Just recently, I ran into a "situation" after giving myself an injection of Copaxone, which I have been taking now for about 5 years. It was scary, but I think I am past the worst of it.
Once again I am turning to you, my readers and fellow people with multiple sclerosis (MS) to answer questions that have come up in my own experiences with this disease that I cannot answer by looking in the medical literature or talking to "experts." I figure if it has happened to me, it has happened to some of you. I also figure that if I am frustrated by the lack of information out there, then gathering our voices together can only help one another.
Here is what happened:
When I gave myself the injection in my left hip, it felt odd. Not extremely painful, just "hot" going in. It actually bled a little (more than a drop) when I withdrew the needle. The warm feeling seemed to intensify, and the site began to itch.
When I positioned myself to look at the area in a mirror, I was a little shocked to see what looked like a huge, splotchy bruise across the site - measuring about 6 inches across - accompanied by tiny hive-like bumps.
I tried to distract myself for about 30 minutes. When I looked at it again, the bruise-like discoloration was gone, and the small bumps seemed to have joined into a gigantic hive. I had a big glass of wine and went to bed. The next morning, it looked fairly normal, but was just sensitive.
Three days later, the bruise was back. Two days after that, a patch of skin about 1.5 inches in diameter peeled off. To make a long story short(er), I have kept the area covered with a dressing and antibiotic ointment, and it seems to be shrinking (but healing much more slowly than a normal scrape or cut would).
Shared Solutions told me to monitor the area. I am out of town, so cannot visit my neurologist. I am trying to research this - I have been searching under "injection site skin necrosis," although I am not sure that is an accurate description - but have found that it is considered "extremely rare" (like many things that we all seem to experience) and there is little in the medical literature about it. I am hoping that some of you can fill in the blanks.
Has this ever happened to you? What did you do? What did your doctor say? How long did it take to heal? Did it ever happen again? Please leave your story or any information that you may have in the comments section below. I thank you from the bottom of my heart.