:17 pm
(48) anindita says:

Hello,
I am Anindita an MS sufferer. Do you have a centre in Bangalore, India where I stay?

I would be interested to try your therapy for MS.

August 5, 2011 at 4:41 pm
(49) Nimkehns says:

Hi Anindita,
I have seen many clients via skype. If you have access to the internet. Lets connect and discuss what that means for you. or email me at nim@therapyforlife.ca
Thank you,
Nim

July 22, 2011 at 2:33 pm
(50) Deborah says:

I have been being treated by a Dr. in Chinese medicine for several months now with accupuncture and Chinese herbs. The symptoms of MS have been reduced on many issues. The approach from traditional western medicine to eastern wholistic medicine is huge. I would recommend accupuncture and chinese herbs to all!!!!!!!

July 23, 2011 at 10:12 am
(51) Dito says:

I take megadoses of Omega 3 Oil, and Evening Primrose Oil, and it seems to help. I do it that way, because in most research, it seems to work at those doses. My logic is also based on supplying the body the nutritional building blocks it needs to replenish lost myelin. Myelin happens to be made of fat, particularly good fat. Additionaly Omega 3 and Evening Primrose Oil seem to reduce inflammation and improve mood. Since taking them, I have had a radical dropoff in relapses, though they have not dissappeared completly but it seems to ameliorate symptoms. I do however have to live with the ocassional fish burping, but I am willing to take that discomfort in exchange for others!

July 23, 2011 at 11:12 am
(52) Suzanne says:

Over the past two months, I have begun using a homeopathic remedy recommended by a neuro. It’s a tincture called morbillinum, and it is based on the neuro’s theory that MS is caused by a defective measles virus. I started taking 10 drops, twice a day, and to my amazement, it works! I have renewed energy, muscle strength, less spasticity, it even helped me with cognitive issues. I haven’t found any research or studies on this, so if anyone has, please post. Between using this, LDN, and a bunch of other supplements, I am feeling better daily. I also use essential oils: rosemary (just sniffing it) helps with memory. Another supplement that works for me is MaxGXL, a glutathione accelerator. Bottom line: For me, CAM works!!

July 24, 2011 at 10:11 am
(53) anindita says:

Hi!

Can morbillinum be taken without consulting a doctor?
I am on Ayurvedic meds that are working at a snail’s pace for the past 9 months now.
Obviously my Ayurvedic doctor would not know anything about homeo meds.

Thanks.

July 25, 2011 at 2:33 pm
(54) Suzanne says:

Anindita,

I’m not sure, but I did notice you can order it online. I had an appointment with this neuro for six weeks’ out, so he was able to give it to me, knowing that I would soon be a patient of his.

July 25, 2011 at 2:05 am
(55) Isha says:

Hi Suzanne,

Can you please tell me the potency of Morbillinum you are taking?

I have found some other Homoeo medicines over the net but have not tried yet -

1. Aurum muriaticum – 30C use long term
2. Tarantula hispanola – 30C long term (spider poison)
3. Conium maculatum – 30C (Ancient poison, noted by Plato as causing the death of Socrates)
4. Plumbum metallicum – 30C

Thanks,

July 25, 2011 at 2:35 pm
(56) Suzanne says:

Hi Isha,

The only label on the bottle says:
Virotox-Morbillinum
CM-MMM

Hope that helps!

July 26, 2011 at 5:24 am
(57) anindita says:

Hi Isha, Are U covered my medical insurance? My application for health insurance was rejected today as I have MS!!! Does this happen in other countries??? It was a leading insurance company of India. And I am not even a severe case of MS!!

July 24, 2011 at 7:43 pm
(58) Lisa C. says:

Chocolate is high on my list. For me, I prefer 70% – 78%, and just a small square or two. The higher the %, the lower the fat and the lower the glycemic index!

I also use marijuana for spasms/spasticity.

I have been having acupuncture treatments for the last 2 years, usually every 2 weeks. Acupuncture doesn’t just boost the immune system (we certainly DON’T need that!), but REGULATES the immune system.

I practice Iyengar Yoga, and have since I was 12 years old (I’m 53, now).

I get a massage as often as I can – great for spastic muscles.

I take Acetyl L-Carnitine for energy, and L-Lysine to keep my Corneal Herpes at bay.

The only prescription meds I take are Tysabri and Baclofen. I know the Ty is a big deal, but I’m JC negative, currently, and for myself, an East/West approach is giving me some hope.

July 27, 2011 at 10:35 am
(59) anindita says:

Hi Lisa,

Do you find any change in your daily symptoms after having chocolate or is the effect too subtle?

Thanks.

July 28, 2011 at 6:02 pm
(60) Patricia says:

I have relapsing remitting MS. Had symptoms for 38 years but diagnosed in 2007. I know sugar is particularly bad for my Spasticity. I have Spasticity right after consuming sugar; and if I eat too much salt, I have noticeable numbness although I have constant numbness from my waist to toes and slight numbness in arms/hands anyway. My use of CAM has evolved over time. If I decided something made me feel better, I continued to take it. I always kept my doctors informed of all medications taken, including CAM. They say if it works for me to keep taking it. I try to do stretching exercises and lift hand weights. And yes, I eat dark chocolate. I take high dose vitamins & minerals; Omega Fish Oil 1400 mg; Curcumin 665mg; Probiotic 550Mg; Green Tea 450M; Goji Berry 500mg; Pomegranate 150mg & Cinnamon Extract 500mg.

I realize that dance music is invigorating and notice that muscle pain will be less. I have tried Medical Music Therapy on CD using tones specialized for MS patients which didn’t seem to help very much. Still there are other Medical Music Therapies I want to try such as: Vibroacoustic Devices (frequencies); Hemispheric Synchronization (Hemi-Sync);, Binaural Beats Technology which had been used by native American Shamans; Medical Resonance therapy, and I’m particularly interested in the use of Biosonic Tuning Fork CDs.

July 28, 2011 at 7:18 pm
(61) Patricia says:

I have relapsing remitting MS. Had symptoms for 38 years but diagnosed in 2007. I know sugar is particularly bad for my Spasticity. I have stronger Spasticity right after consuming sugar; if I eat too much salt, I have noticeable numbness, although I have constant numbness from my waist to toes and slight numbness in arms/hands anyway.

My use of CAM has evolved over time. If I decided something made me feel better, I continued to take it. I always kept my doctors informed of all medications taken, including CAM. They say if it works for me to keep taking it. I try to do stretching exercises and lift hand weights. And yes eat dark chocolate. I take high dose vitamins & minerals; Omega Fish Oil 1400 mg; Curcumin 665mg; Probiotic 550Mg; Green Tea 450M; Goji Berry 500mg; Pomegranate 150mg & Cinnamon Extract 500mg.

I realize that dance music is invigorating and notice that muscle pain will be less once I listen to or dance to music. I have also tried Medical Music Therapy on CD using tones specialized for MS patients but it didn’t seem to help me. There are other Medical Music Therapies I want to try such as: Vibroacoustic Devices (frequencies); Hemispheric Synchronization (Hemi-Sync);, Binaural Beats Technology which had been used by native American Shamans; Medical Resonance therapy, and I’m particularly interested in the use of Biosonic Tuning Fork CDs.

August 2, 2011 at 11:15 am
(62) anindita says:

Is cod liver or Vitaminn B12 supplements a cure for MS? Anyone got any infomation about this?

August 9, 2011 at 1:36 am
(63) Anne Janette Mccoy says:

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August 11, 2011 at 8:27 am
(64) Anindita says:

Hi Anna, do you medicines to cure MS in your online store and do you ship to India or have any branch there?
Thanks.

August 13, 2011 at 7:10 am
(65) Delonghi esam 3500 says:

Very nice online service.
Thanks

August 13, 2011 at 7:12 am
(66) Delonghi esam 3500 says:

You can get a lot of useful information.

September 12, 2011 at 4:08 pm
(67) msmom says:
September 30, 2011 at 7:40 pm
(68) Judy says:

I credit CAM for a relatively benign course of MS over almost 40 years, and I have tried many of the modalities listed above. Indeed, it was when I started eating gluten again that I developed visible MS symptoms. Needless to say, I am off gluten again. Something I have just started taking which I think is helping but I want to try it for a longer period of time before I write about is: N-acetylglucosamine. Recent research is discussed in this link.

http://www.msrc.co.uk/index.cfm/fuseaction/show/pageid/1861

October 12, 2011 at 12:54 pm
(69) William S Maxfield, MD says:

HI: I have used hyperbaric oxygen therapy (HBOT) to treat MS for more than 30 years. My experience is that 80+% of the patients treated with HBOT show significant improvement. There is the need to continue HBOT usually 1/2 per month to maitain improvement and at times a repeat series of HBOT is needed for exacerbations. I do have patients at 30 years who are symptom free. Data by Perrins and James IJNN 2(1): 45-48, 2005 from England confirms my experience with use of HBOT for MS. We are now working with stem cells plus HBOT for a number of diseases so in the future this approach may be used for MS. Contact me if ?s. wsm md

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February 10, 2012 at 1:08 am
(73) ladybugs730 says:

hi my names alyssa…my boyfriend has ms. and i would like to have any advise that we can try to make it better…he has eye sight problems nearly blind due to ms. i would like to what what he can try.we have a child together so i would really appreciate it if i can get some advice.

February 22, 2012 at 12:23 pm
(74) Carolyn says:

RE: Bee sting therapy. Make sure, by allergy testing, that you are NOT allergtic to stings–Anaphylactic shock as a result of being stung could be fatal.

February 22, 2012 at 1:11 pm
(75) Lori Batchelor says:

In my almost 22-year history since being diagnosed with MS in 1990, I have tried many CAM treatments: acupuncture & moxibustion (including some smelly ointment to be rubbed on acupressure points, the name of which I can’t recall), numerous dietary changes and supplements (Swank Diet, omega-3 fatty acids, vitamin D, vitamin B-12, lecithin) and even Bee Venom Therapy.

While I believe my dietary changes were beneficial for my overall health, I did not notice any improvements in my MS with anything else–until I tried venous angioplasty to allow proper blood flow from my brain.

I noticed that you didn’t have venous angioplasty for CCSVI listed as a CAM for MS. I agree! It is a medically sanctioned, minimally invasive surgical procedure used for many vascular conditions and is not specifically a treatment for MS. In fact, in Canada, where I live, it is currently prohibited if you have a diagnosis of MS.

I have had secondary/progressive MS for 20 years so I was destined to never improve and steadily get worse with absolutely no treatment available. I went to the U.S. for treatment in March/11 and am amazed at the results. Going from not being able to stand without holding onto something for over 20 years to now being able to walk unassisted for several yards while carrying a cup of tea, without spilling it, is pretty incredible! My drop-foot is also dramatically improved, my heat intolerance is gone, and I haven’t had any of what I knew as my “weekly MS headaches” since treatment (over 11 months!)

It is not a CAM and it is not a medical treatment for MS–but I had no other “alternatives” and it sure made a huge difference in my MS symptoms and my quality of life!

February 22, 2012 at 1:28 pm
(76) Michael says:

I was diagnosed in 2006. I started with Avonex and was miserable every week until I started vaporizing (non-burning method) Medical marijuana the day after I took my shot when the side effects of the Avonex were worst.
The marijuana helped reduce the flu like symptoms associated with the Avonex substantially.

Now my MS effects my vision (floaters, light sensitivity) and until 2 years ago made me chronically tired all the time, until a Neuropschologist suggest a medicine called “PROVIGIL”, it’s a narcolepsy (sleep disorder med) medicine, but it essentially gave me my life back. Since my neurologist prescribed this med I feel cognitively sharp, I have my energy back and because I’m not constantly tired it has made me feel better about myself.

February 22, 2012 at 1:29 pm
(77) Michael says:

As to the marijuana, my neurologist and I have discussed my usage and “off the record”, she supports the usage by MS patients, because the benefits substantially outweigh the harms, especially if you vaporize, because you are not inhaling smoke.. Additionally, I DO NOT feel like a criminal using a “natural” herb that has been medicinally used for thousands of years. Additionally, as a criminal defense attorney I am quite confident that eventually medicinal marijuana will be reclassified under the Controlled Substances Act from being a Schedule I drug (having no medical use) to being classified a Schedule II or III drug (having medical use). The issue with marijuana is not whether it’s medically usable but rather it’s about politics, a fictional stigma and a failed 30-year policy concerning the war on drugs. Natural supplements have many remarkable qualities if used responsibly, that are not artificially possible to replicate.

MS has substantially effected my life and the life of thousands and a failed social policy is not going to stop me from seeking relief from nature and quite frankly from advocating for pro-medical marijuana legislation. It’s not about legalizing marijuana for all it’s about allowing doctors and researchers to have access to legitimately prescribe and research marijuana for suitable patients. As yourself why marijuana is classified as “no medical use”, with heroin, when research in Europe has shown numerous legitimate medical uses, but cocain, which is a chemically modified form of the coca plant is classified as “having medical use” under Schedule II of the CSA.

If you are curious to learn more check out LEAP.com, which is Law Enforcement Against Prohibition, they have a bunch of online resources.

February 22, 2012 at 7:44 pm
(78) Lea says:

My 17 year old son lost some vision in his left eye about a month ago and then had the MRI’s and was diagnosed with Probable MS. We have decided to take the Natural route and change his eating habits, take vitamins, etc. There is so much info out there, but where do you start? Him being a teenager is going to be difficult at best with changing his diet but that seems to be a huge factor in helping with MS. The doctors dont know anything. They dont even really seem to know how the prescription medicine works or if it will work. They give you a little pamphlet on MS, a huge book about copaxone, and say “see you next year if you dont have any episodes”…..

February 22, 2012 at 8:33 pm
(79) Michael says:

Hello Lea,
I would strongly suggest getting a second or third opinion from another doctor including having an eye doctor test his optical nerve.
When I was diagnosed I had a Humphrey visual field test, a laser test that checks the optic nerve activity. Then I had a spinal tap looking for t-cells, then a visual test with probes on my head testing how fast or slow my brain was processing visual data.
I got those packets too and felt lost and then come to find out most MS drugs cost $30,000 to $40,000 annually.

In hind sight I wish I had asked more questions and had pushed my doctors for alternatives. Because one thing I can say, doing Copaxone shots everyday SUCKS. It burns under the skin, I get lumps etc. Avonex is no better, because you feel like crap once a week.

I’m sorry for your sons young life challenges, but please remember “advocate for him” doctors and tests are many times wrong..

February 22, 2012 at 9:10 pm
(80) anindita says:

Hi Folks,

Anyone tried Estriol and blackseed oil? Would appreciate feedback. I am an MS sufferer since 2010 (the year I had my first severe relapse). I am on homeo medicines since Aug 2011….but not much improvement in my symptoms…. Always tired, low immunity (get cough and cold frequently), legs are weak and stiff, I walk with difficulty, overall movemnet is tough for me,constipation, no appetite, vision problems..etc.

Thanks.
Anindita

February 22, 2012 at 11:18 pm
(81) Anne says:

I have optic neuritis and am awaitng to be diagnosed with MS MRI shows 4 lesions on the brain.i have MS symptons but the neurologist wont for legal reasons admit that i have the disease.i’m not on any medication.i suggest meditation classes and find a spiritual healer and have regular a kinesiology.to put you back on the path of health and healing.the answers to why our bodies to what they do lies within,by knowing and believing in ourselves.this approach does wonders for the mind,body and soul.

February 23, 2012 at 4:11 am
(82) Eileen says:

I was diagnosed 11 yrs ago and was immediately put on Avonex, I have from the start of therapy complemented the medication with Evening Primrose Oil (1000mg) and Vitimin D. I have followed a relatively benign course of the disease, not sure what conclusion to draw from this but I’m certainly not going to change things.

February 23, 2012 at 5:54 am
(83) MRW says:

Hi Lea and Anne,

I’ve been diagnosed for 3 years now and the thing I’ve found is (drum roll pls) – MS hasn’t changed my life…. It’s changed my outlook – for which I’m grateful. I am on Copaxone (after a challenging trial of Rebif) but I don’t think it’s working.
The things that make a difference to me are

diet – eating loads of veg and fruit and avoiding carbs and diary make a big difference to how I feel each day. These can be difficult things to change..

exercise – find your easy spot. It took me months to work out that if I tried to hard or thought I could go too fast, it might take me days to recover. Slow and steady exercise daily makes a BIG difference to me.Find your balance.

Musculoskeletal therapy – a lot like massage that is very targeted at balancing the muscles in the body (important for people who may have unknown/ unrecognized muscular issues. I do this monthly to stay feeling well. In the past I’ve used chiro and osteo massage therapy to serve a similar function. Find someone who is interested in giving you stretches/ exercises. It’s an ongoing investment to feeling good.

Bottom line : listen to your body – sometimes we are slow and it takes days to work out. A MS diagnosis isn’t a death sentence – I feel it’s more like a wake up call to take very, very good care of yourself. It does make a difference.

and chocolate always helps too :)

February 23, 2012 at 5:58 am
(84) Mark says:

I was on bete seron until the neurologist took me off and and put me on copax (I have CHF as well, it would have killed me!) Since then I started to drink 3 glasses of red wine per day w/choclate & vitamins. I also joined stop the drug war & keep on sighning every petition I can to get medical marijuana legalized.

February 23, 2012 at 8:26 am
(85) Rashmi says:

I have been diagosed with MS since dec 2011. After initial solemedrol doses I opted for homeopathy but did not get any results. Now I am on Ayurveda med and that is helping me a lot. I agree that exercise, diet control helps a lot. My numbness in right hand has decresed a bit and I have regained strength in my left hand. Also I am taking vit D.

February 23, 2012 at 8:31 am
(86) Rashmi says:

I have been diagosed with MS since dec 2010. After initial solemedrol doses I opted for homeopathy but did not get any results. Now I am on Ayurveda med and that is helping me a lot. I agree that exercise, diet control helps a lot. My numbness in left hand has decresed a bit and I have regained strength in my left hand. Also I am taking vit D.

February 23, 2012 at 8:33 am
(87) anindita says:

Hi Rashmi, Are you in India? If so, who is your Ayurvedic doctor?
I would really appreciate the info. I stay in Kolkata.
Thanks.

February 23, 2012 at 11:36 am
(88) JC says:

I was diagnosed in 2003, and I have been on a interfuron beta-1a since then. It has helped me from having a major exacerbation, but never really helped with my fatigue. Taking supplements, including b12, helped somewhat but not noticeably.

A couple of years ago, a friend introduced me to a machine that ionizes water. I tried it, and in 24 hours, I noticed a huge difference! I had such a drastic improvement in my walking (before I had two 100 pound appendages that I dragged around with me called “legs”) and noticed an increase in my energy level. It was such an improvement that we purchased an ionizing machine for ourselves. It was a big investment, but it was well worth it! I can’t say that it will help everyone, because everyone is different. But if there is a health food store or a friend that has one, you might want to try it out to see if it helps you. You shouldn’t drink ionized water with your meds. If you do drink ionized water, wait 30 mins. before and after taking your meds. If you have concerns, check with your doctor first. Anyway, besides the occasional heat fatigue I deal with during the summer, I feel great!

May 11, 2012 at 4:16 am
(89) anindita says:

Hi Folks,

Please try taking good quality coconut oil (1-4 tbsps) for cognitive issues .

http://ladyofhope143.blogspot.in/2010/09/coconut-oilbeneficial-for-those-with-ms.html

The lady in above link has benefited. I started it 5 days ago. Do feel a little bit better.

May 15, 2012 at 9:49 am
(90) anindita says:

Hi Folks,

More about coconut oil:

http://www.coconut-oil-central.com/multiple-sclerosis-causes.html

I have already started it. Will inform about my experience with this oil.

June 1, 2012 at 1:43 am
(91) anindita says:

Hi Michael,

How many tablets of Provigil do you take at a time?

July 13, 2012 at 12:15 pm
(92) anindita says:

Hello Everybody, Has anyone ever tried Viagra for multiple sclerosis symptoms?

Just read very good reviews in Google!!

July 23, 2012 at 6:14 am
(93) arpita says:

Hi Anandita ,

Can you please tell me from which Homeopathy doctor were you taking treatment that prevented your relapses for upto 4 years .Also you mentioned that one of your friend is having some sucess with a homeopathy doctor in banglore for treatment in MS .Can you please give his/her details as a friend of mine urgently needs to start on medication .

Thanks ,
Arpita

July 23, 2012 at 8:08 am
(94) anindita says:

Hi !

A good MS homeo doctor in Bangalore is Dr Manjunath, mobile number: 9448785855.

http://ms.about.com/b/2011/07/19/complementary-medicine-for-ms-what-have-you-tried.htm?nl=1

Also, check out above site for helpful hints.

All the best:)

Anindita

July 23, 2012 at 8:14 am
(95) anindita says:

@ Arpita

The homoe doc in Banglore who was treating me for 4 years post my 1st attack in 2006 could not prevent a relapse. I am naturally no longer his patient.
I am in kolkata nowadays and taking Coconut oil and Kalawalla capsules; improvemnet is very slow but seems steady.

However, Dr Manjunath in Bangalore who is my friend’s doctor is good for MS; he keeps her condition stable.

Thanks.
Anindita

December 28, 2012 at 5:10 am
(96) emily says:

@Anindita , you said you tried the black seed oil therapy but found no success. I think you gave up too soon. Did you take it with a glass of orange juice. The brand also matters. I have heard many people getting better with the use of black seed oil. Good luck!

December 28, 2012 at 6:58 am
(97) anindita says:

@ Emily. Maybe. Did U benefit from blackseed oil?

February 25, 2013 at 12:30 am
(98) anindita says:

Hi All, Is removal of silver dental fillings absolutely essential if you have MS?

Thanks.

March 13, 2013 at 1:45 am
(99) Nitin says:

Hi All,

I have heard that ROOT CANAL can be the triggering factor of MS relapse?
I recently got root canal in my molar tooth, and in fact, I am relapsing after that. I got 2 relapses in 4 months time after that.

Why did I choose to opt it :( :( ?? Any ideas on it?

Anindita,
Regarding BLACK SEED OIL, I am quite skeptical before actually taking it.
I have heard that it boosts immunity, and we don’t want to boost it as our immune system is already overactive (thats what Neuro says).
But, on the other hand, black seed oil, has thymoquinone which has got some research on it that says it might help MS. Dont know, I am also confused whether we should take it or not.
Or the best bet would be to try, just a few drops daily, it wont hurt. What say ?

And to my fellow Indian MS sufferers, why can’t we form one group, or blog, and file a petition to INDIAN GOVT, , to cover this disease in insurance ? I mean, I think it is not uncommon disease in India NOW.

And AVONEX, is really really expensive here in India, with no insurance, it is quite difficult to afford this very expensive med… And I am pretty sure, BG 12 would be equally or more expensive than current CRAB drugs…!!

Thanks

March 13, 2013 at 1:49 am
(100) Nitin says:

All,

Instead of regular turmeric, try BCM95, it is the extract of turmeric on which Trials are being carried out.

But again…

It is NOT available in India :( :(

But to all Non Indians, you can easily get it … and try it … !!

Thanks

March 13, 2013 at 2:19 am
(101) anindita says:

Hi Nitin, Yah, all therapies about MS are confusing. One contradicts the other; what works for one need not work for the other…. and so on.

Blackseed oil: Someone in an MS patients’ forum got amazing results from it; he was kind of paralyzed with MS, bedridden, but blackseed oil cured him in a week!! I tried it too, but no impact.
I have tried many things (meds.) which have had zero impact on my health, but considerable impact on my wallet!
Same with allopathic drugs. What works for me may have a zero impact on you…
Mercury fillings: Same story here too in Google; some have benefited, many zero impact. And a scholarly work says that MS definitely can’t be caused by the micro amount of mercury in dental fillings. So, while I have 3 silver colored fillings, later fillings post-MS are cement.

BTW, do you have any info about Noni juice and its curative properties in MS? Also, how soon should a therapy ease symptoms? I am confused there too. A week, months or what?

Yes, starting an MS lobby is a good idea. Don’t know if it will achieve anything in India with its corruption and all. But a start should be made.

All the best.
Anindita

March 14, 2013 at 2:37 am
(102) Nitin says:

Hi Anindita,

Well regarding Black Seed Oil, please research before using it much! Because it might over-activate the immune response in us.

And Noni juice is again, not well researched, and might contain many components which might not help or not safe (as I read on Wiki), so taking it without prior research might not be good..

What is your take on diet? Are you following any? Swank.. OMS.. or Terry’s?

In India, even eliminating gluten/diary is sooooo difficult.. but following a clean diet will not do any harm, that’s what I feel..

And any treatment, specially CAM , will take months I guess, before we start to see any improvement!

Go thru this link.

http://www.abc.net.au/catalyst/stories/3572695.htm

What do you feel? Is this possible? Infection —> MS ?

Well, what I believe is that 90% Neuro’s and any other doctors are not open to any new ideas, and they just go on prescribing what is taught to them! I mean its good that they do not prescribe treatments which are not FDA approved, but again, even FDA approved Interferons don’t work well…And nobody is going to do much research on Minocycline or Roxid or Doxycycline… Who knows, a placebo-controlled double blinded trial with these antibiotics may yield better results than Avonex or any other current drug? But no one is going to do that much research and it might not be ever FDA approved treatment

Anindita, Keep posting n stay in touch… too less Indians here :) !!

Thanks

March 15, 2013 at 12:19 am
(103) anindita says:

Hi Nitin,

As I understand, MS is a most unpredictable disease that manifests differently in diff sufferers.

The link in ur post: well, it doesn’t add anything new to my knowledge of MS. Sufferers have to try out diff therpies/meds in the hope that something may work.

I have doen it too: Ramdev’s yoga, specific mantra chanting, pranic healing, Ayurvedic treatment at Patanjali, homeo meds from a doc in Kolkata, acupressure, imported Kalawalla capsules from the US and had them, took pretty high dose Vitamin B12 injections for a month, took cold pressed coconut oil, and tried gemstones/rudraksa healing method.

Outcome: Nothing much to show for it all. Wasted quite a bit of money. Mind you I tried the above therapies for atleast 6 months each.

Now: I am retrying oil pulling with cold pressed coconut oil since 3 weeks. Again, nothing much to say. I read on the net that Khadi Ayurvedic soaps may help with the symptoms, the body pain, depression etc.
Will try them out. Also, some have benefitted from essential oils.

Also, an American patient tolds me about a device called ‘The zapper’ which benefited her and cured her MS. Well, its price is around 20-30k, so I am hesitating, because I feel nothing really works.

I take turmeric capsules of Organic India as turmeric is supposed to be beneficial in MS.

Wonder where does all this suffering all end????

March 15, 2013 at 1:33 am
(104) Nitin says:

Yes.. Rightly said..

Keep sharing experiences people!! It might help others too which is helping you..

Anindita,
Turmeric no doubt is good, please try and search for BCM 95.. much better than regular turmeric.. See if it is available in India, if you get lucky finding it.. let me know too.. I didnt get a luck to find it over here…

Also, try adding cinnamon to turmeric… !!

March 19, 2013 at 3:00 pm
(105) madhu says:

Hello Anindita and Nitin,
I have been searching internet vigorously for information about optic neuritis and MS since the time my 9 years old daughter sufferd ON attack at the age of 7. I find this blog very informative. In last 2 years she had 4 attacks. Otherwise she is absolutely normal and one can not make out anything of her. I have consulted many doctors in India but to no avail. After every attack she is put on IVF and tapered dose of prednisole for 4-5 months. now after her last attack doc suggesting her on interferon. However, I found no case of inteferon on children of her age.I am at a loss. Could you please guide me where I can bring my daughter for a course on Yoga, diet change and alternative medicine. I believe that since she is young she will be able to cure herself naturally.

March 19, 2013 at 8:32 pm
(106) Anindita says:

Hi Madhu, I have read of cases where children recover very fast.
Yes, maybe, your child will also recover fast.

The only Ayurvedic treatment I had was at Patanjali, Baba Ramdev’s clinic in Bangalore, where I was staying then.

I do not know where you stay, but you could contact a good Ayurvedic doctor there.

All the best.

March 21, 2013 at 7:27 am
(107) madhu says:

Thanks Anindita, I am living in Kuwait. I am looking for a residential yoga kendra with genuine yoga master. please help me if you have any information. Thanks once again.

March 21, 2013 at 7:57 am
(108) Anindita says:

Hi Madhu, As yoga and Ayurveda are spread all over the globe, it would help if you could find out about a local yoga and Ayurveda center in Kuwait itself. Else, in India, there is the Patanjali clinic where I underwent treatment and was not satisfied with the results. Then I tried homeopathy; not much results. Nowadays I take cold-pressed coconut oil (a patient’s suggestion on the net) and also some meds of Organic India (Ayurvedic) after consulting their online doctor.

Well, all I can say is I am not bed-ridden; so all the meds I took and am still
taking are maybe doing some good.

Why don’t you consult a local traditional Arabian medicine doctor there itself? Every country has its own traditional healing methods which are often much better than allopathy.

Anyways, Patanjali, Organic India and famous Kerala Ayurveda medicines (if you know of them) are all available on the net.

Also, in one of my earlier posts I have mentioned Dr Manjunath in Bangalore whom you can call up. A friend of mine is really doing well under his treatment.

All the best.

March 25, 2013 at 9:50 am
(109) Anindita says:

Hi Madhu and All,

I read today that green tea is very beneficial in multiple sclerosis; it can reverse symptoms and cure it even.

Could be just hype, but no harm in trying.

I am sure going to try though I especially don’t like green tea.

Regards,
Anindita

March 28, 2013 at 4:11 am
(110) Nitin says:

Hi Madhu,

I think if you take India, Patanjali is a renowned name. Or you may also try Dr.Manjunath as per Anandita’s advice.

Regarding interferon, it would have flu like symptoms and hence consult other doctors also before starting it. Please add turmeric & cinnamon to her diet, clinical trials are already going on turmeric extract. It helps reduce inflammation it seems

Anindita, Green tea is quite good with MS, nice supply of antioxidants!

Thanks

April 8, 2013 at 5:10 am
(111) Kunal says:

Hi Guys, recently joined. Have been diagnosed with MS – RRMS. May 2011. I have heard about this person, Dr. Raghavan, an Ayurvedic doctor in Kerala solves this prob……http://www.dathathreya-ayurveda.com/

May 25, 2013 at 7:04 am
(112) anindita says:

Hi All, Hope we all are doing well.

Saw it just now. Hope it helps some of us:

http://www.youtube.com/watch?feature=endscreen&v=vCyCRIJ5Hw8&NR=1

May 27, 2013 at 3:23 am
(113) Isha says:

Hi All,

Please have a look -

New treatment against Multiple Sclerosis to be released in Iran!!!

Why no one is talking about it……..

May 27, 2013 at 3:27 am
(114) IndianMser says:

Yes peoples are talking but not much information available

May 27, 2013 at 9:15 am
(115) Asif says:

Joint declaration of Neurosciences Research Center and Neurology Department, Tabriz University of Medical Sciences, with regard to recently introduced multiple sclerosis herbal supplement (MS-NUT):

With reference to publicizing the results of our research project entitled ”Assessment of the effect of a herbal supplement and nutritional diet with hot nature upon MS patients” by interviews and on the website of Tabriz University of Medical Sciences, controversial news have been caught. This case was propounded in the 91st meeting of research council of Neurosciences Research Center and the meeting of general council of neurology department, and thus the following conclusions are announced: First, the herbal supplement has concurrently been used with common and standard therapies of MS. Second, the relative alleviation in exclusively some of MS symptoms has been observed in the case group. On this account, considering aforementioned herbal supplement as a definite MS treatment is beyond our study results, and thus out of reality. It is worth noting that this research project was barely a primary investigation and did have its own limitations; and the study confirmation requires further investigation. Therefore, the access to this herbal supplement will only be possible subsequent to further investigation, approval and licensing by Ministry of Health and Medical Education.

This declaration is for public clarification and preclusion of possible abuse.

http://nsrc-en.tbzmed.ac.ir/?MID=21&Type=News&TypeID=1&id=2

May 27, 2013 at 9:53 am
(116) None says:
May 28, 2013 at 2:56 am
(117) Isha says:

Hi Anindita,

Can you plz advise what is BLACK SEED ?
Is it KALAUNJI????

Rgds

May 28, 2013 at 3:24 am
(118) anindita says:

yes, isha. blacseed is english for kalonji.

May 28, 2013 at 3:27 am
(119) anindita says:

u can try it. might help u….

May 28, 2013 at 5:28 am
(120) Isah says:

Thanks Anindita for your quick response!

BTW what u think about IRAN MS CURE (MS”NUT”) ?

Rgds

May 28, 2013 at 5:52 am
(121) anindita says:

Hi Isha, I would like to try it out. I will basically anything that can cure MS. In Fact I emailed the newspaper’s editor for the name of the shop selling it, which I have been trying to post here since yday, but somehow it is not happening!!

I hope the editor replies.

How R u doing nowadays, Isha? What meds are U taking? I am not better than say last year…..I do not think my meds are wrking. I read last week that apple cider vinegar can reverse MS…but I think it is all crap, unless something shows me concrete lasting results. Anyways, I ordered some from a shop on the net…will reach me this weekend. Hpe for the best. I am very depressed with my MS situation:(

Take care.
Anindita

May 28, 2013 at 10:06 am
(122) Isha says:

Hi Anindita,

I’m in a big trouble nowadays.

Actually I was diagnosed MS in 2009.
In August 2011, I have started Avonex for 1.5 Years i.e. till december 2012.
Now while a routine checkup my doctor suggested me to get tested for NMO Antibodies. Unfortunately it it Positive.
Now my doctor is saying that I have NMO not MS.
And I should start immuno suppressant instead of Avonex.

Don’t know what is going on.

May 28, 2013 at 11:08 am
(123) Anindita says:

Unfortunately, there are no proper docs for MS. Actually I have not been to an allopathic doctor in 2 years; last was in 2010 at the time of my first relapse. My neuro then had suggested I try Ayurveda as allopathy was too expensive and too useless. Makes you sicker than the disease itself.

Since then for 9 months I underwent Ayurvedic treatment in Patanjali (progress was slow), then homeo for another 9 months. I got only some benefit from homeo, also clinic was too far and so I stopped it. Then I started taking coconut oil and kalawalla (herbal) capsules for about 6 months, again some improvement. All through these years I took blackseed oil, on and off, stopping when I felt it was causing too much acidity. I also do oil-pulling.
When improvement stopped I consulted Organic India’s online doctor as I liked their teas and had them often. So, out of the blue I got the idea that I could consult their Ayurvedic doctor. Again, nominal improvement. I also did acupressure side by side.
So, basically I was my own doctor. And realize that my MS does not respond well to treatments  to which others respond well, even have dramatic improvement.
I have got a sound therapy downloadable CD from an American therapist. I feel a bit better. But I still can’t walk like before, apart from depression. Now I take coconut oil, Organic India’s capsules, listen to Sound Therapy and have ordered Apple Cider Vinegar.
I am also considering Reiki. No one really knows what to do for an MS patient.

You should also try alternative therpy for MS from a good practitioner.

May 28, 2013 at 11:12 am
(124) Anindita says:

Unfortunately, there are no proper docs for MS. Actually I have not been to an allopathic doctor in 2 years; last was in 2010 at the time of my first relapse. My neuro then had suggested I try Ayurveda as allopathy was too expensive and too useless. Makes you sicker than the disease itself.

Since then for 9 months I underwent Ayurvedic treatment in Patanjali (progress was slow), then homeo for another 9 months. I got only some benefit from homeo, also clinic was too far and so I stopped it. Then I started taking coconut oil and kalawalla (herbal) capsules for about 6 months, again some improvement. All through these years I took blackseed oil, on and off, stopping when I felt it was causing too much acidity. I also do oil-pulling.

May 29, 2013 at 3:33 am
(125) Isha says:

Thanks a lot Anindita!!!
I really appreciate your quick response, all the times.

Have you ever tested for NMO antibodies test?

Because in ASIA, MNO misdiagnosed as MS. It just take a blood sample to be tested and the cost is also very reasonable appx. 600/- INR

Al the Indians here should go for NMO-IgG blood test that is 99% specific and 70% sensitive for NMO. The antibody is absent in patients with MS.

Regards,
Isha

May 29, 2013 at 5:57 am
(126) Anindita says:

You mean maybe we all have NMO and not MS??
Is NMO a better disease than MS?

So, then what med will you take?

BTW, this is my email: anin_dita18@yahoo.co.in

If ok with you, can we communicate via email?

May 30, 2013 at 3:13 am
(127) Isha says:

No I didn’t mean that.

It is just a possibility that a person diagnosed with MS may actually have NMO.
Its better to get it tested before starting any treatment.

NMO is not at all better than MS.
Surely we can communicate via email.

Regards,
Isha
contact.isha2@gmail.com

June 26, 2013 at 5:54 pm
(128) Suzanne says:

Since April 29 pf this year, I’ve been on Dr. Charles Straaton’s (Vanderbilt Univ.) antibiotic protocol for treatment of the chlamydophila pneumoniae bacteria, which Dr. Stratton’s research has shown that people with MS have increased antibodies against it. I was tested for the bacteria (blood) & have 4x the acceptable number. Website is: http://www.cpnhelp.org. So far I’ve seen small improvements (less shuffling of feet, less fatigue, less dizziness, no more migraines). My husband & I are both in healthcare (he-endocrinology; me–diabetes & pregnancy nurse educator). Of course, there are potential problems with long-term antibiotic therapy, so I’m taking a robotic & several antioxidant vitamins. I’ll post occasional updates.

June 26, 2013 at 7:35 pm
(129) dianeee3 says:

In addition to daily injection of copaxone, I take 1000mg of Acetyl-L-Carnitine twice daily. I opted to use this instead of drugs like amantadine or provigil. No side effects, just positive results!

June 27, 2013 at 7:56 pm
(130) Brandon H says:

I use cannabis for my pain, insomnia, cramps and spasms. I also am doing glutathione IV 2-3 times a. I have been on copaxone from the beginning almost two years but I am still making lesion’s in both spine and brain. The cannabis has so far helped the most as far as comfort and I know sounds strange, getting things done. Before I was in a lot of pain and the cramps were horrible solution, some form of codeine and diazepam. Well color me useless, now I sleep do the dishes, get the groceries, do work around the house. If you don’t live in a medical at least visit one on vacation and see if it might help you. It is not poison like some things we put in our bodies. Was not a user before diagnosed with MS and was scared until I started finding out the the truth.

June 29, 2013 at 8:15 pm
(131) Barbara says:

Always interesting to try new treatments….often it is just too expensive.
I’ve tried acupuncture: 6 treatments just this Spring 2013. Each one felt great. I left feeling relaxed, no headache, feeling light and ready to move, full of energy. The feeling continued through the entire day. It didn’t make the numbness any less. It didn’t alter the sciatic pain from the one leg being numb and the other bearing all my weight. I tried chiropractic- very similar effect.
After all that, I get the best results from a vegetarian diet and regular exercise.

June 29, 2013 at 10:16 pm
(132) Anindita Choudhury says:

Hi All,

Khamira Marwareed— Unani medicine—- available in Hamdard stores in India is supposed to help in multiple sclerosis.

http://www.hamdard.in/products.php?pid=19&pN=Khamira%20Marwareed%20Khas&mc=4&cat=4&cN=Heart%20Health#.Uc0Ab0AwdcQ

I hope to use it soon too.

Thanks.

July 10, 2013 at 9:09 pm
(133) Isabel says:

No one seems to have mentioned Kallawala – comes from US and is an extract from a Sth American Fern. I used it for years in NZ cause I wasn’t ‘sick’ enough to qualify for MS treatment on their health system (need 2 relapses in a year and significant disability).
I am now back home in Australia and on Avonex, but thinking about gilenya – problems with fatigue and other side effects after 12 months on it.
I stopped taking Kallawala when I came home to make sure that it didn’t affect the Avonex, but it helped with fatigue and general reduction in symptoms (apparently rebalances the immune system). Although I have also heard it can cause longer term deterioration, I would love to know if anyone has used it – it was relatively inexpensive and definitely felt better !
Acupuncture is obviously personal – 10 years ago (pre diagnosis) it was brilliant for helping with the MS symptoms – then I went to a different acupuncturist and gave up because my nerves would kick him – (he hit all the bits the spasticity reacted to). Am about to find another one to find out if they can help with other symptoms, but I think it depends on the acupuncturist AND the MS symptoms you have – would definitely recommend you try more than one – it can really help !!

July 10, 2013 at 9:20 pm
(134) Anindita says:

@ Isabel,

I tried Kalawalla (bought it online from http://www.advancedalternativescenter.com/Kalawalla_for_Immune_Balancing_Effects_p/ohk.htm) last year for 3 months; it was good, but not fabulous.
I was also taking coconut oil then. Together with both, I felt better, but symptoms-free NO…..

But then, everyone’s body type is different.

Now, I have ordered Royal Velvet from the same site; will post my results after it arrives and I start taking it.

Take care.
Anindita

July 13, 2013 at 7:39 pm
(135) Norma says:

Diagnosed in 2002 w/RRMS. Rebif 44 mcg 3xwk. Fatigue was incredible and dr wanted to give me something to help but I was afraid. As time went on, I was given Baclofen for spasms, Meclizine for Vertigo, Dicyclomine for IBS, and Prevacid for GERD/acid reflux-which wasn’t helping and Dr wanted to put me on ANOTHER med. Then, 2010 I was introduced to a patented cold processed dark chocolate. My friend said try 3 pieces/day and see what I thought. I have continued to consume it since then because: My GERD/reflux left that weekend and hasn’t returned. My fatigue left and hasn’t returned. I have gone to a chiro all of my adult life atleast 3 times a month. Just in the last six months I have had 1 visit and I’m doing great.No more spasms, No Vertigo, My IBS subsided, I sleep much better & my cognitive issues are better as well. The only med I take now is the Rebif w/Motrin. I traded all of the meds for Healthy Chocolate and my recent MRI’s confirm that I no longer have any MS activity on my brain or spine. This isn’t candy, it’s a nutraceutical. Not sold in stores & It’s patented and trademarked. And while I can’t claim being cured by this, I just know what tremendous change in my quality of life I’ve had in the last 3 yrs.If anyone would like more information please let me know

August 10, 2013 at 5:32 am
(136) sylvia kronstadt says:

When I learned that my middle-aged, former high-school friend and debate partner was dying of multiple sclerosis — alone in a dismal “disabled living” facility, after being bankrupted by the unconscionable cost of his medications — I was grief-stricken. We all thought he had been essentially cured when we were in college. I called him and begged him to let me do something for him. His response was surprising and intriguing. I could help him, he said, to “soar peacefully” into The Great Beyond, by giving him a massage, three times a week — but not the conventional kind. He had been a practitioner of Transcendental Meditation since his late teens, and he wanted our sessions to incorporate an ancient spiritual dimension, as reflected in Ayurvedic medicine. He aspired, contrary to Dylan Thomas’s advice, to “go gentle into that good night.” I didn’t think my emotions or skills were up to the challenge, but he persuaded me to try. His story of heroism and dignity is on my blog at http://kronstantinople.blogspot.com/2013/08/multiple-sclerosis-helping-friend.html

August 11, 2013 at 8:59 am
(137) Anindita says:

Hello Everybody,

I salute Steve’s valiant struggle against MS. He went down fighting to the bitter end.
When I read it, I sobbed. But Steve gives courage and guidance to all of us who are suffering MS. Thank you Sylvia for telling us about this brave friend of yours.

I found this Buddhist mantra helpful for a terrible searing shoulder pain that I have since a month, I think, apart from my usual MS problems:
http://www.youtube.com/watch?v=77UCWq5DpC4

Also, I have been wearing 3 Baltic Amber bracelets that I bought in eBay since a week for MS-related pain. It is helping.

Take care of yourselves,
Anindita

December 31, 2013 at 3:00 am
(138) todomariovargasllosacomes says:

Hi! Quick question that’s entirely off topic. Do you know how
to make your site mobile friendly? My web site
looks weird when viewing from my iphone. I’m trying to find
a template or plugin that might be able to fix
this problem. If you have any recommendations, please share.
Cheers!

April 19, 2014 at 10:50 pm
(139) ironman says:

That’s not to say it was all like that, long slow rides and runs, leisurely lake swims with a picnic afterwards lazing in the
sun ‘ and chilling outside for dinner with desserts and rose wine this time.
Therefore, when exercising during this season you should make sure that you don’t exercise too
much. The first thing to mention is that you will be assigned a race number and it may be placed on your arm or leg with a marker so you can be tracked through-out the race.

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