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Julie  Stachowiak, Ph.D.

Hot Feet Anyone?

By August 31, 2010

Follow me on:

I was lying in bed the other night almost whimpering with the pain that I was in, when I cheered myself up with the thoughts of bringing my question to other people with MS and seeing if I was the only one experiencing this weird phenomenon.

On certain nights in warmer seasons, my feet feel like they are on fire. This is different from the parasthesias that I usually feel during the day, which is more of a buzzy tingling in my feet. The burning sensation that I am referring to here really feels like walking on hot pavement barefoot. When I touch my feet with my hands, they may feel slightly warmer than usual, but that could be my imagination, as my brain tries to make sense of this horrible sensation.

I can feel better if I stick them out of the covers for awhile or stand on cold tile (learned this from a friend with diabetes as a way to battle peripheral neuropathy), but as soon as they are under even a light sheet, the sensation of intense heat comes back.

Strangely, I have never felt this burning feeling during the day or even at nighttime if I am laying on the sofa watching television or talking to my husband, even if I have on heavy socks or a blanket. I can also pretty easily make the pain fade into the background a little by reading in bed, but as soon as I put my book down to go to sleep, it is back - and I am awake.

Am I the only one this is happening to? Does anyone else ever have this sensation? Under what circumstances? Have you ever mentioned it to your doctor? Do you have any suggestions on making it go away or at least dealing with it? Thank you in advance - please share your stories in the comment section below and help at least one pair of suffering feet feel less alone.

Comments
August 31, 2010 at 2:49 pm
(1) EJ says:

YES! The same thing happens to me, but I don’t know why. I just do what you do and that is to hang my feel out over the edge of the bed with no covers. Funny that I can curl up under a quilt on the couch and not feel that way either. huh…

August 31, 2010 at 4:04 pm
(2) Lamar Freed says:

It is the old ‘just because you have MS doesn’t mean you don’t get sick’ conundrum. I get a very hot head, or hot feet. My wife feels them and they feel just fine. Is it the MS? The FMS (yes I’ve been dx’d with that, too)? Is it a medication side effect? Or something that needs more medication to manage? I’ve found that this symptom is reduced since I’ve been more aggressive with medications, but I can’t tell you which medication is the one that is effective — though I suspect it is the Neurontin.

August 31, 2010 at 4:09 pm
(3) Jay says:

You’re definitely not alone. My mother-in-law has experienced this for years, day and night. In fact, her feet get red when they’re “running hot.”

August 31, 2010 at 6:41 pm
(4) Laurence says:

No, you’re alone.

I’ve recently seen my doctor about this. He says could be related to CCSVI, use support stockings. Best solution for me is to raise foot level while lying.

Good luck

Laurence
dx 1996 PPMS

August 31, 2010 at 6:44 pm
(5) Laurence says:

Sorry…………. you’re NOT alone.

August 31, 2010 at 11:37 pm
(6) Kate says:

I have had burning pain in my feet and legs for years. Sometimes it is worse, others i barely notice it. I ALWAYS notice it more at night. But that is true of all pain, not just neuralgia. I think it is a pretty typical MS symptom – my neuro certainly thinks so.

September 1, 2010 at 12:55 am
(7) Ree* says:

I am w/ all of you guys on this. My feet always burn when under the blankets, I must also hand them over the bedside for relief. It feels so much better but is impossible to sleep this way. And it comes & goes too, but summer always makes it worse. The cold temps seem to help, but neuropathy is not fun.My husband is diabetic & has it too, he is on Lyrica & it helps him, but I cannot take it as it will disrupt other meds I am on.
My hands also “burn” or resonate w/ “pins & needles” as it is the only way to describe it. Constant tingling……
So you guys are not alone, this is a definite symptom of MS..

September 1, 2010 at 10:35 am
(8) Multiple Sclerosis says:

This is indeed an MS symptom. As it is well known, MS is a neurological condition as much as it is an autoimmune one.

This has to do with the brain chemistry changes that occur when a person is about to fall asleep ( since the brain releases certain chemicals and shuts down some processes as we wall asleep) but since MS affects each person differently, finding a “cure” for this symptom is a difficult thing, and it would involve a complex study.

My recommendation would be to see how you feel more comfortable – what positions, and try to sleep like that. It might be a bit strange at first, but you’ll eventually get used to it and you’ll be able to get some decent sleep.

September 1, 2010 at 11:38 am
(9) Janet Petschauer says:

I have the exact same problem but with my hands. Sometimes my hands are so hot, I keep running them under cold water. They get slightly puffy too. When I touch somebody they can’t believe how hot my hands are. I assume it’s from my medication (Betaserone) but It really only started a short time ago.

September 1, 2010 at 11:42 am
(10) cstevenson says:

I get uncomfortable feet at night too. Not sure they are burning, but definitely uncomfortable. I rub my feet and legs with a lovely lavendar lotion, and for some reason that helps. Try it!

September 1, 2010 at 11:52 am
(11) adiaz says:

How about cold feet! Does anybodies feet feel like really cold feet, that hurt?

September 13, 2011 at 6:00 am
(12) Janet Orchard says:

I had freezing feet until I started L-Arginine, They haven’t been cold since.

September 1, 2010 at 11:56 am
(13) D Cagle says:

You are positively not alone – like some of the others mentioned, I have to pull the blanket up and off my feet they are so hot. I also have the same issue with my hands and sometimes go to bed with a cold pack. It also has alot to do with my stress/tired level…the more tired/stressed I am, the worse they hurt and are hot…

September 1, 2010 at 12:19 pm
(14) Paul McKenzie says:

I have the same problem with burning on soles of my feet. Mostly noticed when I get into bed in evening. I also stick my feet out from under the covers and will use a fan to try to live with this anoyance.

September 1, 2010 at 12:34 pm
(15) Sara says:

oh yeah – every night, regardless of the season – i get “fire fee”. They start burning around 8-9 and they don’t get better until the next morning. Sometimes i step on tiles to cool them down. I’ve used an ice pack on unusually bad nights.

September 1, 2010 at 12:42 pm
(16) Kim H. says:

I just generally feel HOT all the time. My face, trunk and hands are what seems especially hot. I say if Hot Flashes from Menopause are worse than this, I am NOT interested.

My FEET never feel hot, but they HURT. I have peripheral neuropathy due to poorly controlled diabetes and my feet and toes hurt and it seems unrelated to anything when the stabbing pains come and go.

Now my LEGS feel cold at night. And they feel jumpy and a bit like I imagine RLS must feel like. My mother, also a long term diabetic had the searing hot feet that a lot of you are describing. She assumed it was diabetic foot neuropathy, but I know she really suffered with it. I feel for you. Hope you all can find some sort of relief.

September 1, 2010 at 12:44 pm
(17) Sarah says:

Yes, I get the burning sensation in only my right foot. It is such an annoyance. Sometimes it will be brought on by walking and sometimes is just there. And my feet always feel warm, temperature wise, and I’m constantly sticking my feet out from under the covers at night. I am the person that always wears sandals or goes barefoot because closed shoes and/or socks is unbearable – feels too darn hot. My feet do not feel warm to the touch, but I constantly feel as if I am wearing a pair of socks or something over my feet, even with nothing on. My doctor said I have good circulation in my feet so I assume it must be nerve damage somewhere???

September 1, 2010 at 12:55 pm
(18) Donna says:

I had this sensation in my hands and started carrying around baggies filled with ice.

September 1, 2010 at 12:55 pm
(19) kiran says:

I have had burning feet many times and in all seasons…I remember a time when I kept ice with me to cool them……never been able to figure this one out. It vanishes for months. A mystery!

September 1, 2010 at 12:56 pm
(20) scooter24 says:

This feeling is one of the major side effects of Ampyra that I have along with many other people. It only happens during the night and doesn’t wake me up but as you said it feels better if I stand on the cool tile floor.

September 1, 2010 at 1:07 pm
(21) DianaB says:

Hi Julie,

I also have been suffering on and off with hot feet. For no reason my feet will suddenly feel as if I am standing on a heating pad and nothing I do changes that. They actually get red! So, it must be MS. I wasn’t sure as I get so many odd symptoms which have been verified as legit when compared to what others are going through. My main gripe has nothing to do with having MS or its symptoms but with the way others react to my having this disease. One of my daughters poo-poos every symptom I attribute to MS. I think she may suffer a little from denial but mostly from intolerance. Sad but true. Sometimes I feel that unless I am missing limbs I will be expected to keep up with everyone else. I have noticed too that I am not as strong spirited as I used to be. I would rather just give in than fight it. Does anyone else feel they don’t have the determination or strong will they may have once had? ~Just swimming against the tide…

September 1, 2010 at 1:23 pm
(22) irishchan says:

I also get hot feet at night. They itch, too. Before being diagnosed, I though I must be allergic to every pair of shoes I owned! I rigged up a solution for myself when they keep me from sleeping: I put on a pair of socks, then another pair with a cold gel pack inside each one. Blissful!

September 1, 2010 at 1:29 pm
(23) Alyssa says:

Sometimes when I’m going to sleep my feet start to feel very cold and wet… , but to the touch they feel fine and look fine. I can put on really thick socks and that won’t help at all. I try to get my mind off of it by reading or getting up and walking around.

September 1, 2010 at 1:30 pm
(24) Larry says:

Hi Julie,

Trying to determine if things are truly just MS related or if they happen to others without MS becomes one of the dilemmas.

This may or may not be related to MS CCSVI or other problems. The first thing to consider is to rule this in or out with MS you may or may not find lesions that are preent either in the brain or the spinal cord from your MRI. A T3 MRI would give a better picture than a T1 MRI but you may need comparisons to see if these are new lesions.

The second thing you can do is to have an EMG with NCV run to determine if there is infact certain aspects associated withthe peripherial nerves. An entrapment as an example if asociated with the lower newrve roots from say an old injury (not MS related) to your lower back can cause certain aspects of these types of problems.

The third thing you can look at is the local vascularity and the repsonse. If you are on certain medications there can be either a nerve change from the response to the medication or not.

Of course with all the unknowns associated with CCSVI what are the local changes from local venous congestion and its effects on nerves.

Just a few comments. For what its worth I have the neuropathy in both feet some days are better than others. The thing that seems to help the most believe it or not is to have my wife massage my toes and feet. the symtoms are a lot less at that time and gradually return over the net couple of days.
Ironically yes I do have some lesions on my lower lumbar cord so who knows…

Larry

September 1, 2010 at 1:44 pm
(25) Larry says:

Hi Diana,

Here is something that got my attention a long time ago. I was diagnesed with MS about 10 years ago and in order to not pay so much attention to the disease and what was happening I developed a new attitude based upon the following
Do I have MS
or
Does MS have me

I learned that I have MS. So what, I could have Diabetes, a heart condition, or Cancer, or High Blood Pressue.

Once I quit letting MS have me I quit thinking about all the different daily things that were occuring, what I could no longer do etc., and got my life back as best I could. It took a few years but I finished a new degree from college and went on from there.

Its been 10 years now since I was diagnosed. I just do not look back at the what ifs, what is this, and go on to lead as close to a normal life as I can.

Perhaps if you look at those things maybe you will find a different response from loved ones and others.

It amazes me how many people who do not have MS think we have to have a big stamp on our foreheads “I have MS”

If you do not project the MS aspect all the time, then how many people that you meet in the future will you shock by just casually mentioning it?

i hope that this helps you

larry

September 1, 2010 at 1:47 pm
(26) Amy says:

JULIE!!!
you described it SO well!! i have this sensation, and have had, every SINGLE DAY since 2001….from my thighs to the soles of my feet….and if a weather front is coming through–i’ll feel it in my arms and back too (although there it almost feels like ice being applied–you know, so cold that it burns?). EVERY. DAY. and yes, you are 100% right…the ONLY ONLY ONLY thing that relieves this sensation is COLD. putting ice packs on. getting into cold water. even just sitting splayed out on the wooden floors! it’s like, instant relief! my dox have me on lidoderm patches as well as 30 mg a day of percocet, plus neurontin, plus cymbalta–doesn’t TOUCH it. cold. that’s the only solution. (but kinda hard to walk around all day every day with ice packs strapped to your legs…besides they get warm after about 20 minutes….and all those “vests” and crap they make don’t work any better and are just a hassle….)

September 1, 2010 at 2:02 pm
(27) Amy says:

WOW. Just read over all the other comments…I can’t BELIEVE i’m the only one that has this as a full body response!! God this makes me feel so alone! It’s bad enough, having this “invisible” disease….(“But you look so good!”) I feel a lot of the time like people don’t believe me. Like my DOCTORS don’t even believe me! How can I prove to them, that just b/c I’m not breaking down, crying and cringing in pain (I’ve learned to avoid that-makes it worse, plus, eventually you kinda just have to learn to DEAL and shut the$(%& up about it), that I must be fine. I’m NOT fine!! This pain is ever-pervasive, and between that and fatigue and my secondary symptoms of being just COMPLETELY out of shape so I can barely do laundry, it is a struggle just to get through every day. And I look into the future….and see nothing. So I wonder, so many days, what am I struggling for??

Look, if ANYBODY….(please God let there be at least one…) feels this way, or has this kind of pain…come find me on Facebook please? I’m Amy Walker–my pic is one of a doll with purple hair. Can’t miss it.

September 1, 2010 at 2:21 pm
(28) Dottie says:

At times I have the burning (Like a torch being applied) from the knee down on my left leg, then at other times both my legs feel ice cold. To the touch they feel normal.
I am on no meds, so I can’t blame that. I feel that it is just something I have to live with.
My neuro has no comment.

September 1, 2010 at 2:23 pm
(29) Annie says:

I read all the comments and realize that we who have MS often feel alone. That’s one of the reasons I started the blog MS Chronicles, http://www.mschronicles.typepad.com. It’s for us to read how others are dealing with this disease, what they’ve left behind, what they expect in the future. The stories, written by MS patients, are so revealing. They’re about what we deal with usually alone. Go try out the blog and add your own story to the others. It helps us all.

September 1, 2010 at 2:28 pm
(30) Evie Kolbeck says:

My husband experiences this problem ALL THE TIME! It’s very frustrating. We have gotten an Ice pack set that includes one that is to be strapped around your foot. He does get some relief from using this with a thin towel in between his foot and the ice pack. Never have figured out WHY it occurs or how to get it to stop or even how often it occurs!!!!!

September 1, 2010 at 2:48 pm
(31) bob says:
September 1, 2010 at 3:22 pm
(32) Lisa says:

@Adias – Although this blog is about HOT feet, I do experience COLD feet all of the time. My feet always feel like ice, and when they are not cold, it is always the tingling sensation. My doctors attribute the cold to vitamin deficiencies,D, B12, etc. and say that once I can get these levels up, the cold should go away (although I am aware that Iron deficiency causes Anemia, which I do also have and could play a role).
As for being HOT, I just turned 40 this year and still think I am too young for hot flashes, but whatever these thing are…are brutal. I once had a reaction to Copaxone which gave me a similar feeling of burning all over and breaking out into a sweat. MS on top of Aging…yikes. But at the end of each day, I can only thank GOD for what I do have…and what I don’t have!! Be well everyone!!

September 1, 2010 at 3:45 pm
(33) faye says:

Yes not just my feet but my back too- feels like its on fire-

i usually have to wear socks to bed -odd huh? because my feet feel so -funny- when i take them off- its a wonder we are still sane!!

September 1, 2010 at 4:14 pm
(34) Amanda says:

Amy – you are not alone. My feet feel *ice* cold when I first go to bed, and sometimes my whole body. Then like clockwork, about an hour after I fall asleep, my feet feel like they are on fire first, and then it is pretty much my whole body. And it doesn’t really tend to go away until right around wake-up time.

Then I go back to tingly feet during the day.

September 1, 2010 at 4:28 pm
(35) Jan says:

I had this problem when I was diagnosed with Fibromyalgia, but I also had MS and just did not know it yet. Oh YES, hot feet. I experience it even on the coldest of nights! It comes with no rhyme or reason. I take off my socks, hang my feet out of the covers or lap blanket if I am still up watching TV, sit in front of a fan, use a lavender scent gel that cools them off for awhile (available at Yves Rocher). It is a positive nuisance that is for sure. Sometimes I use cold packs-just wet some towels and put in the freezer for awhile or put ice in them. So I guess with a lot of things MS or FMS related – get used to it! Sad but true. But at least I still have my feet and can use them most of the time. For that I am thankful.

September 1, 2010 at 4:33 pm
(36) Pamela says:

I wipe my burning feet with rubbing alcohol. I will hold the cold alcohol-soaked cloth on the bottom of the foot where the burning is the worst. This happens after I’ve had an active day where I’ve been on my feet alot, those days when I’m feeling good and kind of overdo everything. The rubbing alcohol feels so good, try it.

September 1, 2010 at 4:58 pm
(37) Julie says:

Hot feet is actually what led to my diagnosis of MS. Looking back, I have had other symptoms for years. I “put up” with my hot feet for several months when I finally decided to go to a chiropractor (thinking I had a nerve issue). When the “numb and hot” started to travel, she referred me back to my doc who ordered MRIs. The rest is history…and yes, my feet are still hot!

September 1, 2010 at 4:58 pm
(38) Kathy says:

I have had “hot feet” since 1991. I’ve tried ice cubes in tennis shoes and cool cloth at night before bed. Recently I’ve notice massage feet helps settle the constant burning.
As odd as this seems, I am relieved to hear someone else has this symptom. No one in my M.S. support group has this.

September 1, 2010 at 5:51 pm
(39) Denise Benedict says:

Actually, the hot feet thing was my very first MS symptom, along with hot hands, which started occurring 8 years ago. For many years I couldn’t figure out what it was or why it was occurring, and doctors couldn’t either. Not only do they feel hot to me, they are hot to the touch when others touch my hands or feet. The palms of my hands and soles of my feet turn bright red. I can’t tolerate socks or shoes during the summer, only sandals. Its a struggle each autumn to get myself used to wearing them again. Thanks for sharing! I thought I was the only one that had this symptom!

September 1, 2010 at 6:05 pm
(40) Renee says:

Yes!! This happens to me constantly over the summer months – I find that the best relief is to get out of bed & soak my feet in a bucket of cold water for about 5 minutes…. sounds strange but it works for me.

September 1, 2010 at 7:26 pm
(41) NADINE says:

I know the feeling it does feel like my feet are on fire sometimes.I pretty much ignore it.

September 1, 2010 at 7:49 pm
(42) Anne says:

Hi Julie, I too experience the burning feet you describe so well. When it gets beyond “ignoring” with a good book or video, I soak my feet in cool water for a few minutes, then dry them off and rub in some skin cream. Usually the symptoms respond well to this kind of attention, and I can sleep.

Do muscle tension, spasticity, and this burning sensation come on just when one is lying down to rest, or do you suppose that just when they are noticeable?

Thanks for your communicative blog.

September 1, 2010 at 8:09 pm
(43) angie says:

I can relate to the cold feet. My feet feel like they are standing in ice water all the time-often to the point of pain. My neuro says this is the residual from my first initial ms attack. Nothing seems to help so I just live with it

September 1, 2010 at 8:47 pm
(44) Erica says:

I’ve been experiencing the burning feet sensation for the last couple of years. I’ve been taking medication to help with the pain – pregabalin, the brand name is Lyrica (typically used for Diabetics with nerve pain). I still feel the burning at times, but to a lesser extent. I don’t usually notice it during the day, but more in the evenings and when in bed. Like you say, it helps to stick my feet out of the covers.

September 1, 2010 at 8:59 pm
(45) Joanne says:

I was dx 22 yrs ago & never used to get this symptom, until I had a heart attack & had a stent put in 3 yrs ago. Now I get this burning in my feet regularly day & night. The doctor said that the increase in circulation to my feet due to the stent has increased the sensation in my feet. At times, I have to sit with my feet in a ‘foot spa’ filled with ice water to stop the pain although my feet aren’t hot to touch, they feel like they are on fire. And it can come on quickly where I have to take off my shoes & socks because they feel like I’m walking on hot coals. Walking/standing seems to make it worse & elevating my feet seems to help limit it but its another symptom i’m learning to live with.

September 1, 2010 at 9:07 pm
(46) Lucy says:

I have the burning feet. I was diagnosed with Peripheral Neuropathy which is common in MS. I was prescribed Lyrica. It controls the pain somewhat. Funny thing though, my right foot upon occasion gets real cold. It’s even really cold to the touch. Go figure. I’ve mentioned this to my Neuro and he doesn’t see it as his problem.

September 1, 2010 at 10:20 pm
(47) Belinda A says:

I don’t have hot feet, but my lower back tends to get hot to the touch like that as well as one spot in my left thigh. When I get these next MRIs done, I’m going to ask for a lower lumbar spine as they only ordered cervical and thoracic spine aside from brain. I do suffer from horrible itchy feet–both right and left that sometimes, no amount of scratching or rubbing across my spiked mat can help.

September 1, 2010 at 10:35 pm
(48) mtnmama says:

In the summer, my feet get hot too, although it is not just at night. For several years before my MS diagnosis, I couldn’t stand the way tennis shoes felt–my feet would be hot and tingly, and hurt. I thought it was just the shoes. I can’t wear closed in shoes in the summer–I either wear sandals or go barefoot. At night, I can’t sleep with them under the covers.

Now, here’s the odd part of this….during the winter, my feet are so cold that they burn and hurt and I can’t get them warm. I have to get into a hot tub of water to bring them back to a comfortable temperature.

September 1, 2010 at 11:23 pm
(49) David says:

Ditto, same here but I have it in my hands as well. The strange thing is that my ‘hot hands’ don’t register the same pain level and I can somewhat modulate it or block it out. Like a lot of others, only ice and/or cold baths work on my feet. I suffer with them throughout the day and they worsen at night.

September 2, 2010 at 1:06 am
(50) Amit Gambhir says:

I never felt like that, but yes little bit hot than normal i feel sometimes..even if i m in front of AC.

September 2, 2010 at 1:19 am
(51) Carrie says:

So many others with the same foot misery as me! I am sure sorry. There are two things I’ve found that help me. They work for foot pain AND heat

The first is capsaicin cream (made from hot peppers), which produces a temporary reduction in pain. It also helps me with the sensation of heat, but at times it burns – not something someone with hot feet would want. You can usually find it in any large drugstore

The second (and I assure you I am not affiliated with this product in any way), is Sombra’s Original Warm Therapy Pain Relieving Gel. It’s a topical analgesic – I know the term “warm therapy” sounds counterproductive, but despite its title, when I first put it on it’s cold as ice and lasts longer than ice packs. Its active ingredients are camphor and menthol, but I assume the inactive ingredients they are combined with make this magic for me. I first discovered it when my chiropractor put it on my back after an adjustment. I bought some from him, and one day I reached down to rub one of my feet without washing my hands after applying Sombra to my back. The rest, as they say, is history. It is not sold in pharmacies or retail stores, but it is available from chiropractors and physical therapists. I suggest you initially buy the smallest amount or even see if you can obtain a sample (usually free). Then you can do as I do, and buy it from an internet source. I buy mine in one GALLON containers with free shipping (includes a pump), and you can add an 8 ounce jar so when it’s empty you can refill it with the pump. If I buy an amount that large, you can imagine how serious I am about this stuff!

September 2, 2010 at 1:23 am
(52) thielke says:

Like Adiaz says , I have freezing cold feet , especially at night when I’m about to go to bed.I put secret socks on (so there’s no circulation blockage) , then when I wake in the middle of the night (to go to the loo of course) , I take the socks off.
Then in the mornings when I wake , my feet are on fire.Like a lot of you say , let your feet out of the covers & wait for them to cool , or stand on a cold floor for quicker results.

September 2, 2010 at 5:57 am
(53) Anne says:

I thought it was just me, so in a way its good to read that there are other people as well. My feet feel so hot sometime that I just about have to hang them out of the window, yes in the winter as well. My feet get cold eventually, then the heat spreads up my legs to my stomach, and yes, I’m sorry but it does feel like the hot flushes during the menopause, I had those too which was very embarrassing during meetings as the sweat used to run of me by the jug full. I was usually the only woman in the room so its very embarrassing because I can’t explain. When I first had the problem with my feet and legs I thought “Great, the menopause again!” So the two are very similar. The only thing that really works is a fridge full of cold wet flannels.
Keep up the good work its nice to feel we’re not alone!

September 2, 2010 at 9:36 am
(54) Denise says:

I too have had “hot feet”. Sometimes it lasts a long time. I will also pull my feet out from under the covers. This is quite an odd feeling since I am always cold. I have found that a cool bath or pan of water helps to calm the heat down. But nothing takes it away until the next morning. There have been times when my feet get hot when I’m wearing socks and shoes. I thought maybe my shoes were too tight, but that had nothing to do with it. All we can do is support each other going through unusual feeling.

September 2, 2010 at 10:06 am
(55) Nicole says:

Just last week, this happened to me for the first time. I was telling my husband about it. My left foot felt like I was standing on hot pavement, and I was in bed at the time. You are not alone.

September 2, 2010 at 1:03 pm
(56) Donna says:

Hi Julie
You hit it on the nose most nights I sleep with my feet hanging out of the covers.

September 2, 2010 at 2:36 pm
(57) Dorethea says:

Yes, I do experience this symptom. I asked my neurologist about this just a month ago. I was told that because I have sarcoidosis of the lungs along with multiple sclerosis this could be a combination of both, but he felt it was due to my ms. I tend to have this when it’s really warm/hot, when I’m tired or I’ve done too much and also, if I’m on my feet too long. I hope this helps.

September 2, 2010 at 7:08 pm
(58) Lydia says:

My neurologist has recommended vitamins B and D for this problem. Helps when I remember to take them!

September 3, 2010 at 12:39 am
(59) Della Haralson says:

This happens to me every night during the every season but winter. As soon as I finally get my legs up on the bed, scroonch(is that a word) down on my side to get comfy, move the pugs over, my feet and just below my knees feel like they are going to burst into flames. I do not have any burning sensation any other time. I thought it was just because I wore myself down & got over exerted trying to get comfy. I’m glad to know there are others. I hate to blame every minor strange thing on the Monster, but sometimes that’s the only thing that makes sense.

September 3, 2010 at 3:08 am
(60) Loralee says:

Tingy, buzzy, numb, hot feeling yet cold to the touch from the tips of my toes to my bust but not my arms but yes my hands to my finger tips.
I’ve just had this new symptom for a little over a week it just has slowly crept over me. driving me nuts! I’ve been diag. since ’05 am 41. Not sure how to handel this latest symptom. typing is weird ting ting go the finger tips acckk! I wear warm socks to bed to save my husband from the ice feet. Also the sensation is so that I really can’t tell if they are hot or cold until I or someone else feels them for me??

This is the 1st time I have ever posted anything on any site. I feel very alone in my area very removed but since I stumbled upon this site I am feeing more knowledgeable & reassured. I have said since day 1 MS doesn’t have me I simply have MS & it has to fit into my busy life not me fit into iit. a positive attitude has gotten me everywhere & others around me comment that they notice I don’t mope & pity myself & complain. When something is amiss I simply state what is going on with me & never dwell i do show fustration with MS it is a most annoying ‘house’ guest who doesn’t seem to know when to pick up & leave for awhile!! Oh well I have a zillion things to thank God for as I know i could have it so worse. I am thankful canes were created cause a wheelchair is not where i need to be someday possibly but today no a limp & a buzz & a steady surge of hot/cold is what i am prepared to deal with I’ll deal with what tomorrow shows me when i am ready.

Thanks for this site Julie. To commenters: adiaz, DianaB & Larry what you all wrote especially resonated with me thanks for your comments they helped me feel connected.

Loealee on a farm In Sask.

September 3, 2010 at 1:10 pm
(61) Lydia says:

Sorry, should have been more specific. 1000 mcg of Vitamin B-12 and 1000 IU of Vitamin D sometimes help to diminish the red-hot burning sensation in my feet. Doesn’t take it away entirely, yet occasionally alleviates the feeling that I am walking on coals or hot pavement.

Ice-water baths or resting my feet on sock-wrapped ice packs also help as short-term relief. Just as people used to warm their beds with hot stones, cold packs at the foot of the bed help for hot feet at night when trying to get to sleep. The irony is, my feet may feel cold to the touch, yet my sensation is that they are burning up. Thanks to all who have shared.

September 3, 2010 at 4:32 pm
(62) jkwarren says:

Got it too! I too stick my feet out of the covers at night, but what I found works best is these gel soles I bought from Avon. I keep them in the fridge for whenever I need them. It says not to put them directly against your skin, but I do anyway and it feels marvelous!

September 4, 2010 at 9:56 am
(63) valentiner says:

Where does Chronic Dehydration fit into the MS question?

Or rather, general nerve damage, or causes of MS like lesions?

Did your symptoms begin in the summer people, like mine?

I moved to Phoenix, AZ 4.5 years ago. My foot burning/itching began my first summer here, often combined with distorted vision. This prompted the question of diabetes; negative.

Before I go further, just want to say ASPIRIN works for me to relieve the ‘neuropathy’ in my feet. 1 every other day does the trick for me.

I expirienced more damage each summer here, culminating in events prompting a call to EMT’s, now I am convinced that when I went critical last year, which resulted in a lesion in my spinal chord, it’s all been dehydration for me. I have never really taken fluids much more than to quench my thirst, so I have been slowly ruining myself my whole life. I may never have figured this out had this AZ heat not forced the issue.

Granted, my neurologist did not buy the suggestion that my ‘random’ spinal chord lesion was caused when I went critically dehydrated last July 21, but, medicine does not seem to know why random/isolated MS like lesions do occasionally happen, now do they?

I could write much more… but, try aspirin to control your symptoms. BTW; drink much more water than you think, get some salt if you begin to have otherwise unexplained headaches (brain salt levels are higher than blood salt levels; not enough salt in blood will force more water into brain; pressure within skull, you get the picture).

September 4, 2010 at 9:57 am
(64) valentiner says:

(cont) A dehydration attack will put you on the floor people. Once you get critical, it washes over you fast. It wasn’t until I mentioned the sensation of standing up too fast to my MD friend that the idea of dehydration being the problem was suspected. But, try standing up too fast x10 or x20; throw in warm tingling, vision closing in, profuse sweating, you think you might die, and you just may vomit, as I did. The kitchen floor was nice and cool, my friend, but my roomate informed me I couldn’t just stay there all day (she was trying to cook I guess). So I stumbled to my bed…

September 4, 2010 at 5:49 pm
(65) Sandy says:

I get the same feeling only here goes….
I get it in my ears…not on the inside but on the outside…sometimes they hurt and burn so bad I just want to cry….They are so sore to the touch because of the fire…it makes me want to spray some numbing pain reliever on them.
Anyone else?

September 5, 2010 at 3:36 am
(66) Di says:

While I was reading your blog, my eyes were getting wider and wider! I have exactly the same sensations! I often end up going and lying on the sofa to get some rest and not disturb my husband.

I am now taking Copaxone, however, I’ve had these sensations whether on meds or not.

September 5, 2010 at 11:42 am
(67) Zola Mae says:

I have felt the burning of my feet for the past 10 years now. It hurts and wlking or a cold fan near my feet help. They often burn bad id have walked all day and then try to rest.

September 7, 2010 at 9:19 am
(68) Louisa says:

Ive never discussed this sensation with anyone before because i thought that it would be silly in comparison to other symtoms associated with MS.
However, i do also have painful hot swollen feet at night, again if ive overdone it or if tired and stressed, so the only way ive overcome this is to stick them out of the covers. This is so frustrating because normally my feet are ice cold and this is just as painful and leaves me with aggitated legs. I try to ignore it but getting to sleep can take a while!

September 7, 2010 at 2:12 pm
(69) Sarah says:

WOW.

Like you said, Julie, when do we NOT attribute weird, seemingly unrelated symptoms to MS?!? I find I do it all the time – and wonder.

Yet with THIS one, I have accepted this as one of my many quirks for the past few YEARS; as my diagnosis of MS was only a year ago this October, I just didn’t see it as related.

I’ve had “hot feet”, esp. at night, for years. I sleep with a sheet or light blanket, but my feet MUST be out – always. I remember being in labor with my children and feeling irrationally irritable at EVERY nurse that came in the room and tried to cover up my feet. I know it’s weird (to most people, anyway), but if my FEET are hot, I’m hot. And if I’m hot, then I’m uncomfortable.

You don’t know how interesting, comforting, and fascinating it is to read all these comments – and to realize that I’m not alone – no matter how alone I often feel…

September 7, 2010 at 4:52 pm
(70) Cherier says:

I can definatly relate with all of you that have *COLD* feet and hands. Almost all of the time my feet are so cold that they HURT! My doctor refered me to a circulation specialist that recommended that I take 2 vitamin B6 when they hurt. Sometimes 2 vitamins work othertimes I have to take another 2 vitamins in a few hours and in a rare case that did not help after another 2 hours so I had to take 2 more. Therefore, I had taken a total of 6 vitamin B6 over 6 hours and then they actually felt fine. It is strange as sometimes after 2 vitamins my feet become very warm, but not as uncomfortable as when they are *ICE COLD*.

September 7, 2010 at 7:18 pm
(71) DON R. says:

I’ve had MS over thirty years please try this,atheletes foot MED.it works for me hope you find releif.

DON

September 8, 2010 at 3:00 pm
(72) Christine says:

I too have had the hot feet syndrome for a very long time..I also sleep with my feet out of the covers when it gets really bad I go to the bathtub & run cold water over them. Sometimes I have the opposite problem where they are so cold. I then take extra vitamin C & wear socks to bed.
I read somewhere that when extemities get too cold it is due to poor circulation & that Vitamin C would help.

September 9, 2010 at 12:11 am
(73) Beverley says:

Around March 2010, the arches of both feet began to feel chemically burned. E have spent most of my life barefoot, so this came as a puzzling problem to me.

I thought my cats must have gotten into poison oak and rubbed it on the carpet, so I cleaned the carpet and bathed the cats. My bare feet still burned. It had to be the carpet because it only happened (so I thought) when I walked barefoot on the carpet.

My next step was to buy medicine for athlete’s foot, even though I have never had any foot fungus problems. I used two or three creams several times a day. It seemed to help a bit.

Then I went on vacation to London. I didn’t notice the problems with my feet, but then again, I had a wonderful man to keep me occupied so my feet were the last thing on my mind! But then I returned to the USA and the burning feet. I took to wearing socks, even though they drive me insane. I miss being barefoot in my own house.

Yet, it wasn’t just my house. In July 2010, I went to my parents’ home in Nebraska, and sure enough, my feet burned when I walked on their carpet! I mentioned it to everyone and anyone who would listen. My dad said “it’s your nerve endings.” Well that stopped me in my tracks because I never considered it to be part of my Multiple Sclerosis. I was diagnosed 20 years ago and never experienced foot irritation other than numb, tingly, spastic toes.

Well, around the middle of August 2010, I experienced a major relapse. With all the other things that went wrong, I didn’t notice the feet any more, but now that my other symptoms are starting to remit a bit, the burning is back.

I asked my neurologist about what to do. He mentioned 2 solutions: 1) medication to dull the nerve sensations, or 2) rubbing Capsaicin on my feet (a continual desensitizing procedure). I wasn’t thrilled with either “solution”.

So, here I sit, with my socks on, wishing my feet would stop burning!

September 10, 2010 at 11:36 am
(74) sandy says:

Burning is a fairly common MS symptom. Mine started years ago in my feet and now I have it in my legs and back. Neurontin Stops it after about 30 minutes. Take it as soon as you feel it starting. If you don’t normally take neurontin get a small low dose supply for those occasions. Also put a ice pack down by your feet (put your feet in socks). This happens for the most part when I get even slightly overheated.

September 12, 2010 at 11:49 am
(75) EKW says:

Along with stinging feet, which I’ve experiened for several years, sometimes I feel like my skin is stretched too tightly over my feet! Both symptoms are alleviated with a good foot cream, ones containing a mint or lavender work best. In fact, I use foot cream on my hands for the same reason, especially before I go to sleep. Try it, you just might like it!

September 12, 2010 at 3:49 pm
(76) RandomThoughts says:

I have had this intermittently for years. I use peppermint foot cream, the kind that leaves a cool feeling. If that doesn’t work, I use BioFreeze gel on the bottoms of my feet. It works surpirsingly well.

September 14, 2010 at 6:43 pm
(77) Susan says:

I take 400 mg capsule of gabapentin (generic form of Neurontin) 3 times/day, every 8 hours (while awake) for the burning sensation in my shins and feet (which is a form of nerve pain). It helps A LOT! Also helps with the pain associated with MS hug.

Lyrica (pregabapentin) was developed specifically for nerve pain; I opted for gabapentin because it’s cheaper and sounded like it might have fewer side effects than Lyrica (debatable). They both can be sedating, ehich is a bummer altho that doesn’t always happen with me.

The burning feeling is often worse at night in bed, especially on hot TX summer days even when I’ve stayed in AC comfort. Sometimes lately, my shins feel like they’re on fire when I go to bed. I can tell when the med kicks in because the fire goes out. By the way, 400 mg is a very low dose of this med.

I also do a restorative yoga pose called “Legs Up the Wall” that helps me deal with this pain, along with helping calm the nervous system, reduce ankle swelling, and renewing my energy. The instructions at http://www.ehow.com/how_2305604_do-legs-up-wall-pose.html come closest to how I do the pose at home.

In fact, Eric Small, a long-time yoga teacher who has had MS for years, considers this pose the most essential one for people with MS. I should do it more often than I do!

September 17, 2010 at 12:48 pm
(78) amelia says:

My feet often feel like they are wet!

September 21, 2010 at 3:29 pm
(79) Susan Wood says:

I was diagnosed 5 years ago and about 3 months ago started having burning pain on the soles of my feet, particularly the right one (everything is worse on the right side). It is isn’t just at night, though. In fact, sometimes at night in bed my feet are like blocks of ice. The burning comes and goes, like the buzzing, but it may occur anytime. Right now, mid afternoon, the soles of my feet feel extremely tender. My neuro prescribed Gabapentin, and I think it helps at bit, but even at a low dose, it makes me sleepy. It always helps to know other people have similar symptoms.

September 26, 2010 at 5:43 am
(80) Lynn says:

i have the same problem. just when i go to bed both of my feet top and bottom burn and are hot. i do not have ms so i don’t think its directly linked to only that but i wish i knew what it was.. maybe something to do with circulation???

September 26, 2010 at 8:39 am
(81) Joyce says:

I experience hot feet and I also stick my feet out from the bed covers. We have airconditioning so it’s lovely when it blows on my feet.

October 12, 2010 at 10:01 am
(82) Randy says:

Like walking in hot sand is how I describe it and I CANNOT go to sleep till they cool down. ILike you, I put my feet outside the covers but if it’s not cool enough in the house it doesn’t help. I have found that if I get up and take 2 aspirin that in about 20 minutes they cool off and I can go to sleep. Never know when to expect it, though, and thankfully it’s not every night! Like another writer said, I don’t think it’s as bad or frequent since I started taking Neurontin?

December 8, 2010 at 2:12 pm
(83) Loy Hoffbeck says:

My feet react the same as described, but only if I have been ob my feet a long tine, if the heating and buzzing persist a long time,I put on a pair of socks,this works for me 100%

December 8, 2010 at 4:17 pm
(84) marie says:

Guess I’m with the minority here … have had MS for 31 years and find, at times, that my feet feel brutally COLD, and nothing helps. I wear socks, wrap ‘em in a blanket or heating pad – have even tried the hot water foot baths.
NOTHING helps, until they feel like warming up themselves.
(sounds like they have a personality of their own, huh?)
My hubby says that they feel warm to the touch, but I actually feel pain from the cold. I also get the whole body shivers sometimes – that really takes some warming!!!
Fortunately, this doesn’t happen that often, but when it does, Yikes!
I’m sorry for those of you with the hot feet too. :(

December 8, 2010 at 4:43 pm
(85) amelie says:

This can be so intense for me that the sheer weight of the covers is annoying. I also often experience a very sharp burning pain on the top of my big toe. My husband happens to be a neurologist (crazy, I know) and says that these symptoms are very typical for MS. I have found that Gabapentin takes the “edge off” when the problem becomes too bothersome or I can’t sleep.

Julie, I am new to MS. Thank you for your wonderful book and blog.

December 14, 2010 at 12:24 pm
(86) july says:

HOT FEET– for sure–anytime any season–Take max dose of Gabapentin–sometimes helps–Tried vapor chest rub..
I know I had a problem when I found myself going outside in the cold and snow barefeet to bring in firewood from the wood shed.

December 16, 2010 at 2:43 pm
(87) mary says:

Hi I too have a strange phenemonon, with my feet, it can occur any time of the day and that is one foot will become very hot and the other foot becomes ice cold, I often take my sock of the hot one to cool it down and put it onto the cold foot to try and warm it up!

December 28, 2010 at 7:45 am
(88) ines says:

I can symphatise with all of you, last time I went to see my ostiopath I mentioned the problem he told me that some times the problem stems from your back, he made an adjustment and i have not had any problems since.I dont know if it works for every one but for me it was a godsend.

January 3, 2011 at 1:14 pm
(89) tom pesacreta says:

I used to have hot feet at night and it was hard to sleep. By chance, I stopped drinking alcohol for a few months and the hot foot problem went away. Honestly, I did not notice that it had gone away until I drank some red wine during a New Year’s celebration and got hot feet that night!

January 19, 2011 at 1:03 pm
(90) Tracy says:

My hot feet started after the summer. I resorted to only wearing flip flops even when it began to get cold. The balls of my feet and toes constantly feel swollen. But the hot feet at night are terrible. They wake me up and then take about 15 minutes to settle on which part of the bed they prefer. I get severe pain with the heat and the running ants, does anyone else?

January 27, 2011 at 12:58 am
(91) Kitty says:

OMG! I have had this problem for years and years! I was dxed with probable MS 17 yrs ago and dxed with definite very recently. This HOT FOOT thing has kept me up nights. I have sat on the side of my tub MANY times soaking them in cold water…using cucumber cooling lotions and sprays…etc as I cannot sleep due to this.
No idea if it is MS related but when I saw your post I was like WOW!

March 17, 2011 at 9:54 am
(92) Sarah Tucker says:

sometimes i find “cooling foot spray” – the type of thing recommended after a day at the beach (got some from Avon a few times) cools the outer of my feet, and even though my feet still have the hot burning sensation i feel like i can distract myself a bit – usually enough to get to sleep! it was amazing to read this symptom because i thought it was just me!! my lower back is often also cold even though the rest of me is fine!
Strange thing this MS!

March 20, 2011 at 3:57 am
(93) Kelly says:

Yes! This started happening to me about a year ago. I’ve always been one who would have to slip on a pair of socks or use a heating pad to get my feet to feel warm, so this was a strange experience the first time it happened. I couldn’t imagine what was going on. My feet really felt like they were on fire! No other part of me…just my feet. Now it’s a regular occurrence. I seem to alternate between extremely cold-feeling feet or feet that feel like they’re on fire now.

March 26, 2011 at 10:59 pm
(94) Farida Nasir says:

I have very bad hot feet sensation past 20 years. I never talk to any doctor because I have flate feet so I thouhgt because of that reason. But now it is getting worse. I washed with very cold water, I keep them out of my comfort while I am in the bet because I can not keep them in the comfort. If I go for walk it burns bottom part. I can not feel comfortable in any shows. Last week I was watching Pakistani TV and a woman was telling a homeremedy for burning sensation feet. that who ever have that burnig sensation in their feet rub them with green sqush, it is a vegi, twice a day at least for a month you will feel different. I have been doing it and sometimes I feel much better but not all the time. Because it hase been just a week. I thought I should share with all of you. Hopefully it will work with all of you. Let me know if it is really work. Thaks Farida

March 28, 2011 at 7:13 pm
(95) Gordon says:

Something that worked for me really well was switching from synthetic bed linen to cotton, it made quite a difference.

April 24, 2011 at 11:04 pm
(96) Dawn says:

I am in the stage of finding out if I have MS. I have many many MS “like” symptoms. We shall see, but one symptom I have are red hot feet…very uncomfortable. If you research on the internet “red hot feet, three things come up, Thyroid, MS, and even Alcoholism….but here is a very wierd symtom Id like to talk about, when I was young. I was a little girl (2nd or 3rd grade) living in Park Forest Ill. and when I was playing outside running around, sometimes I would turn my head and see flashes of light and feel a burning pain in my brain. wierd huh…Im 51 now and have had “MS symptoms” off and on for about 10 years….oh yeah I had “Alice in Wonderland Syndrome” when I was little…look that up…very interesting reading.

May 11, 2011 at 2:30 pm
(97) Mare says:

This happens to me quite frequently at night. I have to take socks off for quite a while and then put them back on later. Or I have to put my feet outside the covers for a while. Hate this.

May 11, 2011 at 2:32 pm
(98) Mare says:

Have the same problem. Thought I was losing it. Have to either take my feet from underneath the covers or take socks off.

May 11, 2011 at 2:51 pm
(99) Jennifer says:

I have had hot feet at night for years and I have never met anyone else who has this sensation. I get night sweats from time to time too and thought it might be hormonal but I am too young for menopause. Also, my feet tingle in a painful way withing minutes of running. I thought I had done nerve damage from so much running, or that I was in the wrong shoes, but when my hands started going numb I finally went to the doctor to get checked out. Still no diagnosis after a year of tests.

May 11, 2011 at 11:23 pm
(100) Christine Lever says:

I also get the burning feet at night, it’s just one of my many quirky MS symptoms and although I get it mainly at night I also get it when I am sitting in a comfy chair relaxing. I sometimes get it if I am wearing running shoes or other firm footwear, then it is a bit more than just hot feet, it is almost unbearable burning. In bed I kick off the covers and socks if I am wearing them and if I get burning feet while out walking I have to find a seat while I ride out the attack. The burning usually only lasts a few minutes at a time though it can recur multiple times a day/night.

May 31, 2011 at 1:59 pm
(101) Jeanine says:

ASPIRIN BEFORE BED. I have MS, my mother does not (at least not diagnosed), but she has suffered from “hot feet” especially at nighttime for decades.

She finally had a neurologist recognize this and instructed her to take aspirin before bed every night. It has given her complete relief! I’m sorry that I do not know what dosage, but I don’t believe it’s more than 1 or 2 regular strength tablets. It is important to take the aspirin at bedtime.

Certainly worth a try unless you are pregnant, nursing or have an aspirin allergy!

July 24, 2011 at 6:21 am
(102) Emma says:

I only recently got his. And it’s horrible. I can’t sleep but I was wondering if anyone has really hot showers and if it is a result of that because I know recently mine have gotten hotter during the winter. I’m 16. How old were u when the symptoms started?

August 13, 2011 at 5:01 am
(103) irma williams says:

I have painfully COLD feet. When I was younger my feet used to sweat profusely in the summer and there was nothing I could do to control it.
In the last 10 years or so of diagnosis I put moisturiser on my feet (cos they feel dry and uncomfortable) and I wear socks to bed – whether it’s summer or winter.
I have recently found a hot wheat bag on my feet at night helps keep them warm.
I also have Fibromyalgia – diagnosed in the same year – as not all symptoms could be attributed to MS.
And I had taken Gabapentin for nerve pain for years but went off it last year; trying to reduce the number of meds I take. I didn’t notice any real change, except maybe more Restless Legs Syndrome.
I’m experiencing burning on my thighs at night, which is REALLY uncomfortable. It could be MS, Fibro or Menopause!! Or the fact that it’s winter in Queensland! Who knows?
But I do know that I’m pain free, (from Fibro) 6 months of the year in summer!

October 2, 2011 at 5:19 pm
(104) Michelle says:

I have just been diagnosed with M/S after noticing changes in my cognitive skills, speech and blurred vision. The doc thinks could have had it for a long time and relapsed hence lots of tests…I too have this burning sensation now but only on my back and i have to sleep on my side. Reading all your messgaes has put my mind @ ease…Thank You All.x

October 28, 2011 at 10:19 am
(105) Billy says:

YES… I have symptoms very similar to what you are describing “in bed”, as far as, tricks that I have used, I placed a thin piece of plywood under my side of the bed. This HELPED big time, it appears, for me, that I can not lye on a soft surface while trying to sleep. While the fire in my feet did not go away … it made it so that I could sleep.

thank you for sharing your story and bringing awareness about the plight we are in.

November 23, 2011 at 12:47 pm
(106) Heather says:

I have had this sensation different times of the day. It most often happens in the morning lasting an hour or two after I wake up, and in the evening, which can start as early as 6:00 pm and that can last all evening and last several hours. I have had this happen during the middle of the day but that is rare and usually happens during a flare. It feels like I’m walking barefoot on sand that has been in the hot summer sun all day, with a little bit of a rug burned effect. When this happens I will isually go into the bathroom where we have tile and stand in front of the AC vent. My feet do feel warm or sometimes hot to touch and will look bright pink. I have alao felt this sensation in my hands, often my hands and feet will be going off at the same time. Has anyone else had that happen? Thanks! :)

November 23, 2011 at 1:37 pm
(107) Patricia Hodge says:

I get this in my hands and feet except it is not just at night. My hands are burning as I type this. I also have Raynaud’s syndrome, so I always though that was the cause. Between the MS and the Raynaud’s I don’t do well with heat or cold.

November 23, 2011 at 4:37 pm
(108) Arden says:

I thought i was the only one with that feeling, but i feel it duringthe the day and night, sometimes it keeps me awake i can’t fall to sleep it takes a while, what helps me a little bit is having my wife massage my feet for a while it doesn’t go away completely but at least for me it feels slightly better

November 24, 2011 at 6:02 am
(109) Louise Craven says:

I was diagnosed with MS in 1980 (My consultant told me approx 18 months ago that it was suapected in 1970)!
Until about 2 years ago I didn’t have this problem with my feet at night now it is dreadful (most nights) like many others it reduces if I put my feet out of bed or if I go into the bathroom and stand on the cold tiles but when I go back to bed it starts again.
I am though always cold and when the external temperature reduces my hands are freezing although my left hand and fingers are the worst, ( My last major attack in 2006 affected my left side which has always been my strongest, I am left handed)? at the worst my fingers feel as if they could break!Does anyone else have this problem?

November 24, 2011 at 10:42 am
(110) Quay says:

I get this too. It feels like I am walking on hot pavement in the summer time. I usually soak my feet in cold water for a few minutes and it goes away. Worth a try!

November 25, 2011 at 10:33 pm
(111) Collette says:

I have much the same in terms of the hot feet….but, it starts midcalf and gets progressively worse down the leg with my feet being the worse. This usually happens at night but often occurs during the afternoon and evening. My feet do not feel hot to the touch. Occasionally, this also happens with my hands.

Frequently, several times a week, my right ear will turn bright red and is burning hot. Once or twice my right ear has been affected and only occasionally it is both ears. They are very hot to the touch.

December 21, 2011 at 2:39 am
(112) Fliss says:

Definitely – my feet also turn bright red, swell and BURN. It helps if I get them up as high as possible, level with my body, but this isn’t usually possible during the daytime. It is variable – and sometimes my heels are really cold and the soles and toes are hot so that makes it even trickier!

December 22, 2011 at 4:20 am
(113) roxxy63 says:

I too get the hot feet but nothing helps IV tried putting. Them on the cold tile it only helps while. I have them there IV tried. Running. Cold water on them iit doesn’t help to uncover them even socks are painful the fan doesn’t help I often take a pain pill and trazadone just to sleep I’m glad I’m not alone in this, but the future. Does scar the crap out of me.
Thank you for the blog it helps to know. I’m not alone if its not the pins and needle. Feeling its the hot itchy. Feet. :(

January 11, 2012 at 7:36 pm
(114) Arismmelvina says:

sell 7 star bags for gift 7 star replica bags at my estore

February 2, 2012 at 7:54 am
(115) Sandra says:

My feet and legs burn and swell from neuropathy.
I can hardly sleep at night. During the night I get up and soak my feet in cold water with some ice in it. It gives instant relief that can last for three hours and somerimes longer.

February 19, 2012 at 4:12 am
(116) Vincent says:

Oh my.. I did not know that there are so many people out there having the same problem I do. I am having difficult sleep due to this silly hot feet problem. Just like some of you guys, I have to sleep with one foot out of the blanket. I can walk out side and have 5 minutes smoke break in snowy night with just sleepers (no socks). I went to see doctor about it and nothing comes up. I feel healthy so I don’t bother to seek out the answer till today, feeling bored and just type in and found this forum with so many other having this.
Seems like no cure or idea what it is huh? (except diabetes, I checked and I don’t have it)

February 21, 2012 at 5:44 pm
(117) Teresa says:

I am so happy to know I am not alone about the burning feet problem at night. I am freezing cold during the day and wrapped in a blanket until about 8 p.m. when the burning starts. I don’t just burn on my feet, but all the way up past my knees. I touch my feet and they are almost cold to the touch. I have MS and am wheelchair bound. I rely on my husband to help me in and out of bed. He covers the top half of my body, since I am cold there, with a couple of blankets and leaves a sheet over my feet. I cannot get comfortable, but somehow eventually fall asleep. Pretty soon I wake up and my whole body is burning up, so off go all the blankets. About daylight my body starts to get cold and I put blankets back on. Meanwhile I have only had a couple hours of sleep and it is time to get up. My doc does not have an answer for all this. I am sleep deprived and just wish for a good night’s sleep. I do upper body strengthening during the day and work out on an electric bicycle peddler (which does most of the work for me) for 30 minutes a day. I do not have diabetes. Any ideas of what else I could do or try. I am pretty much at my wits end.

February 23, 2012 at 9:07 pm
(118) Jess says:

I experience the burning, hot feet described.

In my case, I’ve learnt that it directly relates to eating ice cream in the hours previous to getting the sensation.

As I’ve cut down my sugar intake (that’s sugar in all its forms) to almost zero each and every day these days, when I do have sugar I notice the big effect it has on my body. In certain forms (e.g. ice cream), it creates the burning feet. It sometimes makes my body unable to be calm (nerves, etc seem to be “buzzing”). It sucks the moisture from my skin, and I can particularly feel this effect on my facial skin and eyes/nasal/mouth areas.

I would suggest you try changing your diet and experimenting with the relationship between your symptoms and your food intake.

Best wishes.

February 28, 2012 at 12:48 pm
(119) Jason says:

I want to thank everyone fir the comments. My aunt has MS. had been trying to get me to get tested. So today I google burning feet and hands when trying to sleep and look what page out brought me to. I click on a word in the article and it talks about pins and needles and vibrations in the legs. All which apply to me. I think its time to take her advice and get tested. Again thank you to everyone.

March 3, 2012 at 11:25 am
(120) Misti Linn says:

Dx in 1989(18 yrs). I don’t know if I’ve always had the “hot feet” sensation but have noticed it since I’ve been confined to a wheelchair for about the last 6 years. My feet will get hot late in the evening approaching bedtime. If I have shoes on, they MUST come off. My feet are often bright red. I wake up in the night and am terribly hot and MUST uncover my feet. Uncovering my body isn’t enough. It feels like all the heat is in my feet and I have to wake my husband to get the covers off my feet.

March 15, 2012 at 12:01 pm
(121) moggie says:

I have hot feet (for 10 years)…only at night in bed. I can go to bed, read for a while, feet are cool. I switch the light off then BOOM! the soles of my feet are burning. The tops of my feet are cool. I throw the sheets off but makes no difference. I sleep in a freezing cold bedroom with the window open simply because of hot feet. I have tried a fan, chillow pillow on my feet, most everything. Once in a blue moon my feet aren’t hot (don’t know why) and those nights I sleep like a baby whereas on hot feet nights, I can’t sleep till dawn when strangely, my feet cool down. I notice others have posted this too. Are we any further forward in finding out what this is?
Coincidentally, I have been referred to a neurologist because of an inner body tremor and “crawling skin”which I feel but no one else can see. I wonder if this is MS?

May 7, 2012 at 10:18 pm
(122) Elaine says:

My feet have been in so much pain for over two years now. They are on fire, I stand in the snow to calm them down which last for so long. I have been through many test and not come to any conclusions at this time except for wearing Orthapedic shoes which do not work for me, my feet feel more hot. Now my legs are in pain and my lower back. I take Tylenol threes, but they don’t help anymore. I see a nerve specialist in July and hope they can find something. My pain is so bad I cannot do anything around my house, i go for drives I am in pain, no matter what I do I am in pain. Anyone any ideas on how to calm the pain down at least?

May 11, 2012 at 8:19 pm
(123) Kaywin says:

Since my first spinal disc herniation and resultant surgery, in 2001, I have never had a night without foot burning, sometimes itching, and sometimes pain. After four disc surgeries, and finally a spinal fusion in 2006, it continues, night after night, no matter what mattress I am on. I have accepted it as a given. My feet will be bright red and hot to the touch and submerging in ice water has no effect. The only thing that relieves it is getting up, walking around the house for a bit or sitting. Oh yea, sitting relieves all of my back and leg pain – go figure! Only relief I ever had was a one month RX for Lyrica after my fusion. My internist could not renew the RX w/ithout my surgeons’ compliance. He would see me without an MRI and my internist would not order an MRI. So I live with it, probably for the rest of my life. It is doable…

May 30, 2012 at 11:37 am
(124) Belinda says:

I have been going to an acupuncturist once a week for the last 8 wks as a last resort for my right foot. It started out turning a purplish-blue color, and being about 7 degrees Faren cooler than my left foot. My neurologist said it wasn’t related to MS, then I went to my cardiologist-said MS related, Vascular cardiologist-said he didn’t know, my family dr-thought MS related, but wasnt sure.

Since acupuncture treatment, my right foot gets HOT at night. It still turns purplish-bluish, but not usually cold. I have the same tingling-numb feeling in both feet – same as before.

Bluntly said: MS SUCKS………………

May 30, 2012 at 1:42 pm
(125) glad says:

Yes I get very hot feet going u p t o my knee and yet the rest of my body is cold .When I ask someone to feel them they do not feel any different than hands or face .Then the whole of my body goes very cold and I know that this pain time the pain is so bad yes I do cry .I have ppms and the pain does start to subside leaving me the
with the electric shocks which are alway there..
Another thing I have started leave comments and it is very good I know that other people are suffering from this horrible condition

May 30, 2012 at 7:29 pm
(126) Jan says:

Have you ever heard of erythromelalgia? Type in “burningfeet.org,” and your URL will be redirected to the TEA site that contains helpful information (click on “What is EM?”). Yes, some of us know both MS and EM — neither health issue is pleasant!

May 31, 2012 at 10:49 pm
(127) Cold feet Kim says:

No hot feet here, COLD. Even with 3 pair of socks and slippers on. It’s better in the warmer weather, but winter is horrible.

June 5, 2012 at 11:52 am
(128) Sylvia J says:

I LOVE your Blog!!! ..Very inforative thank you very much…NOTE: YES I constantly get what to me feels as if they were heat flashes…My feet and the palms of my hands start burning up first all of a sudden I noticed that my back is now getting the same burning sensation. Before I use to ask people “Do I feel hot to you?” and they usuallu would answer with a “No” NOW the heat is so intense that when I ask the same question people say that Im burning up!…I realize that when my body is active or in constant movement I can avoid most of my symptoms , but as I start to slow down and become less active during the day the symptoms engolf me all at once…I try to maintain active as much as possible…and when I know that everything that needs to be done gets done, I lay on the sofa and let MS have its way with me for a little while!…jejej I get the extreme body heat, then it moves onto excessive tiredness, I fall asleep when I wake up I usually cant speak until given some cold water and slowly , but SURELY THANK GOD recooperate full speech and movement!….
Take Care and God Bless always PRAY and EXPECT THE BEST!!!

July 4, 2012 at 11:46 pm
(129) Indy says:

Here’s what I do when I get the hot feet sensation:
Soak a pair of cotton (athletic) socks in water, rinse out any extra water and put them on. The evaporation effect will cool the feet.

July 10, 2012 at 6:37 pm
(130) Carole Kay says:

I have had burning feet since I was a little girl… I remember as a small child going into the bathroom to soak my feet in cold water. I still suffer now and I am 43. I have no idea what the cause is… I used to describe it to my mum as claustrophobic feet as sometimes I would get it when my feet where in socks and boots and I just had to take them off. Even now I avoid wearing closed in shoes with socks in case I start to get symptoms. I like the idea of the socks in cold water… I may try that right now.

July 31, 2012 at 12:23 pm
(131) Rebecca says:

I have been using a product called a Chillow at night. I leave it at the foot of the bed under the covers and when I get too hot, I just lay my feet on it and it cools me down. The Chillow is filled with water and seems to absorb a lot of heat. You can buy on the internet. I also have a couple of other thinner cooling mats that I got at Walgreens. I keep them under my pillow and pull them out when I get hot and lay them under my torso. I rotate them if I wake up and I am still too hot. I have been sleeping much better lately.

August 18, 2012 at 2:13 am
(132) Nabil Dajani says:

I experience heat under my feet especially when playing tennis. I am 75 years old . with kidney transplant , and poor blood circulaiton in my legs.

Any one experienced this pain? Any Suggestions.

August 18, 2012 at 2:13 am
(133) Nabil Dajani says:

I experience heat under my feet especially when playing tennis. I am 75 years old . with kidney transplant , and poor blood circulaiton in my legs.

Any one experienced this pain? Any Suggestions.

August 19, 2012 at 12:45 pm
(134) Pamela says:

I have been diagnosed with MS for 12 yrs now and for about 10 yrs had this problem, Menopause etc all ruled out. My whole body would feel like I was in a sauna,But since December my feet and hands have gone the other way and now are constantly cold. No matter what I do they will not feel warm and ofcourse this is worse at night. I also have RLS and have been prescribed Sifrol tablets to control this, has worked for a while but have noticed pain and crazy feelings in my legs are getting worse. Another trip to the dr,

August 26, 2012 at 10:27 am
(135) shawnah reece says:

Wow! This describes exactily what i am going threw. Ayear ago I was about to take a test i studied for 4 years until i woke up and could not get out of bed. I have not worked a day since. Being that research is my focus, i have came to the conclusion that 100% of my sympotoms lead to MS but the drs are dragging theri feet i have had a mri of the brain only and they saidit was normal. I went 9 months with nothing to help relieve my pain. When a dr went “out of the bx” and perscribledneaurontin I finally have a little relief. for 4 months I got better and saw relief of a different symptom everyweek. But when i was exposed to the heat for a very long time i again “brke down” it was not as sever as the first and only lsted 1 month. Hot feet is somehting i deal with everyday. I love to wear boots and ride horses but this is not anoption anymore. I an only wear flip flops. I used to love to shop now its a mad dash if even possibe just to get groceries for one day. I cannot put my feet under the blankets due to the heat, and my husband has to sleep on the couch many nights becaue he says the heat fills the room and he cant stand it. I feel so alone and the drs sometimes make me feel stupid. I have refused pain meds for thesimple fact i want to be taken seriously. I wasnt a diagnosis not a bandaid! My life has stopped completly my children have been effected my marriage everything. and he drs say nothing…I just was perscribed effexor but still i want a diagnosis…what does is mean when the brain is normal yet 4 years ago i wa diagnossed with partial complex seisures???even they were misdiagnosed for 2 years. they said TIA’S but now its seisures???even this type of seisure is linked to MS.

does or Has anyone else had this frustrating problem? What should I do? I do not have insurance because Icant work. I am on county coverage in houston texas but still nothing????

Help!!!!!!

August 27, 2012 at 8:55 pm
(136) Mary says:

Yes, I have the burning sensation with severe pinching/pins and needles. Massaging my feet helps somewhat but mainly I just have to let it pass. And, how about this? Sometimes in cold weather I notice one foot is warm and the other is cold. They also get very red sometimes, hot or cold.

September 1, 2012 at 2:47 am
(137) LAM says:

I get hot feet and hot hands, it can happen at any given time, day or night. The palms of my hands turn beet red when this happens. If I’m wearing socks and/or shoes when it happens to my feet, it feels like my feet are suffocating so to speak.

September 8, 2012 at 10:38 pm
(138) Lois says:

YES!!! I have had the feet on fire syndrome!! It got to the point I would put ice packs in pillow cases and sleep on them- did this for a year. My insurance thru my hubbie had changed to a HMO and the new neuro had little MS experience and told my disability company I must be diabetic since MS does not cause pain. I had him test me, told him he was full of it and now have a really good neuro. She put me on Lyrica for it and that really helped.

September 27, 2012 at 11:20 pm
(139) jessica says:

Hi Hun….I actually get reallllyy cold feet they feel like ice its nuts. And I’m always hot I cant stand it does anyone get this??

September 30, 2012 at 2:57 am
(140) Sh-A says:

I suffer with hot feet too, particularly at night.

October 16, 2012 at 1:32 pm
(141) Carol says:

wow! I am in the process of being diagnosed for dizziness, tremors and a few other things. Recently saw a neurologist for the first time, and had an MRI this morning to rule out a brain tumor, even tho I have over 3/4 of the MS symptoms and have had them for years.
My feet do the same thing, I cant believe its a “symptom” and I’m not just crazy or hormonal! So here’s what I discovered works very well for hot feet. Slather on Noxema, cover with a sheet only, point a fan at your feet on high and tada….coolness :) There are times when I have had to stand in a cold tub of water….especially after eating Chinese, before the Noxema. Hope this helps some of you!

October 25, 2012 at 10:32 pm
(142) jacqueline hirsch says:

I use capsacin on the bottoms of my feet to relieve this sensation.

November 16, 2012 at 2:17 pm
(143) Tom says:

I have used the Cold Frezzer pacs you can buy at the stores. I simple put my barefoot down on one { i use 10 to 15 minute intervals} and the HOT sensation in my Foot goes away and usually stays away.

December 24, 2012 at 2:48 am
(144) Nyanisi says:

Indeed, you’re not alone. I suffer from the same hot feet syndrome and the only way to get it better is to apply tiger bum. I sleep like a child.

January 4, 2013 at 12:48 pm
(145) Greg says:

Hot/Cold feet suffers you’re not alone, I’m with you. A few years back my feet tingled and the toes felt cold all the time, day and night. I wore socks to bed that helped a little. I found using an electric blanket worked the best. Until about a year ago, now my toes feel cold but to the touch they are warm or hot and hurt when the bed sheets touch them. What helps is to put on socks or turn up the heating blanket. I’ve asked my Doctor, he said he does not know why I have this sensation in my toes.

January 26, 2013 at 4:48 pm
(146) Crystal says:

At night I am the exact way…but mine is all year..mainly at night &quite often..I said to my husband it feels like I walked on hot sand barefoot!!! I’m not on any medications due to also having zero insurance… So I know it’s truly MS. Isn’t it called dysethesia??? I also get this burning in backs of arms & legs…whole feet or just a few toes.

January 30, 2013 at 12:24 am
(147) Carla Layton says:

I have the feet burning issue, I believe I’ve had it as long as I can remember. I also have the feet burning even worse when I’ve had tight shoes on for a while, exspeicialy the warmer or sunnier the weather..

February 11, 2013 at 5:55 pm
(148) Ray says:

I am now in my sixties and have suffered with Hot Foot for many years, probably three or four night a week at any time of year. My first recourse is to put just my feet outside the duvet. Most time this works but when it doesn’t I use a hard to find spray, a very cold spray made just for that purpose. It is called Daktarin Aktiv ice cooling spray. It is made by McNeil of Loudwater HP10 9UF

February 18, 2013 at 6:40 am
(149) Jess says:

Every single night since I could remember my feet have always been hot. My friends just thought I was really weird because of it when I was younger but they understood after a while. I’ve always slept with my feet out from under the covers and have a fan blasting. I recently started using gold bond lotion the cooling kind with aloe every night before bed. Last night it got so bad I wet a hand towel and put them over my feet so when the fan hit them it cooled. That worked really well, I was actually able to fall asleep! Try it :)

March 19, 2013 at 5:18 pm
(150) Michael L says:

My feet get so hot when I am working. I have to go outside and stand on cold cement. Please help

March 24, 2013 at 5:15 pm
(151) ladybird says:

Hi I’m so glad I have read yr story. I started with a cold patch on my legs at the side 6yrs ago my heels started to burn and ache and I was getting cold shivers now and again I had a nerve conducting test and the doc said it was nerve damage.now the cold and tingling I feel all over my body cold mainly have to we’re leggings in doors back of my legs are cold.carnt bear my jeans next to my skin because everything feels cold and damp n my legs.now my knees ache off at the back of my legs.I also have to hang my feet out of bed at night because thay are so hot but then that get cold very quick and when I get up in the morning after about. half an hour my body starts to feel cold. doctor dissent give me anything for my aches only folic acid I’m so fed up with it. wish I new wot it was I have x

April 1, 2013 at 11:57 am
(152) carol says:

my feet get so hot that I cant sleep I hav a towel in the freezer at all times I wrap them in the towel to get some relief

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May 22, 2013 at 11:24 am
(159) Robin says:

I have had cold hands and feet for years. Since I can remember I have slept with socks on until my MS less than 2 years ago. Now my feet burn up. I can’t stand the feel of socks on even on the coldest night. My hands and feet still turn very cold to the touch but then turn very hot to me however are not hot to the touch. Just another strange MS symptom!

May 22, 2013 at 11:31 am
(160) shannon says:

I was recently at an MS walk, and while I was walking I was talking to a lady that was also walking, but for her daughter. She was telling me about how after being diagnosed with MS her daughter was also diagnosed with fibromialgia and something else I can’t quite remember the name of that made her feel like there was water in her foot when she walked.. But she mentioned to me that the burning in her feet she experienced (like they were on fire) was in fact fibromialgia.. Sometimes MS and that come hand in hand actually.

May 22, 2013 at 1:12 pm
(161) oSandi says:

I’m not affected by warmer weather. Cold toes always keep me wishing for warmth. My toes can feel like they are literally frozen. They don’t look white or blue and they don’t necessarily feel cold to the touch. It doesn’t even necessarily coincide with the air temperature. It comes and goes for weeks at a time. I’ve had MS for 23+ years.

May 25, 2013 at 11:44 pm
(162) Velma Miller says:

Hi Julie,
Ever since I was about 10 years old I was accused of wearing red sox. My feet and legs have suffered so much. I share the feeling of hot, burning feet and legs, a light sheet will send me screaming in pain.
I keep a blanket rib over my bed and keep my sheet over it where it does not touch my skin at all. While I still have to deal with the under sheet, I sometimes use a rolled blanket to keep my feet in the air some, but not touching anything.
Someone mentioned medication and being over medicated. I have had to give up all medications because they had me on 31 pills a day but could not tell me what was going on in my body.
I still suffer, but I can tell you that having a clear head and knowing some action to take far exceeds the alternative to taking so much medicine you do not know what you are taking it for.

June 11, 2013 at 12:42 pm
(163) Jennifer says:

I have this not so much with my feet, but my legs. I have had this for years and did not associate it with my MS until recently, when telling my mom about it and she thought it was weird. Since I am peri-menopausal, sometime it is hard to tell what is causing it. I see my dr. tomorrow and intend on asking him about it.

June 16, 2013 at 5:43 am
(164) Lisa says:

I get that burning pain in my feet also. I got diagnosed with MS this year. I wondered if it was MS & it appears it is.

June 23, 2013 at 1:34 pm
(165) trev says:

please did any one know the condition of this shhit !

July 3, 2013 at 7:36 pm
(166) Shashi says:

I get uncomfortable feet at night too. Not sure they are burning, but definitely uncomfortable. I rub my feet and legs with a lovely lavendar lotion, and for some reason that helps. Try it!

July 9, 2013 at 1:32 am
(167) Patricia says:

I am 28 years old and am just going for further testing at a neurologist for MS! Today was my first feeling of “my feet being on fire” it’s not a nice feeling at all. :(

July 11, 2013 at 5:26 am
(168) flor says:

Burning feet for 5 months. 4 times seeing my doctor and take different medicines every check up but getting worst. Before, i felt it in my right foot only. now both feet and sometimes , feel it over my whole body. Gabix, ketologgs,Ciprofloxacin and many more. Can this be side effects of a prescibed medicines or Medicine plus food supplements equals burning?

July 16, 2013 at 4:28 am
(169) Shirin says:

hi
i have the same problem but a few people told me its lack of vitamin B12, i have not tried it but i will .. but you have to ask your dr. how much you should have because too much of Vit b12 also is not healthy.

July 18, 2013 at 4:39 pm
(170) Anurag says:

My feet also burns and is happening since a week but i fall asleep immediately because i get tired by exercises and daily post dinner walk for half hour

July 19, 2013 at 7:54 am
(171) Ali says:

My both legs always feel very hot. At night for sleep using wet cloth under my feet. Thanks.

August 4, 2013 at 8:54 pm
(172) karmen says:

Ive suffered with hot feet since 1981 my cure has always been tons of suave lotion n out of the covers, its more ritualistic now, I have chiari and ms and so many more issues but thise are the major ones to me

August 5, 2013 at 4:45 pm
(173) linda says:

I am in a wheelchair now for 4 years due to MS I have hot burning right foot when wearing shoes it feels like its going to explode out of my shoes ,I have to get them off and put them up and put ice on them.Can not seem to make it through the day without this feeling,
makes it hard to do anything if I want to spend the day out.PLEASE any suggestions..

August 11, 2013 at 12:01 pm
(174) M Shahid says:

Hi
I am with you. I am experiencing the same problem since Last year November. Initially I didn’t take it seriously but with the passage of time it got my attention as I was unable to sleep all night so you could imagine if you have restless night how can you work in the morning? I went to see my doctor and he suggested couple of blood tests and i was scared to see the results that I have high level of cholesterol even in the age of 29. LDL was high that is more serious than HDL type of cholesterol. since then I am using more vegetables, salads, olive oil and avoid red meet and animal fat (saturated fat). I hope this can help to understand your problem. you must go to see your doctor as soon as possible. But I do feel that prevention is the best stuff than using medicine and become addicted of it.

August 14, 2013 at 12:03 pm
(175) Laurie says:

I spend every single night with my legs and feet feeling very warm and horrible pain like my legs and feet have lightning running threw . I am at the point where I don’t want to lay down. It is a daily battle

August 14, 2013 at 12:26 pm
(176) Christine says:

Yes! That has happened to me for years. Hard to explain to someone who isn’t having it but it really does feel like the bottom of your foot is on fire. I do put my feet out of the covers but on occasion have resorted to putting them in cold water. It does seem to help.

August 14, 2013 at 12:50 pm
(177) Jan says:

Have you heard of Erythromelalgia? EM is different than, but similar to, other conditions with some similar symptoms. The US “EM guru” is at the Mayo Clinic-MN, though they have yet to list EM on their website.. Mine is present 24/7, but often worse at night. Google http://www.burningfeet.org, which will flip you to the TEA URL to learn more. I have never taken MS meds (8 years into this), nor do I plan to. There are some topical helps for EM, such as Lidocaine patches (prescription) and, as I’ve recently discovered on my own, clear aloe vera, over-the-counter, from a pump. Placing one’s feet into ice water is NOT recommended.

August 14, 2013 at 1:01 pm
(178) Susan Wood says:

I also had this at one point, but I didn’t just experience it just at night. During the day my feet felt like they were burning and it was painful to walk on them. I used a cane for a while, and that helped a bit. Eventually, it just went away. At the time, I had a neurologist who scoffed at everything, even telling me that people with MS didn’t usually experience pain! Needless to say, I didn’t bother mentioning it to him. (I have a great, young neuro now!)

August 14, 2013 at 1:21 pm
(179) Ellen says:

I had hot feet for years (at night only) before being diagnosed with MS and finding out the cause. I get temporary relief from rubbing the soles of my feet with hand sanitizer gel. I started out with aloe vera gel but found that hand sanitizer cools them better, usually long enough for me to fall back to sleep. This is along the same lines as the person who uses rubbing alcohol.

August 14, 2013 at 2:45 pm
(180) Faye says:

I will get up and put Vicks Vapor rub on the bottoms of my feet, then a pair of socks. If during the day, I’ll stick my feet in really warm water and /or cold water. I’ve had ms for 26 years+ and these were suggestions others have made that work for me. Good luck. Faye

August 14, 2013 at 3:31 pm
(181) Joyce says:

I’m lucky as we have air conditioning and I stick my feet out of bed and let the a/c blow on my legs but it’s a case of, in out, in out!

August 14, 2013 at 4:06 pm
(182) Dawn Smith says:

I have been getting woken up with very sore hips, legs, burning heels and very stiff, sore fingers for a few months now, but keep getting told it’s not the M.S., when I know it is. It wakes me up, even though I take Diazepam to help me sleep and I also use Morphine patches. So I take it, this is definitely the M.S.?

August 14, 2013 at 4:19 pm
(183) Cathy says:

I have absolutely freezing cold feet. Someone said Argininne? (sp?) What is that and what does it do. I will have to look it up. Some nights I wake up frozen to the bone in the midst of summer. Then I start to sweat after awhile. Any explanations? Will have to research this.

August 14, 2013 at 4:22 pm
(184) David D says:

This is one of my worst symptoms (that & fatigue, dizziness, and weakness). My feet sometimes feel as if they are so swollen and painful that I can’t do anything except hang them off the end of the bed or my recliner (which I bought specifically for this reason).

I am a teacher and during the first month of school I often come home and put my feet in a bucket of ice just to give myself some relief. It is impossible to explain to non-MS people what it is like. My feet run the gamut from intense dull ache to absolutely burning. Nothing helps, nothing causes it. It just comes and goes.

August 14, 2013 at 6:19 pm
(185) Velma Miller says:

Boy oh boy, sounds like you have been walking through my house on a good day. I have suffered from the hot burning feet for many years, sometimes wrapping them in a light sheet will at least make the tingling go away.
I have a box at the foot of my bed and padding inside the box, but my sheets and blankets go over the box, leaving my feet unobstructed. This helps, and I sometimes use ice in the hot water bottle under some of the padding.
I have more to deal with than mose because I am in a wheelchair due to a bone disease and any time I can get my legs to behave is a Heaven Sent Day. :-)

August 14, 2013 at 7:16 pm
(186) Douglas Winslow Cooper says:

I had the hot feet syndrome, which my doctor alleviated by prescribing Gabapentine [Neurontin] for bedtime.

However, I do not have MS. My wife does.

Message: this symptom has other causes, sometimes.

August 14, 2013 at 9:44 pm
(187) Gail says:

I have had burning pain in my feet and legs for a few years now. And it bothers me most at night. All I can say is thank God for my muscle relaxes,Elavil, and ambian which I take in evening. You are not alone. I feel bad for anyone who has this burning pain. Try putting an ice pack on your feet. Sometimes it helps.I have talked to my ms dr but he says nothing. All he says is that there’s nothing more he can do.I wish you luck with yet another bad ms symptom.

August 15, 2013 at 9:32 am
(188) Karen says:

I have had this burning in my feet for about 2 years before MS dx. Mostly at night but sometimes when just relaxing. I found that along with feet off the edge of the bed, the YOGA toe separaters seemed to help. Recently I tried 1 dose of gabipentin before bed (because i couldnt take it!) and that seemed to take away the burning for several days! The. Urning comes and goes.

August 15, 2013 at 11:26 am
(189) tessa says:

for amy,
your not alone on the all over hot burning. and its not hormone related as far as I can tell. if happens only at night, usually after I have been asleep for an hour or two. my partner even feels me and says I’m hot. but I don’t sweat.
the burning is most intense in my joints and radiates. feels a lot like a flu.
but I am on no MS dmods of any kind and have not been for the last 4 years. I am much happier since I quit them.
I am also more healthy.
I was diagnosed in 2001. good luck

August 17, 2013 at 5:27 pm
(190) janice says:

I have this and some times in the day, but usually at night. I have found that if I get my feet cool, taking my shoes off, etc an hour or so before bed, it helps. I also sleep with it pretty cool in the house, and if I wake hot, I get up and turn on the ceiling fan, my long suffering husb has taken to wearing more clothes to bed. I also have resorted to wearing cheap tennis shoes during the day, they are the thinnest canvas and thinnest soles, coolest and the easiest to feel the floor when walking, my dress shoes are black with black soles and laces, hard to find, I am on second pair. in the winter I wear fisherman sandal shoes which have a lot of air being let in to the top. I used to wear sandals all the time, but I drag one of my feet enough to get the toe caught of sandals , and have had to go to closed toe shoes, I also have worn keen sandals that have a toe.

August 18, 2013 at 9:42 am
(191) Leighla says:

I have had a diagnosis of MS for 30 years. Whe I get hot feet which is more oftern in the summer I soak my feet in a bucket of cool water which I often add something……epsom salts sometimes bath salts other times and I find that the cool water brings cooler feet and a better sleep

August 18, 2013 at 1:18 pm
(192) Leighla says:

I have had MS for over 30 years and when I
get hot feet which is often especially in summer I soak them in a cool bucket of water before going to bed.

August 29, 2013 at 2:25 am
(193) Sandy says:

I have lupus and I too have the burning feet! I also sometimes get this simultaniously in my hands and lips and elbows . But the worst burn is in my feet. They become bright red on my toes and soles of my feet. The thing that no one has mentioned that happens to me is after the burning and redness has subsided, I have this ashy callous like area where it was burning the most. Just weird. I’ve noticed that this all comes on after a over did it kind of day or after a stressful day. This almost always brings on some sort of flare.

October 11, 2013 at 12:10 am
(194) Donna says:

I have cold feet for 3 days with tingling feeling that goes up to my thighs. There is pain also like very cold feet like if they were immersed in cold cold water. In 3 days the cold will go away and my feet become warm again and this repeated consistently and has been my problem for at least 7 years. The tingling will continue when they are warm. I need help! This is a very awful thing to live with especially when doctors do not have an answer. Does anyone out there know about this?

November 15, 2013 at 8:13 pm
(195) Angie says:

Wow and I was thinking it was one of my crazier moments lol … Not my feet but my right hand ! I woke up with this a few years ago and it only happened one time but the feeling was as if someone poured gas on my entire hand at the wrist and set it on fire ! It went on all day I went to the ER cause I have not been DX yet or still … fighting now although 4 Doctors have said yes more then likely and I share many ,many MS sx but at the ER they gave me high doses of steroids and after a few days it went away.It was horrible pain ! Thank God it never happened again! Thats one of many weird things that happen to me I’d almost rather not say to anyone for fear they just might think I’m well …. Oh and the Cold feet and hands yep thats an everyday ongoing problem for years now and I don’t just mean yeah there cold I MEAN they feel like ICE CUBES to the point of going numb !

December 7, 2013 at 8:59 am
(196) theresa says:

I have recently experienced the “hot soles” I was standing in walmart and for no reason the bottom of my left foot got so hot..and it waant because of a food or allergy..I hope its not diabetes! I would like to know why this happens..I recently had been diagnosed with ovarian cancer and had a complete hysterectomy…not sure if that has anything to do with it?..maybe hormones? I know one thing im not losing my mind! This feet heat is really happening..

December 23, 2013 at 4:09 am
(197) Fasting blood sugar Orthomol Metabol says:

diabetic ulcer orthomol Diabet All about one and so it is infinite

January 21, 2014 at 9:58 pm
(198) judith says:

dear i feel the same hotness in my feet every day that has me under alot of stresss going crazy with this hotness of my feet .. im so worry with this situation . i think is my car or a equipment i use at my job…im im about to go on Disability to see if my feet gets better..please help me soon!!!! anybody knows whats good for my feets help!!!!!

February 25, 2014 at 7:58 pm
(199) Phil Gilmore says:

Re “-hot feet”…I vote YES! And my docs agree it is explained simply by the manifestations of NEUROPATHY and the many-many ways it rears its head (daily) with me. I dont know if you will print the following but….3-gms/qd of ACETYL-’L-CARNITINE does a great job for my ‘feet issues’. Contact me for more info. It has to do with UPREGULATING the impaired neuronal votage-gating dynamic so typical in MS individuals. I am a retired 67yr-old male in his 23rd year of living-with-and-fighting MS.En guarde!

February 25, 2014 at 11:41 pm
(200) Brenda says:

Well…I’m relieved and sorry at the same time…relieved I’m not alone…sorry it’s so many of us.

February 25, 2014 at 11:46 pm
(201) Marilyn says:

Yes! I have that alot, especially if it is hot outside. I will hang my foot/feet out of the covers, but if it is really bad, I put my feet is ice cold water in the bath tub for a few minutes….it usually calms them down. At the point of having to put them in the tub, I have tossed and turned for an hour of so. Thought I was alone on this MS symptom.

February 26, 2014 at 8:28 pm
(202) Isabel says:

I hang mine over a pillow so the heels are not touching the matress. Can’t just leave them out because they also cramp when they get too cold, but if can keep the heels cool, I can actually sleep.
Also – just found a cool gel matt (supposedly for dogs but .. !) that I can put on my chair to take the heat out of my body (with a little one for my heels). Amazing how quickly it gets warm, but I feel heaps better, so I have 2. They cool off very fast too, and don’t require a fridge or freezer.

April 5, 2014 at 1:28 pm
(203) shell says:

In not a m.s suffer so my doc say,s but my feet at night have bothered me for years i find a quick solution is to gently scrap away at the ball of my right foot try it, it gives you relief for a week.

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